Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 , I am so glad that Christian is doing better. My son is 4 1/2 and still having a hard time. We're doing everything for him diet, Methb12, chelation, LDN, too many vitamins & supplements to name, ABA, cranio-sacral therapy, HBOT, etc.. He's doing better, but still isn't out of the woods. I hope that your son can make a full recovery. He could show people that all these children are sick and in need of medical/biomedical help, and there are treatments. Thank you for all that you have done and for sharing it your lives with us too. Autism Everyday is the only movie that I have seen that capture my daily struggles and pain. I wish you the best. Lynne AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 *Gulp* Now what? Thank you . > > I can completely understand the community's frustration. Yes, my > husband and I follow a true biomedical approach for Christian. He > was a very sick little boy for years. Thanks to the work of > wonderful DAN! doctors and parent mentors like JB and , > Christian is much better. He regressed from a happy, highly verbal, > nearly potty trained 2 year old to a miserable 2 and a half year old > with almost no words, no affect, mini seizures and diarrhea 10x a > day and the accompanying non-stop stomach pain and screaming. > Because of my parents generousity, I realize how fortunate I am, we > travelled all over the country trying to find help. So few doctors > have a clue. It was not until be found Dr. Krigsman did these start > to get better. I cannot pretend to imagine living through this > horrible nightmare, only to have the situation complicated by not > having the funds to get your child the treatment he/she needs. It is > shameful. Our children are so sick and families are being destroyed > in the struggle to find and pay for treatment. The parents, and some > physicians, I have met through this horrible journey are the bravest > people I know. There is no question that I believe my son regressed > into autism due to environmental factors. No question. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 , Thank you for your honesty. I respect and appreciate you coming on here and stating honestly, and openly what you have done to help Christian improve and become healthier. It is always wonderful to hear about a child who is returning from the brink. As a mother to another mother of an afected child I am truly happy to hear Christian is improving and I hope he continues to take steps towards recovery. For it is these children that are the definitive proof of what has occurred. I am a frustrated parent for my son Sam is 11 years old and still non verbal and still very ill. With his advancing age we are now dealing with self-injurious issues which probably stem from health issues and frustration from an inability to communicate. Also, puberty is knocking on the door. I am anti-behavioral medication so that makes it harder to control these things. We have done ABA in the past and have and are doing bio-medical interventions. Although our access to certain things has been limited due to the inability to pursue everything we would like to- due to financial issues. I know you understand that because you stated the impact of financial issues in the AS video. So, I'm just going to ask you flat out...will we ever hear about Christian's descent into the abyss, and his subsequent journey towards revocery from Autism Speaks? Can we expect Autism Speaks to acknowledge that the motivation for Autism Speaks was/is your son Christian and tell the truth about his experience? Your post has given me some piece of mind- for I knew Christian had to be utlizing bio-medical interventions and I hope that through his experince, your experience, that many if not all children will some day very soon have the same opportunities. The truth must be told if we are going to help children today affected by this, and prevent it from happening to the children of the future. > > I can completely understand the community's frustration. Yes, my > husband and I follow a true biomedical approach for Christian. He > was a very sick little boy for years. Thanks to the work of > wonderful DAN! doctors and parent mentors like JB and , > Christian is much better. He regressed from a happy, highly verbal, > nearly potty trained 2 year old to a miserable 2 and a half year old > with almost no words, no affect, mini seizures and diarrhea 10x a > day and the accompanying non-stop stomach pain and screaming. > Because of my parents generousity, I realize how fortunate I am, we > travelled all over the country trying to find help. So few doctors > have a clue. It was not until be found Dr. Krigsman did these start > to get better. I cannot pretend to imagine living through this > horrible nightmare, only to have the situation complicated by not > having the funds to get your child the treatment he/she needs. It is > shameful. Our children are so sick and families are being destroyed > in the struggle to find and pay for treatment. The parents, and some > physicians, I have met through this horrible journey are the bravest > people I know. There is no question that I believe my son regressed > into autism due to environmental factors. No question. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 , Thank you so much! Your son’s regression was exactly what happened to my son. Your voice will carry a lot of weight and when some don’t have the same power available they rely on those who do. I think we all have the same ache and feel the crushing loss of our children to Autism. Like our children, many of us parents are just crying out for help too. Screaming to deaf ears in the mainstream medical community for so long can cause some deep seeded pain. I respect you and your post tremendously. Best wishes in your treatments for Christian, he is a beautiful child. Thank you, From: EOHarm [mailto:EOHarm ] On Behalf Of katie Sent: Tuesday, March 27, 2007 10:02 AM EOHarm Subject: katie wright I can completely understand the community's frustration. Yes, my husband and I follow a true biomedical approach for Christian. He was a very sick little boy for years. Thanks to the work of wonderful DAN! doctors and parent mentors like JB and , Christian is much better. He regressed from a happy, highly verbal, nearly potty trained 2 year old to a miserable 2 and a half year old with almost no words, no affect, mini seizures and diarrhea 10x a day and the accompanying non-stop stomach pain and screaming. Because of my parents generousity, I realize how fortunate I am, we travelled all over the country trying to find help. So few doctors have a clue. It was not until be found Dr. Krigsman did these start to get better. I cannot pretend to imagine living through this horrible nightmare, only to have the situation complicated by not having the funds to get your child the treatment he/she needs. It is shameful. Our children are so sick and families are being destroyed in the struggle to find and pay for treatment. The parents, and some physicians, I have met through this horrible journey are the bravest people I know. There is no question that I believe my son regressed into autism due to environmental factors. No question. