Re: In need of an Update Maureen???

[Guest guest]

..<<.....she will let her bath water out and put in

freezing butt cold......>>

Ted does this also. I think he is impervious to the cold.

Gail

[Guest guest]

who are u talking too? Donna

>From: duffey48@...

>Reply-egroups

>egroups

>Subject: In need of an Update Maureen???

>Date: Thu, 2 Nov 2000 13:32:44 EST

>

>Hey Dear,

> You've been too quiet!! How's things?

>Donna

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com.

[Guest guest]

In a message dated 11/2/00 3:57:23 PM Eastern Standard Time,

brink_00@... writes:

<< who are u talking too? Donna >>

I am talking to MRAMUS (her email name), . She's 's Mom and

she's been quiet. I'm wondering how (her daughter) and she are doing.

Maureen has been kind, as usual, to respond to other posts, but we need to

know how they are doing. Just keeping up with my friends!!!

Donna

[Guest guest]

oh now I understand, thanks for explaining Donna

Rebeecca

>From: duffey48@...

>Reply-egroups

>egroups

>Subject: Re: In need of an Update Maureen???

>Date: Thu, 2 Nov 2000 16:30:47 EST

>

>In a message dated 11/2/00 3:57:23 PM Eastern Standard Time,

>brink_00@... writes:

>

><< who are u talking too? Donna >>

>

>I am talking to MRAMUS (her email name), . She's 's Mom and

>she's been quiet. I'm wondering how (her daughter) and she are

>doing.

> Maureen has been kind, as usual, to respond to other posts, but we need

>to

>know how they are doing. Just keeping up with my friends!!!

>Donna

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com.

[Guest guest]

oh now I understand, thanks for explaining Donna

>From: duffey48@...

>Reply-egroups

>egroups

>Subject: Re: In need of an Update Maureen???

>Date: Thu, 2 Nov 2000 16:30:47 EST

>

>In a message dated 11/2/00 3:57:23 PM Eastern Standard Time,

>brink_00@... writes:

>

><< who are u talking too? Donna >>

>

>I am talking to MRAMUS (her email name), . She's 's Mom and

>she's been quiet. I'm wondering how (her daughter) and she are

>doing.

> Maureen has been kind, as usual, to respond to other posts, but we need

>to

>know how they are doing. Just keeping up with my friends!!!

>Donna

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com.

[Guest guest]

In a message dated 11/2/00 12:46:41 PM Central Standard Time,

duffey48@... writes:

<< You've been too quiet!! How's things? >>

Hi, Donna and everyone --

Yep, I've been quiet and not online too often these past several weeks. At

one point I had almost 900 messages and had to delete most of them. It

seemed like I had been gone longer when I saw all the new names. Welcome to

all the new list members!

My mom survived her fifth stroke and is now in a nursing home, so I've been

spending more time with her and my dad. She's lost more functioning and lots

of weight and she's been battling infections. She's had five strokes in five

years and is getting very tired of the battle. My parents have been married

for 57 years, so naturally my father misses my mother very much and is pretty

lonely at home. It's a very difficult situation.

's 48 hour EEG was negative, and we're waiting on the results of her

sleep study. Then we'll go back to the pediatric neurologist at the

University of Chicago and talk about what we're going to do. I don't think

the risperdal is doing much of anything anymore. Her behavior has

deteriorated greatly, and she is very volatile and moody. Her sleeping seems

to be improving lately, but we don't see any correlating improvement in her

disposition and behavior. She's getting so big and she's so strong! Also,

we're reevaluating her educational placement in full inclusion. I'm not sure

that this is the best situation for her anymore. We're looking for options.

Thanks for asking about us, Donna. I'm glad Maddie is doing so well on the

reglan. Anything new with you guys?

Take care,

Maureen

[Guest guest]

In a message dated 11/2/00 7:21:18 PM Eastern Standard Time, MRASMUS@...

writes:

<< Thanks for asking about us, Donna. I'm glad Maddie is doing so well on

the

reglan. Anything new with you guys?

Take care,

Maureen

>>

Maureen, sorry about your Mom. It's good to hear from you again. Last I

remember hearing about was something about her leg? But, AOL keeps

kicking me off, so I think I keep missing post that I start to read. I'll

keep you and your Dad and Mom in my prayers.

Gail

[Guest guest]

In a message dated 11/2/00 7:21:21 PM Eastern Standard Time, MRASMUS@...

writes:

<< My parents have been married

for 57 years, so naturally my father misses my mother very much and is

pretty

lonely at home. It's a very difficult situation. >>

Oh Maureen!!! I'm sorry hon!!! How very sad!! For your Dad and you. Life

more than stinks sometimes, doesn't it!!! {{{{{{{{{{{hugs}}}}}}}}}}}

<<Her behavior has

deteriorated greatly, and she is very volatile and moody. Her sleeping seems

to be improving lately, but we don't see any correlating improvement in her

disposition and behavior. She's getting so big and she's so strong! Also,

we're reevaluating her educational placement in full inclusion. I'm not sure

that this is the best situation for her anymore. We're looking for options.>>

Man!! What about other meds Maureen? Will the neuro try something

different? How does she behave in school; the same as at home? It does seem

like a change may be what's necessary. Let us know what you find out about

your options. And Please remember, we love you!! Hang in there!!!

