Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 The problem is, AS has placed itself in the prominent position of controlling the purse strings of directing how and where most of the research money is spent. If they are choosing not to conduct research in relevant environmental areas - and instead choosing to direct that research money in areas that are for the most part meaningless (i.e. genetic research) - and with agencies and research centers that have been known to manipulate the data because of " agendas " - then the fight is with AS. As Holly pointed out in another post - the next few months will be a critical period of time for AS to get its shit together - they will be under a microscope. Will they have the courage to do the right thing then? I'm not holding my breath, but I hope they will. The 's involvement with autism is in its infancy compared to many other respectable people in the autism community - they have the advantage of so many other people forging the way. They really don't have a lot of excuses for not doing the right and ethical thing. > > My point was didn¹t say ³vaccines² contributed to her son¹s autism. > She said ³environmental factors². > That includes more than vaccines. > snip The fight is not with AS. I¹m not > defending them- I would just rather see our energies go towards towards >towards something positive like education and research. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Environmental factors can include vaccines. Why must people pick apart or try to impose the importance on someone to say " vaccines " when really, we do need to look at ALL environmental factors. Remember, there are children out there, albeit very few in numbers as compared to those who regressed after vaccines, but there ARE children out there who are autistic, who did not have one vaccination. It's all about context...I talk up a good vaccine causation argument depending on the context, and at other times I talk up a good " environmental factors " argument (to include vaccines, but also to discuss viruses, pollutants and toxins) depending on who I am with. The underlying message still speaks to the need to figure out exactly what are the different types of causation for different kids. > > Environmental factors as in vaccines? > > Why must we mince words? > > I'm not being a wiseass (at least not here), but there seems to be some whacked-out religious conviction that noone can say vaccines, that that term is verboten? > > The vaccine protocol is screwed-up. We all know that. We all know that some vaccines are dangerous to certain individuals and the medical community completely misleads the public on this issue. Until we get that on the table, the autism epidemic will not be addressed. > > The history of vaccines and their utility in preventing disease is mixed (at best). They are insufficiently tested. They are viewed as a panacea. They're not. A number of them do quite a bit of damage. The vaccine protocol with thimerosal did a tremendous amount of damage. The present vaccine protocol may also be doing a tremendous amount of damage, even with the thimerosal removed. > > So be it. > > The fact that any number of nitwits posing as medical doctors want to run around chasing a holy grail that they do not completely understand is insufficent for dealing with this issue. > > Please don't take this wrong. I'm not admonishing. > > But we must speak about vaccines in general forthrightly. > > Otherwise, there can be no resolution. > > As always, I apologize, in advance, for my histrionics. > > Peace. > > > katie wright > > > I can completely understand the community's frustration. Yes, my > husband and I follow a true biomedical approach for Christian. He > was a very sick little boy for years. Thanks to the work of > wonderful DAN! doctors and parent mentors like JB and , > Christian is much better. He regressed from a happy, highly verbal, > nearly potty trained 2 year old to a miserable 2 and a half year old > with almost no words, no affect, mini seizures and diarrhea 10x a > day and the accompanying non-stop stomach pain and screaming. > Because of my parents generousity, I realize how fortunate I am, we > travelled all over the country trying to find help. So few doctors > have a clue. It was not until be found Dr. Krigsman did these start > to get better. I cannot pretend to imagine living through this > horrible nightmare, only to have the situation complicated by not > having the funds to get your child the treatment he/she needs. It is > shameful. Our children are so sick and families are being destroyed > in the struggle to find and pay for treatment. The parents, and some > physicians, I have met through this horrible journey are the bravest > people I know. There is no question that I believe my son regressed > into autism due to environmental factors. No question. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 I also feel the need to voice my opinion here. My husband and I are plenty suspicious of the vaccines, particularly now that we've studied in depth the nature of the safety studies. These suspicions have been heightened by the behavior of the pharma industry and public health establishment when the safety of vaccines has been questioned (OJ Simpson behavior versus honest analysis). However, my son received all mercury free vaccines and never received the MMR. Also, my son did not become a different child " overnight " or in short order after receiving his 12 month vaccines. He DID become a different child in the midst of pummeling him with one course after another of potent, broad spectrum antibiotics for chronic otitis media, the worst one being Augmentin (between the ages of 14-19 months). This doesn't exonerate vaccines. One of the DAN hypotheses is that the vaccines disrupt the immune system in such a way as to make children more vulnerable to infection. Many autistic children have a medical history of significant chronic infection prior to diagnosis, especially chronic otitis media. Perhaps the vaccines load the gun and the antibiotics pull the trigger, at least for some cases? I can tell you that Augmentin absolutely DESTROYED my son's gut--we had excellent gut function turn to runny yellow intractible diarrhea