Guest guest Posted March 31, 2007 Report Share Posted March 31, 2007 A general comment about DAN! doctors. In order to become a " DAN! " doctor a physician need only attend the professional training at a DAN! conference. There is no competence test given -- there is no " board certification " process. In other words, you can have crummy DAN! doctors or great ones and all flavors in between, reflecting the spectrum of all doctors out there. Parents/patients still need to do " due diligence " in selecting a caregiver. Dr. Yasko has her style of practice and if you don't care for it, you can " vote with your feet " and find one that does -- although granted not always an easy find. Lenny > > > Friends, > We know some in the community consider using Dr. Yasko when DAN! > doesn't work for their child; Many of us are awed by her intellect yet wary > of her previous associations. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 Not sure what the benefit of a public gripe being your first comment about Dr. Yasko might be. To Lenny's point, vote with your feet. Dr. Yasko has her way, many of us are very happy with it, and if her approach doesn't meet your subjective standards, don't use her, she's already busy enough. JB > > > > > > Friends, > > We know some in the community consider using Dr. Yasko when DAN! > > doesn't work for their child; Many of us are awed by her intellect > yet wary > > of her previous associations. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 It has nothing to do with personal griping.... It's because she is one of the good guys that I want our pediatricians to listen to her, and one of the major questions I am getting from pediatricians is "What labs are the people testing your children using?" We are trying to educate our pediatricians and insurance providers on awareness, diagnosis, proper testing, and what the results of those tests mean for our children, and they want to know what labs we are using. They have specifically asked me, as I make the rounds advocating for interventions, 'What labs are being used?" That's why it's improtant, JB, because we need to educate the pediatricians, they need this information, they need to know the validity of the work, and we should have acces to it. Suzanne From: EOHarm [mailto:EOHarm ] On Behalf Of bradfordhandleySent: Saturday, March 31, 2007 6:13 PMEOHarm Subject: Re: OT: Dr. Yasko Not sure what the benefit of a public gripe being your first comment about Dr. Yasko might be. To Lenny's point, vote with your feet. Dr. Yasko has her way, many of us are very happy with it, and if her approach doesn't meet your subjective standards, don't use her, she's already busy enough.JB--- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 Another point to take home, bringing laundry out to air, does hurt some of our kids, like every child in New York that used her services. Parents in New York now can no longer avail themselves of her testing, good bad or indifferent, let us decide our selves what works for our kids. this nonsense has made our lives way more difficult that it needed to be, and every other kid that lives in New York. Don't like her methods use someone else. > > > > > > > > > Friends, > > > We know some in the community consider using Dr. Yasko > when DAN! > > > doesn't work for their child; Many of us are awed by her > intellect > > yet wary > > > of her previous associations. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 Suzanne, I think your post said some really positive things about Dr. Yasko. Except I don't get the part apart her prior associations. You stated a concern with how they handle labs- fine thanks for sharing. I don't know or use Dr. Yasko so I personally couldn't care less. However, I am really getting tired of adults telling other adults what they should and shouldn't say here. Please people it seems like everyday we have somebody hand smacking somebody else for something. These are opinions and experiences we are sharing here, we all have them and they all aren't the same. Deal with it. > > > > Not sure what the benefit of a public gripe being your first > comment > > about Dr. Yasko might be. To Lenny's point, vote with your feet. > Dr. > > Yasko has her way, many of us are very happy with it, and if her > > approach doesn't meet your subjective standards, don't use her, > > she's already busy enough. > > > > JB > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 A good thing to do in that situation is to get some type of confirmation of the results. We have confirmed my son's testing results using separate laboratory and found an excellent level of agreement with the lab that Yasko uses (specifically for genetics). It was more expensive to use both sources, but in the end, the peace of mind we got was priceless. For lab tests outside of genetics, Yasko's office has been very candid about the providers she is using. It is ALWAYS good to get independent confirmation on your laboratory results. These laboratories are not infallible (regardless of the endorsements, pedigrees, etc.) AND there are too many