MJ Update - Overdue but not done

[Guest guest]

Oops! We are WAY behind on updates and I sincerely apologize for the lack of

updates. I promise that I will do a full detail update very soon about

everything that has been happening in my life. I've been out of the H for a

little over 2 weeks and trying to enjoy what is left of summer and my new found

freedom. I helped host and organize the first Miracles & Madness SMA Gathering

in Dublin when I was released from the hospital. It was an amazing 3 days with

great people (I'll write about that soon too). For now, let me say that this has

been a he**ish week, what with moving out of 'my' home for the past 4 years,

feeling crappy, and getting up early (for me) the past 2 days. Thanks to 3 of

the worlds best uncles, CP, JP, & MH, we're all moved out and into the POD. I'm

not sure if I should miss that little apartment but it was mine for a little

while...Now living with GJ & Abby until late September when it's bac...k NY.

Finished my internship today with MFM & F & OKI FSMA and will hopefully be

finishing up schoolwork *soon* (gosh I hate that word thanks to a certain

someone at NCH). For now, life is what is and I'm working on figuring out my

life...whatever that is! Praying one of my best friends & my Romeo on Friday!

MJ Purk

SMA type I+, 22 years old

" How much of being alive, is wanting to be alive? " ~ Northam as Dr.

Proctor on Miami Medical

Ask me about B4SMA – Blankets for SMA kids, Our-SMA-Angels websites, and

Personalized Merchandise!

www.our-sma-angels.com/b4sma - B4SMA, My organization

www.our-sma-angels.com/Margaret - My website

www.cafepress.com/b4sma - My Shop