Re: Re:more cimetidine questions.

[Guest guest]

Hi Avi,

It's true that a lot of people end up having the surgery. But there have

been SOME kids who have had miraculous results with the Cimetidine alone.

Because it is generally viewed as such a benign drug, the conventional

wisdom (if you can call it that) is to try the Cimetidine first. Because IF

it works, you don't need to have the surgery. If it DOESN'T work, you still

have the option of the surgery along with all the risks inherent in any

surgery.

I would really recommend trying the medicine first especially since your

child is so young.

So glad you're a part of the group.

Rosemarie

Mom to Danny age 10

Denver, CO

[Guest guest]

Hi Avi,

It's true that a lot of people end up having the surgery. But there have

been SOME kids who have had miraculous results with the Cimetidine alone.

Because it is generally viewed as such a benign drug, the conventional

wisdom (if you can call it that) is to try the Cimetidine first. Because IF

it works, you don't need to have the surgery. If it DOESN'T work, you still

have the option of the surgery along with all the risks inherent in any

surgery.

I would really recommend trying the medicine first especially since your

child is so young.

So glad you're a part of the group.

Rosemarie

Mom to Danny age 10

Denver, CO

[Guest guest]

Avi,

I'm so sorry your little boy is fevering right now. It's so exhausting and

heartbreaking to watch them suffer. Especially for a little guy that's only

3 years old! I used to be cheeful when I was taking care of my son and then

I'd go for a ride in the car and cry and shout.

Ask your doctor about the cimetidine. It's not a steriod. It was initially

developed to treat ulcers and other digestive disorders, but was later

discovered to be an " immune regulator " . Meaning that if your immune system

is in overdrive, it scales it back and if it is suppressed, it bumps it up a

little. Many people think is somehow related to the immune system

(since our kids tend to never get sick with anything else, it's thought that

their immune systems are in overdrive) although no one knows quite how it

all fits together. Cimetidine is now used for a number of different medical

conditions including treatment of warts in children! It's crazy.

But since it's not a steriod and I've NEVER heard of it bringing anyone's

fevers closer together, I'd really encourage you to try it.

I'm praying for you both right now. You are among friends.

Rosemarie

Mom to Danny age 10

Denver, CO

[Guest guest]

Avi,

I'm so sorry your little boy is fevering right now. It's so exhausting and

heartbreaking to watch them suffer. Especially for a little guy that's only

3 years old! I used to be cheeful when I was taking care of my son and then

I'd go for a ride in the car and cry and shout.

Ask your doctor about the cimetidine. It's not a steriod. It was initially

developed to treat ulcers and other digestive disorders, but was later

discovered to be an " immune regulator " . Meaning that if your immune system

is in overdrive, it scales it back and if it is suppressed, it bumps it up a

little. Many people think is somehow related to the immune system

(since our kids tend to never get sick with anything else, it's thought that

their immune systems are in overdrive) although no one knows quite how it

all fits together. Cimetidine is now used for a number of different medical

conditions including treatment of warts in children! It's crazy.

But since it's not a steriod and I've NEVER heard of it bringing anyone's

fevers closer together, I'd really encourage you to try it.

I'm praying for you both right now. You are among friends.

Rosemarie

Mom to Danny age 10

Denver, CO

[Guest guest]

Yes... children do end up having tonsils removed.. HOWEVER Cimetidine has a

good success rate and the risks involved in the surgery are something a

parent and physician NEED to look at.... Death is always a slim possibility.

Also we have a good amount of children that do not have a cure from

tonsils... If it were that simple... all children with would simply

have their tonsils removed.

Not so.

My son continues to fever although as he ages the fevers are getting further

apart and less severe...

He has been treated with ALL three methods and had poor results with all.

I pray time will be kind to us.

And above this we have 6 members that I know of that had tonsils done BEFORE

trying the Cimetidine... because their doc thought it would help and these

kids ALL ended up with no relief... 4 of them tried Cimetidine after

surgery... and had complete relief. As a VERY SEASONED Operating Room

Registered Nurse and RNFA, I would not want to put my child through an

invasive procedure BEFORE trying something like Cimetidine.... for 5-6

months.

