Guest guest Posted November 21, 2004 Report Share Posted November 21, 2004 >where are all the " cured kids " ?< I don't know where they all are, but I do know one personally. His parents started the bio interventions when he was 2 years old and he has made a remarkable recovery. There is, of course, " residuals " of autism but for the most part he is indistinguishable from his peers. They did mortgage their house twice and used up savings but it is proof these treatments can work. They also have had to repeat some treatments, ie, chelation but there is hope for our kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2004 Report Share Posted November 21, 2004 Oh, I know of 4 in Houston, and all used only ABA and one used the GFCF diet in addition. Re: Recovered kids >where are all the " cured kids " ?< I don't know where they all are, but I do know one personally. His parents started the bio interventions when he was 2 years old and he has made a remarkable recovery. There is, of course, " residuals " of autism but for the most part he is indistinguishable from his peers. They did mortgage their house twice and used up savings but it is proof these treatments can work. They also have had to repeat some treatments, ie, chelation but there is hope for our kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2004 Report Share Posted November 21, 2004 Yup, you got it. That's why any research goals that don't first target sorting out the subtypes before trying to develop a drug or find a gene are putting the cart before the horse and wasting a whole lot of money. Just curious, why do you lurk? RE: Re: Recovered kids This thread supports my belief that there is more than one cause grouped under the autism banner(and therefore more than one cure!) ABA, Chelation, GFCF . . . . and maybe others. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2004 Report Share Posted November 21, 2004 Yup, you got it. That's why any research goals that don't first target sorting out the subtypes before trying to develop a drug or find a gene are putting the cart before the horse and wasting a whole lot of money. Just curious, why do you lurk? RE: Re: Recovered kids This thread supports my belief that there is more than one cause grouped under the autism banner(and therefore more than one cure!) ABA, Chelation, GFCF . . . . and maybe others. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 I lurk because i have no time to post actively but from time to time I see things on the list that are useful. --- Singleton <cmtssingleton@...> wrote: > Yup, you got it. That's why any research goals that > don't > first target sorting out the subtypes before trying > to > develop a drug or find a gene are putting the cart > before > the horse and wasting a whole lot of money. > > Just curious, > why do you lurk? > > > RE: Re: Recovered > kids > > > > This thread supports my belief that there is more > than > one cause grouped under the autism banner(and > therefore more than one cure!) > ABA, Chelation, GFCF . . . . and maybe others. > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 I am sure several of you have seen this18min clip. I had not and it was very sweet. It's link is www.autism-recoveredchildren.org. Thanks Trina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Thanks Trina.........it is the most amazing and positive results I have seen. I have a copy of this and intend to send it to the powers that be.........especially Autism Speaks who seem to be concentrating mostly on RESEARCH. I cannot believe they have not made contact with Dr. Bernard Rimland, ARI in California. He has proof treatment works and AUTISM IS REVERSIBLE..... I am a believer...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 I don't agree. If someone does not have all the facts, one then smells the issue. If the issue smells like dead fish, one investigates further facts to ferret out the reality. If someone tells me Bernie Rimland has not been contacted by Autism Speaks, then that smells fishy to me. It would also be consistent with the Autism Speaks apparent modus not to question the thimerosal/vaccine issue- because it is inconvenient for a whole host of politicians, etc. who wish this issue to just go away. It is part and parcel of the autism gene theory. But we can't go away. We live with the pain every day. They wish to be loved, we seek the truth. The truth is sometimes hard on relationships. Putting a smiley face on such an important issue simply fails to respond to or recognize reality. Moreover, we shouldn't do that. For example, the Clintons are hosting the SafeMinds presentation on environmental factors in the Jefferson Clinton presidential library in Little Rock. Given the clear role the Clinton administration has had in the vaccine mandates, etc. , one must question their motivations here. We have seen politicians on both sides of the aisle corrupting this issue and failing to deal with it head on. In having this environmental/autism presentation at the Clinton presidential library, especially given Hillary's failure to yet make a decision about a Presidential campaign, it wreaks of smelly fish here. We already saw her as the honorary spokesperson of one of the Autism Speaks walks. That represented a frightening level of hypocracy. Is this further Clintonian triangulation designed to try to bury an issue of such magnitude in order to have Hillary run for President and address/bury a major potential liability, or, is this a legitimate attempt to honestly and openly address a historical medical scandal exacerbated by an overzealous ideological approach to preventive healthcare? Do they try to restore a legacy or are they gaming us? If it is the former, we welcome the statemanship on the issue and we will support them in their honesty (although never for President given what has occurred). If it is the latter, time will tell and we will all feel betrayed. BTW- in case you hadn't noticed, we virtually never put a smiley face on our thought process. We're in too much pain. Re: recovered kids The point I'm trying to make is: that unless someone has all the facts surrounding the issue (especially when it involves FELLOW parents and their organizations)they should not assume the worst.....And in this case, we may not know all the facts....Kelli > >> > Thanks Trina.........it is the most amazing and positive results I > have > > seen. I have a copy of this and intend to send it to the powers > that > > be.........especially Autism Speaks who seem to be concentrating > mostly on RESEARCH. I > > cannot believe they have not made contact with Dr. Bernard > Rimland, ARI in > > California. He has proof treatment works and AUTISM IS > REVERSIBLE..... I am a > > believer......> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Do you know that GE which is owned by NBC owns a thimerosal plant bob write which is founder of autism speaks is also CEO of NBC and GE See a con flict of interest???????????????? JOE --------------------------------------- TXseekingtruth4miles <kellianndavis@...> wrote: Question: How do you know Autism Speaks HASN'T made contact with Bernie Rimland?It's these kind of "assumptions" and lack of giving other parents the "benefit of the doubt" that I find troubling within our community.Kelli>> Thanks Trina.........it is the most amazing and positive results I have > seen. I have a copy of this and intend to send it to the powers that > be.........especially Autism Speaks who seem to be concentrating mostly on RESEARCH. I > cannot believe they have not made contact with Dr. Bernard Rimland, ARI in > California. He has proof treatment works and AUTISM IS REVERSIBLE..... I am a > believer......> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 especially Autism Speaks who SEEM to be concentrating mostly on RESEARCH. I cannot believe THEY HAVE NOT made contact with Dr. Bernard Rimland, ARI in California. Assumptions. If YOU want to make judgements towards fellow parents/grandparents about what they (or their organizataions) may or may not be doing based on YOUR limited knowledge (partial facts)of the situation....well, no one can stop you. Personally, I'm not going that route....fellow parents/grandparents will ALWAYS get the benefit of the doubt in my eyes.... Kelli > > > > > > Thanks Trina.........it is the most amazing and positive > results I > > have > > > seen. I have a copy of this and intend to send it to the > powers > > that > > > be.........especially Autism Speaks who seem to be > concentrating > > mostly on RESEARCH. I > > > cannot believe they have not made contact with Dr. Bernard > > Rimland, ARI in > > > California. He has proof treatment works and AUTISM IS > > REVERSIBLE..... I am a > > > believer...... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Yes...I'm well aware of who Bob and Suzanne are...I think Holly gave a little " run down " (Holly, can you post it again ;-) about the whole " being the CEO of NBC/UNI does not automatically equate you to the ranks of being Satan in disguise " discourse.... I'll say it again....Bob and Suzanne have a grandson who has autism and I, for one, am NOT going to have the audacity to question their loyalty to their daughter or to their grandson based on what I THINK they may or may not be doing in regards to this issue!!! Kelli PS...and for the record, on the one conference call that I was on with Suzanne , I found her to be a very gracious woman... > > > > Thanks Trina.........it is the most amazing and positive results I > have > > seen. I have a copy of this and intend to send it to the powers > that > > be.........especially Autism Speaks who seem to be concentrating > mostly on RESEARCH. I > > cannot believe they have not made contact with Dr. Bernard > Rimland, ARI in > > California. He has proof treatment works and AUTISM IS > REVERSIBLE..... I am a > > believer...... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 As you can tell from my posts, I'm not a "smiley face" kind of guy. I try to ferret out reality from a set of facts or assumptions made and read between the lines. I don't mean to be harsh, I'm just a bit more critical than most. I have the freedom to tell what I understand to be the truth. In my own way. Based upon the information as I see it- at the time I say it. I think we all try to give the benefit of the doubt, except when the stories don't match up or someone tries to game us. It's annoying and counterproductive. There's a difference between giving someone the benefit of the doubt, and having a memory and an understanding of history that can place a statement or set of facts in context. For example, we know that Autism Speaks has been wonderful on awareness- yet they have dropped the ball on the mercury/vaccine connection. That's because as an establishment NPO, they can only tell so much of the truth. That is true of most of the NPO's- they can't tell the truth because it will piss someone off (rather, a lot of people off). So they sit in this Never Never Land of make believe acting as if rolling balls at children is the answer- when the answer is to investigate the vaccine protocol and mercury in vaccines and clean up the mess- by investigating autoimmunity/immune dysfunction and mercury poisoning. Yet, that is off the table. We can't speak about that in Never, Never Land. Rimland is much better- he's less motivated by trying to keep the establishment happy than getting at the truth. Those are the facts as I understand them. So, while giving everyone the benefit of the doubt will avoid antagonism, it rarely gets you where you want to go. You get the benefit of the doubt, until you lose the benefit of the doubt. Just trying to keep it real. Peace. Re: recovered kids especially Autism Speaks who SEEM to be concentrating mostly on RESEARCH. I cannot believe THEY HAVE NOT made contact with Dr. Bernard Rimland, ARI in California. Assumptions. If YOU want to make judgements towards fellow parents/grandparents about what they (or their organizataions) may or may not be doing based on YOUR limited knowledge (partial facts)of the situation....well, no one can stop you. Personally, I'm not going that route....fellow parents/grandparents will ALWAYS get the benefit of the doubt in my eyes....Kelli> > >> > > Thanks Trina.........it is the most amazing and positive > results I > > have > > > seen. I have a copy of this and intend to send it to the > powers > > that > > > be.........especially Autism Speaks who seem to be > concentrating > > mostly on RESEARCH. I > > > cannot believe they have not made contact with Dr. Bernard > > Rimland, ARI in > > > California. He has proof treatment works and AUTISM IS > > REVERSIBLE..... I am a > > > believer......> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 > > > > > > > > Thanks Trina.........it is the most amazing and positive > > results I > > > have > > > > seen. I have a copy of this and intend to send it to the > > powers > > > that > > > > be.........especially Autism Speaks who seem to be > > concentrating > > > mostly on RESEARCH. I > > > > cannot believe they have not made contact with Dr. Bernard > > > Rimland, ARI in > > > > California. He has proof treatment works and AUTISM IS > > > REVERSIBLE..... I am a > > > > believer...... > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 Kelli, I'm not sure what your connection is to AS, but anytime anyone has the " oneness of mind " mentality - it sets off an alarm with me. We are all free to believe and think what we choose - that is why we were blessed with brains - hopefully, most of ours are still capable of functioning - although science may never determine " how " or " why " our brains function the way they do. Do not be offended by this if this is not your MO, Kelli - it is still important for people to recognize when this is occurring to them. USING THE DELPHI TECHNIQUE TO BUILD CONSENSUS " Oneness of Mind " http://www.warmwell.com/feb24delphi.html ---------------------------- In EOHarm , " seekingtruth4miles " <kellianndavis@...> wrote: > > > > > > > > > > > > Thanks Trina.........it is the most amazing and positive > > > results I > > > > have > > > > > seen. I have a copy of this and intend to send it to the > > > powers > > > > that > > > > > be.........especially Autism Speaks who seem to be > > > concentrating > > > > mostly on RESEARCH. I > > > > > cannot believe they have not made contact with Dr. Bernard > > > > Rimland, ARI in > > > > > California. He has proof treatment works and AUTISM IS > > > > REVERSIBLE..... I am a > > > > > believer...... > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 Thank you Kelli, We expend a lot of negative energy, in my opinion, directed at individuals in the same position as ourselves. Motivational speakers always prop people up for the good things they do and then give some hints on how it could go even better. But I realize the anger most of us feel because there’s a loss of trust that is deep routed and may never return, and because of it we are in fight mode. When we went along with the flow of mainstream info, our children were injured, and to most of us there’s no way we will stand back any longer and just let things happen. Constructive criticism is necessary in order to move forward and get some answers but someone in our community is going to have to know how to “play the game” to take us all the way. Relationships have to be made and we have to be credible to be heard. - From: EOHarm [mailto:EOHarm ] On Behalf Of seekingtruth4miles Sent: Monday, September 18, 2006 7:57 PM EOHarm Subject: Re: recovered kids > > > > > > > > Thanks Trina.........it is the most amazing and positive > > results I > > > have > > > > seen. I have a copy of this and intend to send it to the > > powers > > > that > > > > be.........especially Autism Speaks who seem to be > > concentrating > > > mostly on RESEARCH. I > > > > cannot believe they have not made contact with Dr. Bernard > > > Rimland, ARI in > > > > California. He has proof treatment works and AUTISM IS > > > REVERSIBLE..... I am a > > > > believer...... > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 I like Suzanne and Bob . They have done a tremendous job on awareness and related issues. AS has been helpful. However, they have (based upon all evidence) dropped the ball on the mercury/vaccine connection, the only way you are going to solve this mess. Re: recovered kids Kelli, I'm not sure what your connection is to AS, but anytime anyone has the "oneness of mind" mentality - it sets off an alarm with me. We are all free to believe and think what we choose - that is why we were blessed with brains - hopefully, most of ours are still capable of functioning - although science may never determine "how" or "why" our brains function the way they do.Do not be offended by this if this is not your MO, Kelli - it is still important for people to recognize when this is occurring to them. USING THE DELPHI TECHNIQUE TO BUILD CONSENSUS"Oneness of Mind"http://www.warmwell.com/feb24delphi.html----------------------------In EOHarm , "seekingtruth4miles" <kellianndavis@...> wrote:>> > > > > >> > > > > Thanks Trina.........it is the most amazing and positive > > > results I > > > > have > > > > > seen. I have a copy of this and intend to send it to the > > > powers > > > > that > > > > > be.........especially Autism Speaks who seem to be > > > concentrating > > > > mostly on RESEARCH. I > > > > > cannot believe they have not made contact with Dr. Bernard > > > > Rimland, ARI in > > > > > California. He has proof treatment works and AUTISM IS > > > > REVERSIBLE..... I am a > > > > > believer......> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 When I sit in a circle and hold hands with those next to me and say HMMMMMM, it gives me vertigo. Just another personality defect I've learned to live with. Vulnerable H Re: recovered kids > > > >> > > > Thanks Trina.........it is the most amazing and positive > > results I > > > have > > > > seen. I have a copy of this and intend to send it to the > > powers > > > that > > > > be.........especially Autism Speaks who seem to be > > concentrating > > > mostly on RESEARCH. I > > > > cannot believe they have not made contact with Dr. Bernard > > > Rimland, ARI in > > > > California. He has proof treatment works and AUTISM IS > > > REVERSIBLE..... I am a > > > > believer......> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 I cannot believe these e-mails. I merely wanted to point out what a fantastic CD this is showing "Recovered Kids". It was taken at a conference in California where experts in the Autism Field like Dr. Arthur Rimland spoke. There were many doctors there showing how "kids are recovering". I, in no way, wanted to offend the s. I sympathize with them as I am a grandmother with a grandson exactly Christian's age ('s son). I have cried with them whenever I see them on TV. My heart has ached when I see Suzanne try to get the words out.....ie; The View and other segments on Autism. I know and feel the pain associated with this awful tragedy we are dealing with. Every time I speak with my daughter in law and son about my grandson, I hear the frustration in their voices as we are trying to get rid of the "heavy metal poisons" in my grandson.......... There is help out there. We are working with a DAN doctor and believe Autism is Treatable and Reversable. My only point is I have not seen anyone on TV doing a segment on "Recovered Kids". Why isn't this CD made public. The s are the perfect people to do this. I thank God for them. They are bringing awareness and I know have been fighting Congress along with A-CHAMP to get the insurance companies to pay for treatments. They also have a fabulous website showing where to go for treatments. I would like to know WHO TO CONTACT and WHERE TO SEND THIS CD. I feel Dr. Rimland would have been the logical person to contact as he has been around for many years. It was Dr. Rimland who we initially contacted when we realized my grandson had ASD at age four. Our pediatrician still feels this is all "Voodoo". With that statement, she no longer takes care of my grandson. MY HEART GOES OUT TO ALL...... I in no way wanted to offend anyone. I am sorry if my words did not express my true feelings. GOD BLESS US ONE AND ALL. Thank you for allowing me to vent! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 Thank you Kelli for your kind reply. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 Hi Gerinowak (sorry, don't know your first name :-) There was no offense towards you...at least not from me. I typically don't say much on this list....I see all the " volleying back and forth " between others concerning issues and ideas...and for the most part -- I stay on the sidelines. I know that there are differences of opinion and quite frankly, I'm not bothered by it because I think that we're all entitled to our own opinions and beliefs. What I find personally " intolerable " is when I see some on this list who use their OWN opinions and beliefs to " flame " (I liked JB's reference) others in our community by using put-downs, innuendos, character assassinations, and the like.... Usually, when I see this behavior, it originates because someone is relying on assumptions and taking those assumptions and painting them to be " facts " .....and thus, the " flamming " begins....(that's why I posed my question to your original post ;-) And the truth of the matter is....there is NO WAY that ANYONE on this list can say, with 100% certainty, that they know what another person and/or organization is or is not doing UNLESS they are directly involved with that individual/organization!!! As such, it seems to me that we ought to have a bit more tolerance and appreciation for each other and ABOVE ALL....give FELLOW parents the benefit of the doubt!! Kelli PS...concerning the " Recovered Kids " CD...I agree...this story needs to be told on television...and we may be close...please say some prayers!! > > I cannot believe these e-mails. I merely wanted to point out what a > fantastic CD this is showing " Recovered Kids " . It was taken at a conference in > California where experts in the Autism Field like Dr. Arthur Rimland spoke. > There were many doctors there showing how > " kids are recovering " . I, in no way, wanted to offend the s. I > sympathize with them as I am a grandmother with a grandson exactly Christian's age > ('s son). I have cried with them whenever I see them on TV. My heart > has ached when I see Suzanne try to get the words out.....ie; The View and > other segments on Autism. I know and feel the pain associated with this awful > tragedy we are dealing with. Every time I speak with my daughter in law and > son about my grandson, I hear the frustration in their voices as we are > trying to get rid of the " heavy metal poisons " in my grandson.......... There is > help out there. We are working with a DAN doctor and believe Autism is > Treatable and Reversable. My only point is I have not seen anyone on TV doing a > segment on " Recovered Kids " . Why isn't this CD made public. The s are > the perfect people to do this. I thank God for them. They are bringing > awareness and I know have been fighting Congress along with A- CHAMP to get the > insurance companies to pay for treatments. They also have a fabulous website > showing where to go for treatments. I would like to know WHO TO CONTACT and > WHERE TO SEND THIS CD. I feel Dr. Rimland would have been the logical person to > contact as he has been around for many years. It was Dr. Rimland who we > initially contacted when we realized my grandson had ASD at age four. Our > pediatrician still feels this is all " Voodoo " . With that statement, she no longer > takes care of my grandson. MY HEART GOES OUT TO ALL...... > I in no way wanted to offend anyone. I am sorry if my words did not express > my true feelings. GOD BLESS US ONE AND ALL. Thank you for allowing me to > vent! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 Healthy discussion is a plus. Understanding and recognizing favorable points about things and criticizing instances where there are weaknesses is a requirement. Note that constructive criticism comes from the perspective that this is an "Evidence of Harm" site and unless I have lost my memory and otherwise can't read, it appears as if mercury in vaccines is kind of like, say, an important issue on this site. When there is a perspective, course of conduct or discussion which seems to compromise that issue, it would seem that that is germane to the discussion. Sometimes the box outside of which we think just can't accommodate a smiley face sticker. Some may wish to discuss why criticism is bad. Some kind of like to talk about mercury in vaccines critically, hopefully to a favorable, just end. My bad. So, if there is concern that say, someone criticizes a group such as Autism Speaks because of what appears to be an extremely weak (if even identifiable) position they have taken on the mercury in vaccines issue (in contrast to their wonderful and stellar record on awareness) which coincidentally lines up with the view that virtually all of the establishment figures in this scandal (congress, medical institutions, government institutions, mainstream media, vaccine producers) have taken to our detriment, that would seem counterintuitive, if not downright subversive. Especially where a person tries to limit discussion using the straw man (criticism) through which discussion evolves. While we all commend people who wish to maintain ground rules and active discussion central to a common theme, what are we to say to those who wish to eliminate criticism, and thus discussion, on an issue central and vital to the problem at hand. As we have previously noted, there are those on this website who have good intentions and those who perhaps may not. Just a thought. Re: recovered kids Hi Gerinowak (sorry, don't know your first name :-)There was no offense towards you...at least not from me. I typically don't say much on this list....I see all the "volleying back and forth" between others concerning issues and ideas...and for the most part -- I stay on the sidelines. I know that there are differences of opinion and quite frankly, I'm not bothered by it because I think that we're all entitled to our own opinions and beliefs.What I find personally "intolerable" is when I see some on this list who use their OWN opinions and beliefs to "flame" (I liked JB's reference) others in our community by using put-downs, innuendos, character assassinations, and the like....Usually, when I see this behavior, it originates because someone is relying on assumptions and taking those assumptions and painting them to be "facts".....and thus, the "flamming" begins....(that's why I posed my question to your original post ;-)And the truth of the matter is....there is NO WAY that ANYONE on this list can say, with 100% certainty, that they know what another person and/or organization is or is not doing UNLESS they are directly involved with that individual/organization!!! As such, it seems to me that we ought to have a bit more tolerance and appreciation for each other and ABOVE ALL....give FELLOW parents the benefit of the doubt!!KelliPS...concerning the "Recovered Kids" CD...I agree...this story needs to be told on television...and we may be close...please say some prayers!! >> I cannot believe these e-mails. I merely wanted to point out what a > fantastic CD this is showing "Recovered Kids". It was taken at a conference in > California where experts in the Autism Field like Dr. Arthur Rimland spoke. > There were many doctors there showing how > "kids are recovering". I, in no way, wanted to offend the s. I > sympathize with them as I am a grandmother with a grandson exactly Christian's age > ('s son). I have cried with them whenever I see them on TV. My heart > has ached when I see Suzanne try to get the words out.....ie; The View and > other segments on Autism. I know and feel the pain associated with this awful > tragedy we are dealing with. Every time I speak with my daughter in law and > son about my grandson, I hear the frustration in their voices as we are > trying to get rid of the "heavy metal poisons" in my grandson.......... There is > help out there. We are working with a DAN doctor and believe Autism is > Treatable and Reversable. My only point is I have not seen anyone on TV doing a > segment on "Recovered Kids". Why isn't this CD made public. The s are > the perfect people to do this. I thank God for them. They are bringing > awareness and I know have been fighting Congress along with A-CHAMP to get the > insurance companies to pay for treatments. They also have a fabulous website > showing where to go for treatments. I would like to know WHO TO CONTACT and > WHERE TO SEND THIS CD. I feel Dr. Rimland would have been the logical person to > contact as he has been around for many years. It was Dr. Rimland who we > initially contacted when we realized my grandson had ASD at age four. Our > pediatrician still feels this is all "Voodoo". With that statement, she no longer > takes care of my grandson. MY HEART GOES OUT TO ALL......> I in no way wanted to offend anyone. I am sorry if my words did not express > my true feelings. GOD BLESS US ONE AND ALL. Thank you for allowing me to > vent!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 Agreed...healthy, respectful criticism directed at ISSUES is warranted. Criticism, innuendos and such (as seen in your previous post below) which are based on false assumptions and serve to tear down or question other parents and organizations are not warranted (my comments in CAPS): For example, the Clintons are hosting the SafeMinds presentation on environmental factors in the Jefferson Clinton presidential library in Little Rock. FACT: THE CLINTONS ARE NOT HOSTING THE SAFEMINDS PRESENTATION ON ENVIRONMENTAL FACTORS....THE CONFERENCE IS BEING HELD AT THE DOUBLETREE HOTEL AND A DINNER EVENT (PAID FOR BY THE CONFERENCE -- ATTENDEES OF THE CONFERENCE THROUGH THE PURCHASE OF TICKETS --) WAS HELD AT THE CLINTON PRESIDENTIAL LIBRARY. CERTAINLY NOT IN THE CATAGORY OF " HOSTING AN EVENT " ....MY GUESS IS THAT THEY WEREN'T EVEN IN ATTENDANCE..... Given the clear role the Clinton administration has had in the vaccine mandates, etc. , one must question their motivations here. HOW DOES HAVING A DINNER EVENT IN A LIBRARY WITH THE CLINTON NAME ON IT EQUATE TO THE CLINTONS HAVING SOME SORT OF SINISTER, DIRECT INVOLVEMENT IN THIS CONFERENCE??? We have seen politicians on both sides of the aisle corrupting this issue and failing to deal with it head on. In having this environmental/autism presentation at the Clinton presidential library, especially given Hillary's failure to yet make a decision about a Presidential campaign, it wreaks of smelly fish here. IT DOESN'T " REEK " (wreak) OF ANYTHING....EXCEPT MAYBE THE ATTENDEES GOT TO EAT SOME REALLY GOOD FOOD AND