confounds that could screw up results without the laboratory being at fault (e.g., time of day that the sample was drawn, a hidden flu bug that could skew enzymes/immune response, dietary idiosyncracies, etc.). Our providers are human, just like us and can make mistakes. Fortunately, Dr. Yasko is rather candid about what she can and can't do and (unlike a lot of physicians) has a good grasp on her own " humanity " . That, in it of itself, is extremely refreshing. > > > Friends, > We know some in the community consider using Dr. Yasko when DAN! > doesn't work for their child; Many of us are awed by her intellect yet wary > of her previous associations. > > As a parent, and an advocate from REAACH, I looked at her site. I then > called, and asked some questions. > . I was told by one of the people who handles the ordering of the tests, > that the name of the lab used is not given out. I was absolutley floored. > My words were something like > 'Do you not realize how withholding the name of the lab you use > invalidates, or at the very least, cmpromises your credibility with so many > professionals, and makes working with our mainstream pediatricians that > much more difficult? > > I found a representative from the site and left a message on this subjct. > His reply is below. > I find his answer weak and lacking substance. Every lab has to deal with > these issues, and has protocols in place to do so. To ask parents to > blindly have faith in labs we know nothing about** borders on irresponsible > medicine; the sad part is that many of us believe, want to believe, that > Dr. Yasko is a merciful and brilliant woman, trying to help. The > methodology and delivery makes it almost impossible for some of us to do > that. Comments, advice suggestions are welcome, > > Suzanne Messina REAACH > ( **except their statement that the lab is CLIA certified, but how do we > know except for their saying so?) ---- > > solvethepuzzle@... > Subject: Answering your concerns > > , > Concerning the lab that we use: I must say that from our experiences > working with our labs in the past, when we give out their contact > information to thousands of people, nothing good comes from it. > The lab gets bombarded with phone calls of concerns, people who dont > understand the results, people looking for their results, people who are > afraid they did the collection process wrong, etc. We have even had crying > mothers call pleading for their child´s results. It becomes a mess, and the > labs usually are not pleased, as they have a job to do. We are here as the > shoulder to cry on and to answer these questions. The lab we use is neither > set up nor trained for this in any way. I can say that they are a > legitimate laboratory who is CLIA certified. > > I am sorry for your expressed frustration but I hope you can understand > that we are trying to help thousands of sick children and this outweighs the > concerns of a handful of doctors that do not understand her protocol. > > I wish you the very best on you and your child´s path to recovery, Please > let me know if I can be of further assistance, > > > Director of Operations > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 A good thing to do in that situation is to get some type of confirmation of the results. We have confirmed my son's testing results using separate laboratory and found an excellent level of agreement with the lab that Yasko uses (specifically for genetics). It was more expensive to use both sources, but in the end, the peace of mind we got was priceless. For lab tests outside of genetics, Yasko's office has been very candid about the providers she is using. It is ALWAYS good to get independent confirmation on your laboratory results. These laboratories are not infallible (regardless of the endorsements, pedigrees, etc.) AND there are too many confounds that could screw up results without the laboratory being at fault (e.g., time of day that the sample was drawn, a hidden flu bug that could skew enzymes/immune response, dietary idiosyncracies, etc.). Our providers are human, just like us and can make mistakes. Fortunately, Dr. Yasko is rather candid about what she can and can't do and (unlike a lot of physicians) has a good grasp on her own " humanity " . That, in it of itself, is extremely refreshing. > > > Friends, > We know some in the community consider using Dr. Yasko when DAN! > doesn't work for their child; Many of us are awed by her intellect yet wary > of her previous associations. > > As a parent, and an advocate from REAACH, I looked at her site. I then > called, and asked some questions. > . I was told by one of the people who handles the ordering of the tests, > that the name of the lab used is not given out. I was absolutley floored. > My words were something like > 'Do you not realize how withholding the name of the lab you use > invalidates, or at the very least, cmpromises your credibility with so many > professionals, and makes working with our mainstream pediatricians that > much more difficult? > > I found a representative from the site and left a message