God Bless,

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

Yes... children do end up having tonsils removed.. HOWEVER Cimetidine has a

good success rate and the risks involved in the surgery are something a

parent and physician NEED to look at.... Death is always a slim possibility.

Also we have a good amount of children that do not have a cure from

tonsils... If it were that simple... all children with would simply

have their tonsils removed.

Not so.

My son continues to fever although as he ages the fevers are getting further

apart and less severe...

He has been treated with ALL three methods and had poor results with all.

I pray time will be kind to us.

And above this we have 6 members that I know of that had tonsils done BEFORE

trying the Cimetidine... because their doc thought it would help and these

kids ALL ended up with no relief... 4 of them tried Cimetidine after

surgery... and had complete relief. As a VERY SEASONED Operating Room

Registered Nurse and RNFA, I would not want to put my child through an

invasive procedure BEFORE trying something like Cimetidine.... for 5-6

months.

God Bless,

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

I agree with Rosemarie... try the Cimetidine... first...

Your son's fevers should become further apart since you are stopping the

steroids...

The Cimetidine needs to be calculated at the highest dose for your son's

weight and given twice a day.

The doc can figure all that out...

If it does not work after 5-6 months... then evaluate the temps and seek

consultation with ENT.

This is simply my opinion... but imagine going through surgery and then it

not working and trying Cimetidine later.... and it allows the child to be

fever free??? Why subject your child to surgery and anesthesia when a much

more benign treatment might help??

Weigh the pros and cons before jumping into a decision... you can learn so

so much by others... You are already doing a WONDERFUL job reading and

researching the site...

God Bless,

Fran

[Guest guest]

I agree with Rosemarie... try the Cimetidine... first...

Your son's fevers should become further apart since you are stopping the

steroids...

The Cimetidine needs to be calculated at the highest dose for your son's

weight and given twice a day.

The doc can figure all that out...

If it does not work after 5-6 months... then evaluate the temps and seek

consultation with ENT.

This is simply my opinion... but imagine going through surgery and then it

not working and trying Cimetidine later.... and it allows the child to be

fever free??? Why subject your child to surgery and anesthesia when a much

more benign treatment might help??

Weigh the pros and cons before jumping into a decision... you can learn so

so much by others... You are already doing a WONDERFUL job reading and

researching the site...

God Bless,

Fran

[Guest guest]

My daughter had the tonsillectomy without having tried the cimetidine.

She had the tonsils and adnoids removed Aug. 10th and no fevers yet.

It's still early to say it " cured " her but the fevers were coming every

3-4 weeks. I did talk to my doctor and the ENT about trying cimetidine

first and they both suggessted going ahead with the tonsillectomy and

not the medication. They didn't feel that there was enough support that

the meds worked and didn't want her to be on another med. for life.

They also felt that tonsillectomy was a common procedure and was worth

the risk if there was a possibility of relief. Maddie's tonsils were

red and enlarged whenever she had her fevers so we knew that would at

least give her some relief for that even if the fevers didn't stop. I

think everyone has to see the advice of your doctors, the age of your

child and your gut instinct.

The choice was easy for us, because of other medical issues Maddie has

she has to be hospitalized whenever her fever is over 101. AND because

we knew that her tonsils became enlarged during fevers. So far so good.

We are keeping our fingers crossed that she continues on with NO fever.

Go with your gut. It seems the medicine like the surgery works for some

and not others. It looks like you won't know unless you try one.

I pray your son is feeling better tonight.

Tracey

mom to Maddie, age 5

League City, TX

On Wednesday, September 29, 2004, at 10:35 AM, Avi wrote:

> Hi every one

> I am still wondering, and confused. As Fran and others advice is to

> take the cimetidine before having the tonsillectomy. Many of you had

> given your kids the cimetidine for monthes,and for some it was more

> helpful than others, how ever from what I can see nearly every one

> ends up having the tonsillectomy. So I wonder why should we give the

> kids so much medication if we can maybe prevent it by having the

> tonsillectomy. I can understand that the risk is higher but as I had

> mentioned most of you ended up having the tonsillectomy any way…

> …….so thankful for this group…

> Avi, father of Tomer,3,

> Israel.

