Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 YEAH!!!! > > http://www.autismspeaks.org/community/intheirownwords_hey_cdc.php > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 YEAH!!!! > > http://www.autismspeaks.org/community/intheirownwords_hey_cdc.php > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 WOW! This on Autism Speaks website. " Jamison's 2 flu shots contained mercury. 25 micrograms each. I didn't know that. I do know that every time I hear the word " flu vaccine " I get sick to my stomach. How come CDC or AAP didn't make a point of telling me flu vaccine in 2003 still contained mercury? It would have impacted our decision " This encourages me. > > http://www.autismspeaks.org/community/intheirownwords_hey_cdc.php > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 WOW! This on Autism Speaks website. " Jamison's 2 flu shots contained mercury. 25 micrograms each. I didn't know that. I do know that every time I hear the word " flu vaccine " I get sick to my stomach. How come CDC or AAP didn't make a point of telling me flu vaccine in 2003 still contained mercury? It would have impacted our decision " This encourages me. > > http://www.autismspeaks.org/community/intheirownwords_hey_cdc.php > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Autism Speaks asked my permission to post. They are in a great position to represent ALL our kids if they choose to. This is one of many positive steps I believe we will see from Autism Speaks to explore all avenues of cause and treatment - I commend them! JB > > > > http://www.autismspeaks.org/community/intheirownwords_hey_cdc.php > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2006 Report Share Posted October 31, 2006 Autism Speaks asked my permission to post. They are in a great position to represent ALL our kids if they choose to. This is one of many positive steps I believe we will see from Autism Speaks to explore all avenues of cause and treatment - I commend them! JB > > > > http://www.autismspeaks.org/community/intheirownwords_hey_cdc.php > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Autism Speaks likes to flirt and make veiled promises about supporting biomedical recoveries and research. It'll take more commitment than that to get me in bed with them. Habeus corpus! (produce the body!). Lenny > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 -I second that Lenny. -- In EOHarm , " schaferatsprynet " <schafer@...> wrote: > > > Autism Speaks likes to flirt and make veiled promises about supporting > biomedical recoveries and research. It'll take more commitment than > that to get me in bed with them. Habeus corpus! (produce the body!). > > Lenny > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 I THINK AUTISM SPEAKS SHOULD "SPEAK TO BERNIE RIMLAND". Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 I have a feeling this is all a timing tactic for Autism Speaks.zack4399 <forzack_@...> wrote: -I second that Lenny. -- In EOHarm , "schaferatsprynet" <schafer@...> wrote:>> > Autism Speaks likes to flirt and make veiled promises about supporting> biomedical recoveries and research. It'll take more commitment than> that to get me in bed with them. Habeus corpus! (produce the body!). > > Lenny> > > > >> Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Just a humble question (one of a number of questions) - not a judgment or even a criticism: Among my questions with regard to this discussion about the direction of AS is this: there are 9 current members of the AS Scientific Affairs Committee. One - Dr. Yeargin-Allsopp is listed below. Listed below that is a report about a recent speech she - Yeargin-Allsopp made. No epidemic? ------------------------------------------------------------------------ ------------------------------------------------------------------ Scientific Affairs Committee http://www.autismspeaks.org/science_advisory.php Scientific and medical experts meet regularly to direct policies and research for Autism Speaks. Marshalyn Yeargin-Allsopp, M.D. Centers for Disease Control ------------------------------------------------------------------------ ------------------------------------------------------------------ http://tinyurl.com/w7k5g Stanforth-Staff writer -Rochester Democrat & Chronicle (November 1, 2006) Dr. Marshalyn Yeargin-Allsopp, a specialist in pediatric neurodevelopmental disabilities, delivered a speech on " Autism: Is There an Epidemic? " at the annual J. Kirch Conference at the Burgundy Basin Inn in Pittsford..... .....Nevertheless, Yeargin-Allsopp said, " we cannot say this represents an epidemic. " ------------------------------------------------------------------------ ------------------------------------------------------------------ Is this a prevailing opinion of the scientific advisory board of AS? The message repeatedly beamed into our homes on TV by AS is that there is an epidemic. Can someone clarify these seemingly conflicting messages. As a parent of an affected child I am simply trying to sort out what is being said, and what is being advocated. I understand there