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Kara,

Smouse and River Hills in Cedar Falls are the last segregated schools in the

state. We used to have one in Davenport which closed(converted to a regular

school) in about '91. My daughter spent her first semester of preschool at

Smouse in 1983. They were on the third floor and had a spiral ramp that

went down to the first floor. Rose could be out of that room and down the

ramp in a flash in those days. I guess the ramp was 1926 style

accessibility!

This story is even stranger-In about '96 I went to the big inclusion

conference that the PEAK Center runs in Denver. A woman from Colorado came

up to me and wanted to know all about Smouse/VanMeter School because she had

heard that they were the best in the country and she had had it with

inclusion in Colorado. I believe that her daughter had DS and that they

moved to DesMoines so that she could go to Smouse/VenMeter. I couldn't

believe that she was at an inclusion conference looking for segregation. To

each their own!

Mardi-mom to Rose DS 20

----------

>From: kawetzel@...

>onelist

>Subject: IA maianstreaming

>Date: Wed, Feb 16, 2000, 1:57 PM

>

>From: kawetzel@...

>

>I could not believe it when we moved to DesMoines. They have an entire

>school for special needs kids. I guess parents of regular kids were tired

>of seeing special needs kids at their own schools or something. Both my

>sister-in-law who teaches teachers and runs the university daycare, and

>Jen's old preschool teacher in ND think this is illegal. Least restrictive

>environmenmt ya know. There are kids in there I saw last summer that

>should have been mainstreamed. One has the option of special needs in the

>regular school, or mainstreaming, but they push the Smouse School.

>

>I wrote to the govenor about the state not giving services to kids with

>special needs unless they have MR. One family I met had 2 autistic boys

>with no MR; another had a child with early skitzophrenia (sp) and no state

>help. None qualified for services. The gov. did not offer to solve this,

>but sent me an ap to be on the diabilities council. In my spare time

>

>Kara

>

>---------------------------

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  • 27 years later...

In a message dated 2/16/0 7:59:37 AM, kawetzel@... writes:

<< They have an entire

school for special needs kids. I guess parents of regular kids were tired

of seeing special needs kids at their own schools or something. Both my

sister-in-law who teaches teachers and runs the university daycare, and

Jen's old preschool teacher in ND think this is illegal. Least restrictive

environmenmt ya know. >>

Kara,

I have 5 children, 4 with special needs. 2 of those children attend schools

for special needs kids with no regular ed at all. For some of our children

those ARE the least restricitive environments. I could go on and on and list

the reasons but I don't know if you would agree still. I feel it is best to

fight for your OWN children and what is right for them. What you see as a

child that does not need a special needs only school, the parents may see

completely different and there may be things you don't see at all.

Pam

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Special needs schools are the norm in the UK for the kids with greater

needs,I never used to like them but do now ,they have a higher staff

ratio,better funding and especially trained staff,also the kids are nt always

the worst at everything,all uk schools have the same core curriculum,but

special schools obviously adapt to the childs individual needs,the boys

school integrates with the local schools for many activities mostly

social,sport and drama Pat

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Sara,

It was a hard pill to swallow but we too find that Sam is succeeding in a

small class[6 students] and the pressure is not on him to do the water down

curriculum, which he refused anyway. He is now staying in gym class and art

for more than 10 minutes & really enjoys going to school each day. We longed

for full inclusion and found this was not in Sam's best interest. I can

relate with you completely.

B.

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cindy and sara,

ashton is the same way.......we full inclusioned her in preschool and for

much of k and 1st grade.......but found that as she got older and more bolder

in her life that she needed the more smaller structured activities in the

smaller class...... she seems to be more focused and has the attention to do

her seat work much more vigorously than previously..... she can sit for up to

an hour without break IF its something she enjoys.....she hates music and

bolts to the door daily...........heheheh takes after me......... yet she

gets the social skills she needs from the reg classmates and in her before

and after care program....... i will agree with all, that full inclusion aka

mainstreaming is not always best for all kids......it must be an indivual

decision based on teh kids needs ......... okay off soapbozx..........take

careallleah

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I think for many of us, mainstreaming or inclusion was the dream of our youth!!

That is our child's early days. I never thought that I would be insisting that

segregation was in my child's best interest. But after age 10 and third grade,

as curriculum became more complex and as Elie's " strange behaviors " became more

noticeable because they varied more extremely from the norm, retreating to

smaller class sizes with increased ratio of staff became a better learning

experience. Frustration levels are decreased and learning can actually take

place.