>

>

>

<image.tiff>

>

>

<image.tiff>

>

>

[Guest guest]

My daughter had the tonsillectomy without having tried the cimetidine.

She had the tonsils and adnoids removed Aug. 10th and no fevers yet.

It's still early to say it " cured " her but the fevers were coming every

3-4 weeks. I did talk to my doctor and the ENT about trying cimetidine

first and they both suggessted going ahead with the tonsillectomy and

not the medication. They didn't feel that there was enough support that

the meds worked and didn't want her to be on another med. for life.

They also felt that tonsillectomy was a common procedure and was worth

the risk if there was a possibility of relief. Maddie's tonsils were

red and enlarged whenever she had her fevers so we knew that would at

least give her some relief for that even if the fevers didn't stop. I

think everyone has to see the advice of your doctors, the age of your

child and your gut instinct.

The choice was easy for us, because of other medical issues Maddie has

she has to be hospitalized whenever her fever is over 101. AND because

we knew that her tonsils became enlarged during fevers. So far so good.

We are keeping our fingers crossed that she continues on with NO fever.

Go with your gut. It seems the medicine like the surgery works for some

and not others. It looks like you won't know unless you try one.

I pray your son is feeling better tonight.

Tracey

mom to Maddie, age 5

League City, TX

On Wednesday, September 29, 2004, at 10:35 AM, Avi wrote:

> Hi every one

> I am still wondering, and confused. As Fran and others advice is to

> take the cimetidine before having the tonsillectomy. Many of you had

> given your kids the cimetidine for monthes,and for some it was more

> helpful than others, how ever from what I can see nearly every one

> ends up having the tonsillectomy. So I wonder why should we give the

> kids so much medication if we can maybe prevent it by having the

> tonsillectomy. I can understand that the risk is higher but as I had

> mentioned most of you ended up having the tonsillectomy any way…

> …….so thankful for this group…

> Avi, father of Tomer,3,

> Israel.

>

>

>

<image.tiff>

>

>

<image.tiff>

>

>

[Guest guest]

<< They didn't feel that there was enough support that

the meds worked and didn't want her to be on another med. for life.>>

Need to clarify on a comment.

Cimetidine is NOT given for life.

It is recommended for 6 months and may be extended for a year if it is

working and the family opts to do this.

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

<< They didn't feel that there was enough support that

the meds worked and didn't want her to be on another med. for life.>>

Need to clarify on a comment.

Cimetidine is NOT given for life.

It is recommended for 6 months and may be extended for a year if it is

working and the family opts to do this.

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

I read that most kids with and traps and such fevers actually will get no

relief from advil or motrin..

.. im sorry its going rotten for you

Re:more cimetidine questions.

Tracey (and others),

Drew also had his tonsillectomy without having the cimetidine.

BELIEVE ME- I tried to get a doctor to try it. I went through 4

different doctors- his primary care, his ENT, an infectious disease

doctor at Hasbro Children's in Providence, RI, and a rheumatology

doc at Boston Children's. I even brought in articles and everything

but to no avail. 3 of the 4 doc's recommended a tonsillectomy. So

we went ahead with that (I should also mention that Drew has very

large tonsils anyway which have obstructed his breathing when he

sleeps, especially with any kind of illness, so it was reasonable to

remove them). We had a tough post-op course. Then, starting 2

weeks after the tonsillectomy he spiked up fevers along with mouth

sores and horrible throat pain- which has lasted two weeks and just

ending today. Our pediatrician sent us back to

rheumatology/immunology at Boston Children's which we went to

today. Because of the short notice and the pediatrician wanted us

in very quickly, we saw a different doctor- who I wish we saw at

first! She is running more blood tests, re-checking labs, and also

checking a liver profile because he's been on tylenol or motrin

DAILY around the clock with no break for an entire month. I talked

with her about cimetidine, and she said that she would see the

results of lab work but would definitely consider cimetidine. This

doctor we saw today seems to have more experience and was more

thorough than any we have seen. We had to wait 2 1/2 hours from our

appointment time (not easy with a recovering toddler) but the doctor

spent over an hour with us. She even put on some of the numbing

cream on his arm before the blood draws which made it 100% easier-

no tears at all!!! It's hard to find the right doctor, and I feel

like I'm constantly dragging Drew around from one to another.

