my intro to the support group

[Guest guest]

Good Morning,

My name is Toni Hoffmann. My son Dylan is 11-1/2 and has suffered with

since he is 2. He was diagnosed when he was 4. My pediatrician thought I was

a nervous mom. He siad Dylan was sick so much because he was in daycare. I

went to another dr. and insisted he be tested. We went to a Rheumatologist at

Snyder Children's Hospital in New York. Amazingly the day of our appointment

Dylan was starting a fever cycle. It was called FAPA at the time. Not sure

when the P was added. Cimiditine did not make a difference. We have always

hoped that age and possibly puberty would make a difference. Surprise August

2003 was Dylan's last fever.... until June 2004 & July 2004 it was back.

Tonsils looking worse, more swollen and more pus and fevers to 105. Believe

me it doesn't get any better because the child is older. Watching helplessly

as a parent is torture.

I'm hoping I can convince the peditrician that he needs a tonsillectomy. I feel

it is worth a try. He is missing out on so much because of this.