are all kinds of private discussions among certain people/groups, but all that informs my judgment are public and knowable statements. I amy happy to be enlightened by those who know. RJK On Nov 1, 2006, at 9:51 AM, Hooker wrote: It may be more that there are divisions within the AS organization that send out a mixed message. The former NAAR folks tend to stick to pharma like glue (Andy Shih - smooch!!!). The AS organization, sans the NAAR old guard, however, I believe is more interested in getting our kids well. Hey Mr. , I heard the NAAR contract is up in early 2007. Could you do some serious housecleaning then?!!!! > > > > > > > > > > > > > --------------------------------- > Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new > J. Krakow Law Office of J. Krakow 225 Broadway Suite 2700 New York, New York 10007 (212)227-0600 (voice) (646) 349-1771 (fax) J. Krakow Law Office of J. Krakow 225 Broadway Suite 2700 New York, New York 10007 (212)227-0600 (voice) (646) 349-1771 (fax) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Good point, Bob... You're humility (and dedication) go without saying! > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > Be smarter than spam. See how smart SpamGuard is at giving junk > email the boot with the All-new > > > > > J. Krakow > Law Office of J. Krakow > 225 Broadway > Suite 2700 > New York, New York 10007 > (212)227-0600 (voice) > (646) 349-1771 (fax) > J. Krakow > Law Office of J. Krakow > 225 Broadway > Suite 2700 > New York, New York 10007 > (212)227-0600 (voice) > (646) 349-1771 (fax) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Good catch. I was just going to point that out myself. It is hard to take AS too seriously with Shih and Allsop being part of the crew. They have both been outspoken regarding no real increase in rates, just better at diagnosing BS. Tim Booton > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > Be smarter than spam. See how smart SpamGuard is at giving junk > email the boot with the All-new > > > > > J. Krakow > Law Office of J. Krakow > 225 Broadway > Suite 2700 > New York, New York 10007 > (212)227-0600 (voice) > (646) 349-1771 (fax) > J. Krakow > Law Office of J. Krakow > 225 Broadway > Suite 2700 > New York, New York 10007 > (212)227-0600 (voice) > (646) 349-1771 (fax) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Shih and Yeargin-Allsopp need to get out of the lab more... it's so confining, in so many respects. Maybe the only data they get is what's shoved through a tiny opening in the locked door. I am constantly running into people with ASD kids. Last night as my son and I left a citywide Halloween party (no meltdowns, TG!), we struck up a conversation with a man on crutches. Their 2-year-old son was toddling away with his back to me in the semidarkness. Turns out he's autistic and thankfully getting services. Of course with Minnesota's high vaccination rates, 1 in 109 school- age children are receiving autism services; for kids born in 1997 it's even more prevalent. Some other local brainiac parents crunched the numbers from our state Department of Education. http://education.state.mn.us/mde/Accountability_Programs/Program_Fina nce/Special_Education/Child_Count/index.html - Hokkanen > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Be smarter than spam. See how smart SpamGuard is at giving junk > > email the boot with the All-new > > > > > > > > > J. Krakow > > Law Office of J. Krakow > > 225 Broadway > > Suite 2700 > > New York, New York 10007 > > (212)227-0600 (voice) > > (646) 349-1771 (fax) > > J. Krakow > > Law Office of J. Krakow > > 225 Broadway > > Suite 2700 > > New York, New York 10007 > > (212)227-0600 (voice) > > (646) 349-1771 (fax) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Right, the public statements by Shih and Yeargin-Allsopp do raise questions which, of course, is why I posed the question. It does not mean that the Advisory Board or the Board of Directors agrees with Yeargin-Allsopp. The public face of AS, at least the public relations face, proclaims that there an epidemic exists, so clearly Yeargin-Allsopp's position is not controlling at AS, at least for public relations if not for investment in research projects. In addition, it is not clear from the report of Yeargin-Allsopp's speech whether she has adopted a definitive position that changing criteria and diagnosis is responsible for the increasing numbers, or whether she takes the position that studies are insufficient to determine this question. The emphasis of the report, however, suggests strongly that Yeargin-Allsopp is denying the existence of an epidemic. These are all open questions, but what can be definitively said is that the landscape is murky. I am hopeful all will come into better focus - sooner rather than later. On Nov 1, 2006, at 11:45 AM, timothybooton wrote: > Good catch. I was just going to point that out myself. It is hard > to take AS too seriously with Shih and Allsop being part of the > crew. They have both been outspoken regarding no real increase in > rates, just better at diagnosing