I believe that my son will better function in the typical world because he has

learned the skills necessary to survive rather than being " tolerated " (not a

favorite word of mine) in regular classrooms with dumbed down curriculum that

does not meet his needs. He does go to social studies class where he learns a

very modified part of the classes regular curriculum more so that the children

learn to socialize with him and he can practice learned skill across a broader

domain.

He needs extensive time to work on word recognition and number sequences and to

do seat work that helps to learn the sequences of ideas. Noisy classrooms are

far too distracting. He also needs to learn the pre-vocational skills of a

working world. (Which he is greatly improved in this year). My dream for him

was never that he would do a minimum wage repetitive job. But he is very happy

with learning the skills of a factory line or following repetitive verbal

instructions. And it is his life we are talking about. He does not have the

current ability to learn to write a resume (what school to work classes in 7th

grade are learning at our school).

Sara

>>> " Mardi Deluhery " <mdeluhery@...> - 05/17/72 1:36 PM >>>

From: " Mardi Deluhery " <mdeluhery@...>

Kara,

Smouse and River Hills in Cedar Falls are the last segregated schools in the

state. We used to have one in Davenport which closed(converted to a regular

school) in about '91. My daughter spent her first semester of preschool at

Smouse in 1983. They were on the third floor and had a spiral ramp that

went down to the first floor. Rose could be out of that room and down the

ramp in a flash in those days. I guess the ramp was 1926 style

accessibility!

This story is even stranger-In about '96 I went to the big inclusion

conference that the PEAK Center runs in Denver. A woman from Colorado came

up to me and wanted to know all about Smouse/VanMeter School because she had

heard that they were the best in the country and she had had it with

inclusion in Colorado. I believe that her daughter had DS and that they

moved to DesMoines so that she could go to Smouse/VenMeter. I couldn't

believe that she was at an inclusion conference looking for segregation. To

each their own!

Mardi-mom to Rose DS 20

----------

>From: kawetzel@...

>onelist

>Subject: IA maianstreaming

>Date: Wed, Feb 16, 2000, 1:57 PM

>

>From: kawetzel@...

>

>I could not believe it when we moved to DesMoines. They have an entire

>school for special needs kids. I guess parents of regular kids were tired

>of seeing special needs kids at their own schools or something. Both my

>sister-in-law who teaches teachers and runs the university daycare, and

>Jen's old preschool teacher in ND think this is illegal. Least restrictive

>environmenmt ya know. There are kids in there I saw last summer that

>should have been mainstreamed. One has the option of special needs in the

>regular school, or mainstreaming, but they push the Smouse School.

>

>I wrote to the govenor about the state not giving services to kids with

>special needs unless they have MR. One family I met had 2 autistic boys

>with no MR; another had a child with early skitzophrenia (sp) and no state

>help. None qualified for services. The gov. did not offer to solve this,

>but sent me an ap to be on the diabilities council. In my spare time

>

>Kara

>

>---------------------------

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Rose:

Where the heck are you???

Kara

At 05:36 PM 5/17/1972 +0000, you wrote:

>From: " Mardi Deluhery " <mdeluhery@...>

>

>Kara,

>Smouse and River Hills in Cedar Falls are the last segregated schools in the

>state. We used to have one in Davenport which closed(converted to a regular

>school) in about '91.

>

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Sara,

After fighting for inclusion for 7 years through 6th grade and really

struggling the last year with all the changes and rediagnosis, I too have

given up on this dream. With all the problems we have had with this school

district, I believe I will go back to a special day class with a small group

of kids and hope can succeed. The overstimulation of a large class has

been so obvious lately and lack of support we've received has really hurt our

child.

I've given up, I'm giving in and will look for an appropriate class after our

big IEP tomorrow. 18 people in attendance. That has got to be some kind of

a record. I'm stressed to the max, has been out of school since

Christmas and need a life.

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michelle and billy too........

sounds like you have had a roller coaster ride the past few months.........

hang in there and please video cam this 18 people in attendance iep

meeting......this i gotta see........ it will go in the g book of world

records....... ahhahah good luck leah

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Who of the 18 people coming is just there for YOU??? My friend takes her

aphasic father dressed in a suit and tie and a legal portfolio. He doodles in

the back of the room!

Sara

>>> <MBrayley@...> - 02/17/0 8:45 PM >>>

From: MBrayley@...

Sara,

After fighting for inclusion for 7 years through 6th grade and really

struggling the last year with all the changes and rediagnosis, I too have

given up on this dream. With all the problems we have had with this school

district, I believe I will go back to a special day class with a small group

of kids and hope can succeed. The overstimulation of a large class has

been so obvious lately and lack of support we've received has really hurt our

child.

