Re: Re: Why act now and get a toothless Combating Autism Act?

[Guest guest]

Take it from "the beaver"

Re: Why act now and get a toothless Combating Autism Act?

I agree 100%. Let's re-write it as it was intended before it was trashed earlier. Barton has no leverage and no pull and absolutely nothing to negotiate with. He is desperate and his funders are pounding him hard. Tell him to take a hike.Barton has become totally unecessary, but someone please thank him as the door hits him in the ass for all the media attention.Kendra

[Guest guest]

Why not start with the original consensus CAA in the new Congress?

BTW- loved the reference to sepsis.

Re: Why act now and get a toothless Combating Autism Act?

> Barton has become totally unecessary, but someone please thank him as > the door hits him in the ass for all the media attention.> KendraBarton is not the only threat at this moment, imo. It is those whoclaim to represent us too willing again to sell our children shortwith more "compromises" to the CAA who worry me. Perhaps we need tolaunch a "NO LAME DUCK DEALS" action alert campaign to get the wordout. We need more, not less "micro-management" language in the CAA toward off the presence of pharma sepsis that permeates pubic healthagencies. The original consensus CAA bill works for me.Lenny

[Guest guest]

I wasn't. "The beaver" doesn't have some untoward Oregonian reference (I apologize for any inaccuracy in innuendo), but rather to the countenance of one Texas legislator who looks like an overstuffed beaver, but is more aptly described as a weasal.

Re: Why act now and get a toothless Combating Autism Act?> > > I agree 100%. Let's re-write it as it was intended before it was > trashed earlier. Barton has no leverage and no pull and absolutely > nothing to negotiate with. He is desperate and his funders are > pounding him hard. Tell him to take a hike.> Barton has become totally unecessary, but someone please thank him as > the door hits him in the ass for all the media attention.> Kendra>

[Guest guest]

If I was going to suggest someone I would go with ACHAMP or Bob

Krakow. I can certainly appreciate the complexity of the situation but

this is the equivalent of someone breaking into my house and violating

my family and their security. If someone breaks into your house and

you catch them beating your kid so bad he has brain damage are you

going to want payback or to negotiate?

We are the people that have been violated. Not them. I want someone

who is passionate, intelligent and above all someone who is good with

people and knows how to 'work' them.

That being said as long as we stay united let they try to stop us.

My two cents,

" Parents please throw out names of individuals/organizations who you

would like to represent your child if CAA gets another chance.  If you

would like to email me privately, please do so.  "

[Guest guest]

If I was going to suggest someone I would go with ACHAMP or Bob

Krakow. I can certainly appreciate the complexity of the situation but

this is the equivalent of someone breaking into my house and violating

my family and their security. If someone breaks into your house and

you catch them beating your kid so bad he has brain damage are you

going to want payback or to negotiate?

We are the people that have been violated. Not them. I want someone

who is passionate, intelligent and above all someone who is good with

people and knows how to 'work' them.

That being said as long as we stay united let they try to stop us.

My two cents,

" Parents please throw out names of individuals/organizations who you

would like to represent your child if CAA gets another chance.  If you

would like to email me privately, please do so.  "

[Guest guest]

Only dead fish go with the flow

"If we, as parents, do not get involved and stay involved…or if we> choose to "go along to get along" then do not be surprised when our> children continue to get the short shrift. If you do not want the> gutted, watered-down version of the CAA getting shoved down your throats> by some "leaders" in the "autism" community – then> let your voices be heard…even if it is unpopular with the> "leadership" of big money organizations."

-------------- Original message -------------- From: "theknittingmom" <theknittingmom@...>

CLARK AND GILMORE FOR PRES. AND V.P.!!!!Alison>> > ,> > Thanks for the kind words. When I am called confrontational, it is> often because I ask a question (even though I already have the answer)> that hits too close to a nerve. By calling me confrontational, it is> their attempt to marginalize and minimize me in an effort to mitigate> the damage when the answer to my hard question is made public.> > Having served as an elected official, I am quite familiar with the> technique and that it is often a defensive move when hidden agendas or> corruption is uncovered and exposed. It didn't deter me then and it> doesn't deter me now?they can call me confrontational if they> wish as long as they truthfully answer my hard questions to allow the> public to have all the cards on the table so people can make informed> decisions.> > During a counci

