Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 It varies..based on child/behaviors/OAT testing etc. Join here to get lots of good info regarding diet/GI issues Subscribe: -subscribe > > Just wondering how long should you stay on the GFCF diet if you have not > seen any difference? We're into our 8th month with absolutely no changes...just > curious if anyone has any advice? > > Carla > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 Are you still using soy? If so, you need to remove it and give it another 2 months. Have you had IgG (not IgE) allergy testing done and removed all of the offending foods? If not, you need to do it and remove those foods and give it another 2 months. Other considerations are: is your child a girl? Does your child have aspergers? Are you 10000% positive that you are getting and keeping the diet clean? When was the last time you checked every label as manufacturers change ingredients without telling people. Also, no school people, therapists, grandparents, ex-husbands sabotaging the diet???? Is your child on lots of medications? Those are the things I’d be looking for before I’d think about quitting. From: EOHarm [mailto:EOHarm ] On Behalf Of carla925@... Sent: Saturday, June 24, 2006 2:04 PM EOHarm Subject: GFCF Question Just wondering how long should you stay on the GFCF diet if you have not seen any difference? We're into our 8th month with absolutely no changes...just curious if anyone has any advice? Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 If your child is more angry for not getting the foods they want and there is little difference seen, we usually allow some of the foods with enzymes. GFCF Question Just wondering how long should you stay on the GFCF diet if you have not seen any difference? We're into our 8th month with absolutely no changes...just curious if anyone has any advice? Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 Some time back, Dr. Amy Holmes put out some study done on this and said that about 50% of the children respond to GF/CF. Given those numbers-perhaps your child can handle gluten and casein. Did you ever do the gluten, casein peptide test?hcoleman <stratpat@...> wrote: If your child is more angry for not getting the foods they want and there is little difference seen, we usually allow some of the foods with enzymes. GFCF Question Just wondering how long should you stay on the GFCF diet if you have not seen any difference? We're into our 8th month with absolutely no changes...just curious if anyone has any advice? Carla Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 Then your child is not on the diet. There is no such thing as “a little pregnant”. From: EOHarm [mailto:EOHarm ] On Behalf Of hcoleman Sent: Saturday, June 24, 2006 5:05 PM EOHarm Subject: Re: GFCF Question If your child is more angry for not getting the foods they want and there is little difference seen, we usually allow some of the foods with enzymes. GFCF Question Just wondering how long should you stay on the GFCF diet if you have not seen any difference? We're into our 8th month with absolutely no changes...just curious if anyone has any advice? Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 Those old studies were prefaced on the opioid theory, which could never be replicated byt real labs, and has been proved wrong. See work by Jyonouchi re abberant immune response to dietary protein. 91% of ASD people benefit from removal of gluten casein AND SOY. From: EOHarm [mailto:EOHarm ] On Behalf Of Maurine Meleck Sent: Saturday, June 24, 2006 5:25 PM EOHarm Subject: Re: GFCF Question Some time back, Dr. Amy Holmes put out some study done on this and said that about 50% of the children respond to GF/CF. Given those numbers-perhaps your child can handle gluten and casein. Did you ever do the gluten, casein peptide test? hcoleman <stratpat@...> wrote: If your child is more angry for not getting the foods they want and there is little difference seen, we usually allow some of the foods with enzymes. GFCF Question Just wondering how long should you stay on the GFCF diet if you have not seen any difference? We're into our 8th month with absolutely no changes...just curious if anyone has any advice? Carla Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 well, thanks Holly . I am a firm believer in the diet for my grandson-who is now SCD. A couple years back he ate a dish of ice cream at someone's house and ended up in the hospital for 5 days. MaurineHolly Bortfeld <maximom@...> wrote: Those old studies were prefaced on the opioid theory, which could never be replicated byt real labs, and has been proved wrong. See work by Jyonouchi re abberant immune response to dietary protein. 91% of ASD people benefit from removal of gluten casein AND SOY. From: EOHarm [mailto:EOHarm ] On Behalf Of Maurine MeleckSent: Saturday, June 24, 2006 5:25 PMEOHarm Subject: Re: GFCF Question Some time back, Dr. Amy Holmes put out some study done on this and said that about 50% of the children respond to GF/CF. Given those numbers-perhaps your child can handle gluten and casein. Did you ever do the gluten, casein peptide test?hcoleman <stratpat@...