with the administration of this antibiotic. I also had multiple sonograms during pregnancy and have a mouth full of amalgams. Perhaps these are contributing factors as well. So...I am not one to say " it was the vaccines--definitely--and only the vaccines. " I think the evidence which has been collected so far suggests a linkeage, and that vaccines should be fully examined, but that other environmental factors should be looked at as well. Just my $.02. Jenna p.s. Hi, . Welcome to the board! I wish you and Christian all the very best. > >> > > >> > , > >> > > >> > > >> > > >> > Thank you for your post. Christian's story is all too familiar to > > most of > >> > us here. My son is what they call a " tough nut. " He has not > > responded to > >> > the majority of the overwhelming number of biomedical interventions > > we have > >> > utilized. In an effort to heal our son, we have completely drained > > our > >> > finances AND those of his grandparents. He is seven years old, > > nonverbal > >> > and not potty trained. The life that we dreamed will never be. > >> > > >> > > >> > > >> > Would you care to clarify exactly which " environmental factors " you > > suspect > >> > caused Christian's autism? > >> > > >> > > >> > > >> > I hope that you will continue to post here. > >> > > >> > > >> > > >> > Pamela > >> > > >> > " Courage is doing what you're afraid to do. There can be no > > courage unless > >> > you're scared. " > >> > > >> > Eddie Rickenbacker, top US fighter ace, WWI > >> > > >> > > >> > > >> > _____ > >> > > >> > From: EOHarm <mailto:EOHarm%40> > >> [mailto:EOHarm <mailto:EOHarm% 40> ] On > > Behalf Of > >> > katie > >> > Sent: Tuesday, March 27, 2007 10:02 AM > >> > EOHarm <mailto:EOHarm%40> > >> > Subject: katie wright > >> > > >> > > >> > > >> > I can completely understand the community's frustration. Yes, my > >> > husband and I follow a true biomedical approach for Christian. He > >> > was a very sick little boy for years. Thanks to the work of > >> > wonderful DAN! doctors and parent mentors like JB and , > >> > Christian is much better. He regressed from a happy, highly verbal, > >> > nearly potty trained 2 year old to a miserable 2 and a half year > > old > >> > with almost no words, no affect, mini seizures and diarrhea 10x a > >> > day and the accompanying non-stop stomach pain and screaming. > >> > Because of my parents generousity, I realize how fortunate I am, we > >> > travelled all over the country trying to find help. So few doctors > >> > have a clue. It was not until be found Dr. Krigsman did these start > >> > to get better. I cannot pretend to imagine living through this > >> > horrible nightmare, only to have the situation complicated by not > >> > having the funds to get your child the treatment he/she needs. It > > is > >> > shameful. Our children are so sick and families are being destroyed > >> > in the struggle to find and pay for treatment. The parents, and > > some > >> > physicians, I have met through this horrible journey are the > > bravest > >> > people I know. There is no question that I believe my son regressed > >> > into autism due to environmental factors. No question. > >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Hi Jenna, Your son may still have gotten quite a bit of mercury from vaccines. There's still trace amounts in the so-called " mercury free " shots (maybe as much as a few micrograms per dose)...and when you factor in the recommended flu shot (if he got that), you're looking at today's children still getting a potential 53% of the mercury kids were getting in the late 90's. I'm quoting Dr. Ayoub on that number. http://www.autismmedia.org/media15.html > > However, my son received all mercury free vaccines and never received > the MMR. Also, my son did not become a different child " overnight " > or in short order after receiving his 12 month vaccines. He DID > become a different child in the midst of pummeling him with one > course after another of potent, broad spectrum antibiotics for > chronic otitis media, the worst one being Augmentin (between the ages > of 14-19 months). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 All that is true. The difference is they avoid any talk of the vaccines, the primary culprit in this debacle. Everything is obviously on the table, but when you can't even raise the spector of the common sense primary culprit, it forces people to react more forcefully. katie wright> >> > > >> > > >> > > >> > I can completely understand the community's frustration. Yes, my> >> > husband and I follow a true biomedical approach for Christian. He> >> > was a very sick little boy for years. Thanks to the work of> >> > wonderful DAN! doctors and parent mentors like JB and ,> >> > Christian is much better. He regressed from a happy, highly verbal,> >> > nearly potty trained 2 year old to a miserable 2 and a half year> > old > >> > with almost no words, no affect, mini seizures and diarrhea 10x a> >> > day and the accompanying non-stop stomach pain and screaming.> >> > Because of my parents generousity, I realize how fortunate I am, we> >> > travelled all over the country trying to find help. So few doctors> >> > have a clue. It was not until be found Dr. Krigsman did these start> >> > to get better. I cannot pretend to imagine living through this> >> > horrible nightmare, only to have the situation complicated by not> >> > having the funds to get your child the treatment he/she needs. It> > is > >> > shameful. Our children are so sick and families are being destroyed> >> > in the struggle to find and pay for treatment. The parents, and> > some > >> > physicians, I have met through this horrible journey are the> > bravest > >> > people I know. There is no question that I believe my son regressed> >> > into autism due to environmental factors. No question.