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 , Thank you for your post. Christian’s story is all too familiar to most of us here. My son is what they call a “tough nut.” He has not responded to the majority of the overwhelming number of biomedical interventions we have utilized. In an effort to heal our son, we have completely drained our finances AND those of his grandparents. He is seven years old, nonverbal and not potty trained. The life that we dreamed will never be. Would you care to clarify exactly which “environmental factors” you suspect caused Christian’s autism? I hope that you will continue to post here. Pamela " Courage is doing what you're afraid to do. There can be no courage unless you're scared. " Eddie Rickenbacker, top US fighter ace, WWI From: EOHarm [mailto:EOHarm ] On Behalf Of katie Sent: Tuesday, March 27, 2007 10:02 AM EOHarm Subject: katie wright I can completely understand the community's frustration. Yes, my husband and I follow a true biomedical approach for Christian. He was a very sick little boy for years. Thanks to the work of wonderful DAN! doctors and parent mentors like JB and , Christian is much better. He regressed from a happy, highly verbal, nearly potty trained 2 year old to a miserable 2 and a half year old with almost no words, no affect, mini seizures and diarrhea 10x a day and the accompanying non-stop stomach pain and screaming. Because of my parents generousity, I realize how fortunate I am, we travelled all over the country trying to find help. So few doctors have a clue. It was not until be found Dr. Krigsman did these start to get better. I cannot pretend to imagine living through this horrible nightmare, only to have the situation complicated by not having the funds to get your child the treatment he/she needs. It is shameful. Our children are so sick and families are being destroyed in the struggle to find and pay for treatment. The parents, and some physicians, I have met through this horrible journey are the bravest people I know. There is no question that I believe my son regressed into autism due to environmental factors. No question. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Environmental factors as in vaccines? Why must we mince words? I'm not being a wiseass (at least not here), but there seems to be some whacked-out religious conviction that noone can say vaccines, that that term is verboten? The vaccine protocol is screwed-up. We all know that. We all know that some vaccines are dangerous to certain individuals and the medical community completely misleads the public on this issue. Until we get that on the table, the autism epidemic will not be addressed. The history of vaccines and their utility in preventing disease is mixed (at best). They are insufficiently tested. They are viewed as a panacea. They're not. A number of them do quite a bit of damage. The vaccine protocol with thimerosal did a tremendous amount of damage. The present vaccine protocol may also be doing a tremendous amount of damage, even with the thimerosal removed. So be it. The fact that any number of nitwits posing as medical doctors want to run around chasing a holy grail that they do not completely understand is insufficent for dealing with this issue. Please don't take this wrong. I'm not admonishing. But we must speak about vaccines in general forthrightly. Otherwise, there can be no resolution. As always, I apologize, in advance, for my histrionics. Peace. katie wright I can completely understand the community's frustration. Yes, my husband and I follow a true biomedical approach for Christian. He was a very sick little boy for years. Thanks to the work of wonderful DAN! doctors and parent mentors like JB and , Christian is much better. He regressed from a happy, highly verbal, nearly potty trained 2 year old to a miserable 2 and a half year old with almost no words, no affect, mini seizures and diarrhea 10x a day and the accompanying non-stop stomach pain and screaming. Because of my parents generousity, I realize how fortunate I am, we travelled all over the country trying to find help. So few doctors have a clue. It was not until be found Dr. Krigsman did these start to get better. I cannot pretend to imagine living through this horrible nightmare, only to have the situation complicated by not having the funds to get your child the treatment he/she needs. It is shameful. Our children are so sick and families are being destroyed in the struggle to find and pay for treatment. The parents, and some physicians, I have met through this horrible journey are the bravest people I know. There is no question that I believe my son regressed into autism due to environmental factors. No question. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Her voice isn't going to carry much more weight than yours or mine, if it's not ever spoken to, picked up by, and disseminated by the main stream media. > > , Thank you so much! Your sons regression was exactly what happened to my son. Your voice will carry a lot of weight and when some dont have the same power available they rely on those who do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 " Also, remember when sat next to her father on Imus and had Christian's shot record and was pretty " vocal " about what happened to her son. I remember being blown away at her accusations and with her fahter sitting right nxt to her. I thougt...these people know what is going on. " I think what's going on here is a tactically devised plan to fist " attract more bees with honey, " and then gently reveal the vaccine- autism connection. I fully believe that the s know that mercury harmed their grandson, but to come out and spew this info to the not- ready-to-hear-it public would be foolish if they are to gain the respect and support from the allopathic medical community and their respective sheep herd. Hang in there, people - it will all come out. Unfortunately time is of the essence, but I have a feeling that Autism Speaks will play a major role in eventually telling it like it is, albeit a bit (ok, A LOT) too politcally correct when the time comes... Just my 2 cents. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Dear , I am so happy to see you here, I just posted to this thread, and THEN read your post! I had no idea you were here, thank you thank you thank you beyond words what your family is doing for children around the world. I know that Autism Speaks will take our small voices and allow them to be heard by everyone. (8 yr old twins dx'd w/ mercury toxicity) > > I can completely understand the community's frustration. Yes, my > husband and I follow a true biomedical approach for Christian. He > was a very sick little boy for years. Thanks to the work of > wonderful DAN! doctors and parent mentors like JB and , > Christian is much better. He regressed from a happy, highly verbal, > nearly potty trained 2 year old to a miserable 2 and a half year old > with almost no words, no affect, mini seizures and diarrhea 10x a > day and the accompanying non-stop stomach pain and screaming. > Because of my parents generousity, I realize how fortunate I am, we > travelled all over the country trying to find help. So few doctors > have a clue. It was not until be found Dr. Krigsman did these start > to get better. I cannot pretend to imagine living through this > horrible nightmare, only to have the situation complicated by not > having the funds to get your child the treatment he/she needs. It is > shameful. Our children are so sick and families are being destroyed > in the struggle to find and pay for treatment. The parents, and some > physicians, I have met through this horrible journey are the bravest > people I know. There is no question that I believe my son regressed > into autism due to environmental factors. No question. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Children who regress into autism, do so from the vaccines they are given. To date, I am unaware that there is a single child who has regressed into autism after appearing normal for the first several years of their life without that regression being precipitated by a vaccine challenge. Any number of vaccine researchers who speak forthrightly on the damage from vaccines have not seen a single normal child who has regressed into autism without a vaccine challenge. Let's just deal with this. And fix it. RE: katie wright Her voice isn't going to carry much more weight than yours or mine, ifit's not ever spoken to, picked up by, and disseminated by the mainstream media. > > , Thank you so much! Your sons regression was exactly what happened to my son. Your voice will carry a lot of weight and when some dont have the same power available they rely on those who do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 The public is ready to hear this. Those who do not wish this information to be made public do not want to hear this. Re: katie wright "Also, remember when sat next to her father on Imus and had Christian's shot record and was pretty "vocal" about what happened to her son. I remember being blown away at her accusations and with her fahter sitting right nxt to her. I thougt...these people know what is going on."I think what's going on here is a tactically devised plan to fist "attract more bees with honey," and then gently reveal the vaccine-autism connection. I fully believe that the s know that mercury harmed their grandson, but to come out and spew this info to the not-ready-to-hear-it public would be foolish if they are to gain the respect and support from the allopathic medical community and their respective sheep herd.Hang in there, people - it will all come out. Unfortunately time is of the essence, but I have a feeling that Autism Speaks will play a major role in eventually telling it like it is, albeit a bit (ok, A LOT) too politcally correct when the time comes...Just my 2 cents. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 But Henry, you are overlooking the latest research that shows possibly over 100 genes being involved in autism. And by some not yet understood reasons sometimes without warning and aboslutely to no fault of any of the vaccines in our government touted massive vaccine schedule; that DNA can just spontaneously & purely out of the blue mutate and cause regressive autism.... It's like some weird phenomena... > > Children who regress into autism, do so from the vaccines they are given. > > To date, I am unaware that there is a single child who has regressed into autism after appearing normal for the first several years of their life without that regression being precipitated by a vaccine challenge. > > Any number of vaccine researchers who speak forthrightly on the damage from vaccines have not seen a single normal child who has regressed into autism without a vaccine challenge. > > Let's just deal with this. > > And fix it. > > > > > > RE: katie wright > > > > Her voice isn't going to carry much more weight than yours or mine, if > it's not ever spoken to, picked up by, and disseminated by the main > stream media. > > > > > , Thank you so much! Your sons regression was exactly what happened to my son. Your voice will carry a lot of weight and when some dont have the same power available they rely on those who do. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 That's right. My head spontaneously exploded last monday when I was surfing the internet. I'll leave it to your imagination which sites I was surfing. Fortunately, I was able to put most of my brains back (but, as most of you will snigger, not all). RE: katie wright> > > > Her voice isn't going to carry much more weight than yours or mine, if> it's not ever spoken to, picked up by, and disseminated by the main> stream media. > > > > > , Thank you so much! Your sons regression was exactly what happened to my son. Your voice will carry a lot of weight and when some dont have the same power available they rely on those who do.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 I apologize. The last submission takes a previous thread directed to a discussion of TV guy, Barney, Sesame Street and Teletubbies to a place where I just don't want to go. RE: katie wright> > > > Her voice isn't going to carry much more weight than yours or mine, if> it's not ever spoken to, picked up by, and disseminated by the main> stream media. > > > > > , Thank you so much! Your sons regression was exactly what happened to my son. Your voice will carry a lot of weight and when some dont have the same power available they rely on those who do.