Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 I can't say, but I've never heard of anybody on their scientific advisory council. > > I'll ask the " authorities " on this list: how worthy a charity is OAR- > Organization for Autism Research? > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 http://www.charitynavigator.org From: EOHarm [mailto:EOHarm ] On Behalf Of Sent: Thursday, September 21, 2006 11:18 AM EOHarm Subject: OAR I'll ask the " authorities " on this list: how worthy a charity is OAR- Organization for Autism Research? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 Ooooh they’re list of scientific advisors is all the NAAR genetics/brain people. Even Mr. “No Hope” Powers is on there. Cack. http://www.researchautism.org/about/council/index.asp From: EOHarm [mailto:EOHarm ] On Behalf Of Nanstiel Sent: Thursday, September 21, 2006 11:36 AM EOHarm Subject: Re: OAR I can't say, but I've never heard of anybody on their scientific advisory council. > > I'll ask the " authorities " on this list: how worthy a charity is OAR- > Organization for Autism Research? > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 You've never heard of Luke Tsai, Myles, Powers, just to name a few on their scientific advisory committee? For those of us who have been at this for 13 years or more, those were the ONLY names out there, along with Bernard Rimland and Lovaas. At that time the only books that were written or conferences with speakers knowledgeable in autism were these guys. There's also people like Uta Frith, Ami Klin and Fred Volkmar, Isabelle Rapin (my son's doc). Also at that time there were only a handful of books available to purchase written exclusively on autism. I'm not saying that only good people out there, but these guys were the first who made a statement and who did conferences around the country to educate how to deal with autism. Nowadays there are almost too many " experts " who are giving advice. I'm pleased for the parents who are just starting out. But I'm sure the oldies here know who these people are and how grateful many of us were to read their books and see them and listen to them tell us that we don't have to institutionalize, but that there are strategies to be implemented. They gave us hope after we were just told by our pediatrician to place him somewhere other than home. As far as OAR goes, maybe with time it could be a good organization, who knows? > > > > I'll ask the " authorities " on this list: how worthy a charity is OAR- > > Organization for Autism Research? > > > > Thanks, > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 Correction - I meant to write that it DOES NOT appear that OAR embraces and believes in the " environment " causes of ASDs. > > > > That's probably why I've never heard of them! They may have been > pioneers, but is their > > work as relevant as it may have been in the past? I don't see them at > biomed > > conferences....and we've never interviewed any of them. > > > > Genetics and brain research aren't going to lead to treatments to > help our kids TODAY. To > > ignore biochemistry & toxicology is to miss the boat. Not to mention > gastrointestinal > > research. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 I saw Fred Volkmar in Springfield, IL and talked with him. He does not buy into biomedical at all. Lila > > That's probably why I've never heard of them! They may have been pioneers, but is their > work as relevant as it may have been in the past? I don't see them at biomed > conferences....and we've never interviewed any of them. > > Genetics and brain research aren't going to lead to treatments to help our kids TODAY. To > ignore biochemistry & toxicology is to miss the boat. Not to mention gastrointestinal > research. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 I believe Fred Volkmar was also instrumental getting Asperger's into the DSM IV - and we know what organizations drive the " DSM bible " diagnoses. > > I saw Fred Volkmar in Springfield, IL and talked with him. He does > not buy into biomedical at all. > > Lila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 That's great to hear that she's doing well. We all do different approaches. There are not too many that haven't tried already. As my son goes through stages of life, so does the strategies and therapies with which we approach him with. > > > > > > > > > > I'll ask the " authorities " on this list: how worthy a charity > > is OAR- > > > > > Organization for Autism Research? > > > > > > > > > > Thanks, > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 I never said Miles was a researcher. OAR has her on their advisory council, which seemed to me, as if the council encompassed most of the approaches out there, including educational approaches. > > > > That's probably why I've never heard of them! They may have been > pioneers, but is their > > work as relevant as it may have been in the past? I don't see them at > biomed > > conferences....and we've never interviewed any of them. > > > > Genetics and brain research aren't going to lead to treatments to > help our kids TODAY. To > > ignore biochemistry & toxicology is to miss the boat. Not to mention > gastrointestinal > > research. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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