Donna

[Guest guest]

In a message dated 11/03/2000 12:53:25 PM Central Standard Time,

duffey48@... writes:

<< Man!! What about other meds Maureen? Will the neuro try something

different? How does she behave in school; the same as at home? It does

seem

like a change may be what's necessary. >>

We're waiting for 's psych and neuro to get their heads together about

what med(s) to try next. She behaves the same at school - it's just that she

has many more heads of hair to pull! She had another bad week, behavior

wise, even though she has been sleeping better these past few weeks. Her

aide had to remove her from class several times due to so much screaming and

yelling that the rest of the class couldn't function. She also had many

hitting, kicking, flopping, and non-compliant incidents this week. One day

she pulled hair 13 times and had many more attempts that were thwarted. I

don't think they know what to do with her anymore. They had the behavior

intervention team in last year, but nothing much ever came of it.

On the good side, she seems to be in a speech spurt! I'm trying to dwell on

the positive. We are just in a waiting mode until the docs get back to us

with sleep apnea results and med suggestions/changes. Thank you for asking,

Donna!

Take care,

Maureen

[Guest guest]

maureen,

i hope things get better with amanda and maybe the two docs can get their

heads together soon!!!! your in myprayers, leah

ps great news about the speech

[Guest guest]

Maureen,

I was wondering what kind of behavior mod was tried with ? Brook

used to be a big hair puller for a while until we had behavior therapy for

him which worked really well. It turned out that he was doing it for the

intense reaction that he would get. So we stopped reacting negatively and

just put him in a mini time out and it worked wonders. He was probably about

6yrs old at the time. How old is ? I hope you can get some good

answers from the docs.

Marisa

[Guest guest]

In a message dated 11/6/00 1:08:16 PM Central Standard Time, poggim@...

writes:

<< I was wondering what kind of behavior mod was tried with ? Brook

used to be a big hair puller for a while until we had behavior therapy for

him which worked really well. It turned out that he was doing it for the

intense reaction that he would get. So we stopped reacting negatively and

just put him in a mini time out and it worked wonders. >>

Hi, Marisa! Yep, we've tried the time-out method with , and

unfortunately, it has never worked. We do our best not to over-react when

she pulls hair, but when she's pulling another child's, she's hurting them

(she's really strong!), so we have to act quickly and decisively. She can

actually pull a smaller child down to the ground by their hair! Sometimes

she'll come up behind someone and get two hands full of hair and hold on for

dear life. It can take more than one person to get her to release her grip

on the unsuspecting victim. It's a little easier to ignore her and react

very little when she pulls my hair or Bob's. I keep telling myself that

behavior is communication, but there are so many times when she pulls hair

and it makes no sense at all - it just seems to be an impulse that she can't

control.

Hopefully, some new meds will help. Thanks again,

Maureen

[Guest guest]

Maureen,

is a " hair puller " too. It has been included in his behavior

management plan at school because he is constantly pulling the teacher, aides

and other kids hair. I asked the Psychiatrist about it and he says that he

feels that it is an " obsessive-compulsive " behavior that is beyond 's

control. (He is taking Zyprexa for SIB/aggressive behaviors.) The school

Behaviorist feels that it is an SI issue and has suggested giving him other

things to handle...I'm kind of at a loss for what specificly...maybe a wig?

LOL. Anyway, for as long as I can remember has always been

fascinated by hair, particularly long hair. He has always wanted to play

with it, twirl it, etc. Now he pulls it really hard. Like you said, he can

pull a kid (or adult) to the ground. When he pulls my hair, if I yell at

him " NO! That hurts! " , he looks at me like, " What? " Like he has no clue

that he has hurt me. (He is at about a 12 month level cognitively and is

non-verbal.) So far, nothing has really helped. We try to keep everybody's

hair out of his reach. The school Psychologist suggested that be

seated out of reach of the other kids so he can't pull hair, scratch, or

pinch them! It is a frustrating situation!

Terry

Mom to , 13 yrs

[Guest guest]

Hi Loriann,

I know whereof you speak! I know with my other kids, when they were

babies, I did the same thing. If they pulled hair, I pulled theirs back and

it worked. They stopped. I did try that with . I think it has more

to do with the motivator. is not pulling hair because he is mad at

someone (for instance). He sees hair and thinks it's for pulling, I think.

He is just fascinated with it and doesn't seem to comprehend or care that

he is hurting someone.

Terry

Mom to , 13 yrs.

[Guest guest]

Hi,

If he bites you, I would bite him back, but not that hard. I know it sounds

mean but, my college teacher said that if you do it back it shows how the

kid knows it hurts to bite someone.

from,

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com.

[Guest guest]

oh okay, then I don't know how to help you. It's weird.

>From: J Stolz <stolzfamily@...>

>Reply-egroups

>egroups

>Subject: Re: In need of an Update Maureen???