on this subjct. > His reply is below. > I find his answer weak and lacking substance. Every lab has to deal with > these issues, and has protocols in place to do so. To ask parents to > blindly have faith in labs we know nothing about** borders on irresponsible > medicine; the sad part is that many of us believe, want to believe, that > Dr. Yasko is a merciful and brilliant woman, trying to help. The > methodology and delivery makes it almost impossible for some of us to do > that. Comments, advice suggestions are welcome, > > Suzanne Messina REAACH > ( **except their statement that the lab is CLIA certified, but how do we > know except for their saying so?) ---- > > solvethepuzzle@... > Subject: Answering your concerns > > , > Concerning the lab that we use: I must say that from our experiences > working with our labs in the past, when we give out their contact > information to thousands of people, nothing good comes from it. > The lab gets bombarded with phone calls of concerns, people who dont > understand the results, people looking for their results, people who are > afraid they did the collection process wrong, etc. We have even had crying > mothers call pleading for their child´s results. It becomes a mess, and the > labs usually are not pleased, as they have a job to do. We are here as the > shoulder to cry on and to answer these questions. The lab we use is neither > set up nor trained for this in any way. I can say that they are a > legitimate laboratory who is CLIA certified. > > I am sorry for your expressed frustration but I hope you can understand > that we are trying to help thousands of sick children and this outweighs the > concerns of a handful of doctors that do not understand her protocol. > > I wish you the very best on you and your child´s path to recovery, Please > let me know if I can be of further assistance, > > > Director of Operations > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 For those of you that use Dr. Yasko, do you all just use the web-based service or do you actually go and see her in person? Just curious. I am pretty much in her backyard, she is only 45 minutes away from me here in Maine. I’ve wanted to find out more but last I knew the wait list was years long. My son is in good shape, but I do wonder if there is something we may be missing. Becky Our providers are human, just like us and can make mistakes. Fortunately, Dr. Yasko is rather candid about what she can and can't do and (unlike a lot of physicians) has a good grasp on her own " humanity " . That, in it of itself, is extremely refreshing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 Web and correspondences only for me... > > For those of you that use Dr. Yasko, do you all just use the web- based > service or do you actually go and see her in person? > > > > Just curious. I am pretty much in her backyard, she is only 45 minutes > away from me here in Maine. I've wanted to find out more but last I knew > the wait list was years long. My son is in good shape, but I do wonder > if there is something we may be missing. > > > > Becky > > Our providers are human, just like us and can make mistakes. > Fortunately, Dr. Yasko is rather candid about what she can and can't > do and (unlike a lot of physicians) has a good grasp on her > own " humanity " . That, in it of itself, is extremely refreshing. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 I don't understand. What happened in New York? In general, I don't understand why there can't be honest communication, including criticism, of our experiences with health care providers. I for one ESPECIALLY want to hear about anything negative; it is by hearing only good about vaccines and traditional medicine that many us find ourselves in the mess we are in now. I asked my DAN, one of the top ones, about Yasko, and he was very disappointed with her secretiveness about certain issues, thought her program was extremely expensive and was not advocating use of her protocols until more information was known about her methods and thinking. I posted this info on a board (without identifying my DAN) because this is the type of info I myself find useful in evaluating whether to proceed down a certain path. I was scolded so forcefully by the moderator I thought I'd be kicked off the board. Why? If we're only allowed to say good things about DAN, isn't that equivalent to only being allowed to say good things about mainstream medicine and physicians? Sharing negative as well as positive experiences doesn't invalidate or denigrate the whole DAN movement. It enables parents with precious little time for " due diligence " to make the best choices, and actually adds credibility to our voices in that we're not seen as desperados blindly buying anything served up by DAN or other providers in the biomed community. > > > > > > > > > > > > Friends, > > > > We know some in the community consider using Dr. Yasko > > when DAN! > > > > doesn't work for their child; Many of us are awed by her > > intellect > > > yet wary > > > > of her previous associations. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 I don't use Dr. Yasko but have a friend that does. She is using the web-based service and is happy with it. Becky Grant-Widen <bgrantwiden@...> wrote: For those of you that use Dr. Yasko, do you all just use the web-based service or do you actually go and see her in person? Just curious. I am pretty much in her backyard, she is only 45 minutes away from me here in Maine. I’ve wanted to find out more but last I knew the wait list was years long. My son is in good shape, but I do wonder if there is something we may be missing. Becky Our providers are human, just like us and can make mistakes. Fortunately, Dr. Yasko is rather candid about what she can and can't do and (unlike a lot of physicians) has a good grasp on her own "humanity". That, in it of itself, is extremely refreshing. Need Mail bonding?Go to the Q&A for great tips from Answers users. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 I was told the same thing by a Dan when I asked about a protocol of hers. Maybe that is how she is viewed by her collegues, or maybe they are just jealous. Who knows, but it is interesting we were both told the same thing. So, if she is so wonderful and helping so many kids, why would she not share her ideas and explain her findings to other DAN practioners, so more children can benefit from her knowledge? Thank God people like Bernie Rimland, Dr. Sid Baker, Dr. S. Cave, Dr, Bradstreet, Dr. McCandless and others didn't keep their knowledge to themselves. > > > I don't understand. What happened in New York? > > In general, I don't understand why there can't be honest > communication, including criticism, of our experiences with health > care providers. I for one ESPECIALLY want to hear about anything > negative; it is by hearing only good about vaccines and traditional > medicine that many us find ourselves in the mess we are in now. > > I asked my DAN, one of the top ones, about Yasko, and he was very > disappointed with her secretiveness about certain issues, thought her > program was extremely expensive and was not advocating use of her > protocols until more information was known about her methods and > thinking. I posted this info on a board (without identifying my DAN) > because this is the type of info I myself find useful in evaluating > whether to proceed down a certain path. I was scolded so forcefully > by the moderator I thought I'd be kicked off the board. Why? If > we're only allowed to say good things about DAN, isn't that > equivalent to only being allowed to say good things about mainstream > medicine and physicians? Sharing negative as well as positive > experiences doesn't invalidate or denigrate the whole DAN movement. > It enables parents with precious little time for " due diligence " to > make the best choices, and actually adds credibility to our voices in > that we're not seen as desperados blindly buying anything served up > by DAN or other providers in the biomed community. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 She doesn't keep her knowledge quiet. She'd shared information with other DAN! practitioners and sought them out - Martha Herbert for one. I believe her case load prevents her from DAN! participation at a meaningful level but I understand from my son's DAN! practitioner that her information is being disseminated in the private " boards " for DAN! docs. I agree with you as well, thank God for Sid Baker, Jackie McCandless, Andy Wakefield, Martha Herbert, Bernie Rimland, etc. > > > > > > I don't understand. What happened in New York? > > > > In general, I don't understand why there can't be honest > > communication, including criticism, of our experiences with health > > care providers. I for one ESPECIALLY want to hear about anything > > negative; it is by hearing only good about vaccines and traditional > > medicine that many us find ourselves in the mess we are in now. > > > > I asked my DAN, one of the top ones, about Yasko, and he was very > > disappointed with her secretiveness about certain issues, thought > her > > program was extremely expensive and was not advocating use of her > > protocols until more information was known about her methods and > > thinking. I posted this info on a board (without identifying my > DAN) > > because this is the type of info I myself find useful in evaluating > > whether to proceed down a certain path. I was scolded so > forcefully > > by the moderator I thought I'd be kicked off the board. Why? If > > we're only allowed to say good things about DAN, isn't that > > equivalent to only being allowed to say good things about > mainstream > > medicine and physicians? Sharing negative as well as positive > > experiences doesn't invalidate or denigrate the whole DAN movement. > > It enables parents with precious little time for " due diligence " to > > make the best choices, and actually adds credibility to our voices > in > > that we're not seen as desperados blindly buying anything served up > > by DAN or other providers in the biomed community. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 I also, in no way offer this to squelch any debate on EoH. It's great that these questions come up in order to hear the experience of others. B > > > > > > > > > I don't understand. What happened in New York? > > > > > > In general, I don't understand why there can't be honest > > > communication, including criticism, of our experiences with > health > > > care providers. I for one ESPECIALLY want to hear about > anything > > > negative; it is by hearing only good about vaccines and > traditional > > > medicine that many us find ourselves in the mess we are in now. > > > > > > I asked my DAN, one of the top ones, about Yasko, and he was > very > > > disappointed with her secretiveness about certain issues, > thought > > her > > > program was extremely expensive and was not advocating use of > her > > > protocols until more information was known about her methods and > > > thinking. I posted this info on a board (without identifying my > > DAN) > > > because this is the type of info I myself find useful in > evaluating > > > whether to proceed down a certain path. I was scolded so > > forcefully > > > by the moderator I thought I'd be kicked off the board. Why? > If > > > we're only allowed to say good things about DAN, isn't that > > > equivalent to only being allowed to say good things about > > mainstream > > > medicine and physicians? Sharing negative as well as positive > > > experiences doesn't invalidate or denigrate the whole DAN > movement. > > > It enables parents with precious little time for " due diligence " > to > > > make the best choices, and actually adds credibility to our > voices > > in > > > that we're not seen as desperados blindly buying anything served > up > > > by DAN or other providers in the biomed community. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 Dr. Yasko was invited to DAN! for the FIRST time this year (I know she's trying to make it). She makes all of her protocols available to anyone for free. Any DAN! who tells you she has not been forthcoming is engaged in rumormongering to which their is no substance. Her website is www.holistichealth.com go to the discussion group. > > > > > > > > > > > > I don't understand. What happened in New York? > > > > > > > > In general, I don't understand why there can't be honest > > > > communication, including criticism, of our experiences with > > health > > > > care providers. I for one ESPECIALLY want to hear about > > anything > > > > negative; it is by hearing only good about vaccines and > > traditional > > > > medicine that many us find ourselves in the mess we are in > now. > > > > > > > > I asked my DAN, one of the top ones, about Yasko, and he was > > very > > > > disappointed with her secretiveness about certain issues, > > thought > > > her > > > > program was extremely expensive and was not advocating use of > > her > > > > protocols until more information was known about her methods > and > > > > thinking. I posted this info on a board (without identifying > my > > > DAN) > > > > because this is the type of info I myself find useful in > > evaluating > > > > whether to proceed down a certain path. I was scolded so > > > forcefully > > > > by the moderator I thought I'd be kicked off the board. Why? > > If > > > > we're only allowed to say good things about DAN, isn't that > > > > equivalent to only being allowed to say good things about > > > mainstream > > > > medicine and physicians? Sharing negative as well as positive > > > > experiences doesn't invalidate or denigrate the whole DAN > > movement. > > > > It enables parents with precious little time for " due > diligence " > > to > > > > make the best choices, and actually adds credibility to our > > voices > > > in > > > > that we're not seen as desperados blindly buying anything > served > > up > > > > by DAN or other providers in the biomed community. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 I live in Illinois, and have no idea who this Dr Yasko is, and I can understand where everyones comments and concerns come from. Now having said that, I wonder if people have considered that someone else, or the doctor herself will catch wind of all this, and there may be legal consequenses here. Also, the site may lose members b/c they don't want to be in a site where negative vibes exist, thus not getting the information for their kids, and maybe they then will subsequently come across some new or vital info to help everybody elses kids. Again I don't have an opinion one way or another about this doctor, BUT have seen these very things happen on other Autism web groups, and I can take reading anything positive or negative- but others who are in a more desparate state of mind or are already upset and nervous may find all of this too much to handle. Diane > > > > > > Not sure what the benefit of a public gripe being your first > > comment > > > about Dr. Yasko might be. To Lenny's point, vote with your feet. > > Dr. > > > Yasko has her way, many of us are very happy with it, and if her > > > approach doesn't meet your subjective standards, don't use her, > > > she's already busy enough. > > > > > > JB > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 That is a very good point, especially considering the persecution that alternative practitioners are getting by the allopathic dinosaurs that are unequipped to cure most anything... (Yes, AAP - I mean you!)