Re: Re:Questions about working out

[Guest guest]

Randy,

I agree completely. I think just doing the things we need to get done in a day

and not over taxing the muscles we have left is all the " exercise " we need.

Lori

Sent from my Verizon BlackBerry

Re:Questions about working out

I have had the same experience from trying to swim -- the water pressure makes

breathing quite difficult. While the saying " if you don't use it, you lose it "

generally is true for most people, I think that it doesn't apply to those of us

with SMA. My attempts at minimal exercise have generally resulted in increased

muscle aches and weakness lasting 2 - 3 days. Exercise seems to overtax the

remaining functioning muscle cells causing them to " burn out " at a faster rate.

On the subject of exercise, a neurologist advised me that the maximum exercise I

should do is whatever it takes me to get through the day. The type of exercise

that I have found to be beneficial is mild stretching exercises to maintain

joint range of motion and to prevent contractures. A standing frame helps to

prevent knee and hip joint contractures, as well as offers the advantages of

weight bearing. I hope that my experiences have been helpful.

Randy

[Guest guest]

My MDA clinic doctor told me the same thing.

On Jun 30, 2008, at 5:05 PM, Randall wrote:

> On the subject of exercise, a neurologist advised me that the

> maximum exercise I should do is whatever it takes me to get through

> the day.

Jenn Malatesta

nekrosys@...

nekrosys.net

[Guest guest]

Yes, my doctor said that too. He gives my different muscle groups

" ratings " when I go in for checkups. I think he said any muscle with

a rating of 2 or less (out of five) shouldn't be exercised beyond

normal activities of daily living. All my muscles are like 0 to 2.

On Jul 2, 2008, at 10:35 AM, peachesmesley wrote:

> Every individual with SMA is different. I think a big factor is what

> type you have.

Jenn Malatesta

nekrosys@...

nekrosys.net