I've given up, I'm giving in and will look for an appropriate class after our

big IEP tomorrow. 18 people in attendance. That has got to be some kind of

a record. I'm stressed to the max, has been out of school since

Christmas and need a life.

---------------------------

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Thanks Leah,

The IEP was a circus. Our lawyers, theirs, district people teachers,

principal, therapists etc. etc.. The bomb was dropped, is severely

autistic, and this is what you have been punishing him and abusing him and

suspending him for. 16 or the 18 in attendence dropped their mouths open. I

really wish I did have a camcord. The teacher that abused him had the nerve

of laughing at the lawyers suggesting my becoming 's aide. My instinct

was to turn to her and ask if she thought my son's education was a joke, but

I decided to be more professional then her and go after her legally which I

am doing. I have appointments to look at 5 schools over the next two days,

to get him through the next 4 months left of elementary school, only to

repeat the process in junior high this summer. Yech...........I need a

vacation...........'s got used to his life of being home, watching tv

and stimming since he's been out of school since Christmas.

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Hi Sara,

Of the 18 people I had my husband, our attorney, my Regional Center case

worker who's pretty knowledgeable about autism and new with us in the last

few months. That's it. Everyone else would like to see us disappear since

I've made so many waves and accused so many people of not knowing how to do

their jobs and proving their ignorance. I've cited so many laws they're in

violation of and so many non compliance issues of promises made in his IEP.

As my lawyers says, we have them with THEIR pants down and they are not

happy. Add abuse and descrimination to that and an on going workers comp

claim for descrimination of the parent who is an employee of the same

district at the same school and the stress they have caused me through all of

this and you can understand the tension in that room.

The next meeting should be a blood bath.

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With regard to mainstreaming and I know I am very behind in reading messages but

we have a segregated school in Green Bay Wi also. This is not illegal because

parents are given the choice in the area as to mainstreaming or sending them to

this segregated setting. So in this area it is a " by choice " decision on the

part of the parents. My understanding is that they do have a wonderful

program. I talked with one mom several years ago who sent their child to that

school. She fully believed in it and felt that her daughter benefitted much

more from that program than the mainstreaming in regular public school. I asked

her how her daughter was than able to socialize with regular kids, mind you this

is a small community they live in south of Green Bay. She said she has more

than she knows what to do with as she was in 4H Club and had brothers and

sisters who took her every where and everyone in town knew her and included

her. It works for her and she did what she felt best for her child. I give her

credit for that.

As for the inclusion conference in Colorado, I use to live in Colorado and it is

where my son Zach was born. The inclusion conference started back in the

eighties and when I lived there I went thru training with PEAK (Parent Education

Assistance for Kids) to become a parent trainer. I use to work on the inclusion

conference but moved away soon after I was trained. I am surprised about what

that one lady did with moving to Iowa. However as with any state, even a state

like Colorado, there are areas and pockets within the state and depending on the

resources they have may depend on services delivered. Perhaps she was just not

in a good area. It's too bad. R.

Mardi Deluhery wrote:

> From: " Mardi Deluhery " <mdeluhery@...>

>

> Kara,

> Smouse and River Hills in Cedar Falls are the last segregated schools in the

> state. We used to have one in Davenport which closed(converted to a regular

> school) in about '91. My daughter spent her first semester of preschool at

> Smouse in 1983. They were on the third floor and had a spiral ramp that

> went down to the first floor. Rose could be out of that room and down the

> ramp in a flash in those days. I guess the ramp was 1926 style

> accessibility!

> This story is even stranger-In about '96 I went to the big inclusion

> conference that the PEAK Center runs in Denver. A woman from Colorado came

> up to me and wanted to know all about Smouse/VanMeter School because she had

> heard that they were the best in the country and she had had it with

> inclusion in Colorado. I believe that her daughter had DS and that they

> moved to DesMoines so that she could go to Smouse/VenMeter. I couldn't

> believe that she was at an inclusion conference looking for segregation. To

> each their own!

> Mardi-mom to Rose DS 20

> ----------

> >From: kawetzel@...

> >onelist

> >Subject: IA maianstreaming

> >Date: Wed, Feb 16, 2000, 1:57 PM

> >

>

> >From: kawetzel@...

