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I just read Kim and 's posts on Huffington. Both well done and on

the same subject, the Neurodiverse. There is something about this

whole argument that bothers me.

I have an older sister and I remember as a kid poking her until she

yelled for help. I was small and had no power in the relationship.

Well, that is until I learned that I could bug her to no end. I would

poke her, she would yell. It was so amusing. The more she got upset,

the more I would bug her.

On one hand, the whole ND argument is about labels and mercury

poisoning. But, on another, it's about acceptance. Don't get me

wrong, I don't appreciate reading on the internet about an Aspie

bragging about how he badmouthed me to my congressman. It's not fun to

get emails thru my myspace page with Aspies telling me I don't need to

cure my kid. Oh, and having Aspies give my son 1 star on YouTube for

scoring a basket or for talking is shameful. And we'll add to the list

about 5 different emails over the years from some famous Aspies (I

won't even type their names) telling me how to edit my videos or what

pictures to put on my website.

But, you know what? They have autism or Aspergers or whatever you want

to call it. They are not supposed to get it. It's part of their

disorder. They feel like they are the ONLY people in the world who are

different. The rest of us are " normal " and damned to go to hell.

I've had people knock on my door and tell me I'm going to hell too- but

I JUST DON'T CARE. The more you talk about them, the more you fight

with them, the more you let them know they are upsetting you- the more

they will do it. Just like a 5 year old.

They can't fight society- but they can fight us (the parents). They

take everything positive that we are doing and turn it around into

something negative. I've seen on YouTube where parents make beautiful

videos about their children with autism and an Aspie will edit together

a nasty response.

I for one am sick of giving them the satisfaction. There is WAY too

much to do. Every minute, every second we spend talking about them,

reading their blogs, fighting with them- is a moment we could spend

educating someone or talking to a politician or playing with our kids.

One day it might be MY kid blogging something you don't like. We don't

need to agree with them. That is totally unrealistic. Not every human

on this earth is going to agree with us. Name me 1 truth in this world

and I'll show you someone who believes differently. We are NEVER going

to convince them that our kids are poisoned. They are NEVER going to

convince us to leave our children alone with poop like acid eating away

at their flesh.

So, my solution is- accept them. Let them have their speech. Let them

blog until they get carpal tunnel. They are people and they have their

opinions. But--- more importantly, so do WE. Let's do our magic and

help our children because we know it's the right thing to do- not

because other people agree with us.

We know the truth and the truth shall set us free. :)

Heeren

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, I understand your point about preaching to the un-

preachable (there's a horrible made up word from this writer!) My

point (I can't speak for ) is to tell the NON AUTISM WORLD about

my kids' version of autism. The ND's simply " grab " my words and use

them for their argument. I'm not speaking to them, although I added

that first line in my post as a teaser. Like the Autism Every Day

video that made the ND's call Michele I. and " whiney

suburban moms who can't get their bagels " instead of recognizing and

respecting their challenges. I want my mother in law to know what

life in an autism household. I want my neighbors to understand so

that if one of MY kids zips out of the house they know " Uh oh, this

could be dangerous, maybe I should help. "

I try hard not to make blanket statements in my writing, but to speak

for my own family. And I also try to make sure I never come across

as disliking my KIDS, even while I dislike the parts of autism that

make their lives unnecessarily difficult.

It isn't easy to put yourself out into the public and brace for the

poop-storm. My goal is to tell it like it is and yes, to make

people smile and even laugh. Autism is SO damn serious - but it does

give us some very funny moments.

Yours in health,

KIM

>

> I just read Kim and 's posts on Huffington. Both well done

and on

> the same subject, the Neurodiverse. There is something about this

> whole argument that bothers me.

>

> I have an older sister and I remember as a kid poking her until she

> yelled for help. I was small and had no power in the

relationship.

> Well, that is until I learned that I could bug her to no end. I

would

> poke her, she would yell. It was so amusing. The more she got

upset,

> the more I would bug her.

>

> On one hand, the whole ND argument is about labels and mercury

> poisoning. But, on another, it's about acceptance. Don't get me

> wrong, I don't appreciate reading on the internet about an Aspie

> bragging about how he badmouthed me to my congressman. It's not

fun to

> get emails thru my myspace page with Aspies telling me I don't need

to

> cure my kid. Oh, and having Aspies give my son 1 star on YouTube

for

> scoring a basket or for talking is shameful. And we'll add to the

list

> about 5 different emails over the years from some famous Aspies (I

> won't even type their names) telling me how to edit my videos or

what

> pictures to put on my website.

>

> But, you know what? They have autism or Aspergers or whatever you

want

> to call it. They are not supposed to get it. It's part of their

> disorder. They feel like they are the ONLY people in the world who

are

> different. The rest of us are " normal " and damned to go to hell.

> I've had people knock on my door and tell me I'm going to hell too-

but

> I JUST DON'T CARE. The more you talk about them, the more you

fight

> with them, the more you let them know they are upsetting you- the

more

> they will do it. Just like a 5 year old.

>

> They can't fight society- but they can fight us (the parents).

They

> take everything positive that we are doing and turn it around into

> something negative. I've seen on YouTube where parents make

beautiful

> videos about their children with autism and an Aspie will edit

together

> a nasty response.

>

> I for one am sick of giving them the satisfaction. There is WAY

too

> much to do. Every minute, every second we spend talking about

them,

> reading their blogs, fighting with them- is a moment we could spend

> educating someone or talking to a politician or playing with our

kids.

>

> One day it might be MY kid blogging something you don't like. We

don't

> need to agree with them. That is totally unrealistic. Not every

human

> on this earth is going to agree with us. Name me 1 truth in this

world

> and I'll show you someone who believes differently. We are NEVER

going

> to convince them that our kids are poisoned. They are NEVER going

to

> convince us to leave our children alone with poop like acid eating

away

> at their flesh.

>

> So, my solution is- accept them. Let them have their speech. Let

them

> blog until they get carpal tunnel. They are people and they have

their

> opinions. But--- more importantly, so do WE. Let's do our magic

and

> help our children because we know it's the right thing to do- not

> because other people agree with us.

>

> We know the truth and the truth shall set us free. :)

>

> Heeren

>

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Very interesting and well put. I agree with your sentiments. The only concern I have, is that the detractors you refer to, don't have any decision making powers that directly influence how our kids are treated or what services they're entitled to. It's mainstream educators, politicians and the like who do. Sure politicians etc.could call upon these folks to testify at a hearing to determine........ ."in order to get both sides of the issue"........ and could influence the decisions made. That doesn't bother me. Debate is good and necessary because it catalyzes continuous rumination about issues, which in turn leads to greater diversity and new ideas being derived. Take care n __________________________________________________

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Kim, I had trouble posting on it all day. wrote the post and every time I went to send it---said trouble on server. anyone else have a problem?KRStagliano <KRStagliano@...> wrote: http://www.huffingtonpost.com/kim-stagliano/the-crappy-life-of-the-au_b_37742.html I’ve got my bullet proof vest on – I’d appreciate your support. KIM Kim Stagliano kimstagliano.blogspot.com __________________________________________________

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Maurine,

I have been trying to send my post today as well, and could not get

through either!

> http://www.huffingtonpost.com/kim-stagliano/the-

crappy-life-of-the-au_b_37742.html

>

> I've got my bullet proof vest on – I'd appreciate your support.

KIM

>

> Kim Stagliano

> kimstagliano.blogspot.com

>

>

>

>

>

>

> __________________________________________________

>

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