Guest guest Posted July 15, 2010 Report Share Posted July 15, 2010 hello  I am 34 years old. From last year i was suffering from the SMA(spinal muscular atrophy) Type4 disease. in blood test my CPK was 1860 at first.my disease is genetic because my mother and ancle death due to SMA.my muscles became weekness and i can't stair up.before going to the hospital i had used 30days herbal medicines.after 30 days my CPK became less (1450).i was hospitalization for 2 months.after one months my CPK was (1025) and my muscles became strong and i can stair up and sitting and standing and walking long time.i am using their herbal medicine for 3months to continue treatment. The hospital's representative said to me "  from the idea of Traditional Chinese Medicine, your Spinal Muscular Atrophy is due to depleting of the liver and kidney, the sinews and vessels can not be nourished. Our treatment strategy is to be enriching and supplementing the liver and kidney, strengthening the sinews and bones. "  The hospitalization fee is US$80.00 per day for each patient, including herbal tea, acupuncture and massage. if you want i can sending to you my EMG and another examination test. have a nice day Mr.Abbasi  ________________________________ From: " -owner " <-owner > Sent: Fri, July 16, 2010 3:25:44 AM Subject: Re: Treatment for chronic and difficult diseases  Hi, I don't know your name. Can you tell us more about yourself and your experience with SMA and the treatment you're recommending? Your message feels like an advertisement and doesn't offer any real information. Please tell us what the treatment was like, how long it took, what changes you noticed in your body, and how much this cost. Did you have genetic testing to verify your SMA? You said you no longer have SMA; how did you verify this and for how long have you been " cured " ? Please answer these questions. We try hard to filter through spam that predates on people's home. Thank you, Alana Co-Moderator > > hello my friends > I am 34 years old. From last year i was suffering from the SMA(spinal muscular > atrophy) disease. > My condition was good by a hospital in china.Where the methods used traditional > > chinese medicine. > anyone who has the chronic and difficult diseases contact with a hospital > representative Mr.Khodadadian by email : (tcmtreatment@...) > > Hope of recovery for all patients > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2010 Report Share Posted July 16, 2010 Hi, I am really keen to know more how is your treatment process. I have a daughter with SMA Type II.  Do you know of any type II patients that are being treated using the same treatment/medication by the same doctor or hospital that you have gone to ? Which part of China that this hospital is located ? Can I have the doctor or hospital contact person email address to know more ? Btw, I share the same concern as Alana about spam in the internet and it is very hard to know the authencity of each story. Hope you don't mind as most of us here are either concern parents or the patients who have been long suffering due to this terrible SMA disease. Just hope one fine day the CURE will come true. Thanks. ML From: G Cs <gcs_ir@...> Subject: Re: Re: Treatment for chronic and difficult diseases Date: Friday, July 16, 2010, 10:48 AM  hello  I am 34 years old. From last year i was suffering from the SMA(spinal muscular atrophy) Type4 disease. in blood test my CPK was 1860 at first.my disease is genetic because my mother and ancle death due to SMA.my muscles became weekness and i can't stair up.before going to the hospital i had used 30days herbal medicines.after 30 days my CPK became less (1450).i was hospitalization for 2 months.after one months my CPK was (1025) and my muscles became strong and i can stair up and sitting and standing and walking long time.i am using their herbal medicine for 3months to continue treatment. The hospital's representative said to me "  from the idea of Traditional Chinese Medicine, your Spinal Muscular Atrophy is due to depleting of the liver and kidney, the sinews and vessels can not be nourished. Our treatment strategy is to be enriching and supplementing the liver and kidney, strengthening the sinews and bones. "  The hospitalization fee is US$80.00 per day for each patient, including herbal tea, acupuncture and massage. if you want i can sending to you my EMG and another examination test. have a nice day Mr.Abbasi  ________________________________ From: " -owner " <-owner > Sent: Fri, July 16, 2010 3:25:44 AM Subject: Re: Treatment for chronic and difficult diseases  Hi, I