l meeting, after asking a particularly pointed question> of a department head, the gentleman next to him (also a department head)> leaning over and whispered, "be careful, Mrs. never asks a> question in public that she doesn't already have the answer; she> just wants to see if you will add lying to your list of crimes!" > After chuckling and pointing out to the department head that his> microphone was on, I gladly admitted that indeed, I rarely asked public> questions without having done my homework and already having the answer.> It was always a sore spot with some (those who usually tried to> manipulate the system) that I did not find it necessary to "go along> to get along" that I was capable of independent thought and that I> did my homework. Those that did their job, did not lie to me and did> not try to manipulate situations to their advantage were always> supportive of me and my questions. The CAA and organizations involved> in its promotion are no different than what I encountered as an elected> official. I don't get involved to be voted "Miss> Congeniality" but to simply get the job done.> > When some organizations and individuals involved in the CAA process> indicated early on that they would support the gutting of the vaccine> and environmental language from the bill, I became suspicious and> investigated. That is when things become uncomfortable for some because> hidden agendas were revealed and I am a firm believer in open> communications (what one knows ? so should all know). I have little> tolerance for fools, liars and hidden agendas. I am not shy about> calling a spade a spade ? which makes some uncomfortable (generally> those whose hidden agendas or nefarious deeds have just been exposed).> > If we, as parents, do not get involved and stay in

volved?or if we> choose to "go along to get along" then do not be surprised when our> children continue to get the short shrift. If you do not want the> gutted, watered-down version of the CAA getting shoved down your throats> by some "leaders" in the "autism" community ? then> let your voices be heard?even if it is unpopular with the> "leadership" of big money organizations.> > We PROVED on Tuesday that people are more powerful than money on> Election Day. We must prove to our national organizations that PARENTS> drive this movement, the best interests of our children drive parents> ? NOT money, hidden agendas and questionable lobbying tactics. If> the national organizations do not hear your voice ? hit them where> it hurts; in their membership and donations. They can not be called> "leaders" if they look around and no one is following!> > Together, parents can get the j

ob done. NoMercury is very proud of our> track record in assisting parent/advocates, teaching them effective> lobbying techniques and guiding them in using the strongest scientific> evidence to convince legislators to act to protect children. It is not> the victory of NoMercury ? it is the victory of parents and> children; we're just proud to have played a small part in that> victory.> > NoMercury will stand firm with any organization in demanding answers and> biological research into the vaccine/Thimerosal link with> neurodevelopmental disorders. While compromise is sometimes necessary,> I will not compromise on obtaining the highest quality of life, health> and justice for our children. At NoMercury, we do not call the refusal> to research vaccines/Thimerosal in return for a slice of the proverbial> pie a "compromise." We call it selling out. Parents, do your> homework. S

tudy the actions of individuals and groups, not their words.> Think, study, analyze and act. You are the BEST advocate for your> children?not some slick PR firm/lobbyist with hidden agendas and a> money trail to someone's deep pockets.> > As my friend, , would say?Soldier On!> > Lujene> > > > > > ..very well written!> > I especially like this part:> > We must NEVER lose sight that our children were mercury poisoned, and in> knowing this truth, we must NEVER justify a weak position.> > Lujene of No Mercury was quick to size up some of the corrupt crap> going on with the CAA..and some of the groups who say they are working> for hg injured children did not appreciate her calling this to

BR>> everyone's attention on the conference calls. I believe Lujene was very> much speaking up on behalf of mercury injured children, but was made to> feel that her comments were unwelcome.> > IMO, what many call "a different approach" is a cop out because they do> not understand the art of negotiating, lack any understanding of what> corruption is all about, and more importantly they are not able to> strategize a possible way around the corruption.> > One of the big negotiators in all of the CAA admitted to me in a phone > conversation that they did not like to be confrontational..well, move on> please. confrontation is needed when it comes to negotiating a federal> bill.> > I encourage parents to speak up if CAA gets another chance and> understand who is representing their mercury injured child on the> hill..are they a person who will give in because confronting

folks is> not their style or will they ask the hard questions and report their> findings to the parents?..The kind of questions that made a CAN lobbyist> squirm (as Lujene did). CAN and other CAA supporting> organizations wanted to keep Bob K. of ACHAMP quiet.he also asked those> "make you squirm in your seat type of questions." ACHAMP, NO Mercury,> and MAM were removed from the negotiating table soon> after we took a stand on the vaccine language..sucking up was only> allowed.> > IMO, some organizations spent too much time defending their position> instead of providing information to the parents and getting feedback> from concerned parents.> > Parents please throw out names of individuals/organizations who you> would like to represent your child if CAA gets another chance. If you> would like to email me privately, please do so.> > I will throw o

ut a name.. Cellini (former lobbyist who has an> injured child).> > Let's not repeat history..let's be proactive not reactive. Now is the> time to be proactive if CAA has another chance.> > >