... > > > > > > > > Not sure what the benefit of a public gripe being your first > > > comment > > > > about Dr. Yasko might be. To Lenny's point, vote with your > feet. > > > Dr. > > > > Yasko has her way, many of us are very happy with it, and if > her > > > > approach doesn't meet your subjective standards, don't use her, > > > > she's already busy enough. > > > > > > > > JB > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 Thanks for the clarification, JB. It is rather tough to " work " into the ranks of DAN! (in a meaningful manner - not just to attend a conference and get on their list)... Also, I believe that DAN! really encompasses many therapeutic approaches, each with their own real or perceived barriers to access. I will add that we are using Dr. Yasko's protocols for our son and having the most success compared to other regimens that we have tried. JB introduced us to her work and I am extremely grateful. I also find that her protocol does blend well with other interventions and that she has deferred to our regular DAN! doc in a very appropriate, professional manner. I really recommend her if you indeed have the time to wade into the protocol with an open mind. > > > > > > > > > > > > > > > I don't understand. What happened in New York? > > > > > > > > > > In general, I don't understand why there can't be honest > > > > > communication, including criticism, of our experiences with > > > health > > > > > care providers. I for one ESPECIALLY want to hear about > > > anything > > > > > negative; it is by hearing only good about vaccines and > > > traditional > > > > > medicine that many us find ourselves in the mess we are in > > now. > > > > > > > > > > I asked my DAN, one of the top ones, about Yasko, and he was > > > very > > > > > disappointed with her secretiveness about certain issues, > > > thought > > > > her > > > > > program was extremely expensive and was not advocating use > of > > > her > > > > > protocols until more information was known about her methods > > and > > > > > thinking. I posted this info on a board (without > identifying > > my > > > > DAN) > > > > > because this is the type of info I myself find useful in > > > evaluating > > > > > whether to proceed down a certain path. I was scolded so > > > > forcefully > > > > > by the moderator I thought I'd be kicked off the board. > Why? > > > If > > > > > we're only allowed to say good things about DAN, isn't that > > > > > equivalent to only being allowed to say good things about > > > > mainstream > > > > > medicine and physicians? Sharing negative as well as > positive > > > > > experiences doesn't invalidate or denigrate the whole DAN > > > movement. > > > > > It enables parents with precious little time for " due > > diligence " > > > to > > > > > make the best choices, and actually adds credibility to our > > > voices > > > > in > > > > > that we're not seen as desperados blindly buying anything > > served > > > up > > > > > by DAN or other providers in the biomed community. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 Also, I believe that you can buy her books very reasonably prior to making the investment for testing. > > > > > > > > > > > > > > > > > > I don't understand. What happened in New York? > > > > > > > > > > > > In general, I don't understand why there can't be honest > > > > > > communication, including criticism, of our experiences > with > > > > health > > > > > > care providers. I for one ESPECIALLY want to hear about > > > > anything > > > > > > negative; it is by hearing only good about vaccines and > > > > traditional > > > > > > medicine that many us find ourselves in the mess we are in > > > now. > > > > > > > > > > > > I asked my DAN, one of the top ones, about Yasko, and he > was > > > > very > > > > > > disappointed with her secretiveness about certain issues, > > > > thought > > > > > her > > > > > > program was extremely expensive and was not advocating use > > of > > > > her > > > > > > protocols until more information was known about her > methods > > > and > > > > > > thinking. I posted this info on a board (without > > identifying > > > my > > > > > DAN) > > > > > > because this is the type of info I myself find useful in > > > > evaluating > > > > > > whether to proceed down a certain path. I was scolded so > > > > > forcefully > > > > > > by the moderator I thought I'd be kicked off the board. > > Why? > > > > If > > > > > > we're only allowed to say good things about DAN, isn't > that > > > > > > equivalent to only being allowed to say good things about > > > > > mainstream > > > > > > medicine and physicians? Sharing negative as well as > > positive > > > > > > experiences doesn't invalidate or denigrate the whole DAN > > > > movement. > > > > > > It enables parents with precious little time for " due > > > diligence " > > > > to > > > > > > make the best choices, and actually adds credibility to > our > > > > voices > > > > > in > > > > > > that we're not seen as desperados blindly buying anything > > > served > > > > up > > > > > > by DAN or other providers in the biomed community. > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 , I googled and found this page: http://www.holisticheal.com/store/home.php?cat=4 The books, however, are not so reasonably priced and there are 6 to choose from. Have a recommendation? From: EOHarm [mailto:EOHarm ] On Behalf Of Hooker Sent: Sunday, April 01, 2007 3:04 PM EOHarm Subject: Re: OT: Dr. Yasko Also, I believe that you can buy her books very reasonably prior to making the investment for testing. > > > > > > > > > > > > > > > > > > I don't understand. What happened in New York? > > > > > > > > > > > > In general, I don't understand why there can't be honest > > > > > > communication, including criticism, of our experiences > with > > > > health > > > > > > care providers. I for one ESPECIALLY want to hear about > > > > anything > > > > > > negative; it is by hearing only good about vaccines and > > > > traditional > > > > > > medicine that many us find ourselves in the mess we are in > > > now. > > > > > > > > > > > > I asked my DAN, one of the top ones, about Yasko, and he > was > > > > very > > > > > > disappointed with her secretiveness about certain issues, > > > > thought > > > > > her > > > > > > program was extremely expensive and was not advocating use > > of > > > > her > > > > > > protocols until more information was known about her > methods > > > and > > > > > > thinking. I posted this info on a board (without > > identifying > > > my > > > > > DAN) > > > > > > because this is the type of info I myself find useful in > > > > evaluating > > > > > > whether to proceed down a certain path. I was scolded so > > > > > forcefully > > > > > > by the moderator I thought I'd be kicked off the board. > > Why? > > > > If > > > > > > we're only allowed to say good things about DAN, isn't > that > > > > > > equivalent to only being allowed to say good things about > > > > > mainstream > > > > > > medicine and physicians? Sharing negative as well as > > positive > > > > > > experiences doesn't invalidate or denigrate the whole DAN > > > > movement. > > > > > > It enables parents with precious little time for " due > > > diligence " > > > > to > > > > > > make the best choices, and actually adds credibility to > our > > > > voices > > > > > in > > > > > > that we're not seen as desperados blindly buying anything > > > served > > > > up > > > > > > by DAN or other providers in the biomed community. > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 Hi Diane, This list is overtly political in nature. Political debate and discussion often comes with negative vibes. In this case what happened to our kids is pretty darn negative. The purpose of this list is not to rate individual care givers, but it doesn't rule such discussions out. There is good value in parents sharing their experiences with caregivers -- thank god for the internet. What is ruled out is rudeness and personal attacks. The line against such crudities sometimes does get crossed and I make every effort to clean it up and restore civility. However, debates here can get heated, so some may indeed leave the kitchen because of it. Lenny EOHarm List Co-Host > > I live in Illinois, and have no idea who this Dr Yasko is, and I can > understand where everyones comments and concerns come from. Now > having said that, I wonder if people have considered that someone > else, or the doctor herself will catch wind of all this, and there > may be legal consequenses here. Also, the site may lose members b/c > they don't want to be in a site where negative vibes exist, thus not > getting the information for their kids, and maybe they then will > subsequently come across some new or vital info to help everybody > elses kids. Again I don't have an opinion one way or another about > this doctor, BUT have seen these very things happen on other Autism > web groups, and I can take reading anything positive or negative- but > others who are in a more desparate state of mind or are already upset > and nervous may find all of this too much to handle. > > Diane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 Are we allowed to make personal attacks on people who are NOT on the list like Bush or Offitt? On 4/1/07 3:43 PM, " schaferatsprynet " <schafer@...