> >> >> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Who's side of the fence are you on? The importance to using the the word VACCINES is SO IMPORTANT, or dangerous, to the other side that they would rather get stung by a wasp then to use the word!!! Yet you berate us for wanting specific research, into the word they WON'T say!!! How do you know how many kids regressed or not? Have you done research? Please don't throw those comments out without facts. Lori > > > > Environmental factors as in vaccines? > > > > Why must we mince words? > > > > I'm not being a wiseass (at least not here), but there seems to be > some whacked-out religious conviction that noone can say vaccines, > that that term is verboten? > > > > The vaccine protocol is screwed-up. We all know that. We all know > that some vaccines are dangerous to certain individuals and the > medical community completely misleads the public on this issue. > Until we get that on the table, the autism epidemic will not be > addressed. > > > > The history of vaccines and their utility in preventing disease is > mixed (at best). They are insufficiently tested. They are viewed as > a panacea. They're not. A number of them do quite a bit of damage. > The vaccine protocol with thimerosal did a tremendous amount of > damage. The present vaccine protocol may also be doing a tremendous > amount of damage, even with the thimerosal removed. > > > > So be it. > > > > The fact that any number of nitwits posing as medical doctors want > to run around chasing a holy grail that they do not completely > understand is insufficent for dealing with this issue. > > > > Please don't take this wrong. I'm not admonishing. > > > > But we must speak about vaccines in general forthrightly. > > > > Otherwise, there can be no resolution. > > > > As always, I apologize, in advance, for my histrionics. > > > > Peace. > > > > > > katie wright > > > > > > I can completely understand the community's frustration. Yes, my > > husband and I follow a true biomedical approach for Christian. He > > was a very sick little boy for years. Thanks to the work of > > wonderful DAN! doctors and parent mentors like JB and , > > Christian is much better. He regressed from a happy, highly > verbal, > > nearly potty trained 2 year old to a miserable 2 and a half year > old > > with almost no words, no affect, mini seizures and diarrhea 10x a > > day and the accompanying non-stop stomach pain and screaming. > > Because of my parents generousity, I realize how fortunate I am, > we > > travelled all over the country trying to find help. So few > doctors > > have a clue. It was not until be found Dr. Krigsman did these > start > > to get better. I cannot pretend to imagine living through this > > horrible nightmare, only to have the situation complicated by not > > having the funds to get your child the treatment he/she needs. It > is > > shameful. Our children are so sick and families are being > destroyed > > in the struggle to find and pay for treatment. The parents, and > some > > physicians, I have met through this horrible journey are the > bravest > > people I know. There is no question that I believe my son > regressed > > into autism due to environmental factors. No question. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 On the subject of vaccines……. Let’s not forget the pregnant mother’s vaccines. I had a flu shot when I was 3-4 weeks pregnant. I firmly believe that this early insult when cells were just dividing greatly impacted my son. Pamela " Courage is doing what you're afraid to do. There can be no courage unless you're scared. " Eddie Rickenbacker, top US fighter ace, WWI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 indeed. I had an MMR shortly before becoming PG. They make you sign a paper saying you will not get PG for 3 months after the shots, well... duh, it was not planned. I think it was 2 mo. if I remember correctly. When I mentioned this to my Doctor, she blew it off. I remember thinking, " then why did I need to sign that paper " --and of course since then some studies, or surveys perhaps is the better term, did show that an MMR shortly before, or after if mom is breastfeeding was a big contributing factor. On 3/27/07, Pamela Leigh <pamelaleigh@...> wrote: On the subject of vaccines……. Let's not forget the pregnant mother's vaccines. I had a flu shot when I was 3-4 weeks pregnant. I firmly believe that this early insult when cells were just dividing greatly impacted my son. Pamela " Courage is doing what you're afraid to do. There can be no courage unless you're scared. " Eddie Rickenbacker, top US fighter ace, WWI -- M. Webster814-644-3564 Autism IS Treatablehttp://www.generationrescue.orghttp://www.putchildrenfirst.orgBe ashamed to die until you have won some victory for humanity. --Horace Mann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 indeed. I had an MMR shortly before becoming PG. They make you sign a paper saying you will not get PG for 3 months after the shots, well... duh, it was not planned. I think it was 2 mo. if I remember correctly. When I mentioned this to my Doctor, she blew it off. I remember thinking, " then why did I need to sign that paper " --and of course since then some studies, or surveys perhaps is the better term, did show that an MMR shortly before, or after if mom is breastfeeding was a big contributing factor. On 3/27/07, Pamela Leigh <pamelaleigh@...> wrote: On the subject of vaccines……. Let's not forget the pregnant mother's vaccines. I had a flu shot when I was 3-4 weeks pregnant. I firmly believe that this early insult when cells were just dividing greatly impacted my son. Pamela " Courage is doing what you're afraid to do. There can be no courage unless you're scared. " Eddie Rickenbacker, top US fighter ace, WWI -- M. Webster814-644-3564 Autism IS Treatablehttp://www.generationrescue.orghttp://www.putchildrenfirst.orgBe ashamed to die until you have won some victory for humanity. --Horace Mann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Well, and what about the rest of the organizations getting their stuff together, too? I agree that AS should have biomed information on their website, and should be putting some funds into researching environmental factors. I do not think this is 's battle to fight however. She is a parent, and it is up to her to decide when and how much she is willing to take on--she has her son to look out for...how many of us have the time to go and do media interviews and basically sacrifice that time away from your family's needs? Not many of us, that's for sure. And as far as holding AS accountable, yes, but I also am holding other organizations accountable as well. I've