BS. > > Tim Booton > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Be smarter than spam. See how smart SpamGuard is at giving junk > > email the boot with the All-new > > > > > > > > > J. Krakow > > Law Office of J. Krakow > > 225 Broadway > > Suite 2700 > > New York, New York 10007 > > (212)227-0600 (voice) > > (646) 349-1771 (fax) > > J. Krakow > > Law Office of J. Krakow > > 225 Broadway > > Suite 2700 > > New York, New York 10007 > > (212)227-0600 (voice) > > (646) 349-1771 (fax) > > > > J. Krakow Attorney At Law 2001 Marcus Avenue, Suite N125 Lake Success, New York 11042 (516) 354-3300 (646) 349-1771 (fax) (212) 227-0600 (NYC telephone) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 This just happened to us yesterday. On the way home from my son's after school, we stopped in a gas station in a struggle working class neighborhood in Sacramento to get gas and goodies. In front of us at the counter was this stereotype figure: a large African American male around 6' 10 " , 40ish, with a gruff voice, a jacket with a union emblame and steel toed shoes. He turns to leave, and my son, 18, who stands just under 6 " reaches up and gently touches his face making brief eye contact. It's a thing he does with strangers every so often to my horror. Before the man can react I go into my rescue social situation with autism routine. I bark at my son " No, Izak! Don't touch " and then hopefully address the man with " he's autistic " before he can react. He blinks for a second expressionless, then a big smile crosses his face. " I have a 4 yr old son with autism, I know! Hello, Izak, can I buy you a snack? " He turns to me and says, since my son, I love all kids with autism! " Turns out he has a daughter on the spectrum, too. Without me saying a word, he offers that he " thinks it's the shots they got that messed them up. " We exchanged names, shook hands and left the attendant on the other end of the counter smiling. Nope, no epidemic around here, I thought. We're just anecdotal idiot strangers who don't understand better diagnosing. Lenny > I am constantly running into people with ASD kids. Last night as my > son and I left a citywide Halloween party (no meltdowns, TG!), we > struck up a conversation with a man on crutches. Their 2-year-old > son was toddling away with his back to me in the semidarkness. Turns > out he's autistic and thankfully getting services. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2006 Report Share Posted November 1, 2006 Last Sunday: 10 am, Took my NT son to mass at the small chjurch in our parish. One severely autistic kid in the back. 1 pm, Took the kids to the playgound, windy, cold day, very few kids, but one little guy was flapping and spinning and clearly unable to talk. 6 pm dropped off mom at JFK aitrport, walking back to my car there was another kid flicking and flapping and hooting. What would give anyone the idea that there is an epidemic. > > Wow Lenny, > > You made me cry. Sometimes I get the same response. I go to a Bed and > Breakfast in Mass. and the owner has a grandson with Aspergers. I go a > soda shop in Minnesota and the owner has a grandson with autism. The > woman at my storage unit has a friend who has a son with autism. The > list goes on and on..... I probably should count how many people I > meet in a week and they have a family member or close friend with > autism. I would guess it's around 5 strangers a week. I know a lot of > you go thru it too. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 In 1989, after I graduated from college I worked as an assistant teacher in a therapeutic nursery in Manhattan which had been taken over by an organization called AMAC (association in Manhattan for autistic children). There was one class for severely autistic kids that had 3 kids in it. My class had 7 kids with three on the spectrum. They couldn't fill up the autism class. Today, AMAC (now association for Metroarea autistic children) has over 100 preschoolers in their school. I just can't see how anyone can really think that there were all these undiagnosed autistic kids running around unnoticed. Ezorsezor@... From: EOHarm [mailto:EOHarm ] On Behalf Of k kSent: Wednesday, November 01, 2006 5:52 PMEOHarm Subject: Re: Re: JB's "Hey CDC" on Autism Speaks website When I was pregnant with my son, two other girlfriends of mine were coincidentally, pregnant at the same time! We all had healthy boys, a few years later, one is diagnosed with autism, the other with ADHD, and the third with CAPD. My fitness trainer has a four year old son with aspergers. My older NT son's best friend has a little brother with autism too. No epidemic? I can remember when I was in grade school, we didn't have educational assistants in almost every class room, because we didn't need them!schaferatsprynet <schafersprynet> wrote: This just happened to us yesterday. On the way home from my son'safter school, we stopped in a gas station in a struggle working classneighborhood in Sacramento to get gas and goodies. In front of us atthe cou! nter was this stereotype figure: a large African