Would someone post a critique of CAA citing language of the bill?

[Guest guest]

Having read a copy of the bill that was e-mailed to me by a

health staffer of the HELP committee two days after its passage, I am

still confused about why many in the autism community see the CAA as

a bill they cannot accept. Could someone cite specific language from

the bill and explain in English what will happen as a result of the

sections they choose to cite?

From what I have read so far, I do not like the idea of the

director of the CDC having anything to do with autism even if it is

limited to epidemiology.

Secondly, I think while it is unfortunate that the vaccine

language was removed, but I believe the insertion of the

word " toxicology " would allow for research into mercury and vaccines.

Lastly, in regards to the powers and responsibilities given to

the Governors, this could be problematic depending on who the

governor is. Here in Iowa, I would be scared that whomever is

elected Governor in November will decide that the majority of autism

information be sent out from the University of Iowa's autism center.

I have heard mostly horror stories from parents who have taken their

children there. I know they are oppossed to the biomedical

approach.

I would greatly appreciate hearing other's opinions on the CAA

as long as they cite specific language from the bill. This will help

focus the debate and keep it about the facts and not generalities.

Thanks,

Olsen

P.S. Despite what I see as problems with the bill, I think spending

$1 BILLION dollars on autism can't be bad. This huge sum of money

has to have some positive outcomes for our children.

[Guest guest]

The specific language you are looking for is the language that was

left out that was agreed upon by all the autism organizations that

would direct research specifically to the vaccine/mercury connection

and create an oversight board to insure that it happened.

At the last minute this was taken out of consideration and the HELP

committee refused to put it back in. This is an unmistakable

indication that those who would control the purse strings will not let

this research happen.

That there is any resistance to looking into the vaccine/mercury

connection to autism is reason alone to insist that it stay in. What

are they afraid of?

For all the hundreds of millions of dollars spent already on autism

research funded by the CDC, the NIH, CAN, AS/NAAR, they have produced

almost nothing that can benefit our children now, or that would be a

threat to the autism epidemic perpetrators. There is nothing in the

CAA that would indicate we will not get $1 billion more of the same.

" Trust us " is not good enough. Our children deserve better protection

from the negligent practices of government public health agencies and

vague promises off the record that they'll look into it -- and that is

all that's in the CAA, vague promises.

A-CHAMP is not trying to convince other organizations to not endorse

the measure, they are just not wasting anymore time supporting it.

Lenny

>

> Having read a copy of the bill that was e-mailed to me by a

> health staffer of the HELP committee two days after its passage, I am

> still confused about why many in the autism community see the CAA as

> a bill they cannot accept. Could someone cite specific language from

> the bill and explain in English what will happen as a result of the

> sections they choose to cite?

> From what I have read so far, I do not like the idea of the

> director of the CDC having anything to do with autism even if it is

> limited to epidemiology.

> Secondly, I think while it is unfortunate that the vaccine

> language was removed, but I believe the insertion of the

> word " toxicology " would allow for research into mercury and vaccines.

> Lastly, in regards to the powers and responsibilities given to

> the Governors, this could be problematic depending on who the

> governor is. Here in Iowa, I would be scared that whomever is

> elected Governor in November will decide that the majority of autism

> information be sent out from the University of Iowa's autism center.

> I have heard mostly horror stories from parents who have taken their

> children there. I know they are oppossed to the biomedical

> approach.

> I would greatly appreciate hearing other's opinions on the CAA

> as long as they cite specific language from the bill. This will help

> focus the debate and keep it about the facts and not generalities.

>

> Thanks,

> Olsen

>

> P.S. Despite what I see as problems with the bill, I think spending

> $1 BILLION dollars on autism can't be bad. This huge sum of money

> has to have some positive outcomes for our children.

>

[Guest guest]

But toxicology is not in the CAA. Just try to get toxicology inserted. Bob , the owner of autism speaks, is also the owner of GE. GE owns a thimerosal plant. You have your work cut out for you.

CDC does not have any business being involved in autism. (SEE www.putchildrenfirst.org )

You may not know this, but thousands of parents have forced CDC to even admit autism was at epidemic levels some years ago. For an agency carrying the charge to be on top of diseases and epidemics they failed because they refused to stop, look, and listen. For an agency directly related to causing the 6000% increase in autism covering this up was par for the course in America these days.

CDC already works as an overlord. As an MD you understand that under CDC directives, MDs across America make their decisions. Many state level agencies rely on CDC, too. These agencies faced the epidemic alone as CDC would not admit autism was at those levels. State mental health groups had their hands tied by CDC for many years because their funding is tied into statistics.

For an example:

The Center for Autism and Related Disorders in Tampa, Florida was established by the Florida Legislature in 1986. At that time the Tampa CARD had six specialists serving a catchment of fifty families. This worked well as they were able to work with each family individually. However, when they were contacted in late 2003 they still had the same six specialists, but their catchment had swollen to 1,700 families. In short, they were swamped by the epidemic. They were no longer able to provide individual case work assistance to families and had to resort to mass orientation meetings and mailings.