That's why when 4 different doc's refused cimetidine, I kind of gave

up hope for it. But for the 1st time, I am feeling more comfortable

and like someone might actually help us instead of saying " just give

him tylenol or motrin " or " well, let's wait and see what happens " .

So anyway, after 4 weeks of no food except lots of yogurt and an

occasional bite of pasta, Drew actually ate a peanut butter and

jelly sandwich today and a bowl of Chex cereal!! He has always been

a child who loved to eat, even when sick, and I never thought I'd

see the day where I was trying anything to get him to just take a

few bites!!

Thanks to all for the support, hopefully we're on the mend now.

mom to Drew, age 2 3/4

town, RI

[Guest guest]

I read that most kids with and traps and such fevers actually will get no

relief from advil or motrin..

.. im sorry its going rotten for you

Re:more cimetidine questions.

Tracey (and others),

Drew also had his tonsillectomy without having the cimetidine.

BELIEVE ME- I tried to get a doctor to try it. I went through 4

different doctors- his primary care, his ENT, an infectious disease

doctor at Hasbro Children's in Providence, RI, and a rheumatology

doc at Boston Children's. I even brought in articles and everything

but to no avail. 3 of the 4 doc's recommended a tonsillectomy. So

we went ahead with that (I should also mention that Drew has very

large tonsils anyway which have obstructed his breathing when he

sleeps, especially with any kind of illness, so it was reasonable to

remove them). We had a tough post-op course. Then, starting 2

weeks after the tonsillectomy he spiked up fevers along with mouth

sores and horrible throat pain- which has lasted two weeks and just

ending today. Our pediatrician sent us back to

rheumatology/immunology at Boston Children's which we went to

today. Because of the short notice and the pediatrician wanted us

in very quickly, we saw a different doctor- who I wish we saw at

first! She is running more blood tests, re-checking labs, and also

checking a liver profile because he's been on tylenol or motrin

DAILY around the clock with no break for an entire month. I talked

with her about cimetidine, and she said that she would see the

results of lab work but would definitely consider cimetidine. This

doctor we saw today seems to have more experience and was more

thorough than any we have seen. We had to wait 2 1/2 hours from our

appointment time (not easy with a recovering toddler) but the doctor

spent over an hour with us. She even put on some of the numbing

cream on his arm before the blood draws which made it 100% easier-

no tears at all!!! It's hard to find the right doctor, and I feel

like I'm constantly dragging Drew around from one to another.

That's why when 4 different doc's refused cimetidine, I kind of gave

up hope for it. But for the 1st time, I am feeling more comfortable

and like someone might actually help us instead of saying " just give

him tylenol or motrin " or " well, let's wait and see what happens " .

So anyway, after 4 weeks of no food except lots of yogurt and an

occasional bite of pasta, Drew actually ate a peanut butter and

jelly sandwich today and a bowl of Chex cereal!! He has always been

a child who loved to eat, even when sick, and I never thought I'd

see the day where I was trying anything to get him to just take a

few bites!!

Thanks to all for the support, hopefully we're on the mend now.

mom to Drew, age 2 3/4

town, RI

[Guest guest]

,

I'm sorry Drew is having such a hard time. I didn't realize he's so

young. I know it's even more hard at that age when they can't tell you

what's going on.

Since Maddie turned 5, she's been able to communicate with us more on

what she's feeling. Anyway, like I said, Maddie's tonsils were large

too so I didn't push to find a doctor for the cimetidine anyway,

because my husband and I had already decided we wanted to give the

surgery a chance. We are so glad we did. I know the surgery hasn't

worked for everyone but I think trying the medicine or the surgery is

up to the parents and doctors to decide. I don't think everyone should

have to try the cimetidine first. Because like many have said the

medicine didn't work and then they went ahead with the surgery anyway.

Or the other way around. From what I've been able to research on here

and other sites, it seems the surgery doesn't work very often on kids

less than 5 years old. I hope Drew is better soon and it gets easier

for him and your family.