GOT TO SEE SOME REALLY NIFTY ARTIFACTS.... We already saw her as the honorary spokesperson of one of the Autism Speaks walks. That represented a frightening level of hypocracy. AND THUS, THE " AUTOMATIC " LINK IS ESTABLISHED AND BOTH SAFEMINDS AND AUTISM SPEAKS ARE CAST UNDER A SHADOW OF DOUBT AND MISTRUST AND THEIR MOTIVATIONS ARE HELD IN QUESTION.... The FACT of the matter is...SafeMinds is helping to co-sponsor an event in an effort to bring the autism issue to the forefront of the medical and scientific community....and I'll be darned if I'll sit here and allow this kind of " reasoning " to drag fellow parents and colleagues -- some who are very good friends of mine and who I respect tremendously -- through the mud.... So bottom line: Yes Henry....all for debate focused on issues and aimed at proactively solving some of the issues that face our community. Will not stand-by and allow the public trashing of good people in our community who are actually DOING something for our kids. Kelli > > > > I cannot believe these e-mails. I merely wanted to point out > what a > > fantastic CD this is showing " Recovered Kids " . It was taken at a > conference in > > California where experts in the Autism Field like Dr. Arthur > Rimland spoke. > > There were many doctors there showing how > > " kids are recovering " . I, in no way, wanted to offend the > s. I > > sympathize with them as I am a grandmother with a grandson > exactly Christian's age > > ('s son). I have cried with them whenever I see them on > TV. My heart > > has ached when I see Suzanne try to get the words out.....ie; The > View and > > other segments on Autism. I know and feel the pain associated > with this awful > > tragedy we are dealing with. Every time I speak with my daughter > in law and > > son about my grandson, I hear the frustration in their voices as > we are > > trying to get rid of the " heavy metal poisons " in my > grandson.......... There is > > help out there. We are working with a DAN doctor and believe > Autism is > > Treatable and Reversable. My only point is I have not seen > anyone on TV doing a > > segment on " Recovered Kids " . Why isn't this CD made public. The > s are > > the perfect people to do this. I thank God for them. They are > bringing > > awareness and I know have been fighting Congress along with A- > CHAMP to get the > > insurance companies to pay for treatments. They also have a > fabulous website > > showing where to go for treatments. I would like to know WHO TO > CONTACT and > > WHERE TO SEND THIS CD. I feel Dr. Rimland would have been the > logical person to > > contact as he has been around for many years. It was Dr. Rimland > who we > > initially contacted when we realized my grandson had ASD at age > four. Our > > pediatrician still feels this is all " Voodoo " . With that > statement, she no longer > > takes care of my grandson. MY HEART GOES OUT TO ALL...... > > I in no way wanted to offend anyone. I am sorry if my words did > not express > > my true feelings. GOD BLESS US ONE AND ALL. Thank you for > allowing me to > > vent! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 I see your dander is up. You don't put a smiley face on everything. (That's a joke!). I work in a very different way than you. I try to sort out potential alterior motives in those who ab initio may be untrustworthy on these issues. And point them out to those who will read and understand. So they can adjust their thinking and perhaps their strategies. Many people in the establishment agencies, including the NPO's, have difficulty addressing the true issue here because many of their relationships and their economic well-being are tied up in making sure noone is hurt by being implicated in this scandal. That is precisely why Autism Speaks has done a tremendous job in promoting awareness of this issue, but appears to have done little on the mercury/vaccine issue- the third rail of the autism establishment. Suzanne and Bob should be commended for their laudable efforts on the awareness front. They are and I have. They are wonderful, wonderful people. That said, there is appropriate criticism to lodge on the mercury/vaccine issue- because it is an inconvenient truth for the establishment and something they are less willing to address directly. That is simply true. You may not like that truth, but it is true. And it is inconvenient for those who sit precisely at the fulcrum of influence in these groups. It has to influence their decision making. To not point that out critically would be a dereliction of responsibility. So I do. I find it hard to not be critical, especially where, as here, and in many other issues in this society, rather than dealing with truth and reality, we form NPO's and go to dances and have walks and marathons and nothing salient gets done because there is noone to tell the truth to those living in their Emperor's New Clothes novels. That criticism has to be lodged. It appears to be up to me. Where is our tart-tongued colleague Kerbob when you need him? The sine qua non for me on this issue is making sure that mercury in vaccines and the vaccine protocol are addressed, investigated and corrected so that more children do not get damaged by the people with flawed understandings of this issue who mandate, bullyrag and push a concept of preventive medicine which is obviously very, very, flawed. I'd like to see it corrected. Now. Not after the cocktail hour. Not after the seventh marathan or Walk for the Legands or whatever. Now! Your approach is to try to maneuver the establishment into something they will never do. That is an approach- it may work if additional pressure is brought to bear. I hope you are successful. It is doubtful you will be without the scream of the banshee to provide you with cover and leverage. My approach is to criticize, harass and bullyrag the establishment, and to teach the uninitiated about this issue. It is the flip side of good cop. Both our approaches are appropriate. Both can be used effectively to eventually get to the goal. They can work in tandem. The difference is that you appear need to actively subvert appropriate criticism. I don't understand why. That is very