When CDC, after a regime change, finally issued and Autism A.L.E.R.T. flier in February of 2004 the CARD breathed a sigh of relief. The CDC flier claimed 1 in 166 children were being diagnosed with autism. It also said 1 in 6 were now in developmentally delayed programs in schools across the country. Tampa CARD had something "bankable".

Still the state of Florida has been overwhelmed by autism. Having an uncompassionate governor also hurt the children. While the state health agency responsible for developmentally disabled services annually returns $52 to $60 million dollars of unused tax dollars, Florida for many years has 14,000+ developmentally disabled children on a waiting list for Med Waivers. There was a plan to cut the list in half by simply adding salary disqualifiers for the first time. Meaning if those on the waiting list were somewhere slightly above the poverty line, regardless of the fact that a developmental disability is involved, they would no longer qualify for services in the state.

The truth is CDC has been too busy working with their dozen or so media scholars to smother the voices of parents and hiding the real numbers (SEE Evidence of Harm)

For example:

There is a woman who I refer to as Mrs. Toast. She is a CDC staffer who was responsible for monitoring the Geiers when they were instructed to visit the Vaccine Safety Datalink by Congress. When she saw the Geiers datasets, she walked out into the hallway, looked both ways, and came back into the room shutting the door behind her.

The Geiers thought they had epi-evidence. Mrs. Toast told them to look at hers. She told them she was responsible for running weekly autism datasets. She was instructed to run datasets on HMO vaccination adverse outcomes to see what effect removing thimerosal from vaccines was having on the epidemic. She had an affected child and made sure that the Geiers understood that the rates were dropping each and every week.

Author Kirby had an interview set up, flew down to Atlanta, was in a car on the way to CDC to talk to her, but CDC had found out and they were threatening for end her career if she spoke to him.

When Congressman Dave Weldon found out about her not willing to blow the whistle on CDC's cover-up he said, "THIS WOMAN IS TOAST!" Which is were I gave her the formal name of Mrs. Toast.

At some point during Mrs. Toast's drop in autism rates CDC enlisted the help of NBC. Despite all effective awareness efforts of parents and people on the front lines of the autism epidemic there were children who'd fallen between the cracks. There are always reports about parents slamming their two year olds against the walls, etc. These ignorant parents are basically out there everyday. Finding enough of them to prop up sagging autism rates related to thimerosal removal would take national effort.

The CDC-NBC brain-child was a week-long concerted effort which had absolutely nothing to do with raising public awareness, and everything to do with instructing doctors on how to diagnose more autism. Certainly a very strange position for CDC to take in that they had claimed all along that autism rates were high as a result of better diagnosis. The effect of "Better Diagnosis Week" served the purpose of adding much needed "out of normal reach" children to the list of ASD and also giving the politically savvy pediatricians, who'd been instructed that parents of these kids are crazy, the green-light to prop up sagging autism rates.

Autism-mercury parents across the country were shocked to see that this partnership produced poor information concerning thimerosal and it's causal relationship to autism. Parents knew of the parallel increases in thimerosal-containing vaccine administration and autism. To parents who'd already lined up the symptoms of autism and mercury poisoning and the two are virtually identical twins NBC was out of order to omit mentioning thimerosal entirely.

While NBC was broadcasting this universally on their chain of networks thousands of parents, who thanks to a tip from one parent, were busy flooding NBC News anchor with E-mails expressing disgust over their lack of interest in the mercury-poisoning of their children causing their autism. said he had never received such a public out-cry for media justice before.

For all their "midnight at the computer efforts" the parents were rudely subjected to a nasty, indignant slap-down by Bob Bazellzabub on air, who claimed the "overwhelming evidence" is vaccine do not cause autism, (SEE http://www.nopointsfortrying.blogspot.com/ ), and one twenty second blip of scientist Deth stating there is a problem with some kids and thimerosal.

To an outsider not familiar with this long, drawn out saga for answers leading finally to justice for our children, sure the CAA looks OK, but to those who've been fighting honestly for our children is just another brick in the wall to defend against us.

Would someone post a critique of CAA citing language of the bill?

Having read a copy of the bill that was e-mailed to me by a health staffer of the HELP committee two days after its passage, I am still confused about why many in the autism community see the CAA as a bill they cannot accept. Could someone cite specific language from the bill and explain in English what will happen as a result of the sections they choose to cite?From what I have read so far, I do not like the idea of the director of the CDC having anything to do with autism even if it is limited to epidemiology.Secondly, I think while it is unfortunate that the vaccine language was removed, but I believe the insertion of the word "toxicology" would allow for research into mercury and vaccines.Lastly, in regards to the powers and responsibilities given to the Governors, this could be problematic depending on who the governor is. Here in Iowa, I would be scared that whomever is elected Governor in November will decide that the majority of autism information be sent out from the University of Iowa's autism center. I have heard mostly horror stories from parents who have taken their children there. I know they are oppossed to the biomedical approach. I would greatly appreciate hearing other's opinions on the CAA as long as they cite specific language from the bill. This will help focus the debate and keep it about the facts and not generalities.Thanks, OlsenP.S. Despite what I see as problems with the bill, I think spending $1 BILLION dollars on autism can't be bad. This huge sum of money has to have some positive outcomes for our children.