American malearound 6' 10", 40ish, with a gruff voice, a jacket with a unionemblame and steel toed shoes. He turns to leave, and my son, 18, whostands just under 6" reaches up and gently touches his face makingbrief eye contact. It's a thing he does with strangers every so oftento my horror. Before the man can react I go into my rescue socialsituation with autism routine. I bark at my son "No, Izak! Don'ttouch" and then hopefully address the man with "he's autistic" beforehe can react. He blinks for a second expressionless, then a big smilecrosses his face. "I have a 4 yr old son with autism, I know! Hello,Izak, can I buy you a snack?" He turns to me and says, since my son, Ilove all kids with autism!" Turns out he has a daughter on thespectrum, too. Without me saying a word, he offers that he "thinksit's the shots they got that messed them up." We exchanged names,shook hands and left the attendant on the other end of the countersmiling. Nope, no epidemic around here, I thought. We're justanecdotal idiot strangers who don't understand better diagnosing.Lenny> I am constantly running into people with ASD kids. Last night as my > son and I left a citywide Halloween party (no meltdowns, TG!), we > struck up a conversation with a man on crutches. Their 2-year-old > son was toddling away with his back to me in the semidarkness. Turns > out he's autistic and thankfully getting services. > Now you can have a huge leap forward in email: get the new . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 Epidemic. http://www.whale.to/a/autism_increase.html > > > I am constantly running into people with ASD kids. Last night as my > > son and I left a citywide Halloween party (no meltdowns, TG!), we > > struck up a conversation with a man on crutches. Their 2-year- old > > son was toddling away with his back to me in the semidarkness. Turns > > out he's autistic and thankfully getting services. > > > > > > > > _____ > > Now you can have a huge leap forward in email: > <http://us.rd./evt=40705/*http://mrd.mail./try_beta ?.intl= > ca> get the new . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 All you have to do is talk to any teacher that has worked for 20 years or more. The fear in their eyes is palpable. They will tell you that something is very very wrong. We had a first grade here a few years back with 12 autistic kids. Before Keely was born I coached High School Varsity Softball for 5 years. After 4 former athletes contacted me because they had an autistic child I went back and pulled out my old score books. I was floored to find in 5 years I had coached a total of 47 Varsity Athletes. 4 kids with autism, make that 5 counting Keely out of 48 people. This is from a town of only 1,000 people. Unless you believe that Softball somehow causes Autism, you have a random group of individuals with 1 in every 9 with a child with Autism. Our groups in Oregon say, every time you find yourself in a room of 20 people, you will find two or three of you with Autism in your direct family. The only people claiming there is not an epidemic are those not living in the real world everyday. Kendra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 To add my own story, I returned to my home town last year after living in Indiana for about 10 years. In the neighborhood I grew up 4 girls that lived all within a few blocks from each other now have a child with autism. People in this area think we are unique and that this area has a disproportionalby high number of children with autism, They can't wrap their minds around the fact that this is how it is everywhere! > > All you have to do is talk to any teacher that has worked for 20 years > or more. The fear in their eyes is palpable. They will tell you that > something is very very wrong. > We had a first grade here a few years back with 12 autistic kids. > Before Keely was born I coached High School Varsity Softball for 5 > years. After 4 former athletes contacted me because they had an > autistic child I went back and pulled out my old score books. I was > floored to find in 5 years I had coached a total of 47 Varsity > Athletes. 4 kids with autism, make that 5 counting Keely out of 48 > people. This is from a town of only 1,000 people. Unless you believe > that Softball somehow causes Autism, you have a random group of > individuals with 1 in every 9 with a child with Autism. > Our groups in Oregon say, every time you find yourself in a room of 20 > people, you will find two or three of you with Autism in your direct > family. The only people claiming there is not an epidemic are those > not living in the real world everyday. > > Kendra > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 To add my own story, I returned to my home town last year after living in Indiana for about 10 years. In the neighborhood I grew up 4 girls that lived all within a few blocks from each other now have a child with autism. People in this area think we are unique and that this area has a disproportionalby high number of children with autism, They can't wrap their minds around the fact that this is how it is everywhere! > > All you have to do is talk to any teacher that has worked for 20 years > or more. The fear in their eyes is palpable. They will tell you that > something is very very wrong. > We had a first grade here a few years back with 12 autistic kids. > Before Keely was born I coached High School Varsity Softball for 5 > years. After 4 former athletes contacted me because they had an > autistic child I went back and pulled out my old score books. I was > floored to find in 5 years I had coached a total of 47 Varsity > Athletes. 