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Hi , we all seem to be beating around the bush. Do you believe your son was damaged by vaccines? Do you have vaccine records to prove this? If the answers are yes....then what will it take to get this information out to the public? , your son is better, help the rest of the children and families that are suffering, as yours has. You know the pain is indescribable to all partys involved, it is devastating. It is in your hands. That may sound harsh, but, Christian has the label Autistic, right? There has never been treatment for Autism, because it was thought to be incurable, by the medical community, right? There is treatment for Mercury poisoning, right? Your son has improved from a (once thought to be untreatable) affliction (Autism) through bio medical intervention, right? How can he have " Autism " ? He doesn't, it is mercury toxcity from the vaccine load of the 90's +. Please help us to find a way to give our voice volume. Please don't judge me, rude or forward....the time is here, now, through you, . More sincerely yours than you can imagine! Lori Bedrio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Ok. I feel the need to respond to all of this. I disagree that there is a " right time " to come forward on the vaccine issue for the s. By treating their grandson with biomedical treatments they are privately acknoledging the vaccine played a role in Christian's regression. They chose to put their name and face with autism by starting Autism Speaks. They have been very sucessful in raising awareness for autism. So sucessful that Autism Speaks is dominating the majority of charitble contributions pertaining to autism. Yet, I have seen no grants awarded to vaccine or " environmental " research by Autism Speaks. The fact that Autism Speaks has a " policy " on Mercury and Autism and on that same page a PDF link to document stating that " while alot of things do cause autism, mercury in vaccines isn't one of them " is infuriating. The fact that the s have treated their son/grandson biomedically and then thru their orginization whitewash that issue is not only hypocritical but shameful. Autism Speaks had ample opportunity to stand strong for the autism community by demanding that the CAA retain language to include vaccines as an area of research and instead they sold the autism community down the river. Some people may be of the opinion that they are doing all they can and tha if he is treated biomedically that it is their private business but I disagree. They put themselves out there when they decided to " speak for autism " and that gives them power in our community. With power comes responsibility and I feel they have failed us thus far. Awareness could be a good thing but what good is it if more children are injured by vaccines while they are waiting for the " right time " to come forward? > > , > > > > Thank you for your post. Christian's story is all too familiar to most of > us here. My son is what they call a " tough nut. " He has not responded to > the majority of the overwhelming number of biomedical interventions we have > utilized. In an effort to heal our son, we have completely drained our > finances AND those of his grandparents. He is seven years old, nonverbal > and not potty trained. The life that we dreamed will never be. > > > > Would you care to clarify exactly which " environmental factors " you suspect > caused Christian's autism? > > > > I hope that you will continue to post here. > > > > Pamela > > " Courage is doing what you're afraid to do. There can be no courage unless > you're scared. " > > Eddie Rickenbacker, top US fighter ace, WWI > > > > _____ > > From: EOHarm [mailto:EOHarm ] On Behalf Of > katie > Sent: Tuesday, March 27, 2007 10:02 AM > EOHarm > Subject: katie wright > > > > I can completely understand the community's frustration. Yes, my > husband and I follow a true biomedical approach for Christian. He > was a very sick little boy for years. Thanks to the work of > wonderful DAN! doctors and parent mentors like JB and , > Christian is much better. He regressed from a happy, highly verbal, > nearly potty trained 2 year old to a miserable 2 and a half year old > with almost no words, no affect, mini seizures and diarrhea 10x a > day and the accompanying non-stop stomach pain and screaming. > Because of my parents generousity, I realize how fortunate I am, we > travelled all over the country trying to find help. So few doctors > have a clue. It was not until be found Dr. Krigsman did these start > to get better. I cannot pretend to imagine living through this > horrible nightmare, only to have the situation complicated by not > having the funds to get your child the treatment he/she needs. It is > shameful. Our children are so sick and families are being destroyed > in the struggle to find and pay for treatment. The parents, and some > physicians, I have met through this horrible journey are the bravest > people I know. There is no question that I believe my son regressed > into autism due to environmental factors. No question. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Hi , Welcome. I am also glad to see you posting. I think it is fair and right that you posted to everyone about Christian's involvement with biomedical DAN treatments. I am also glad to hear he is improving and doing better. , I think it is obvious that everyone has concerns here that AS is not addressing this issue. If the entire organization was built around the fact that Christian has autism, isn't it fair to also talk about his treatment and progress with this? Autism has affected far too many families, and yes, you are very fortunate in that your family can keep up with the financial demands of treatment for your son. Many parents here on this board and around the country cannot. If we do not fully address this issue immediately, then those children may be lost entirely because either they did not know this was a serious consideration in what may have caused their own child's autism, and second because they don't have insirance coverage to help with the cost of treatment. I have to tell you that, from a PR standpoint, AS has an obligation to answer this publicly. There are so many parents who have looked into the cause of their child's autism and have dismissed the link to Thimerosal. If AS is helping to foster that belief, then they will feel justified in ignoring the issue. What will happen if, someday, they find out that your own son was following a course of treatment that was in conflict with your organizations agenda and that he actually improved? I would think that many of your supporters may feel betrayed by this. I hope you understand, also, that I tend to be very frank at times and I am not trying to offend you or your family. I realize that AS is doing a lot of good as well. The amount of attention you have brought to autism is to be applauded. The money you have managed to bring in within such a short time is admirable. But, you also have to find a way to bring the full issue at hand to light. I also realize this is a tricky area for your organization to do. The people added to your boards through the merge with NAAR has complicated this. I also realize that there is the added pressure of getting cooperation from the very agencies and sources that are fighting us. However, AS is so big now and so 'upfront' in this fight in the public's eye, that I believe the exact opposite may occur. These agencies have been able to fight back because, to them, the parents are a small group who are vocal about this. Of course, the truth is that