been waiting for *years* now to hear about the supposed experiments on primates, using thimerosal, to see if it would induce autism-- that study was reportedly " in the works " years ago--where is it now? Where are the results? If the study never even got underway, then why not? I want to see things change with the AS organization, too, but I also want to see things change with a lot of other autism associations. I've been at this for a long time, but certainly not as long as some of the other old-timers on these boards, and I've been hearing and seeing that " the next few months are critical " for *years* now. My point is, it IS critical, but it's not just critical for AutismSpeaks. It is critical for any organization that supports biomed and environmental causation as a trigger to really start producing some research that isn't going to be shot full of holes by the mainstream. I'm tired of waiting for " the next few months " ... those months have come and gone. > > > > My point was didn¹t say ³vaccines² contributed to her son¹s > autism. > > She said ³environmental factors². > > That includes more than vaccines. > > snip > The fight is not with AS. I¹m not > > defending them- I would just rather see our energies go towards towards > >towards something positive like education and research. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Well, and what about the rest of the organizations getting their stuff together, too? I agree that AS should have biomed information on their website, and should be putting some funds into researching environmental factors. I do not think this is 's battle to fight however. She is a parent, and it is up to her to decide when and how much she is willing to take on--she has her son to look out for...how many of us have the time to go and do media interviews and basically sacrifice that time away from your family's needs? Not many of us, that's for sure. And as far as holding AS accountable, yes, but I also am holding other organizations accountable as well. I've been waiting for *years* now to hear about the supposed experiments on primates, using thimerosal, to see if it would induce autism-- that study was reportedly " in the works " years ago--where is it now? Where are the results? If the study never even got underway, then why not? I want to see things change with the AS organization, too, but I also want to see things change with a lot of other autism associations. I've been at this for a long time, but certainly not as long as some of the other old-timers on these boards, and I've been hearing and seeing that " the next few months are critical " for *years* now. My point is, it IS critical, but it's not just critical for AutismSpeaks. It is critical for any organization that supports biomed and environmental causation as a trigger to really start producing some research that isn't going to be shot full of holes by the mainstream. I'm tired of waiting for " the next few months " ... those months have come and gone. > > > > My point was didn¹t say ³vaccines² contributed to her son¹s > autism. > > She said ³environmental factors². > > That includes more than vaccines. > > snip > The fight is not with AS. I¹m not > > defending them- I would just rather see our energies go towards towards > >towards something positive like education and research. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 One point you may not have considered is the size of AS and the amount of money available to fund science and services. It has now become in effect "The American Autism Society". The general public will consider them the authority on Autism. You might consider AS a "monopoly" since what used to be CAN, NAAR and the Autism Coalition are now all merged into AS. We all want this huge, wealthy organization to fund research about heavy metals, viruses, bacterium and their relationship to autism because they have ample resources to do so. The "rest of the organizations" is a bit vague. If you are referring to the Burbacher Study on the Primates, that is being funded by Safe Minds and NAA. And is in progress. You may want to take some time to review the SAFE MINDS, NAA and Autism Speaks websites regarding funded science and then come back with additional questions if you have them. Heidi From: "merrywbee" <merrywbee@...>Reply-EOHarm To: EOHarm Subject: Re: katie wrightDate: Wed, 28 Mar 2007 00:31:19 -0000 Well, and what about the rest of the organizations getting their stuff together, too? I agree that AS should have biomed information on their website, and should be putting some funds into researching environmental factors. I do not think this is 's battle to fight however. She is a parent, and it is up to her to decide when and how much she is willing to take on--she has her son to look -snip- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 It is critical for any organization that supports > biomed and environmental causation as a trigger to really start > producing some research that isn't going to be shot full of holes by > the mainstream. The plenty of research already out there establishing a link between thimerosal and mercury is being " shot full of holes " as a matter of politics, not science. IMO, we have enough good science to stop the epidemic now. The junk science proving cigarettes are safe hung on for decades in the mainstream, not because it was good science, but because the political reach of tobacco money. Same goes for pharma today. When we get all the research we already have in front of an impartial jury, we will finally have an official ruling that thimerosal causes autism. The matter of the causation of autism will be settled in court and not by the pharma handmaidens in government who have their own butts and vaccine cash cows to look after. > I'm tired of waiting for " the next few months " ... those months have > come and gone. Nothing happens until parents get politically involved. Lenny Schafer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 , I'm so glad to hear he's getting better. I emailed every version of your father's possible email accounts at GE to try and tell him about DAN! approaches. Lol, there are a lot of Bob s out there who got some wierd emails about autism and this wierd DAN! stuff. Debi > > I can completely understand the community's frustration. Yes, my > husband and I follow a true biomedical approach for Christian. He > was a very sick little boy for years. Thanks to the work of > wonderful DAN! doctors and parent mentors like JB and , > Christian is much better. He regressed from a happy, highly verbal, > nearly potty trained 2 year old to a miserable 2 and a half year old > with almost no words, no affect, mini seizures and diarrhea 10x a > day and the accompanying non-stop stomach pain and screaming. > Because of my parents generousity, I realize how fortunate I am, we > travelled all over the country trying to find help. So few doctors > have a clue. It was not until be found Dr. Krigsman did these start > to get better. I cannot pretend to imagine living through this > horrible nightmare, only to have the situation complicated by not > having the funds to get your child the treatment he/she needs. It is > shameful. Our children are so sick and families are being destroyed > in the struggle to find and pay for treatment. The parents, and some > physicians, I have met through this horrible journey are the bravest > people I know. There is no question that I believe my son regressed > into autism due to environmental factors. No question. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Dear , Thank you for validating us. Thank you a million times. I know that you didn't have too. But, in reality we did need validation, we needed an advocate like yourself that has a way to make the biggest difference, yet. Every one of the people on this board and other boards and those without computers that have worked tirelessly to be heard, can now, finally, be heard. Yes, , your post changed everything. We all responded immediatly. Your post, I believe, was not done without alot of thought as to how it would be received by this group and the rest of the people we are involved with. I am sure your parents were a big part of your decision making. I feel, based on the way you speak of your parents, that you did not do this without their blessing. You spoke directly with Kirby....your good intentions are very clear. Your voice, unfortunatly right at this time, carries more weight than all the groups combined. We support you supporting us. You have chosen to do an amazing thing. You have shared your experience with Christian with the rest of the world...you made a difference. Possibly THE difference!!! Please continue to post and brainstorm with the brilliant people of this group to create an atmosphere of truth and hope for us all. You are the first domino and I expect the rest will fall right into place very soon. Thank you again, for making the decision to post to EOH. Lori Bedrio Proud to be the Mom to 11 years old mercury poisoned by HEPB 3 hours old. 4 weeks premature jaundiced Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 > > All I can say is it's about time. The public is ready to hear this. > > Those who do not wish this information to be made public do not want to hear this. > > > > Re: katie wright > > > " Also, remember when sat next to her father on Imus and had > Christian's shot record and was pretty " vocal " about what happened to > her son. I remember being blown away at her accusations and with her > fahter sitting right nxt to her. I thougt...these people know what is > going on. " > > I think what's going on here is a tactically devised plan to > fist " attract more bees with honey, " and then gently reveal the vaccine- > autism connection. I fully believe that the s know that mercury > harmed their grandson, but to come out and spew this info to the not- > ready-to-hear-it public would be foolish if they are to gain the > respect and support from the allopathic medical community and their > respective sheep herd. > > Hang in there, people - it will all come out. Unfortunately time is of > the essence, but I have a feeling that Autism Speaks will play a major > role in eventually telling it like it is, albeit a bit (ok, A LOT) too > politcally correct when the time comes... > > Just my 2 cents. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2007 Report Share Posted March 28, 2007 Jenna, I'm curious to know how you know that your son was given only Thimerosal free vaccines? Thank you, > > >> > > > >> > , > > >> > > > >> > > > >> > > > >> > Thank you for your post. Christian's story is all too > familiar to > > > most of > > >> > us here. My son is what they call a " tough nut. " He has not > > > responded to > > >> > the majority of the overwhelming number of biomedical > interventions > > > we have > > >> > utilized. In an effort to heal our son, we have completely > drained > > > our > > >> > finances AND those of his grandparents. He is seven years old, > > > nonverbal > > >> > and not potty trained. The life that we dreamed will never be. > > >> > > > >> > > > >> > > > >> > Would you care to clarify exactly which " environmental > factors " you > > > suspect > > >> > caused Christian's autism? > > >> > > > >> > > > >> > > > >> > I hope that you will continue to post here. > > >> > > > >> > > > >> > > > >> > Pamela > > >> > > > >> > " Courage is doing what you're afraid to do. There can be no > > > courage unless > > >> > you're scared. " > > >> > > > >> > Eddie Rickenbacker, top US fighter ace, WWI > > >> > > > >> > > > >> > > > >> > _____ > > >> > > > >> > From: EOHarm <mailto:EOHarm% 40> > > >> [mailto:EOHarm <mailto:EOHarm% > 40> ] On > > > Behalf Of > > >> > katie > > >> > Sent: Tuesday, March 27, 2007 10:02 AM > > >> > EOHarm <mailto:EOHarm%40> > > >> > Subject: katie wright > > >> > > > >> > > > >> > > > >> > I can completely understand the community's frustration. Yes, > my > > >> > husband and I follow a true biomedical approach for Christian. > He > > >> > was a very sick little boy for years. Thanks to the work of > > >> > wonderful DAN! doctors and parent mentors like JB and , > > >> > Christian is much better. He regressed from a happy, highly > verbal, > > >> > nearly potty trained 2 year old to a miserable 2 and a half > year > > > old > > >> > with almost no words, no affect, mini seizures and diarrhea > 10x a > > >> > day and the accompanying non-stop stomach pain and screaming. > > >> > Because