don't know your name. Can you tell us more about yourself and your experience with SMA and the treatment you're recommending? Your message feels like an advertisement and doesn't offer any real information. Please tell us what the treatment was like, how long it took, what changes you noticed in your body, and how much this cost. Did you have genetic testing to verify your SMA? You said you no longer have SMA; how did you verify this and for how long have you been " cured " ? Please answer these questions. We try hard to filter through spam that predates on people's home. Thank you, Alana Co-Moderator > > hello my friends > I am 34 years old. From last year i was suffering from the SMA(spinal muscular > atrophy) disease. > My condition was good by a hospital in china.Where the methods used traditional > > chinese medicine. > anyone who has the chronic and difficult diseases contact with a hospital > representative Mr.Khodadadian by email : (tcmtreatment@...) > > Hope of recovery for all patients > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2010 Report Share Posted July 16, 2010 hi,for more information please contact (tcmtreatment@...) mr.khodadadian ,hospital's presentative. On Fri Jul 16th, 2010 9:56 PM EDT Foo Mee Ling wrote: > >Hi, I am really keen to know more how is your treatment process. I have a daughter with SMA Type II. Do you know of any type II patients that are being treated using the same treatment/medication by the same doctor or hospital that you have gone to ? Which part of China that this hospital is located ? Can I have the doctor or hospital contact person email address to know more ? Btw, I share the same concern as Alana about spam in the internet and it is very hard to know the authencity of each story. Hope you don't mind as most of us here are either concern parents or the patients who have been long suffering due to this terrible SMA disease. Just hope one fine day the CURE will come true. Thanks. ML > > > > >From: G Cs <gcs_ir@...> >Subject: Re: Re: Treatment for chronic and difficult diseases > >Date: Friday, July 16, 2010, 10:48 AM > > > > > > >hello > I am 34 years old. From last year i was suffering from the SMA(spinal muscular >atrophy) Type4 disease. >in blood test my CPK was 1860 at first.my disease is genetic because my mother >and ancle death due to SMA.my muscles became weekness and i can't stair >up.before going to the hospital i had used 30days herbal medicines.after 30 days >my CPK became less (1450).i was hospitalization for 2 months.after one months my >CPK was (1025) and my muscles became strong and i can stair up and sitting and >standing and walking long time.i am using their herbal medicine for 3months to >continue treatment. >The hospital's representative said to me " from the idea of Traditional Chinese >Medicine, your Spinal Muscular Atrophy is due to depleting of the liver and >kidney, the sinews and vessels can not be nourished. Our treatment strategy is >to be enriching and supplementing the liver and kidney, strengthening the sinews >and bones. " > The hospitalization fee is US$80.00 per day for each patient, including herbal >tea, acupuncture and massage. >if you want i can sending to you my EMG and another examination test. > >have a nice day > >Mr.Abbasi > > > >________________________________ >From: " -owner " <-owner > > >Sent: Fri, July 16, 2010 3:25:44 AM >Subject: Re: Treatment for chronic and difficult diseases > > >Hi, > >I don't know your name. Can you tell us more about yourself and your experience >with SMA and the treatment you're recommending? Your message feels like an >advertisement and doesn't offer any real information. Please tell us what the >treatment was like, how long it took, what changes you noticed in your body, and >how much this cost. Did you have genetic testing to verify your SMA? You said >you no longer have SMA; how did you verify this and for how long have you been > " cured " ? > >Please answer these questions. We try hard to filter through spam that predates >on people's home. > >Thank you, >Alana >Co-Moderator > > >> >> hello my friends >> I am 34 years old. From last year i was suffering from the SMA(spinal muscular > >> atrophy) disease. >> My condition was good by a hospital in china.Where the methods used traditional >> >> chinese medicine. >> anyone who has the chronic and difficult diseases contact with a hospital >> representative Mr.Khodadadian by email : (tcmtreatment@...) >> >> Hope of recovery for all patients >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
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