> >

> >I could not believe it when we moved to DesMoines. They have an entire

> >school for special needs kids. I guess parents of regular kids were tired

> >of seeing special needs kids at their own schools or something. Both my

> >sister-in-law who teaches teachers and runs the university daycare, and

> >Jen's old preschool teacher in ND think this is illegal. Least restrictive

> >environmenmt ya know. There are kids in there I saw last summer that

> >should have been mainstreamed. One has the option of special needs in the

> >regular school, or mainstreaming, but they push the Smouse School.

> >

> >I wrote to the govenor about the state not giving services to kids with

> >special needs unless they have MR. One family I met had 2 autistic boys

> >with no MR; another had a child with early skitzophrenia (sp) and no state

> >help. None qualified for services. The gov. did not offer to solve this,

> >but sent me an ap to be on the diabilities council. In my spare time

> >

> >Kara

> >

> >---------------------------

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Or they will roll-over and play dead. Get those schools lined up - where did

you say you are located???

Now is the time to request (read demand) that they fulfill their obligations.

They DO NOT want a law suit. on grounds of discrimination!!

Sara

>>> <MBrayley@...> - 02/23/0 1:03 AM >>>

From: MBrayley@...

Hi Sara,

Of the 18 people I had my husband, our attorney, my Regional Center case

worker who's pretty knowledgeable about autism and new with us in the last

few months. That's it. Everyone else would like to see us disappear since

I've made so many waves and accused so many people of not knowing how to do

their jobs and proving their ignorance. I've cited so many laws they're in

violation of and so many non compliance issues of promises made in his IEP.

As my lawyers says, we have them with THEIR pants down and they are not

happy. Add abuse and descrimination to that and an on going workers comp

claim for descrimination of the parent who is an employee of the same

district at the same school and the stress they have caused me through all of

this and you can understand the tension in that room.

The next meeting should be a blood bath.

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:

Did you ask them to evaluate him for autism? What did they do (or not do?)?

Who'd you get the label from? Did they do an autism eval and say he did not

have autism but SMR instead?

I " m just being snoopy...not at all confrontational. But I see this as being

something we can all learn from and remember for others.

I hope you all take good notes so either your attys or you (but we'll

help!!) can write it up as a case study. I know a group that is starting to

gather this type of documentation for hte purpose of helping other parents

(and only parents) in simil,ar situations.

Are you hoping for an inclusive placement?

You might want to purchase the book, Inclusive Education for childrn with

autism (or something like that) by S.Wagner at the Future Horizon's web

site. BUT. and I want you to listen closely to this cautionary note. DO NOT

GIVE THIS BOOK TO THE STAFF. Just copy the ideas (illegal I know) and

share that. Why? It has this HUGE nasty section about how parents may be

well-meaning but they just get in the way. If I were the publisher I would

have never allowed that section to be published without severely re-writing

it. Says something, doesn't it. The IDEAS, however, are pretty good.

j

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Hi Sara,

We're in Corona, California which is suppose to be in the top 10 in growth in

the country. They're just not growing in the right areas. We looked at 2

schools and programs today. It's hard to tell what a teacher is really like

from a visit to the class when she's knowing she's being observed. I guess

the question to ask is what experience they have with Autistic kids. The

classes I've seen are just learning disabled. Tomorrow I'll look at their

Pals program which is set up for Autistic kids. I'm a little apprehensive,

but I told myself I would keep an open mind. This is tougafter being fully

included for 6 years. Will let you know how it goes.

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Hi Sara,

We're in Corona, California which is suppose to be in the top 10 in growth in

the country. They're just not growing in the right areas. We looked at 2

schools and programs today. It's hard to tell what a teacher is really like

from a visit to the class when she's knowing she's being observed. I guess

the question to ask is what experience they have with Autistic kids. The

classes I've seen are just learning disabled. Tomorrow I'll look at their

Pals program which is set up for Autistic kids. I'm a little apprehensive,

but I told myself I would keep an open mind. This is tougafter being fully

included for 6 years. Will let you know how it goes.

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Hi Sara,

We're in Corona, California which is suppose to be in the top 10 in growth in

the country. They're just not growing in the right areas. We looked at 2

schools and programs today. It's hard to tell what a teacher is really like

from a visit to the class when she's knowing she's being observed. I guess

the question to ask is what experience they have with Autistic kids. The

classes I've seen are just learning disabled. Tomorrow I'll look at their

Pals program which is set up for Autistic kids. I'm a little apprehensive,

but I told myself I would keep an open mind. This is tougafter being fully

included for 6 years. Will let you know how it goes.

