Re: Re: Another Vent.....

[Guest guest]

,

The last time we had behavior therapy for Brook the therapist who was so

so told me sort of the same kind of thing. She said that I was going to have

to put in a lot of time training him and she copied these chapters on play

skills and get ready skills.

This was when I had a 4 month old baby too and Brook was having major

behavior problems. He was spraying water eveywhere and flooding the house

and he was really getting frustrated with his videos and banging his head on

the floor a lot and having a lot of tantrums.

Anyway she didn't really understand Brook, we didn't look at him with the

autism in mind yet. Her director would just look at his age and say that we

had to work on the toilet training. We did work on toilet training and the

best thing that came out of it was that he learned to poop in the toilet

before his bath. Anyway the therpists have their own agenda I have found. I

had asked for help with the water spraying and the tantrums and she wanted to

work on toilet training. That gets really annoying when they are supposed to

help you and they give you all this other stuff to worry about and do.

Anyway the whole experience depends greatly on how good the therapist is I

think. What are you trying to accomplish with JJ?

Marisa

[Guest guest]

then what the heck do they teach them in BM, nathan learned to work then

play as part of his BM then they expanded from that. shawna

>From: Ltb3105@...

>Reply-egroups

>egroups

>Subject: Re: Another Vent.....

>Date: Tue, 11 Jul 2000 11:09:04 EDT

>

>In a message dated 7/10/00 9:18:13 PM Pacific Daylight Time,

>egroups writes:

>

><< I know how infutiating this is. I was told by 2 workers from the same

> company that would be doing our BM that JJ has so learn " get ready

>skills "

> before they could work with him. >>

>:

>What the hell are " get ready skills " ???? Must be same thing my therapist

>told me.....that until gets a " handle " of what's expected of him...in

>other words, medically controlled somewhat first, then she doesn't see the

>point in trying to instill any of her 'methods'........

>

>

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[Guest guest]

Since we're talking about goals for our children... I would like to see

able to do things he doesn't necessarily enjoy. We all in life have to do

things we don't like to do, like housework, going to work (I'd much rather stay

home and watch tv). It's easy to do the things we love. It's much harder to do

the things that need to be done. We've gotten almost to the point that I

could take him to Walmart and he would walk beside the cart - IF we were going

just to get him something. Now we're going to work on him being good for

errands that are just for me...

As for the fine motor skills, that's weak area. too. I start small and

require him to do a little before he can do something more enjoyable. He HATES

to write, so I just require very little, but it has to be almost perfect. The

fact that I only need 3 perfect letter cc's (connected, we're starting cursive

over again this year), sometimes makes him try harder. I don't accept the ones

that are out of the lines (unless it's a tiny bit), but I do make allowances for

his hands being tired.

Like I said, we all need to be able to do things that just need to get done, but

aren't necessarily our favorite things. BUT, with that said, it's taken me a

long time to get to this point. Last year, I wouldn't have thought of

anything but getting him to walk beside the cart for his own errands.

Loriann

[Guest guest]

,

You know JJ is still very young. I'm sure he will continue to develop

even if it is very slowly as it is with Brook. For Brook my main goal is for

him to be happy. If this means he needs better communication skills, then we

work on that. When Brook is happy and enjoying his activities it makes it

sooooo much easier on everyone in the family. I would love for him to have

more activities that he enjoys but that is really a big challenge. His last

behavior therapist was trying to get him to do more activities but he really

hates all fine motor activities so that was a failure. We also try getting

him to play a little ball, but that is very brief. They have been working on

ball play at school for years with him. Besides going to school Brook enjoys

videos, listening to his tape player, listening to his Teddy Ruxpin, going

for rides in the car, swinging, sitting outside in the sun and taking baths.

That's about it for now. When do your kids go to camp so you can get a

vacation? Take Care.

Marisa

Mom to Miles, Brook and Gennie

[Guest guest]

nancy,

lolol when you get done reading that book, let me know when you let dh

knwo.....hehemy dh says the same thing, i will find a great article or book

and he tells me the same old stuff...you read faster, let me know......but

when i try to discuss it and the points ect, he acts dumb...... or doesnt

think thats what the point really is........no win situation.....take care

andi hope you find the time to read.......leah

ps i have been known to sit in my truck at night with a flashlight and study

or read...one time the mp(military police) were doing rounds and asked me to

step outta my truck)lmao i told him i had a spec needs child, a 3 yr old, a

barking dog, and a complaining hsuband and a exam the next day...... he

laughed and left....heheheh i got back in and studied.....heheh i have even

slept outside in plastic lawnchairs many times finding peace for

myself,,,,like you i cant pee without them trying to wipe me or askin gwhat s

that or this....heheh

[Guest guest]

Marissa,

I understand about having other kids!!! That was the problem too....I can't

find a minute for the bathroom never mind how much time they want me to take

for JJ. Luckily Garry is an-at-home Dad(except for the days he drives bus)

and we work well together. Anything that is not done by the time the kids

get home waits until tomorrow. But we still have to make supper, change

diapers, feed(they all can feed themselves), bath, and whatever else. My

day is full from 5:30AM until 7:pm when the 3 youngest go to bed. Then I

make Garry and I supper, right now I have JJ bread cooking, and then I get

computer time until the news at 10(Channel 2 is on up here).

What do I want to see from JJ. I would like to see him be able to enjoy

things more and find meaning in life. He has his videos. He loves to

swing. But there are more things to live.

I have purchased the Child with Special Needs by Greenspan. Hope to read it

when the boys are at camp. And impliment it soon. I would love to get

Garry to read it so he could help. But you know how that goes, " you

read it and tell me about it. " He is still in denial a little bit. Thinks

JJ is doing fine---sigh. But he is coming along.

& Garry, parents of (9 ds), (8 ds/g-tube), JJ (6

ds/autism/celiac), (5 ds), and Esther (3 ds). All adopted.

[Guest guest]

.. When do your kids go to camp so you can get a

>>vacation?

August 6 thru 17

& Garry, parents of (9 ds), (8 ds/g-tube), JJ (6

ds/autism/celiac), (5 ds), and Esther (3 ds). All adopted.