disturbing. Even as your approach is passing the CAA, doing research with federal dollars, and providing related goals, mine is to constantly criticize those whose motives need to be called out so that we can move forward more honestly. The CAA may be fine- although people I highly respect consider it flawed. The groups who will receive the research money under the CAA to deal with this issue have inherent conflicts that must be called out so that even if the CAA goes forward, at least some pressure can be put on the research administration to provide some measure of honesty. So that someone like lynn can't simply stand up and manufacture a research canard to shovel at the boobeouosie. My view is that being someone who works well with those who refuse to deal with the truth of this issue will not get us there, but may get us partially there. That is a role you appear to wish to play. God bless you. But the part of the equation that pounds the table and hammers the toes and breaks the china and makes everyone very uncomfortable, is another part of the equation. Because it lights a fire under the Kabuki dress and unmasks the charade. Peace. Re: recovered kids Agreed...healthy, respectful criticism directed at ISSUES is warranted. Criticism, innuendos and such (as seen in your previous post below) which are based on false assumptions and serve to tear down or question other parents and organizations are not warranted(my comments in CAPS):For example, the Clintons are hosting the SafeMinds presentation on environmental factors in the Jefferson Clinton presidential library in Little Rock. FACT: THE CLINTONS ARE NOT HOSTING THE SAFEMINDS PRESENTATION ON ENVIRONMENTAL FACTORS....THE CONFERENCE IS BEING HELD AT THE DOUBLETREE HOTEL AND A DINNER EVENT (PAID FOR BY THE CONFERENCE -- ATTENDEES OF THE CONFERENCE THROUGH THE PURCHASE OF TICKETS --) WAS HELD AT THE CLINTON PRESIDENTIAL LIBRARY. CERTAINLY NOT IN THE CATAGORY OF "HOSTING AN EVENT"....MY GUESS IS THAT THEY WEREN'T EVEN IN ATTENDANCE..... Given the clear role the Clinton administration has had in the vaccine mandates, etc. , one must question their motivations here. HOW DOES HAVING A DINNER EVENT IN A LIBRARY WITH THE CLINTON NAME ON IT EQUATE TO THE CLINTONS HAVING SOME SORT OF SINISTER, DIRECT INVOLVEMENT IN THIS CONFERENCE??? We have seen politicians on both sides of the aisle corrupting this issue and failing to deal with it head on.In having this environmental/autism presentation at the Clinton presidential library, especially given Hillary's failure to yet make a decision about a Presidential campaign, it wreaks of smelly fish here. IT DOESN'T "REEK" (wreak) OF ANYTHING....EXCEPT MAYBE THE ATTENDEES GOT TO EAT SOME REALLY GOOD FOOD AND GOT TO SEE SOME REALLY NIFTY ARTIFACTS....We already saw her as the honorary spokesperson of one of the Autism Speaks walks. That represented a frightening level of hypocracy.AND THUS, THE "AUTOMATIC" LINK IS ESTABLISHED AND BOTH SAFEMINDS AND AUTISM SPEAKS ARE CAST UNDER A SHADOW OF DOUBT AND MISTRUST AND THEIR MOTIVATIONS ARE HELD IN QUESTION....The FACT of the matter is...SafeMinds is helping to co-sponsor an event in an effort to bring the autism issue to the forefront of the medical and scientific community....and I'll be darned if I'll sit here and allow this kind of "reasoning" to drag fellow parents and colleagues -- some who are very good friends of mine and who I respect tremendously -- through the mud....So bottom line: Yes Henry....all for debate focused on issues and aimed at proactively solving some of the issues that face our community. Will not stand-by and allow the public trashing of good people in our community who are actually DOING something for our kids. Kelli> >> > I cannot believe these e-mails. I merely wanted to point out > what a > > fantastic CD this is showing "Recovered Kids". It was taken at a > conference in > > California where experts in the Autism Field like Dr. Arthur > Rimland spoke. > > There were many doctors there showing how > > "kids are recovering". I, in no way, wanted to offend the > s. I > > sympathize with them as I am a grandmother with a grandson > exactly Christian's age > > ('s son). I have cried with them whenever I see them on > TV. My heart > > has ached when I see Suzanne try to get the words out.....ie; The > View and > > other segments on Autism. I know and feel the pain associated > with this awful > > tragedy we are dealing with. Every time I speak with my daughter > in law and > > son about my grandson, I hear the frustration in their voices as > we are > > trying to get rid of the "heavy metal poisons" in my > grandson.......... There is > > help out there. We are working with a DAN doctor and believe > Autism is > > Treatable and Reversable. My only point is I have not seen > anyone on TV doing a > > segment on "Recovered Kids". Why isn't this CD made public. The > s are > > the perfect people to do this. I thank God for them. They are > bringing > > awareness and I know have been fighting Congress along with A-> CHAMP to get the > > insurance companies to pay for treatments. They also have a > fabulous website > > showing where to go for treatments. I would like to know WHO TO > CONTACT and > > WHERE TO SEND THIS CD. I feel Dr. Rimland would have been the > logical person to > > contact as he has been around for many years. It was Dr. Rimland > who we > > initially contacted when we realized my grandson had ASD at age > four. Our > > pediatrician still feels this is all "Voodoo". With that > statement, she no longer > > takes care of my grandson. MY HEART GOES OUT TO ALL......> > I in no way wanted to offend anyone. I am sorry if my words did > not express > > my true feelings. GOD BLESS US ONE AND ALL. Thank you for > allowing me to > > vent!> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 The difference is that you appear need to actively subvert appropriate criticism. I don't understand why. That is very disturbing. Henry, Criticize on the ISSUES all you want.... Your opinions and/or beliefs on the ISSUES don't bother me in the slightest....I don't feel threatened, pressured, or defensive because of them. And yes, I agree. The Good Cop/Bad Cop roles are both equally important. And we need both to move our issue forward.... Like I always say, " We ALL have our unique gifts/talents to bring to the table " .....EVERY person/organization is important to the cause.... Kelli > > > > > > I cannot believe these e-mails. I merely wanted to point out > > what a > > > fantastic CD this is showing " Recovered Kids " . It was taken at > a > > conference in > > > California where experts in the Autism Field like Dr. Arthur > > Rimland spoke. > > > There were many doctors there showing how > > > " kids are recovering " . I, in no way, wanted to offend the > > s. I > > > sympathize with them as I am a grandmother with a grandson > > exactly Christian's age > > > ('s son). I have cried with them whenever I see them on > > TV. My heart > > > has ached when I see Suzanne try to get the words out.....ie; > The > > View and > > > other segments on Autism. I know and feel the pain associated > > with this awful > > > tragedy we are dealing with. Every time I speak with my > daughter > > in law and > > > son about my grandson, I hear the frustration in their voices > as > > we are > > > trying to get rid of the " heavy metal poisons " in my > > grandson.......... There is > > > help out there. We are working with a DAN doctor and believe > > Autism is > > > Treatable and Reversable. My only point is I have not seen > > anyone on TV doing a > > > segment on " Recovered Kids " . Why isn't this CD made public. > The > > s are > > > the perfect people to do this. I thank God for them. They are > > bringing > > > awareness and I know have been fighting Congress along with A- > > CHAMP to get the > > > insurance companies to pay for treatments. They also have a > > fabulous website > > > showing where to go for treatments. I would like to know WHO > TO > > CONTACT and > > > WHERE TO SEND THIS CD. I feel Dr. Rimland would have been the > > logical person to > > > contact as he has been around for many years. It was Dr. > Rimland > > who we > > > initially contacted when we realized my grandson had ASD at > age > > four. Our > > > pediatrician still feels this is all " Voodoo " . With that > > statement, she no longer > > > takes care of my grandson. MY HEART GOES OUT TO ALL...... > > > I in no way wanted to offend anyone. I am sorry if my words > did > > not express > > > my true feelings. GOD BLESS US ONE AND ALL. Thank you for > > allowing me to > > > vent! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2006 Report Share Posted September 20, 2006 Lenny, MY RESPONSE IN CAPS AGAIN: Lenny, MY RESPONSE IN CAPS: WHO THEN LENNY, DECIDES WHICH PERSON/GROUP IS " DOING THE RIGHT THING " AND WHICH PERSON/GROUP IS " NOT DOING THE RIGHT THING " ?? PRAY TELL. We all get to vote on it. Either with our money, or with our feet or both. I believe the truth will resonate with the autism/vaccine damaged community eventually and they will tell us who is right and who isn't by where they show up with their support. ACTUALLY WHAT IT WOULD SHOW IS THAT SOME PARENTS/INDIVIDUALS " ALIGN THEMSELVES " MORE CLOSELY TO A PARTICULAR APPROACH/VIEW AND THUS AGREE WITH THAT GROUP'S POSITION VS ANOTHER GROUP'S POSITION...IT DOES NOT EQUATE WITH ONE GROUP " DOING THE RIGHT THING " AND THE OTHER GROUP " NOT DOING THE RIGHT THING " .... IT'S THIS WHOLE MENTALITY OF " MY WAY OR THE HIGHWAY " THAT CAUSES PROBLEMS IN OUR COMMUNITY...THIS ABSOLUTE INSISTENCE THAT MULTIPLE GROUPS WITH MULTIPLE APPROACHES, WORKING TOWARDS THE SAME GOALS, CANNOT CO-EXIST (THINK SCIENCE AND POLITICS).... IN ALL TRUTHFULNESS, DO YOU REALLY THINK INDIVIDUAL PARENTS ARE GOING TO STOP PURSUING WHAT THEY BELIEVE TO BE THE BEST COURSE OF ACTION FOR GETTING MOVEMENT FOR THEIR CHILD, JUST BECAUSE A GROUP OF OTHER PARENTS DISAGREE WITH THEM ON APPROACH/ISSUE?? THERE ARE THOUSANDS OF US OUT THERE LENNY....AND NO ONE GROUP IS EVER GOING TO " CONTROL " THE MASSES OR KNOW WHAT EVERYONE IN OUR COMMUNITY IS DOING.... ***** I CERTAINLY DON'T SEE ANY OF THE GROUPS (A-CHAMP INCLUDED) ASKING ALL THEIR MEMBERS FOR INPUT BEFOREHAND IN ORDER TO MOVE FORWARD ON AN ISSUE OR " PLAN OF ATTACK " .... Bingo! You just pin-pointed the problem. Some organizations in their inexperience, or maybe in their arrogance, don't bother to get enough input from their members before taking action. In my opnion, A-CHAMP does on matters that count big and are growing as a result. NOW HOW WOULD YOU KNOW WHAT OTHER ORGANIZATIONS ARE SPECIFICALLY DOING IN REGARDS TO GETTING INPUT ON ISSUES FROM THEIR MEMBERS?? NOW IF WHAT YOU'RE SAYING IS THAT THEY DON'T GET " PERMISSION " FROM OTHER ORGANIZATIONS BEFORE THEY MOVE AHEAD....WELL, THAT'S ANOTHER STORY.... I SUSPECT (EVEN THOUGH I'M NOT " PRIVY " TO THE INNER-WORKINGS OF OTHER GROUPS) THAT THERE IS A CORE WORKING GROUP OF INDIVIDUALS (USUALLY THE FOUNDERS OF THE GROUP) WHO DISCUSS ISSUES, FORMULATE PLANS, AND MOVE FORWARD. NO ARROGANCE OR INEXPERIENCE IN THAT STRATEGY WHATSOEVER. IF PEOPLE DON'T AGREE THEY CAN 1) JOIN ANOTHER ORGANIZATION THAT THEY FEEL MORE ALIGNED WITH OR 2) THEY CAN START THEIR OWN ORGANIZATION.... ****** I THINK WHAT USUALLY HAPPENS IS THE KEY INDIVIDUALS FORMULATE AND/OR MOVE ON A PLAN AND THEN UPDATE THEIR MEMBERSHIP AFTER THE FACT.... This works real well in aristocracies and dictatorships. However, in democratic formations, it's fatally wrong. This is precisely where our friendly organizations have screwed up and are screwing up. The politics of fait accompli just doesn't work and they are learning this lesson the hard way by marginalizing themselves into small little splinter lists for it. I expect more experienced, community- responsive groups to emerge to fill the vaccum created. ACTUALLY, IT WORKS REAL WELL IN BOARDROOMS ALL ACROSS AMERICA...IT'S CALLED " LEADERSHIP " ....AND UNLIKE YOUR ANALOGY OF " ARISTOCRACIES AND DICTATORSHIPS " PEOPLE WHO DON'T AGREE CAN 1) JOIN ANOTHER ORGANIZATION THAT THEY FEEL MORE ALIGNED WITH OR (QUIT THEIR JOB) 2) THEY CAN START THEIR OWN ORGANIZATION (START A BUSINESS).... AMERICA. YOU GOTTA LOVE IT ;-) Case closed. AGREED. CASE CLOSED. KELLI Quote Link to comment Share on other sites More sharing options...
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