of my parents generousity, I realize how fortunate I > am, we > > >> > travelled all over the country trying to find help. So few > doctors > > >> > have a clue. It was not until be found Dr. Krigsman did these > start > > >> > to get better. I cannot pretend to imagine living through this > > >> > horrible nightmare, only to have the situation complicated by > not > > >> > having the funds to get your child the treatment he/she needs. > It > > > is > > >> > shameful. Our children are so sick and families are being > destroyed > > >> > in the struggle to find and pay for treatment. The parents, and > > > some > > >> > physicians, I have met through this horrible journey are the > > > bravest > > >> > people I know. There is no question that I believe my son > regressed > > >> > into autism due to environmental factors. No question. > > >> > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 I read the Mothering Magazine article before I gave birth and followed the " Dan Burton " recommendations about insisting on thimerosal free vaccines, and separating the components of MMR. I never did get the MMR because I could not find all 3 of the components in thimerosal free versions, and believe me, I looked all over the place. It wasn't an issue with my peds because one had an autistic child and had already instituted a " mercury-free " policy in the office. I did check the inserts with the vaccines as well. Finally, when my son was diagnosed, I called all the manufacturers directly and verified yet again that all the shots were thimerosal free. I understand that they eventually stopped taking these calls from parents, so apparently this is no longer an option. Just for the record, I refused Prevnar and Hep B and all flu shots. The worst shot for my son was definitely DTAP, which caused fever and crying. The last dose he received, at 18 months just pre-diagnosis, sent him into a weeks long scream-fest. However, this was AFTER he was showing signs of autism (I just didn't know it--the ped was talking about language delays, etc.) The biggest regret of my life is letting him get that last set of shots. I can see now, looking back, that he already had autism at that time, but he went into a much steeper slide thereafter. Mercury is awful and should never have been put in vaccines, but I remain suspicious as well of the adjuvants and the antigens themselves. Hope that helps- Jenna p.s. , I did talk to Boyd Haley about small amounts of mercury in thimerosal free vaccines still having the potential for harm--it was at that point that I pulled all the vaccines for my daughter as well. > > > >> > > > > >> > , > > > >> > > > > >> > > > > >> > > > > >> > Thank you for your post. Christian's story is all too > > familiar to > > > > most of > > > >> > us here. My son is what they call a " tough nut. " He has > not > > > > responded to > > > >> > the majority of the overwhelming number of biomedical > > interventions > > > > we have > > > >> > utilized. In an effort to heal our son, we have completely > > drained > > > > our > > > >> > finances AND those of his grandparents. He is seven years > old, > > > > nonverbal > > > >> > and not potty trained. The life that we dreamed will never > be. > > > >> > > > > >> > > > > >> > > > > >> > Would you care to clarify exactly which " environmental > > factors " you > > > > suspect > > > >> > caused Christian's autism? > > > >> > > > > >> > > > > >> > > > > >> > I hope that you will continue to post here. > > > >> > > > > >> > > > > >> > > > > >> > Pamela > > > >> > > > > >> > " Courage is doing what you're afraid to do. There can be no > > > > courage unless > > > >> > you're scared. " > > > >> > > > > >> > Eddie Rickenbacker, top US fighter ace, WWI > > > >> > > > > >> > > > > >> > > > > >> > _____ > > > >> > > > > >> > From: EOHarm <mailto:EOHarm% > 40> > > > >> [mailto:EOHarm <mailto:EOHarm% > > 40> ] On > > > > Behalf Of > > > >> > katie > > > >> > Sent: Tuesday, March 27, 2007 10:02 AM > > > >> > EOHarm <mailto:EOHarm% 40> > > > >> > Subject: katie wright > > > >> > > > > >> > > > > >> > > > > >> > I can completely understand the community's frustration. > Yes, > > my > > > >> > husband and I follow a true biomedical approach for > Christian. > > He > > > >> > was a very sick little boy for years. Thanks to the work of > > > >> > wonderful DAN! doctors and parent mentors like JB and , > > > >> > Christian is much better. He regressed from a happy, highly > > verbal, > > > >> > nearly potty trained 2 year old to a miserable 2 and a half > > year > > > > old > > > >> > with almost no words, no affect, mini seizures and diarrhea > > 10x a > > > >> > day and the accompanying non-stop stomach pain and > screaming. > > > >> > Because of my parents generousity, I realize how fortunate > I > > am, we > > > >> > travelled all over the country trying to find help. So few > > doctors > > > >> > have a clue. It was not until be found Dr. Krigsman did > these > > start > > > >> > to get better. I cannot pretend to imagine living through > this > > > >> > horrible nightmare, only to have the situation complicated > by > > not > > > >> > having the funds to get your child the treatment he/she > needs. > > It > > > > is > > > >> > shameful. Our children are so sick and families are being > > destroyed > > > >> > in the struggle to find and pay for treatment. The parents, > and > > > > some > > > >> > physicians, I have met through this horrible journey are the > > > > bravest > > > >> > people I know. There is no question that I believe my son > > regressed > > > >> > into autism due to environmental factors. No question. > > > >> > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 Antibiotics reduce the body's ability to excrete Mercury. So a pregnant mother with a mouth full of amalgams sets the fetus up for many problems, that alone can cause immune dysfunction in the developing fetus not to mention how it affects brain devlopment, neorological impairment,and a cascade of other problems. Amalgams or no amalgams, most women of child bearing age have a body burden of mercury that would cause developmental problems in a baby. We're still talking about Mercury no matter where it came from. Then you have a baby born with an already high body burden