approximately half of all parents do believe this link is real, with the rest being on the fence or dismissing it due to their side being so vocal as well. If all autism organizations truly came together as one voice, we could make a huge impact. The credibility AS has is established in the media. What would happen if you came out and said, " I believe my son was damaged by the mercury in his vaccines " ? What would happen if you said, " I have been getting my son treatment based on mercury poisoning and he is improving. " The media would eat it up and would begin to take more notice. The CDC, FDA and AAP could do nothing about that. The public pressure would become so great that the vaccine manufacturers would have no choice but to remove Thimerosal from all vaccines because no one will get them anymore. Do I want to see the vaccine program collapse? No. The damage done to the program is already there, but it is not the fault of the parents. It is the fault of those who continue to ignore this, continue to make vaccines containing thimerosal and by their tactics to not address the issue honestly and straight on. I sincerely hope that you can convince your parents that it is the right thing to do to come out publicly with this. There are far too many families looking to you for answers and guidance. Col > > , > > > > Thank you for your post. Christian's story is all too familiar to most of > us here. My son is what they call a " tough nut. " He has not responded to > the majority of the overwhelming number of biomedical interventions we have > utilized. In an effort to heal our son, we have completely drained our > finances AND those of his grandparents. He is seven years old, nonverbal > and not potty trained. The life that we dreamed will never be. > > > > Would you care to clarify exactly which " environmental factors " you suspect > caused Christian's autism? > > > > I hope that you will continue to post here. > > > > Pamela > > " Courage is doing what you're afraid to do. There can be no courage unless > you're scared. " > > Eddie Rickenbacker, top US fighter ace, WWI > > > > _____ > > From: EOHarm [mailto:EOHarm ] On Behalf Of > katie > Sent: Tuesday, March 27, 2007 10:02 AM > EOHarm > Subject: katie wright > > > > I can completely understand the community's frustration. Yes, my > husband and I follow a true biomedical approach for Christian. He > was a very sick little boy for years. Thanks to the work of > wonderful DAN! doctors and parent mentors like JB and , > Christian is much better. He regressed from a happy, highly verbal, > nearly potty trained 2 year old to a miserable 2 and a half year old > with almost no words, no affect, mini seizures and diarrhea 10x a > day and the accompanying non-stop stomach pain and screaming. > Because of my parents generousity, I realize how fortunate I am, we > travelled all over the country trying to find help. So few doctors > have a clue. It was not until be found Dr. Krigsman did these start > to get better. I cannot pretend to imagine living through this > horrible nightmare, only to have the situation complicated by not > having the funds to get your child the treatment he/she needs. It is > shameful. Our children are so sick and families are being destroyed > in the struggle to find and pay for treatment. The parents, and some > physicians, I have met through this horrible journey are the bravest > people I know. There is no question that I believe my son regressed > into autism due to environmental factors. No question. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Nicely put, Col. > > Hi , > > Welcome. > > I am also glad to see you posting. I think it is fair and right that you posted to everyone > about Christian's involvement with biomedical DAN treatments. I am also glad to hear he is > improving and doing better. > > , I think it is obvious that everyone has concerns here that AS is not addressing this > issue. If the entire organization was built around the fact that Christian has autism, isn't it > fair to also talk about his treatment and progress with this? > > Autism has affected far too many families, and yes, you are very fortunate in that your > family can keep up with the financial demands of treatment for your son. Many parents > here on this board and around the country cannot. If we do not fully address this issue > immediately, then those children may be lost entirely because either they did not know > this was a serious consideration in what may have caused their own child's autism, and > second because they don't have insirance coverage to help with the cost of treatment. > > I have to tell you that, from a PR standpoint, AS has an obligation to answer this publicly. > There are so many parents who have looked into the cause of their child's autism and have > dismissed the link to Thimerosal. If AS is helping to foster that belief, then they will feel > justified in ignoring the issue. What will happen if, someday, they find out that your own > son was following a course of treatment that was in conflict with your organizations > agenda and that he actually improved? I would think that many of your supporters may > feel betrayed by this. > > I hope you understand, also, that I tend to be very frank at times and I am not trying to > offend you or your family. I realize that AS is doing a lot of good as well. The amount of > attention you have brought to autism is to be applauded. The money you have managed to > bring in within such a short time is admirable. But, you also have to find a way to bring the > full issue at hand to light. > > I also realize this is a tricky area for your organization to do. The people added to your > boards through the merge with NAAR has complicated this. I also realize that there is the > added pressure of getting cooperation from the very agencies and sources that are > fighting us. > > However, AS is so big now and so 'upfront' in this fight in the public's eye, that I believe > the exact opposite may occur. These agencies have been able to fight back because, to > them, the parents are a small group who are vocal about this. Of course, the truth is that > approximately half of all parents do believe this link is real, with the rest being on the > fence or dismissing it due to their side being so vocal as well. If all autism organizations > truly came together as one voice, we could make a huge impact. > > The credibility AS has is established in the media. What would happen if you came out and > said, " I believe my son was damaged by the mercury in his vaccines " ? What would happen > if you said, " I have been getting my son treatment based on mercury poisoning and he is > improving. " > > The media would eat it up and would begin to take more notice. The CDC, FDA and AAP > could do nothing about that. The public pressure would become so great that