[Guest guest]

Only dead fish go with the flow

"If we, as parents, do not get involved and stay involved…or if we> choose to "go along to get along" then do not be surprised when our> children continue to get the short shrift. If you do not want the> gutted, watered-down version of the CAA getting shoved down your throats> by some "leaders" in the "autism" community – then> let your voices be heard…even if it is unpopular with the> "leadership" of big money organizations."

-------------- Original message -------------- From: "theknittingmom" <theknittingmom@...>

CLARK AND GILMORE FOR PRES. AND V.P.!!!!Alison>> > ,> > Thanks for the kind words. When I am called confrontational, it is> often because I ask a question (even though I already have the answer)> that hits too close to a nerve. By calling me confrontational, it is> their attempt to marginalize and minimize me in an effort to mitigate> the damage when the answer to my hard question is made public.> > Having served as an elected official, I am quite familiar with the> technique and that it is often a defensive move when hidden agendas or> corruption is uncovered and exposed. It didn't deter me then and it> doesn't deter me now?they can call me confrontational if they> wish as long as they truthfully answer my hard questions to allow the> public to have all the cards on the table so people can make informed> decisions.> > During a counci

l meeting, after asking a particularly pointed question> of a department head, the gentleman next to him (also a department head)> leaning over and whispered, "be careful, Mrs. never asks a> question in public that she doesn't already have the answer; she> just wants to see if you will add lying to your list of crimes!" > After chuckling and pointing out to the department head that his> microphone was on, I gladly admitted that indeed, I rarely asked public> questions without having done my homework and already having the answer.> It was always a sore spot with some (those who usually tried to> manipulate the system) that I did not find it necessary to "go along> to get along" that I was capable of independent thought and that I> did my homework. Those that did their job, did not lie to me and did> not try to manipulate situations to their advantage were always> supportive of me and my questions. The CAA and organizations involved> in its promotion are no different than what I encountered as an elected> official. I don't get involved to be voted "Miss> Congeniality" but to simply get the job done.> > When some organizations and individuals involved in the CAA process> indicated early on that they would support the gutting of the vaccine> and environmental language from the bill, I became suspicious and> investigated. That is when things become uncomfortable for some because> hidden agendas were revealed and I am a firm believer in open> communications (what one knows ? so should all know). I have little> tolerance for fools, liars and hidden agendas. I am not shy about> calling a spade a spade ? which makes some uncomfortable (generally> those whose hidden agendas or nefarious deeds have just been exposed).> > If we, as parents, do not get involved and stay in

volved?or if we> choose to "go along to get along" then do not be surprised when our> children continue to get the short shrift. If you do not want the> gutted, watered-down version of the CAA getting shoved down your throats> by some "leaders" in the "autism" community ? then> let your voices be heard?even if it is unpopular with the> "leadership" of big money organizations.> > We PROVED on Tuesday that people are more powerful than money on> Election Day. We must prove to our national organizations that PARENTS> drive this movement, the best interests of our children drive parents> ? NOT money, hidden agendas and questionable lobbying tactics. If> the national organizations do not hear your voice ? hit them where> it hurts; in their membership and donations. They can not be called> "leaders" if they look around and no one is following!> > Together, parents can get the j

ob done. NoMercury is very proud of our> track record in assisting parent/advocates, teaching them effective> lobbying techniques and guiding them in using the strongest scientific> evidence to convince legislators to act to protect children. It is not> the victory of NoMercury ? it is the victory of parents and> children; we're just proud to have played a small part in that> victory.> > NoMercury will stand firm with any organization in demanding answers and> biological research into the vaccine/Thimerosal link with> neurodevelopmental disorders. While compromise is sometimes necessary,> I will not compromise on obtaining the highest quality of life, health> and justice for our children. At NoMercury, we do not call the refusal> to research vaccines/Thimerosal in return for a slice of the proverbial> pie a "compromise." We call it selling out. Parents, do your> homework. S