> wrote: Hi Diane, This list is overtly political in nature. Political debate and discussion often comes with negative vibes. In this case what happened to our kids is pretty darn negative. The purpose of this list is not to rate individual care givers, but it doesn't rule such discussions out. There is good value in parents sharing their experiences with caregivers -- thank god for the internet. What is ruled out is rudeness and personal attacks. The line against such crudities sometimes does get crossed and I make every effort to clean it up and restore civility. However, debates here can get heated, so some may indeed leave the kitchen because of it. Lenny EOHarm List Co-Host > > I live in Illinois, and have no idea who this Dr Yasko is, and I can > understand where everyones comments and concerns come from. Now > having said that, I wonder if people have considered that someone > else, or the doctor herself will catch wind of all this, and there > may be legal consequenses here. Also, the site may lose members b/c > they don't want to be in a site where negative vibes exist, thus not > getting the information for their kids, and maybe they then will > subsequently come across some new or vital info to help everybody > elses kids. Again I don't have an opinion one way or another about > this doctor, BUT have seen these very things happen on other Autism > web groups, and I can take reading anything positive or negative- but > others who are in a more desparate state of mind or are already upset > and nervous may find all of this too much to handle. > > Diane > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 C'mon - you don't think Offitt is a lurking member of this board : ) > >> > > >> > I live in Illinois, and have no idea who this Dr Yasko is, and I can > >> > understand where everyones comments and concerns come from. Now > >> > having said that, I wonder if people have considered that someone > >> > else, or the doctor herself will catch wind of all this, and there > >> > may be legal consequenses here. Also, the site may lose members b/c > >> > they don't want to be in a site where negative vibes exist, thus not > >> > getting the information for their kids, and maybe they then will > >> > subsequently come across some new or vital info to help everybody > >> > elses kids. Again I don't have an opinion one way or another about > >> > this doctor, BUT have seen these very things happen on other Autism > >> > web groups, and I can take reading anything positive or negative- but > >> > others who are in a more desparate state of mind or are already upset > >> > and nervous may find all of this too much to handle. > >> > > >> > Diane > >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 And how do you know they're not on this list? The golden rule still works pretty good, but you can get away with alot more with humor -- as long as you're willing to take what you dish out. Lenny EOHarm List Den Mother > > > > > > > > > > > > > Hi Diane, > > This list is overtly political in nature. Political debate and > > discussion often comes with negative vibes. In this case what > > happened to our kids is pretty darn negative. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2007 Report Share Posted April 1, 2007 I liked Genetic Bypass a lot. I also think that the Nutrigenomics starter kit was good. It will give you a good feel for the genetic testing which is at the heart of the Yasko protocol. My background is biochemistry so I have a bit of a leg up. > > > > > > > > > > > > > > > > > > > > > I don't understand. What happened in New York? > > > > > > > > > > > > > > In general, I don't understand why there can't be honest > > > > > > > communication, including criticism, of our experiences > > with > > > > > health > > > > > > > care providers. I for one ESPECIALLY want to hear about > > > > > anything > > > > > > > negative; it is by hearing only good about vaccines and > > > > > traditional > > > > > > > medicine that many us find ourselves in the mess we are > in > > > > now. > > > > > > > > > > > > > > I asked my DAN, one of the top ones, about Yasko, and he > > was > > > > > very > > > > > > > disappointed with her secretiveness about certain > issues, > > > > > thought > > > > > > her > > > > > > > program was extremely expensive and was not advocating > use > > > of > > > > > her > > > > > > > protocols until more information was known about her > > methods > > > > and > > > > > > > thinking. I posted this info on a board (without > > > identifying > > > > my > > > > > > DAN) > > > > > > > because this is the type of info I myself find useful in > > > > > evaluating > > > > > > > whether to proceed down a certain path. I was scolded > so > > > > > > forcefully > > > > > > > by the moderator I thought I'd be kicked off the board. > > > Why? > > > > > If > > > > > > > we're only allowed to say good things about DAN, isn't > > that > > > > > > > equivalent to only being allowed to say good things > about > > > > > > mainstream > > > > > > > medicine and physicians? Sharing negative as well as > > > positive > > > > > > > experiences doesn't invalidate or denigrate the whole > DAN > > > > > movement. > > > > > > > It enables parents with precious little time for " due > > > > diligence " > > > > > to > > > > > > > make the best choices, and actually adds credibility to > > our > > > > > voices > > > > > > in > > > > > > > that we're not seen as desperados blindly buying > anything > > > > served > > > > > up > > > > > > > by DAN or other providers in the biomed community. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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