> wrote: If your child is more angry for not getting the foods they want and there is little difference seen, we usually allow some of the foods with enzymes. GFCF Question Just wondering how long should you stay on the GFCF diet if you have not seen any difference? We're into our 8th month with absolutely no changes...just curious if anyone has any advice? Carla Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 We did the peptide test about a month after we started the diet back in December and the DAN doctor said we're either doing really well on the diet eliminating everything or he's not reacting to Gluten/Casein. We also did the Food Allergy tests and it came back that he wasn't allergic to wheat, but was a 1 on dairy items and a 2 on soy and canola. We've restricted his diet so much that basically he eats meats (home cooked), broccoli, carrots, and plain potato chips. (He's allergic to so many other things that I can't put any seasonings on anything. Basically, we just use Olive oil, salt and pepper. He's actually very good about it, but I just feel so bad that he doesn't eat much any more. I just wondered how much time do you basically give it before you see any changes. My son is 13, so I also wondered if it takes longer to see any changes. (We tried the diet for about 3 or 4 months when he was around 5 or 6 years old and didn't see any changes then, so the doctor at the time said it wasn't necessary.) We'll give it more time and hope to see a difference. Thanks for your responses! Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 That's right. We did a full blown GFCF as well as about 9 months of rigorous SCD and all we did was make the child angrier and angrier. We did a full panel to test for allergens and did the various casein/gluten/opiate peptides (gliadormophin/casomorphin). We limited his diet strictly- but there was always the school pizza party, various school outings to any number of eateries which invariably resulted in some the foods he wasn't allowed to have contaminating the protocol. Right now we are rigorous anti-casein less rigorous anti-gluten (but still very good about it) after seeing a gastroenterologist who did a panel of tests. GFCF Question Just wondering how long should you stay on the GFCF diet if you have not seen any difference? We're into our 8th month with absolutely no changes...just curious if anyone has any advice? Carla Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 We've seen Jyonouchi. She's quite good. GFCF Question Just wondering how long should you stay on the GFCF diet if you have not seen any difference? We're into our 8th month with absolutely no changes...just curious if anyone has any advice? Carla Messenger with Voice. PC-to-Phone calls for ridiculously low rates. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Holly, Does that mean that the peptide test is unnecessary and doesn't prove much-even if his numbrs came way down??? maurinehcoleman <stratpat@...> wrote: That's right. We did a full blown GFCF as well as about 9 months of rigorous SCD and all we did was make the child angrier and angrier. We did a full panel to test for allergens and did the various casein/gluten/opiate peptides (gliadormophin/casomorphin). We limited his diet strictly- but there was always the school pizza party, various school outings to any number of eateries which invariably resulted in some the foods he wasn't allowed to have contaminating the protocol. Right now we are rigorous anti-casein less rigorous anti-gluten (but still very good about it) after seeing a gastroenterologist who did a panel of tests. GFCF Question Just wondering how long should you stay on the GFCF diet if you have not seen any difference? We're into our 8th month with absolutely no changes...just curious if anyone has any advice? Carla __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Yes, the peptide test is unnecessary. From: EOHarm [mailto:EOHarm ] On Behalf Of Maurine Meleck Sent: Sunday, June 25, 2006 7:59 AM EOHarm Subject: Re: GFCF Question Holly, Does that mean that the peptide test is unnecessary and doesn't prove much-even if his numbrs came way down??? maurine hcoleman <stratpat@...> wrote: That's right. We did a full blown GFCF as well as about 9 months of rigorous SCD and all we did was make the child angrier and angrier. We did a full panel to test for allergens and did the various casein/gluten/opiate peptides (gliadormophin/casomorphin). We limited his diet strictly- but there was always the school pizza party, various school outings to any number of eateries which invariably resulted in some the foods he wasn't allowed to have contaminating the protocol. Right now we are rigorous anti-casein less rigorous anti-gluten (but still very good about it) after seeing a gastroenterologist who did a panel of tests. GFCF Question Just wondering how long should you stay on the GFCF diet if you have not seen any difference? We're into our 8th month with absolutely no changes...just curious if anyone has any advice? Carla __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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