tudy the actions of individuals and groups, not their words.> Think, study, analyze and act. You are the BEST advocate for your> children?not some slick PR firm/lobbyist with hidden agendas and a> money trail to someone's deep pockets.> > As my friend, , would say?Soldier On!> > Lujene> > > > > > ..very well written!> > I especially like this part:> > We must NEVER lose sight that our children were mercury poisoned, and in> knowing this truth, we must NEVER justify a weak position.> > Lujene of No Mercury was quick to size up some of the corrupt crap> going on with the CAA..and some of the groups who say they are working> for hg injured children did not appreciate her calling this to

BR>> everyone's attention on the conference calls. I believe Lujene was very> much speaking up on behalf of mercury injured children, but was made to> feel that her comments were unwelcome.> > IMO, what many call "a different approach" is a cop out because they do> not understand the art of negotiating, lack any understanding of what> corruption is all about, and more importantly they are not able to> strategize a possible way around the corruption.> > One of the big negotiators in all of the CAA admitted to me in a phone > conversation that they did not like to be confrontational..well, move on> please. confrontation is needed when it comes to negotiating a federal> bill.> > I encourage parents to speak up if CAA gets another chance and> understand who is representing their mercury injured child on the> hill..are they a person who will give in because confronting

folks is> not their style or will they ask the hard questions and report their> findings to the parents?..The kind of questions that made a CAN lobbyist> squirm (as Lujene did). CAN and other CAA supporting> organizations wanted to keep Bob K. of ACHAMP quiet.he also asked those> "make you squirm in your seat type of questions." ACHAMP, NO Mercury,> and MAM were removed from the negotiating table soon> after we took a stand on the vaccine language..sucking up was only> allowed.> > IMO, some organizations spent too much time defending their position> instead of providing information to the parents and getting feedback> from concerned parents.> > Parents please throw out names of individuals/organizations who you> would like to represent your child if CAA gets another chance. If you> would like to email me privately, please do so.> > I will throw o

ut a name.. Cellini (former lobbyist who has an> injured child).> > Let's not repeat history..let's be proactive not reactive. Now is the> time to be proactive if CAA has another chance.> > >

[Guest guest]

True Diplomats Anne Dachel, lujene , Medlin, When you controll the cards you never fold Nanstiel <erik@...> wrote: I second the nomination! Kirby for Secretary of State!>> > CLARK AND GILMORE FOR PRES. AND V.P.!!!!> Alison>> > >

[Guest guest]

Good choice.

Note that whoever negotiates must not be "starry-eyed" or fall trap to the false gods of celebrity or psuedo-celebrity status. That is how they will rope you in.

They must remain absolutely impartial and be aware of the sirens who aim to muffle this issue.

Re: Re: Why act now and get a toothless Combating Autism Act?

If I was going to suggest someone I would go with ACHAMP or Bob Krakow. I can certainly appreciate the complexity of the situation but this is the equivalent of someone breaking into my house and violating my family and their security. If someone breaks into your house and you catch them beating your kid so bad he has brain damage are you going to want payback or to negotiate?We are the people that have been violated. Not them. I want someone who is passionate, intelligent and above all someone who is good with people and knows how to 'work' them.That being said as long as we stay united let they try to stop us.My two cents,"Parents please throw out names of individuals/organizations who you would like to represent your child if CAA gets another chance. If you would like to email me privately, please do so. "

[Guest guest]

Good choice.

Note that whoever negotiates must not be "starry-eyed" or fall trap to the false gods of celebrity or psuedo-celebrity status. That is how they will rope you in.

They must remain absolutely impartial and be aware of the sirens who aim to muffle this issue.

Re: Re: Why act now and get a toothless Combating Autism Act?

If I was going to suggest someone I would go with ACHAMP or Bob Krakow. I can certainly appreciate the complexity of the situation but this is the equivalent of someone breaking into my house and violating my family and their security. If someone breaks into your house and you catch them beating your kid so bad he has brain damage are you going to want payback or to negotiate?We are the people that have been violated. Not them. I want someone who is passionate, intelligent and above all someone who is good with people and knows how to 'work' them.That being said as long as we stay united let they try to stop us.My two cents,"Parents please throw out names of individuals/organizations who you would like to represent your child if CAA gets another chance. If you would like to email me privately, please do so. "