Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 , Welcome to the group. Has your little one had the tests for the genetic disorders??? HIDS, FMF or TRAPS.... Just wondering... As for tonsil surgery it is a good option HOWEVER you really need to think about Cimetidine (alias Tagamet) before going for surgery. If you read the archives and go to the file section you will find more info. Cimetidine is given twice a day... dose depends on weight... for about 6 months. It can take that long to stop the fevers... MANY kids here have had great results. If it works you do not need to put your child under surgery... (It did not work for my son... so we did go for the tonsil surgery since he had 4 episodes of really bad tonsillitis and no relief from Cimetidine) Prednisone works well on some kids. One dose fever gone... HOWEVER on some kids it makes the fevers come much more frequent. I would try it.... IF it works and does not bring on fevers.... more often... It is a decent choice!! Since the joint pain is SOOOOOOOOOOO pronounced... I would just make sure that the genetic fever disorders were done. We do see kids with joint involvement however when described as intense as yours... I would make sure the appropriate tests were completed... Of course all kids with these disorders get different symptoms... some come and go while others seem to be consistent! God Bless and Welcome Fran Fran A Bulone Mom to ph 5 yrs old Waxhaw, NC Owner & Moderator Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 , Welcome to the group. Has your little one had the tests for the genetic disorders??? HIDS, FMF or TRAPS.... Just wondering... As for tonsil surgery it is a good option HOWEVER you really need to think about Cimetidine (alias Tagamet) before going for surgery. If you read the archives and go to the file section you will find more info. Cimetidine is given twice a day... dose depends on weight... for about 6 months. It can take that long to stop the fevers... MANY kids here have had great results. If it works you do not need to put your child under surgery... (It did not work for my son... so we did go for the tonsil surgery since he had 4 episodes of really bad tonsillitis and no relief from Cimetidine) Prednisone works well on some kids. One dose fever gone... HOWEVER on some kids it makes the fevers come much more frequent. I would try it.... IF it works and does not bring on fevers.... more often... It is a decent choice!! Since the joint pain is SOOOOOOOOOOO pronounced... I would just make sure that the genetic fever disorders were done. We do see kids with joint involvement however when described as intense as yours... I would make sure the appropriate tests were completed... Of course all kids with these disorders get different symptoms... some come and go while others seem to be consistent! God Bless and Welcome Fran Fran A Bulone Mom to ph 5 yrs old Waxhaw, NC Owner & Moderator Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 My daughter to has a lot of abdominal pain that is very difficult to deal with at times. Warm bathes, heating pad on low... do help some. We use Prednisone when she is having severe episodes and it does seem to help all of the symptoms including the abdominal pain. Christy Mom to 4 y/o Missouri Valley Ia >>> webyers@... 07/14/04 06:17PM >>> Hi, My name is and my son Hayden has had since he was about 7 months old. He was recently diagnosed after so many tests I have no nails left. He is now 3 this month and he is fevering and all the other horrible symptoms every 20 to 25 days. I was wondering if anyone has any ideas for the stomach pain and leg pain. He handles all the rest fairly well, puss on throat, swollen glands, headache, sores in mouth, but the stomach and legs really bother him. He rolls in pain with those. He is constantly on the ibu and tylenol every 4 and 6 hours. He has a seizure otherwise. The steroid is new to us, our ID at Stanford was reluctant to give it to us. We haven't tried it yet. I am waiting for next episode. Should I push for the tonsillectomy? They (Stanford) don't seem to think it is a cure all, but after reading all the posts it seems to help alot of these kids. Does the steriod help anything other than the fever, other symptoms? Glad to be part of the group. I thought for a long time that I was alone and we were doomed...SO THANK YOU FRAN AND ALL!!!!! Byers California Mom to Hayden 3yrs, and Phoenix 8 months. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2004 Report Share Posted July 15, 2004 My daughter to has a lot of abdominal pain that is very difficult to deal with at times. Warm bathes, heating pad on low... do help some. We use Prednisone when she is having severe episodes and it does seem to help all of the symptoms including the abdominal pain. Christy Mom to 4 y/o Missouri Valley Ia >>> webyers@... 07/14/04 06:17PM >>> Hi, My name is and my son Hayden has had since he was about 7 months old. He was recently diagnosed after so many tests I have no nails left. He is now 3 this month and he is fevering and all the other horrible symptoms every 20 to 25 days. I was wondering if anyone has any ideas for the stomach pain and leg pain. He handles all the rest fairly well, puss on throat, swollen glands, headache, sores in mouth, but the stomach and legs really bother him. He rolls in pain with those. He is constantly on the ibu and tylenol every 4 and 6 hours. He has a seizure otherwise. The steroid is new to us, our ID at Stanford was reluctant to give it to us. We haven't tried it yet. I am waiting for next episode. Should I push for the tonsillectomy? They (Stanford) don't seem to think it is a cure all, but after reading all the posts it seems to help alot of these kids. Does the steriod help anything other than the fever, other symptoms? Glad to be part of the group. I thought for a long time that I was alone and we were doomed...SO THANK YOU FRAN AND ALL!!!!! Byers California Mom to Hayden 3yrs, and Phoenix 8 months. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.