My daughter lives on fruit during her fevers.

Tracey

mom to Maddie, age 5

& Brent, age 9

League City, TX

On Wednesday, September 29, 2004, at 11:03 PM, and Bisson

wrote:

> I read that most kids with and traps and such fevers actually

> will get no relief from advil or motrin..

> .. im sorry its going rotten for you

>   Re:more cimetidine questions.

>

>

>   Tracey (and others),

>   Drew also had his tonsillectomy without having the cimetidine. 

>   BELIEVE ME- I tried to get a doctor to try it.  I went through 4

>   different doctors- his primary care, his ENT, an infectious disease

>   doctor at Hasbro Children's in Providence, RI, and a rheumatology

>   doc at Boston Children's.  I even brought in articles and everything

>   but to no avail.  3 of the 4 doc's recommended a tonsillectomy.  So

>   we went ahead with that (I should also mention that Drew has very

>   large tonsils anyway which have obstructed his breathing when he

>   sleeps, especially with any kind of illness, so it was reasonable to

>   remove them).  We had a tough post-op course.  Then, starting 2

>   weeks after the tonsillectomy he spiked up fevers along with mouth

>   sores and horrible throat pain- which has lasted two weeks and just

>   ending today.  Our pediatrician sent us back to

>   rheumatology/immunology at Boston Children's which we went to

>   today.  Because of the short notice and the pediatrician wanted us

>   in very quickly, we saw a different doctor- who I wish we saw at

>   first!  She is running more blood tests, re-checking labs, and also

>   checking a liver profile because he's been on tylenol or motrin

>   DAILY around the clock with no break for an entire month.  I talked

>   with her about cimetidine, and she said that she would see the

>   results of lab work but would definitely consider cimetidine.  This

>   doctor we saw today seems to have more experience and was more

>   thorough than any we have seen.  We had to wait 2 1/2 hours from our

>   appointment time (not easy with a recovering toddler) but the doctor

>   spent over an hour with us.  She even put on some of the numbing

>   cream on his arm before the blood draws which made it 100% easier-

>   no tears at all!!!  It's hard to find the right doctor, and I feel

>   like I'm constantly dragging Drew around from one to another. 

>   That's why when 4 different doc's refused cimetidine, I kind of gave

>   up hope for it.  But for the 1st time, I am feeling more comfortable

>   and like someone might actually help us instead of saying " just give

>   him tylenol or motrin " or " well, let's wait and see what happens " . 

>   So anyway, after 4 weeks of no food except lots of yogurt and an

>   occasional bite of pasta, Drew actually ate a peanut butter and

>   jelly sandwich today and a bowl of Chex cereal!! He has always been

>   a child who loved to eat, even when sick, and I never thought I'd

>   see the day where I was trying anything to get him to just take a

>   few bites!!

>   Thanks to all for the support, hopefully we're on the mend now.

>  

>   mom to Drew, age 2 3/4

>   town, RI

>

>

>

>

>        

[Guest guest]

,

I'm sorry Drew is having such a hard time. I didn't realize he's so

young. I know it's even more hard at that age when they can't tell you

what's going on.

Since Maddie turned 5, she's been able to communicate with us more on

what she's feeling. Anyway, like I said, Maddie's tonsils were large

too so I didn't push to find a doctor for the cimetidine anyway,

because my husband and I had already decided we wanted to give the

surgery a chance. We are so glad we did. I know the surgery hasn't

worked for everyone but I think trying the medicine or the surgery is

up to the parents and doctors to decide. I don't think everyone should

have to try the cimetidine first. Because like many have said the

medicine didn't work and then they went ahead with the surgery anyway.

Or the other way around. From what I've been able to research on here

and other sites, it seems the surgery doesn't work very often on kids

less than 5 years old. I hope Drew is better soon and it gets easier

for him and your family.

My daughter lives on fruit during her fevers.

Tracey

mom to Maddie, age 5

& Brent, age 9

League City, TX

On Wednesday, September 29, 2004, at 11:03 PM, and Bisson

wrote:

> I read that most kids with and traps and such fevers actually

> will get no relief from advil or motrin..

> .. im sorry its going rotten for you

>   Re:more cimetidine questions.