of mercury from the mother, and he or she gets a vaccine, just one vaccine and that could be all it takes to trigger a downward spiral at the molecular level that we cannot see until months later down the road as the body continues to deteriorate to a point of... " hey, something is not right with my kid? " And since the insult of mercury from the mother, the child is more suseptible to infections such as an ear infection and the child is put on antibiotics. This further reduces the body's ability to excrete mercury and other neurotoxins in the vaccine not to mention what it does for dysbiosis and the gut. So the vaccine has added a virus to an already impaired immune system and this virus bypasses the body's natural defense and mucous membranes in the nose, lungs, by passing the tonsils, etc and is injected straight into the bloodstream instead. Thimerosal free or not, even though I don't believe any of the non live virus vaccines are thimerosal free, vaccines are dangerous given the high toxic body burden our bodies have given this toxic soup we live in. On top of all this, the kids have impaired methylation pathways and oxidative stress and they cannot excrete toxins which sets the stage for immune dysfunction, gut dysfunction, inflammation, etc. It's a never ending cycle. Back to the vaccines, Boyd Haley has said that it is impossible to chelate all of the thimerosal out of vaccines at the end of the manufacturing process because the thimerosal has formed bonds with other components of the vaccine. Vaccines also contain formaldehyde, aluminum, antifreeze.....etc. Vaccines are a huge problem and in my opinion a large part of the blame, but for our kids' sake we need to get angry at the state of pollution in our environment as well. > > > > >> > > > > > >> > , > > > > >> > > > > > >> > > > > > >> > > > > > >> > Thank you for your post. Christian's story is all too > > > familiar to > > > > > most of > > > > >> > us here. My son is what they call a " tough nut. " He has > > not > > > > > responded to > > > > >> > the majority of the overwhelming number of biomedical > > > interventions > > > > > we have > > > > >> > utilized. In an effort to heal our son, we have > completely > > > drained > > > > > our > > > > >> > finances AND those of his grandparents. He is seven years > > old, > > > > > nonverbal > > > > >> > and not potty trained. The life that we dreamed will > never > > be. > > > > >> > > > > > >> > > > > > >> > > > > > >> > Would you care to clarify exactly which " environmental > > > factors " you > > > > > suspect > > > > >> > caused Christian's autism? > > > > >> > > > > > >> > > > > > >> > > > > > >> > I hope that you will continue to post here. > > > > >> > > > > > >> > > > > > >> > > > > > >> > Pamela > > > > >> > > > > > >> > " Courage is doing what you're afraid to do. There can be > no > > > > > courage unless > > > > >> > you're scared. " > > > > >> > > > > > >> > Eddie Rickenbacker, top US fighter ace, WWI > > > > >> > > > > > >> > > > > > >> > > > > > >> > _____ > > > > >> > > > > > >> > From: EOHarm <mailto:EOHarm% > > 40> > > > > >> [mailto:EOHarm <mailto:EOHarm% > > > 40> ] On > > > > > Behalf Of > > > > >> > katie > > > > >> > Sent: Tuesday, March 27, 2007 10:02 AM > > > > >> > EOHarm <mailto:EOHarm% > 40> > > > > >> > Subject: katie wright > > > > >> > > > > > >> > > > > > >> > > > > > >> > I can completely understand the community's frustration. > > Yes, > > > my > > > > >> > husband and I follow a true biomedical approach for > > Christian. > > > He > > > > >> > was a very sick little boy for years. Thanks to the work of > > > > >> > wonderful DAN! doctors and parent mentors like JB and > , > > > > >> > Christian is much better. He regressed from a happy, > highly > > > verbal, > > > > >> > nearly potty trained 2 year old to a miserable 2 and a > half > > > year > > > > > old > > > > >> > with almost no words, no affect, mini seizures and > diarrhea > > > 10x a > > > > >> > day and the accompanying non-stop stomach pain and > > screaming. > > > > >> > Because of my parents generousity, I realize how fortunate > > I > > > am, we > > > > >> > travelled all over the country trying to find help. So few > > > doctors > > > > >> > have a clue. It was not until be found Dr. Krigsman did > > these > > > start > > > > >> > to get better. I cannot pretend to imagine living through > > this > > > > >> > horrible nightmare, only to have the situation complicated > > by > > > not > > > > >> > having the funds to get your child the treatment he/she > > needs. > > > It > > > > > is > > > > >> > shameful. Our children are so sick and families are being > > > destroyed > > > > >> > in the struggle to find and pay for treatment. The > parents, > > and > > > > > some > > > > >> > physicians, I have met through this horrible journey are > the > > > > > bravest > > > > >> > people I know. There is no question that I believe my son > > > regressed > > > > >> > into autism due to environmental factors. No question. > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2007 Report Share Posted March 29, 2007 I think the mandated vaccine issue is one thing and blame can be rightly attributed to incompetant production and safety testing methods, but as to the toxins in our environment, I think that is a collective debt and we must all pay for the madness of the capitalist dream. How many of you have brought any products from companies that were just thinking of their bottom line? How many have flown, used transport, electricity? it is all polluting ! We have all contributed. We must now step up and decide if we want luxury goods and foreign travel or a viable human race!!! Just my 02 Ange katie wright> > > > >> > > > > > >> > > > > > >> > > > > > >> > I can completely understand the community's frustration. > > Yes, > > > my> > > > >> > husband and I follow a true biomedical approach for > > Christian. > > > He> > > > >> > was a very sick little boy for years. Thanks to the work of> > > > >> > wonderful DAN! doctors and parent mentors like JB and > ,> > > > >> > Christian is much better. He regressed from a happy, > highly > > > verbal,> > > > >> > nearly potty trained 2 year old to a miserable 2 and a > half > > > year> > > > > old > > > > >> > with almost no words, no affect, mini seizures and > diarrhea > > > 10x a> > > > >> > day and the accompanying non-stop stomach pain and > > screaming.