the vaccine > manufacturers would have no choice but to remove Thimerosal from all vaccines because > no one will get them anymore. > > Do I want to see the vaccine program collapse? No. The damage done to the program is > already there, but it is not the fault of the parents. It is the fault of those who continue to > ignore this, continue to make vaccines containing thimerosal and by their tactics to not > address the issue honestly and straight on. > > I sincerely hope that you can convince your parents that it is the right thing to do to come > out publicly with this. There are far too many families looking to you for answers and > guidance. > > Col > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Askotnicki, My son is treated biomedically (IV Chelation, diet, supplements) and I cannot say, beyond a shadow of a doubt, that his vaccines were the ONLY cause of his autism. I have a mouth full of fillings. My husband’s family all have immune problems (ADHD, Asthma). I put drops with Thimerosal in my son’s eyes when he was a week old. I had a 2 sonagrams and 1 amnio while pregnant. He was jaundice when born and had many rounds of Anti-Biotics. He never had a reaction or regression right after getting a shot (like some kids do). I also live on LI where we have some of the highest Cancer rates in the country. Of course I think his MANY vaccines with and without mercury contributed to this condition. Yes, the day when he was 16 months old and got 4 shots at once probably put him over the edge. Yes, he will never get another shot while I am alive. But, when you have so many sources of Mercury- you can’t pin ALL autism on the mercury in vaccines. On 3/27/07 12:51 PM, " askotnicki28 " <askotnicki28@...> wrote: Ok. I feel the need to respond to all of this. I disagree that there is a " right time " to come forward on the vaccine issue for the s. By treating their grandson with biomedical treatments they are privately acknoledging the vaccine played a role in Christian's regression. They chose to put their name and face with autism by starting Autism Speaks. They have been very sucessful in raising awareness for autism. So sucessful that Autism Speaks is dominating the majority of charitble contributions pertaining to autism. Yet, I have seen no grants awarded to vaccine or " environmental " research by Autism Speaks. The fact that Autism Speaks has a " policy " on Mercury and Autism and on that same page a PDF link to document stating that " while alot of things do cause autism, mercury in vaccines isn't one of them " is infuriating. The fact that the s have treated their son/grandson biomedically and then thru their orginization whitewash that issue is not only hypocritical but shameful. Autism Speaks had ample opportunity to stand strong for the autism community by demanding that the CAA retain language to include vaccines as an area of research and instead they sold the autism community down the river. Some people may be of the opinion that they are doing all they can and tha if he is treated biomedically that it is their private business but I disagree. They put themselves out there when they decided to " speak for autism " and that gives them power in our community. With power comes responsibility and I feel they have failed us thus far. Awareness could be a good thing but what good is it if more children are injured by vaccines while they are waiting for the " right time " to come forward? > > , > > > > Thank you for your post. Christian's story is all too familiar to most of > us here. My son is what they call a " tough nut. " He has not responded to > the majority of the overwhelming number of biomedical interventions we have > utilized. In an effort to heal our son, we have completely drained our > finances AND those of his grandparents. He is seven years old, nonverbal > and not potty trained. The life that we dreamed will never be. > > > > Would you care to clarify exactly which " environmental factors " you suspect > caused Christian's autism? > > > > I hope that you will continue to post here. > > > > Pamela > > " Courage is doing what you're afraid to do. There can be no courage unless > you're scared. " > > Eddie Rickenbacker, top US fighter ace, WWI > > > > _____ > > From: EOHarm <mailto:EOHarm%40> [mailto:EOHarm <mailto:EOHarm%40> ] On Behalf Of > katie > Sent: Tuesday, March 27, 2007 10:02 AM > EOHarm <mailto:EOHarm%40> > Subject: katie wright > > > > I can completely understand the community's frustration. Yes, my > husband and I follow a true biomedical approach for Christian. He > was a very sick little boy for years. Thanks to the work of > wonderful DAN! doctors and parent mentors like JB and , > Christian is much better. He regressed from a happy, highly verbal, > nearly potty trained 2 year old to a miserable 2 and a half year old > with almost no words, no affect, mini seizures and diarrhea 10x a > day and the accompanying non-stop stomach pain and screaming. > Because of my parents generousity, I realize how fortunate I am, we > travelled all over the country trying to find help. So few doctors > have a clue. It was not until be found Dr. Krigsman did these start > to get better. I cannot pretend to imagine living through this > horrible nightmare, only to have the situation complicated by not > having the funds to get your child the treatment he/she needs. It is > shameful. Our children are so sick and families are being destroyed > in the struggle to find and pay for treatment. The parents, and some > physicians, I have met through this horrible journey are the bravest > people I know. There is no question that I believe my son regressed > into autism due to environmental factors. No question. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 I have to agree. I believe my wife's amalgams/mercury body burden... and my two snips on the MTHFR gene likely started our daughter off with SOME kind of deficit when she was born... and then was sent over the edge at 15 months when she got five shots in the same visit. I remember that day like a horror film playing in my mind. I want mercury out of ALL medicine. Out of dentistry and out of vaccines. After that, we can go after the environmental sources. > >> > > >> > , > >> > > >> > > >> > > >> > Thank you for your post. Christian's story is all too familiar to > > most of > >> > us here. My son is what they call a " tough nut. " He has not > > responded to > >> > the majority of the overwhelming number of biomedical interventions > > we have > >> > utilized. In an effort to heal our son, we have completely drained > > our > >> > finances AND those of his grandparents. He is seven years old, > > nonverbal > >> > and not potty trained. The life that we dreamed will never be. > >> > > >> > > >> > > >> > Would you care to clarify exactly which " environmental factors " you > > suspect > >> > caused