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Hi Sara,

We're in Corona, California which is suppose to be in the top 10 in growth in

the country. They're just not growing in the right areas. We looked at 2

schools and programs today. It's hard to tell what a teacher is really like

from a visit to the class when she's knowing she's being observed. I guess

the question to ask is what experience they have with Autistic kids. The

classes I've seen are just learning disabled. Tomorrow I'll look at their

Pals program which is set up for Autistic kids. I'm a little apprehensive,

but I told myself I would keep an open mind. This is tougafter being fully

included for 6 years. Will let you know how it goes.

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Hi Sara,

We're in Corona, California which is suppose to be in the top 10 in growth in

the country. They're just not growing in the right areas. We looked at 2

schools and programs today. It's hard to tell what a teacher is really like

from a visit to the class when she's knowing she's being observed. I guess

the question to ask is what experience they have with Autistic kids. The

classes I've seen are just learning disabled. Tomorrow I'll look at their

Pals program which is set up for Autistic kids. I'm a little apprehensive,

but I told myself I would keep an open mind. This is tougafter being fully

included for 6 years. Will let you know how it goes.

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Hi Sara,

We're in Corona, California which is suppose to be in the top 10 in growth in

the country. They're just not growing in the right areas. We looked at 2

schools and programs today. It's hard to tell what a teacher is really like

from a visit to the class when she's knowing she's being observed. I guess

the question to ask is what experience they have with Autistic kids. The

classes I've seen are just learning disabled. Tomorrow I'll look at their

Pals program which is set up for Autistic kids. I'm a little apprehensive,

but I told myself I would keep an open mind. This is tougafter being fully

included for 6 years. Will let you know how it goes.

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Joan,

I've had included for 6 years and now I'm so confused I don't know

what's best anymore. I know he does much better in a smaller group but loved

his old friends he went through the years with. All the changes they made

started all his problems and made me change schools. Now I can't even get

him back in there since they're full, whether in a regular class or a special

day class. I could keep him in his current school in the regular class, but

the principal is being a bi--h and intends to suspend him for every action

and is giving everyone a hard time over it. My attorney wants to get him

placed before coming down on them, since he needs to be in school. He's been

out since Christmas. They are bringing in a professional to assess the

program from a diagnostic center, to see what they are not doing correctly.

We won't beable to have another meeting until all this takes place after he's

back in school. Another change is going to be awful for him and will come

with it's own set of problems again.

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Joan,

I've had included for 6 years and now I'm so confused I don't know

what's best anymore. I know he does much better in a smaller group but loved

his old friends he went through the years with. All the changes they made

started all his problems and made me change schools. Now I can't even get

him back in there since they're full, whether in a regular class or a special

day class. I could keep him in his current school in the regular class, but

the principal is being a bi--h and intends to suspend him for every action

and is giving everyone a hard time over it. My attorney wants to get him

placed before coming down on them, since he needs to be in school. He's been

out since Christmas. They are bringing in a professional to assess the

program from a diagnostic center, to see what they are not doing correctly.

We won't beable to have another meeting until all this takes place after he's

back in school. Another change is going to be awful for him and will come

with it's own set of problems again.

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Joan,

I've had included for 6 years and now I'm so confused I don't know

what's best anymore. I know he does much better in a smaller group but loved

his old friends he went through the years with. All the changes they made

started all his problems and made me change schools. Now I can't even get

him back in there since they're full, whether in a regular class or a special

day class. I could keep him in his current school in the regular class, but

the principal is being a bi--h and intends to suspend him for every action

and is giving everyone a hard time over it. My attorney wants to get him

placed before coming down on them, since he needs to be in school. He's been

out since Christmas. They are bringing in a professional to assess the

program from a diagnostic center, to see what they are not doing correctly.

We won't beable to have another meeting until all this takes place after he's

back in school. Another change is going to be awful for him and will come

with it's own set of problems again.

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Joan,

I've had included for 6 years and now I'm so confused I don't know

what's best anymore. I know he does much better in a smaller group but loved

his old friends he went through the years with. All the changes they made

started all his problems and made me change schools. Now I can't even get

him back in there since they're full, whether in a regular class or a special

day class. I could keep him in his current school in the regular class, but

the principal is being a bi--h and intends to suspend him for every action

and is giving everyone a hard time over it. My attorney wants to get him

placed before coming down on them, since he needs to be in school. He's been

out since Christmas. They are bringing in a professional to assess the

program from a diagnostic center, to see what they are not doing correctly.

We won't beable to have another meeting until all this takes place after he's

back in school. Another change is going to be awful for him and will come

with it's own set of problems again.

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