>Date: Tue, 7 Nov 2000 11:49:06 -0800

>

>,

>Except Matt likes it when we bite him. He tries to get his hand into our

>mouths and likes the feel of it! I leave teeth marks on him if I am not

>careful, and this is all HIS doing. But he doesnt' bite himself! He also

>likes fingernails dug into the palms, and backs of his hands, on his

>legs, arms, feet, and head. Not tummy or back. his back is as tickelish

>as some kids' tummies!

> S

>

>On Tue, 07 Nov 2000 13:36:16 CST " Dunning " <brink_00@...>

>writes:

> >

> >

> > Hi,

> >

> > If he bites you, I would bite him back, but not that hard. I know

> > it sounds

> > mean but, my college teacher said that if you do it back it shows

> > how the

> > kid knows it hurts to bite someone.

> >

> > from,

> >

> >

> >

> >

>_________________________________________________________________________

> > Get Your Private, Free E-mail from MSN Hotmail at

> > http://www.hotmail.com.

> >

> > Share information about yourself, create your own public profile at

> > http://profiles.msn.com.

> >

> >

> > -------------------------- eGroups Sponsor

> >

> >

> >

>

>________________________________________________________________

>YOU'RE PAYING TOO MUCH FOR THE INTERNET!

>Juno now offers FREE Internet Access!

>Try it today - there's no risk! For your FREE software, visit:

>http://dl.www.juno.com/get/tagj.

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com.

[Guest guest]

I know a lot of probably won't approve of what I am about to say, but it worked

on . has no idea that some things actually hurt. Whenever he did

something to hurt me, I did it right back to him (but just enough to irritate,

not actually hurt). If he pulled my hair, I pulled his. If he scratched me, I

scratched him back. I have to admit, I didn't bite him back though. Once he

got verbal, I would ask if it hurt him when someone did that. I always said

afterward, It hurts mommy when you pull her hair, or bite or whatever.

Now, that said, please don't call child protective services on me.....

Loriann

Wife to Dewight

Mom to , 10 years, DS-ASD, ADHD, ODD

And , 16 months and Strong Willed

[Guest guest]

mary,

that is so weird how matt likes to be bitten... i find it so odd how our kids

vary in what they like and how they like it..... scary.....

[Guest guest]

I guess that's the difference. I think did it as an anger releaser, or

retaliation. He spit in people's faces, too. One day he spit in mine and I

spit right back at him and it shocked him. I asked if he liked it, and he said

no, and I said, guess what? I don't either. He didn't spit in my face again,

but he kept spitting at other people. That's that not generalizing stuff. I

really hate that.

Loriann

Wife to Dewight

Mom to , 10 years, DS-ASD, ADHD, ODD

And , 16 months and Strong Willed

[Guest guest]

In a message dated 11/7/00 8:43:15 AM Pacific Standard Time,

hsmyangel@... writes:

<< Now, that said, please don't call child protective services on me..... >>

Loriann,

Now if the " dogooders " who actually made those phone calls walked only 5

minutes in our shoes...need I say more!

Jeannie

Mom to Mark and Steph

[Guest guest]

Yeah, that sucks! They can be so sweet one minute and just nail you

the next! LOL Keeps you on your toes though! Sort of bobbing and

weaving...HA! I wish I could make that connection with ...you

know, the cause and effect thing. For some reason, it really evades

him!

Terry

Mom to , age 13

[Guest guest]

,

Except Matt likes it when we bite him. He tries to get his hand into our

mouths and likes the feel of it! I leave teeth marks on him if I am not

careful, and this is all HIS doing. But he doesnt' bite himself! He also

likes fingernails dug into the palms, and backs of his hands, on his

legs, arms, feet, and head. Not tummy or back. his back is as tickelish

as some kids' tummies!

S

On Tue, 07 Nov 2000 13:36:16 CST " Dunning " <brink_00@...>

writes:

>

>

> Hi,

>

> If he bites you, I would bite him back, but not that hard. I know

> it sounds

> mean but, my college teacher said that if you do it back it shows

> how the

> kid knows it hurts to bite someone.

>

> from,

>

>

>

>

_________________________________________________________________________

> Get Your Private, Free E-mail from MSN Hotmail at

> http://www.hotmail.com.

>

> Share information about yourself, create your own public profile at

> http://profiles.msn.com.

>

>

> -------------------------- eGroups Sponsor

>

>

>

________________________________________________________________

YOU'RE PAYING TOO MUCH FOR THE INTERNET!

Juno now offers FREE Internet Access!

Try it today - there's no risk! For your FREE software, visit:

http://dl.www.juno.com/get/tagj.

[Guest guest]

i havent ever hit nathan back as of yet, but i do pretend to cry etc and he

always hus me and kisses my owie he just gave me and says " sorry " but he

still keeps hurting me and others quickly says sorry etc but does he even

bother to start it he should know by now that it hurts us?

[Guest guest]

maybe thats nathan's prob he does hurt us often but eagerly apologizes and

loves us up afterwards. hmmm.

[Guest guest]

YOU GO GIRL!!!!