Re:more cimetidine questions.

[Guest guest]

Hi every one

I am still wondering, and confused. As Fran and others advice is to

take the cimetidine before having the tonsillectomy. Many of you had

given your kids the cimetidine for monthes,and for some it was more

helpful than others, how ever from what I can see nearly every one

ends up having the tonsillectomy. So I wonder why should we give the

kids so much medication if we can maybe prevent it by having the

tonsillectomy. I can understand that the risk is higher but as I had

mentioned most of you ended up having the tonsillectomy any way…

…….so thankful for this group…

Avi, father of Tomer,3,

Israel.

[Guest guest]

Hi every one

I am still wondering, and confused. As Fran and others advice is to

take the cimetidine before having the tonsillectomy. Many of you had

given your kids the cimetidine for monthes,and for some it was more

helpful than others, how ever from what I can see nearly every one

ends up having the tonsillectomy. So I wonder why should we give the

kids so much medication if we can maybe prevent it by having the

tonsillectomy. I can understand that the risk is higher but as I had

mentioned most of you ended up having the tonsillectomy any way…

…….so thankful for this group…

Avi, father of Tomer,3,

Israel.

[Guest guest]

Hi Rosmarie,

Thanks for writing, what you say does make sense how ever in our

case my son has been on steroids for the last year and cycles were

coming so much closer (48hrs-72hrs)

And it was becoming so unbearable. We decided to stop the steroids.

Here in Israel no one ever mentioned the cimetidine ,it was here in

the group that I first came across with this medication. So now we

are trying to find the next stage (while our son is fevering for the

last 4 days), and we are considering tonsillectomy.

God we are passing such a hard time but ai'nt we all……

Talk to you soon

Avi,Father of Tomer,3

Israel

[Guest guest]

Hi Rosmarie,

Thanks for writing, what you say does make sense how ever in our

case my son has been on steroids for the last year and cycles were

coming so much closer (48hrs-72hrs)

And it was becoming so unbearable. We decided to stop the steroids.

Here in Israel no one ever mentioned the cimetidine ,it was here in

the group that I first came across with this medication. So now we

are trying to find the next stage (while our son is fevering for the

last 4 days), and we are considering tonsillectomy.

God we are passing such a hard time but ai'nt we all……

Talk to you soon

Avi,Father of Tomer,3

Israel

[Guest guest]

Tracey (and others),

Drew also had his tonsillectomy without having the cimetidine.

BELIEVE ME- I tried to get a doctor to try it. I went through 4

different doctors- his primary care, his ENT, an infectious disease

doctor at Hasbro Children's in Providence, RI, and a rheumatology

doc at Boston Children's. I even brought in articles and everything

but to no avail. 3 of the 4 doc's recommended a tonsillectomy. So

we went ahead with that (I should also mention that Drew has very

large tonsils anyway which have obstructed his breathing when he

sleeps, especially with any kind of illness, so it was reasonable to

remove them). We had a tough post-op course. Then, starting 2

weeks after the tonsillectomy he spiked up fevers along with mouth

sores and horrible throat pain- which has lasted two weeks and just

ending today. Our pediatrician sent us back to

rheumatology/immunology at Boston Children's which we went to

today. Because of the short notice and the pediatrician wanted us

in very quickly, we saw a different doctor- who I wish we saw at

first! She is running more blood tests, re-checking labs, and also

checking a liver profile because he's been on tylenol or motrin

DAILY around the clock with no break for an entire month. I talked

with her about cimetidine, and she said that she would see the

results of lab work but would definitely consider cimetidine. This

doctor we saw today seems to have more experience and was more

thorough than any we have seen. We had to wait 2 1/2 hours from our

appointment time (not easy with a recovering toddler) but the doctor

spent over an hour with us. She even put on some of the numbing

cream on his arm before the blood draws which made it 100% easier-

no tears at all!!! It's hard to find the right doctor, and I feel

like I'm constantly dragging Drew around from one to another.

That's why when 4 different doc's refused cimetidine, I kind of gave

up hope for it. But for the 1st time, I am feeling more comfortable

and like someone might actually help us instead of saying " just give

him tylenol or motrin " or " well, let's wait and see what happens " .

So anyway, after 4 weeks of no food except lots of yogurt and an

occasional bite of pasta, Drew actually ate a peanut butter and

jelly sandwich today and a bowl of Chex cereal!! He has always been

a child who loved to eat, even when sick, and I never thought I'd

see the day where I was trying anything to get him to just take a

few bites!!

Thanks to all for the support, hopefully we're on the mend now.

mom to Drew, age 2 3/4

town, RI

[Guest guest]

Tracey (and others),

Drew also had his tonsillectomy without having the cimetidine.

BELIEVE ME- I tried to get a doctor to try it. I went through 4

different doctors- his primary care, his ENT, an infectious disease

doctor at Hasbro Children's in Providence, RI, and a rheumatology

doc at Boston Children's. I even brought in articles and everything

but to no avail. 3 of the 4 doc's recommended a tonsillectomy. So

we went ahead with that (I should also mention that Drew has very

large tonsils anyway which have obstructed his breathing when he

sleeps, especially with any kind of illness, so it was reasonable to

remove them). We had a tough post-op course. Then, starting 2

weeks after the tonsillectomy he spiked up fevers along with mouth

sores and horrible throat pain- which has lasted two weeks and just

ending today. Our pediatrician sent us back to

rheumatology/immunology at Boston Children's which we went to

today. Because of the short notice and the pediatrician wanted us

in very quickly, we saw a different doctor- who I wish we saw at

first! She is running more blood tests, re-checking labs, and also

checking a liver profile because he's been on tylenol or motrin

DAILY around the clock with no break for an entire month. I talked

with her about cimetidine, and she said that she would see the

results of lab work but would definitely consider cimetidine. This

doctor we saw today seems to have more experience and was more

thorough than any we have seen. We had to wait 2 1/2 hours from our

appointment time (not easy with a recovering toddler) but the doctor

spent over an hour with us. She even put on some of the numbing

cream on his arm before the blood draws which made it 100% easier-

no tears at all!!! It's hard to find the right doctor, and I feel

like I'm constantly dragging Drew around from one to another.

That's why when 4 different doc's refused cimetidine, I kind of gave

up hope for it. But for the 1st time, I am feeling more comfortable

and like someone might actually help us instead of saying " just give

him tylenol or motrin " or " well, let's wait and see what happens " .

So anyway, after 4 weeks of no food except lots of yogurt and an

occasional bite of pasta, Drew actually ate a peanut butter and

jelly sandwich today and a bowl of Chex cereal!! He has always been

a child who loved to eat, even when sick, and I never thought I'd

see the day where I was trying anything to get him to just take a

few bites!!

Thanks to all for the support, hopefully we're on the mend now.

mom to Drew, age 2 3/4

town, RI