Re: Shane's results and new symptoms

[Guest guest]

Beverly,

Actually a lot of people on the site have gotten complete relief from

symptoms. A lot of them don't write anymore, however, since their kids are

well now. Sometimes I'm a little hesitant to say that because I feel so bad

for the families who didn't get complete relief from the surgery. But many,

many people have found it to be a cure. And as I've said before, I have yet

to read a message from a parent whose child had the surgery saying they wish

they hadn't. Even those who didn't get complete relief saw SOME relief

either in symptoms or severity of episodes.

I'm a believer in the surgery. Yes, it was scary (Fran basically had to

hold my hand through the whole thing!). Yes, it's a risk, any surgery is.

But, YES, it was worth it to us. Our boy is well again, thank GOD. He has

his life back. He swims on swim team and plays baseball and basketball. We

now sometimes actually worry that he's getting a little CHUBBY!...unlike

when we were spoonfeeding him Ensure just to keep some meat on his bones

between episodes.

My heart breaks for the kids who don't get relief from the surgery or from

medicine. I am, however, fall-down-on-my-knees-thankful that it worked for

our son despite the fact that I'm always afraid I'll somehow " jinx " his

health by even saying that " he's cured " out loud.

You're a good mom, Beverly. Listen to your gut on this one. I know you'll

make the right decision for your child.

Rosemarie

Mom to Danny age 10, age 15 and age 6

Denver, CO

[Guest guest]

Though I have posted about this before, I wanted to add some details.

Unfortunately, my son did not get relief from the surgery. Yes, he was fever

free for a short bit (not sure exactly but I think 3 months, don't quote me).

He had the surgery 1 month after his 3rd birthday.

I think the surgery was premature. I wish like you know what we would have

waited. Caden still had episodes with the same severity and frequency as

before. To top it all off, we found out very recently that his tonsils are

coming back.

Not what I wanted to say the least.

If you do decide to do it, make sure you are well informed beforehand.

Dallas, TX

--

L. s

shelleyluan@...

(214) 223-7008

-------------- Original message --------------

> Beverly,

>

> Actually a lot of people on the site have gotten complete relief from

> symptoms. A lot of them don't write anymore, however, since their kids are

> well now. Sometimes I'm a little hesitant to say that because I feel so bad

> for the families who didn't get complete relief from the surgery. But many,

> many people have found it to be a cure. And as I've said before, I have yet

> to read a message from a parent whose child had the surgery saying they wish

> they hadn't. Even those who didn't get complete relief saw SOME relief

> either in symptoms or severity of episodes.

>

> I'm a believer in the surgery. Yes, it was scary (Fran basically had to

> hold my hand through the whole thing!). Yes, it's a risk, any surgery is.

> But, YES, it was worth it to us. Our boy is well again, thank GOD. He has

> his life back. He swims on swim team and plays baseball and basketball. We

> now sometimes actually worry that he's getting a little CHUBBY!...unlike

> when we were spoonfeeding him Ensure just to keep some meat on his bones

> between episodes.

>

> My heart breaks for the kids who don't get relief from the surgery or from

> medicine. I am, however, fall-down-on-my-knees-thankful that it worked for

> our son despite the fact that I'm always afraid I'll somehow " jinx " his

> health by even saying that " he's cured " out loud.

>

> You're a good mom, Beverly. Listen to your gut on this one. I know you'll

> make the right decision for your child.

>

> Rosemarie

> Mom to Danny age 10, age 15 and age 6

> Denver, CO

>

>

>

>

>

>

[Guest guest]

Though I have posted about this before, I wanted to add some details.

Unfortunately, my son did not get relief from the surgery. Yes, he was fever

free for a short bit (not sure exactly but I think 3 months, don't quote me).

He had the surgery 1 month after his 3rd birthday.

I think the surgery was premature. I wish like you know what we would have

waited. Caden still had episodes with the same severity and frequency as

before. To top it all off, we found out very recently that his tonsils are

coming back.

Not what I wanted to say the least.

If you do decide to do it, make sure you are well informed beforehand.

Dallas, TX

--

L. s

shelleyluan@...

(214) 223-7008

-------------- Original message --------------

> Beverly,

>

> Actually a lot of people on the site have gotten complete relief from

> symptoms. A lot of them don't write anymore, however, since their kids are

> well now. Sometimes I'm a little hesitant to say that because I feel so bad

> for the families who didn't get complete relief from the surgery. But many,

> many people have found it to be a cure. And as I've said before, I have yet

> to read a message from a parent whose child had the surgery saying they wish

> they hadn't. Even those who didn't get complete relief saw SOME relief

> either in symptoms or severity of episodes.

>

> I'm a believer in the surgery. Yes, it was scary (Fran basically had to

> hold my hand through the whole thing!). Yes, it's a risk, any surgery is.

> But, YES, it was worth it to us. Our boy is well again, thank GOD. He has

> his life back. He swims on swim team and plays baseball and basketball. We

> now sometimes actually worry that he's getting a little CHUBBY!...unlike

> when we were spoonfeeding him Ensure just to keep some meat on his bones

> between episodes.

>

> My heart breaks for the kids who don't get relief from the surgery or from

> medicine. I am, however, fall-down-on-my-knees-thankful that it worked for

> our son despite the fact that I'm always afraid I'll somehow " jinx " his

> health by even saying that " he's cured " out loud.

>

> You're a good mom, Beverly. Listen to your gut on this one. I know you'll

> make the right decision for your child.

>

> Rosemarie

> Mom to Danny age 10, age 15 and age 6

> Denver, CO

>

>

>

>

>

>