Christian's autism? > >> > > >> > > >> > > >> > I hope that you will continue to post here. > >> > > >> > > >> > > >> > Pamela > >> > > >> > " Courage is doing what you're afraid to do. There can be no > > courage unless > >> > you're scared. " > >> > > >> > Eddie Rickenbacker, top US fighter ace, WWI > >> > > >> > > >> > > >> > _____ > >> > > >> > From: EOHarm <mailto:EOHarm%40> > >> [mailto:EOHarm <mailto:EOHarm%40> ] On > > Behalf Of > >> > katie > >> > Sent: Tuesday, March 27, 2007 10:02 AM > >> > EOHarm <mailto:EOHarm%40> > >> > Subject: katie wright > >> > > >> > > >> > > >> > I can completely understand the community's frustration. Yes, my > >> > husband and I follow a true biomedical approach for Christian. He > >> > was a very sick little boy for years. Thanks to the work of > >> > wonderful DAN! doctors and parent mentors like JB and , > >> > Christian is much better. He regressed from a happy, highly verbal, > >> > nearly potty trained 2 year old to a miserable 2 and a half year > > old > >> > with almost no words, no affect, mini seizures and diarrhea 10x a > >> > day and the accompanying non-stop stomach pain and screaming. > >> > Because of my parents generousity, I realize how fortunate I am, we > >> > travelled all over the country trying to find help. So few doctors > >> > have a clue. It was not until be found Dr. Krigsman did these start > >> > to get better. I cannot pretend to imagine living through this > >> > horrible nightmare, only to have the situation complicated by not > >> > having the funds to get your child the treatment he/she needs. It > > is > >> > shameful. Our children are so sick and families are being destroyed > >> > in the struggle to find and pay for treatment. The parents, and > > some > >> > physicians, I have met through this horrible journey are the > > bravest > >> > people I know. There is no question that I believe my son regressed > >> > into autism due to environmental factors. No question. > >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Henry, I believe in the autism mercury connection. Can you provide a study reference for what you just said? If there is documentation that EVERY SINGLE child that regressed was vaccinated, that would be extraordinary scientific news that we can use to our advantage. thanks,Heidi From: H stratpat@...Reply-EOHarm To: EOHarm Subject: Re: katie wright Date: Tue, 27 Mar 2007 11:53:51 -0400 Children who regress into autism, do so from the vaccines they are given. To date, I am unaware that there is a single child who has regressed into autism after appearing normal for the first several years of their life without that regression being precipitated by a vaccine challenge. Any number of vaccine researchers who speak forthrightly on the damage from vaccines have not seen a single normal child who has regressed into autism without a vaccine challenge. Let's just deal with this. And fix it. RE: katie wright Her voice isn't going to carry much more weight than yours or mine, ifit's not ever spoken to, picked up by, and disseminated by the mainstream media. > > , Thank you so much! Your sons regression was exactly what happened to my son. Your voice will carry a lot of weight and when some dont have the same power available they rely on those who do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 I dont think in my post that I said vaccines were the only possible cause of autism. I thought the thread I replied to was on the issue of the s silence on the subject of vaccines. I do believe vaccines ( both mercury and live virus') caused my son to regress into severe autism. I also believe that there could have been other contributing factors antibiotics etc. However, until proper research is done on the subject of vaccines and autism we will not know exactly how the vaccines affected our kids and in what combination with other factors. I still firmly believe that the s should speak up on this issue. > >> > > >> > , > >> > > >> > > >> > > >> > Thank you for your post. Christian's story is all too familiar to > > most of > >> > us here. My son is what they call a " tough nut. " He has not > > responded to > >> > the majority of the overwhelming number of biomedical interventions > > we have > >> > utilized. In an effort to heal our son, we have completely drained > > our > >> > finances AND those of his grandparents. He is seven years old, > > nonverbal > >> > and not potty trained. The life that we dreamed will never be. > >> > > >> > > >> > > >> > Would you care to clarify exactly which " environmental factors " you > > suspect > >> > caused Christian's autism? > >> > > >> > > >> > > >> > I hope that you will continue to post here. > >> > > >> > > >> > > >> > Pamela > >> > > >> > " Courage is doing what you're afraid to do. There can be no > > courage unless > >> > you're scared. " > >> > > >> > Eddie Rickenbacker, top US fighter ace, WWI > >> > > >> > > >> > > >> > _____ > >> > > >> > From: EOHarm <mailto:EOHarm%40> > >> [mailto:EOHarm <mailto:EOHarm% 40> ] On > > Behalf Of > >> > katie > >> > Sent: Tuesday, March 27, 2007 10:02 AM > >> > EOHarm <mailto:EOHarm%40> > >> > Subject: katie wright > >> > > >> > > >> > > >> > I can completely understand the community's frustration. Yes, my > >> > husband and I follow a true biomedical approach for Christian. He > >> > was a very sick little boy for years. Thanks to the work of > >> > wonderful DAN! doctors and parent mentors like JB and , > >> > Christian is much better. He regressed from a happy, highly verbal, > >> > nearly potty trained 2 year old to a miserable 2 and a half year > > old > >> > with almost no words, no affect, mini seizures and diarrhea 10x a > >> > day and the accompanying non-stop stomach pain and screaming. > >> > Because of my parents generousity, I realize how fortunate I am, we > >> > travelled all over the country trying to find help. So few doctors > >> > have a clue. It was not until be found Dr. Krigsman did these start > >> > to get better. I cannot pretend to imagine living through this > >> > horrible nightmare, only to have the situation complicated by not > >> > having the funds to get your child the treatment he/she needs. It > > is > >> > shameful. Our children are so sick and families are being destroyed > >> > in the struggle to find and pay for treatment. The parents, and > > some > >> > physicians, I have met through this horrible journey are the > > bravest > >> > people I know. There is no question that I believe my son regressed > >> > into autism due to environmental factors. No question. > >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 My point was didn’t say “vaccines” contributed to her son’s autism. She said “environmental factors”. That includes more than vaccines. We are on the same side (you and me)- it’s sick that not enough money has been given to true biomed studies and all of that. Hell- I went on TV and said that the mercury in vaccines contributed to my son’s autism. I also said that I believe that mercury should be removed. But, I have nothing to lose. Yes, it’s not fair- but we all have to do our own thing and keep fighting the fight. The fight is not with AS. I’m not defending them- I would just rather see our energies go towards towards something positive like education and research. On 3/27/07 1:29 PM, " askotnicki28 " <askotnicki28@...