>

>

>   Tracey (and others),

>   Drew also had his tonsillectomy without having the cimetidine. 

>   BELIEVE ME- I tried to get a doctor to try it.  I went through 4

>   different doctors- his primary care, his ENT, an infectious disease

>   doctor at Hasbro Children's in Providence, RI, and a rheumatology

>   doc at Boston Children's.  I even brought in articles and everything

>   but to no avail.  3 of the 4 doc's recommended a tonsillectomy.  So

>   we went ahead with that (I should also mention that Drew has very

>   large tonsils anyway which have obstructed his breathing when he

>   sleeps, especially with any kind of illness, so it was reasonable to

>   remove them).  We had a tough post-op course.  Then, starting 2

>   weeks after the tonsillectomy he spiked up fevers along with mouth

>   sores and horrible throat pain- which has lasted two weeks and just

>   ending today.  Our pediatrician sent us back to

>   rheumatology/immunology at Boston Children's which we went to

>   today.  Because of the short notice and the pediatrician wanted us

>   in very quickly, we saw a different doctor- who I wish we saw at

>   first!  She is running more blood tests, re-checking labs, and also

>   checking a liver profile because he's been on tylenol or motrin

>   DAILY around the clock with no break for an entire month.  I talked

>   with her about cimetidine, and she said that she would see the

>   results of lab work but would definitely consider cimetidine.  This

>   doctor we saw today seems to have more experience and was more

>   thorough than any we have seen.  We had to wait 2 1/2 hours from our

>   appointment time (not easy with a recovering toddler) but the doctor

>   spent over an hour with us.  She even put on some of the numbing

>   cream on his arm before the blood draws which made it 100% easier-

>   no tears at all!!!  It's hard to find the right doctor, and I feel

>   like I'm constantly dragging Drew around from one to another. 

>   That's why when 4 different doc's refused cimetidine, I kind of gave

>   up hope for it.  But for the 1st time, I am feeling more comfortable

>   and like someone might actually help us instead of saying " just give

>   him tylenol or motrin " or " well, let's wait and see what happens " . 

>   So anyway, after 4 weeks of no food except lots of yogurt and an

>   occasional bite of pasta, Drew actually ate a peanut butter and

>   jelly sandwich today and a bowl of Chex cereal!! He has always been

>   a child who loved to eat, even when sick, and I never thought I'd

>   see the day where I was trying anything to get him to just take a

>   few bites!!

>   Thanks to all for the support, hopefully we're on the mend now.

>  

>   mom to Drew, age 2 3/4

>   town, RI

>

>

>

>

>        

[Guest guest]

>>>>I read that most kids with and traps and such fevers actually

will get no relief from advil or motrin..

.. im sorry its going rotten for you>>>>

THIS IS NOT TRUE

Motrin works better than Tylenol for MOST CHILDREN WITH ANY FEVER

DISORDER. Because the fevers run SO high for MOST of the children, the temp

appears to NOT reduce as much... BUT IT DOES REDUCE from 1-2 degrees... and

usually a caregiver will NEED to alternate with Tylenol every 3 hours to

maintain a level. THE CHILD will NOT be fever free if the child runs high...

103-107... but may reduce to 105 from 107.... and be maintained... there or

slightly lower by alternating.

If a child has a fever of 102... from a virus.. and you medicate with

Motrin... during a " normal " infection.. the temp will usually go down to 100

or so... maybe lower... similar... Our kids go higher in temp and parents

would like to see temps below 101.... or normal. This WILL not happen

because the fever reducing drug will not usually be able to reduce that MANY

degrees...

God Bless

FranFran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

>>>>I read that most kids with and traps and such fevers actually

will get no relief from advil or motrin..

.. im sorry its going rotten for you>>>>

THIS IS NOT TRUE

Motrin works better than Tylenol for MOST CHILDREN WITH ANY FEVER

DISORDER. Because the fevers run SO high for MOST of the children, the temp

appears to NOT reduce as much... BUT IT DOES REDUCE from 1-2 degrees... and

usually a caregiver will NEED to alternate with Tylenol every 3 hours to

maintain a level. THE CHILD will NOT be fever free if the child runs high...