4 kids with autism, make that 5 counting Keely out of 48 > people. This is from a town of only 1,000 people. Unless you believe > that Softball somehow causes Autism, you have a random group of > individuals with 1 in every 9 with a child with Autism. > Our groups in Oregon say, every time you find yourself in a room of 20 > people, you will find two or three of you with Autism in your direct > family. The only people claiming there is not an epidemic are those > not living in the real world everyday. > > Kendra > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 When I lived in Ohio we had 10 kids on the spectrum, and quite a few others who could have gotten a diagnosis, in our neighborhood of 180 houses. Many were diagnosed while living in the town - some moved there for the schools. I sat in a tiny Catholic Church in Massaschusetts and saw TWO families holding PECS for their children. We're like vampires -- we ARE out here and we're going to suck the social, mental health and medical support systems dry over the next decades if someone doesn't have the heart and chutzpah to really help us out. KIM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 In Indiana on my street with a whopping total of 14 houses. Just on my side of the street, out of 7 houses there were two kids (right next door to each other) diagnosed with Tourette's. Also, the brother of one of them had severe ADHD and undiagnosed learning/behavior problems and down the street my son with autism. On my street now (in Ohio) we have a next door neighbor with dyslexia and other learning problems, on the other side a boy with undiagnosed learning problems. Further down the street a boy with severe speech problems and learning problems, 4 doors down a boy with auditory processig problems, ADHD and Tourette like behaviors. These are just the families I know. Autism is the tip of the iceberg. Where the hell were all the kids like them when I was growing up? By the way, all of these boys are 10 years old, born in 95 and 96. > > When I lived in Ohio we had 10 kids on the spectrum, and quite a few > others who could have gotten a diagnosis, in our neighborhood of 180 > houses. Many were diagnosed while living in the town - some moved > there for the schools. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2006 Report Share Posted November 2, 2006 What a beautiful story, it brought me to tears. My son also likes to grab onto strangers but he is 6 so occasionally he’s at the perfect height to grab something a little more mortifying. Sometimes I think our kids have a sixth sense for who the good guys are. - schaferatsprynet <schafersprynet> wrote: This just happened to us yesterday. On the way home from my son's after school, we stopped in a gas station in a struggle working class neighborhood in Sacramento to get gas and goodies. In front of us at the cou! nter was this stereotype figure: a large African American male around 6' 10 " , 40ish, with a gruff voice, a jacket with a union emblame and steel toed shoes. He turns to leave, and my son, 18, who stands just under 6 " reaches up and gently touches his face making brief eye contact. It's a thing he does with strangers every so often to my horror. Before the man can react I go into my rescue social situation with autism routine. I bark at my son " No, Izak! Don't touch " and then hopefully address the man with " he's autistic " before he can react. He blinks for a second expressionless, then a big smile crosses his face. " I have a 4 yr old son with autism, I know! Hello, Izak, can I buy you a snack? " He turns to me and says, since my son, I love all kids with autism! " Turns out he has a daughter on the spectrum, too. Without me saying a word, he offers that he " thinks it's the shots they got that messed them up. " We exchanged names, shook hands and left the attendant on the other end of the counter smiling. Nope, no epidemic around here, I thought. We're just anecdotal idiot strangers who don't understand better diagnosing. Lenny > I am constantly running into people with ASD kids. Last night as my > son and I left a citywide Halloween party (no meltdowns, TG!), we > struck up a conversation with a man on crutches. Their 2-year-old > son was toddling away with his back to me in the semidarkness. Turns > out he's autistic and thankfully getting services. > Now you can have a huge leap forward in email: get the new . Quote Link to comment Share on other sites More sharing options...
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