> wrote: I dont think in my post that I said vaccines were the only possible cause of autism. I thought the thread I replied to was on the issue of the s silence on the subject of vaccines. I do believe vaccines ( both mercury and live virus') caused my son to regress into severe autism. I also believe that there could have been other contributing factors antibiotics etc. However, until proper research is done on the subject of vaccines and autism we will not know exactly how the vaccines affected our kids and in what combination with other factors. I still firmly believe that the s should speak up on this issue. > >> > > >> > , > >> > > >> > > >> > > >> > Thank you for your post. Christian's story is all too familiar to > > most of > >> > us here. My son is what they call a " tough nut. " He has not > > responded to > >> > the majority of the overwhelming number of biomedical interventions > > we have > >> > utilized. In an effort to heal our son, we have completely drained > > our > >> > finances AND those of his grandparents. He is seven years old, > > nonverbal > >> > and not potty trained. The life that we dreamed will never be. > >> > > >> > > >> > > >> > Would you care to clarify exactly which " environmental factors " you > > suspect > >> > caused Christian's autism? > >> > > >> > > >> > > >> > I hope that you will continue to post here. > >> > > >> > > >> > > >> > Pamela > >> > > >> > " Courage is doing what you're afraid to do. There can be no > > courage unless > >> > you're scared. " > >> > > >> > Eddie Rickenbacker, top US fighter ace, WWI > >> > > >> > > >> > > >> > _____ > >> > > >> > From: EOHarm <mailto:EOHarm%40> <mailto:EOHarm%40> > >> [mailto:EOHarm <mailto:EOHarm%40> <mailto:EOHarm% 40> ] On > > Behalf Of > >> > katie > >> > Sent: Tuesday, March 27, 2007 10:02 AM > >> > EOHarm <mailto:EOHarm%40> <mailto:EOHarm%40> > >> > Subject: katie wright > >> > > >> > > >> > > >> > I can completely understand the community's frustration. Yes, my > >> > husband and I follow a true biomedical approach for Christian. He > >> > was a very sick little boy for years. Thanks to the work of > >> > wonderful DAN! doctors and parent mentors like JB and , > >> > Christian is much better. He regressed from a happy, highly verbal, > >> > nearly potty trained 2 year old to a miserable 2 and a half year > > old > >> > with almost no words, no affect, mini seizures and diarrhea 10x a > >> > day and the accompanying non-stop stomach pain and screaming. > >> > Because of my parents generousity, I realize how fortunate I am, we > >> > travelled all over the country trying to find help. So few doctors > >> > have a clue. It was not until be found Dr. Krigsman did these start > >> > to get better. I cannot pretend to imagine living through this > >> > horrible nightmare, only to have the situation complicated by not > >> > having the funds to get your child the treatment he/she needs. It > > is > >> > shameful. Our children are so sick and families are being destroyed > >> > in the struggle to find and pay for treatment. The parents, and > > some > >> > physicians, I have met through this horrible journey are the > > bravest > >> > people I know. There is no question that I believe my son regressed > >> > into autism due to environmental factors. No question. > >> > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Just the ones where you see regression after vaccination (an overwhelming majority). katie wright> > > > I can completely understand the community's frustration. Yes, my > husband and I follow a true biomedical approach for Christian. He > was a very sick little boy for years. Thanks to the work of > wonderful DAN! doctors and parent mentors like JB and , > Christian is much better. He regressed from a happy, highly verbal, > nearly potty trained 2 year old to a miserable 2 and a half year old > with almost no words, no affect, mini seizures and diarrhea 10x a > day and the accompanying non-stop stomach pain and screaming. > Because of my parents generousity, I realize how fortunate I am, we > travelled all over the country trying to find help. So few doctors > have a clue. It was not until be found Dr. Krigsman did these start > to get better. I cannot pretend to imagine living through this > horrible nightmare, only to have the situation complicated by not > having the funds to get your child the treatment he/she needs. It is > shameful. Our children are so sick and families are being destroyed > in the struggle to find and pay for treatment. The parents, and some > physicians, I have met through this horrible journey are the bravest > people I know. There is no question that I believe my son regressed > into autism due to environmental factors. No question.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2007 Report Share Posted March 27, 2007 Absolutely. katie wright> >> > > >> > > >> > > >> > I can completely understand the community's frustration. Yes, my> >> > husband and I follow a true biomedical approach for Christian. He> >> > was a very sick little boy for years. Thanks to the work of> >> > wonderful DAN! doctors and parent mentors like JB and ,> >> > Christian is much better. He regressed from a happy, highly verbal,> >> > nearly potty trained 2 year old to a miserable 2 and a half year> > old > >> > with almost no words, no affect, mini seizures and diarrhea 10x a> >> > day and the accompanying non-stop stomach pain and screaming.> >> > Because of my parents generousity, I realize how fortunate I am, we> >> > travelled all over the country trying to find help. So few doctors> >> > have a clue. It was not until be found Dr. Krigsman did these start> >> > to get better. I cannot pretend to imagine living through this> >> > horrible nightmare, only to have the situation complicated by not> >> > having the funds to get your child the treatment he/she needs. It> > is > >> > shameful. Our children are so sick and families are being destroyed> >> > in the struggle to find and pay for treatment. The parents, and> > some > >> > physicians, I have met through this horrible journey are the> > bravest > >> > people I know. There is no question that I believe my son regressed> >> > into autism due to environmental factors. No question.> >> >> > > > > >> Quote Link to comment Share on other sites More sharing options...
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