103-107... but may reduce to 105 from 107.... and be maintained... there or

slightly lower by alternating.

If a child has a fever of 102... from a virus.. and you medicate with

Motrin... during a " normal " infection.. the temp will usually go down to 100

or so... maybe lower... similar... Our kids go higher in temp and parents

would like to see temps below 101.... or normal. This WILL not happen

because the fever reducing drug will not usually be able to reduce that MANY

degrees...

God Bless

FranFran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

thanks Fran

in researching TRAPS that they are now thinking kiara has.. it says on some of

the sites that motrin will not reduce.

Kiara can not take motrin as it leaves scarring in her cheeks like an NSAID

can.. most commonly naprosyn.. but this can too

Re: Re:more cimetidine questions.

>>>>I read that most kids with and traps and such fevers actually

will get no relief from advil or motrin..

.. im sorry its going rotten for you>>>>

THIS IS NOT TRUE

Motrin works better than Tylenol for MOST CHILDREN WITH ANY FEVER

DISORDER. Because the fevers run SO high for MOST of the children, the temp

appears to NOT reduce as much... BUT IT DOES REDUCE from 1-2 degrees... and

usually a caregiver will NEED to alternate with Tylenol every 3 hours to

maintain a level. THE CHILD will NOT be fever free if the child runs high...

103-107... but may reduce to 105 from 107.... and be maintained... there or

slightly lower by alternating.

If a child has a fever of 102... from a virus.. and you medicate with

Motrin... during a " normal " infection.. the temp will usually go down to 100

or so... maybe lower... similar... Our kids go higher in temp and parents

would like to see temps below 101.... or normal. This WILL not happen

because the fever reducing drug will not usually be able to reduce that MANY

degrees...

God Bless

FranFran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

thanks Fran

in researching TRAPS that they are now thinking kiara has.. it says on some of

the sites that motrin will not reduce.

Kiara can not take motrin as it leaves scarring in her cheeks like an NSAID

can.. most commonly naprosyn.. but this can too

Re: Re:more cimetidine questions.

>>>>I read that most kids with and traps and such fevers actually

will get no relief from advil or motrin..

.. im sorry its going rotten for you>>>>

THIS IS NOT TRUE

Motrin works better than Tylenol for MOST CHILDREN WITH ANY FEVER

DISORDER. Because the fevers run SO high for MOST of the children, the temp

appears to NOT reduce as much... BUT IT DOES REDUCE from 1-2 degrees... and

usually a caregiver will NEED to alternate with Tylenol every 3 hours to

maintain a level. THE CHILD will NOT be fever free if the child runs high...

103-107... but may reduce to 105 from 107.... and be maintained... there or

slightly lower by alternating.

If a child has a fever of 102... from a virus.. and you medicate with

Motrin... during a " normal " infection.. the temp will usually go down to 100

or so... maybe lower... similar... Our kids go higher in temp and parents

would like to see temps below 101.... or normal. This WILL not happen

because the fever reducing drug will not usually be able to reduce that MANY

degrees...

God Bless

FranFran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

[Guest guest]

,

Please guide me to the " sites " where you are reading this information. There

is little information I have found on the web... and we have two members

here who have children with TRAPs. I assisted one of the Mom's with

developing the TRAPs site.... through .... and found the other Mom

through a FMF support site... Neither of these Mom's are having an easy time

getting info on TRAPs other than what Charyn and I have received from Dr

Kastner at NIH... Charyn decided to create the TRAPs group because of the

difficulty she was having getting personal opinions regarding drugs like

Enbrel, used to treat TRAPS and other disorders....

This is a wonderful networking situation for these Moms.... so please share

the sites and I will upload them to our site for any new people who are

still in the diagnostic phase...

God Bless

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

thanks Fran

in researching TRAPS that they are now thinking kiara has.. it says on

some of the sites that motrin will not reduce.