> > > > >> > Because of my parents generousity, I realize how fortunate > > I > > > am, we> > > > >> > travelled all over the country trying to find help. So few > > > doctors> > > > >> > have a clue. It was not until be found Dr. Krigsman did > > these > > > start> > > > >> > to get better. I cannot pretend to imagine living through > > this> > > > >> > horrible nightmare, only to have the situation complicated > > by > > > not> > > > >> > having the funds to get your child the treatment he/she > > needs. > > > It> > > > > is > > > > >> > shameful. Our children are so sick and families are being > > > destroyed> > > > >> > in the struggle to find and pay for treatment. The > parents, > > and> > > > > some > > > > >> > physicians, I have met through this horrible journey are > the> > > > > bravest > > > > >> > people I know. There is no question that I believe my son > > > regressed> > > > >> > into autism due to environmental factors. No question.> > > > >> >> > > > > > > > > > > > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 Thank you Ray. Sobering, very sobering. > > > > > All, > > > is the tip of the iceberg and part of the vanguard that will hit the > residential home/group home in 5 to 10 years. Those families that are in my > shoes with young children that reach adulthood in the next 5 to 10 years, > unfortunately will face the same situation as our family is now facing. > > The situation regarding Medicaid and Social Security (SSI) will also be > affected since our son is on both. Also the cost of keeping and others > in a residential home/group home will skyrocket as well. is 6'2 " tall > and when he comes home he has aggressions where he puts holes in the wall or > tries to bite, kick, scratch, head-butt or pull hair of family members. > > As I mentioned since is out of our control it is very hard for us to > get various treatments for him. It is either the residential school's > prescription drug policy or the highway. We can't take the highway with > because it means dealing with him on our own. > > So in essence, we are between a rock and a hard place. > > Truly a Greek tragedy ready to unfold. > > Ray Gallup > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 Ray Gallup SPEAKS the truth. Check out a mom who also SPEAKS truth about the costs: http://www.huffingtonpost.com/barbara-fischkin/an-autism-mother-rages- t_b_43862.html http://tinyurl.com/2gw5dx RJK On Mar 30, 2007, at 8:58 AM, highnoon wrote: All, is the tip of the iceberg and part of the vanguard that will hit the residential home/group home in 5 to 10 years. Those families that are in my shoes with young children that reach adulthood in the next 5 to 10 years, unfortunately will face the same situation as our family is now facing. The situation regarding Medicaid and Social Security (SSI) will also be affected since our son is on both. Also the cost of keeping and others in a residential home/group home will skyrocket as well. is 6'2 " tall and when he comes home he has aggressions where he puts holes in the wall or tries to bite, kick, scratch, head-butt or pull hair of family members. As I mentioned since is out of our control it is very hard for us to get various treatments for him. It is either the residential school's prescription drug policy or the highway. We can't take the highway with because it means dealing with him on our own. So in essence, we are between a rock and a hard place. Truly a Greek tragedy ready to unfold. Ray Gallup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 All, is the tip of the iceberg and part of the vanguard that will hit the residential home/group home in 5 to 10 years. Those families that are in my shoes with young children that reach adulthood in the next 5 to 10 years, unfortunately will face the same situation as our family is now facing. The situation regarding Medicaid and Social Security (SSI) will also be affected since our son is on both. Also the cost of keeping and others in a residential home/group home will skyrocket as well. is 6'2 " tall and when he comes home he has aggressions where he puts holes in the wall or tries to bite, kick, scratch, head-butt or pull hair of family members. As I mentioned since is out of our control it is very hard for us to get various treatments for him. It is either the residential school's prescription drug policy or the highway. We can't take the highway with because it means dealing with him on our own. So in essence, we are between a rock and a hard place. Truly a Greek tragedy ready to unfold. Ray Gallup Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 You know, actually there was a trigger of sorts. got the stomach flu at about a year. Before the flu he was starting on table food and eating everything. After he got better he gagged easily and became (and still is) a very picky eater. ________________________________________________________________________________\ ____ Bored stiff? Loosen up... Download and play hundreds of games for free on Games. http://games./games/front Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2007 Report Share Posted March 30, 2007 I'm getting the phone book out now. Thanks for the tip and thank God he has a medical card. --- max walker <max.walker@...> wrote: > try going to a homeopath. If you have such a > strong aetiology as " never been well since flu " > then a remedy should be easier to find! > > > Ange > Re: RE: katie wright > > > You know, actually there was a trigger of > sorts. > got the stomach flu at about a year. > Before the flu he was starting on table food > and > eating everything. After he got better he > gagged > easily and became (and still is) a very picky > eater. > > > __________________________________________________________ > Bored stiff? Loosen up... > Download and play hundreds of games for free > on Games. > http://games./games/front > > > ________________________________________________________________________________\ ____ Get your own web address. Have a HUGE year through Small Business. http://smallbusiness./domains/?p=BESTDEAL Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.