Kiara can not take motrin as it leaves scarring in her cheeks like an

NSAID can.. most commonly naprosyn.. but this can too

[Guest guest]

,

Please guide me to the " sites " where you are reading this information. There

is little information I have found on the web... and we have two members

here who have children with TRAPs. I assisted one of the Mom's with

developing the TRAPs site.... through .... and found the other Mom

through a FMF support site... Neither of these Mom's are having an easy time

getting info on TRAPs other than what Charyn and I have received from Dr

Kastner at NIH... Charyn decided to create the TRAPs group because of the

difficulty she was having getting personal opinions regarding drugs like

Enbrel, used to treat TRAPS and other disorders....

This is a wonderful networking situation for these Moms.... so please share

the sites and I will upload them to our site for any new people who are

still in the diagnostic phase...

God Bless

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

thanks Fran

in researching TRAPS that they are now thinking kiara has.. it says on

some of the sites that motrin will not reduce.

Kiara can not take motrin as it leaves scarring in her cheeks like an

NSAID can.. most commonly naprosyn.. but this can too

[Guest guest]

hereis the one site..

it talks about NSAIDS which is what advil falls under

http://www.pslgroup.com/dg/20DA2A.htm

Re: Re:more cimetidine questions.

,

Please guide me to the " sites " where you are reading this information. There

is little information I have found on the web... and we have two members

here who have children with TRAPs. I assisted one of the Mom's with

developing the TRAPs site.... through .... and found the other Mom

through a FMF support site... Neither of these Mom's are having an easy time

getting info on TRAPs other than what Charyn and I have received from Dr

Kastner at NIH... Charyn decided to create the TRAPs group because of the

difficulty she was having getting personal opinions regarding drugs like

Enbrel, used to treat TRAPS and other disorders....

This is a wonderful networking situation for these Moms.... so please share

the sites and I will upload them to our site for any new people who are

still in the diagnostic phase...

God Bless

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

thanks Fran

in researching TRAPS that they are now thinking kiara has.. it says on

some of the sites that motrin will not reduce.

Kiara can not take motrin as it leaves scarring in her cheeks like an

NSAID can.. most commonly naprosyn.. but this can too

[Guest guest]

hereis the one site..

it talks about NSAIDS which is what advil falls under

http://www.pslgroup.com/dg/20DA2A.htm

Re: Re:more cimetidine questions.

,

Please guide me to the " sites " where you are reading this information. There

is little information I have found on the web... and we have two members

here who have children with TRAPs. I assisted one of the Mom's with

developing the TRAPs site.... through .... and found the other Mom

through a FMF support site... Neither of these Mom's are having an easy time

getting info on TRAPs other than what Charyn and I have received from Dr

Kastner at NIH... Charyn decided to create the TRAPs group because of the

difficulty she was having getting personal opinions regarding drugs like

Enbrel, used to treat TRAPS and other disorders....

This is a wonderful networking situation for these Moms.... so please share

the sites and I will upload them to our site for any new people who are

still in the diagnostic phase...

God Bless

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

thanks Fran

in researching TRAPS that they are now thinking kiara has.. it says on

some of the sites that motrin will not reduce.

Kiara can not take motrin as it leaves scarring in her cheeks like an

NSAID can.. most commonly naprosyn.. but this can too

[Guest guest]

also when i put in TRAPS fever disorders it comes up with lots of options

Re: Re:more cimetidine questions.

,

Please guide me to the " sites " where you are reading this information. There

is little information I have found on the web... and we have two members

here who have children with TRAPs. I assisted one of the Mom's with

developing the TRAPs site.... through .... and found the other Mom

through a FMF support site... Neither of these Mom's are having an easy time

getting info on TRAPs other than what Charyn and I have received from Dr

Kastner at NIH... Charyn decided to create the TRAPs group because of the

difficulty she was having getting personal opinions regarding drugs like

Enbrel, used to treat TRAPS and other disorders....

This is a wonderful networking situation for these Moms.... so please share

the sites and I will upload them to our site for any new people who are

still in the diagnostic phase...

God Bless

Fran

Fran A Bulone

Mom to ph 5 yrs old

Waxhaw, NC

Owner & Moderator Group

thanks Fran

in researching TRAPS that they are now thinking kiara has.. it says on

some of the sites that motrin will not reduce.

Kiara can not take motrin as it leaves scarring in her cheeks like an

NSAID can.. most commonly naprosyn.. but this can too