Re: I OFFICIALLY GIVE UP!!

[Guest guest]

Hi ,

I remember you. We've chatted now and the. Feel free to IM me.

althegrrl on Messenger. I've lived with lots of people over the

last 25 years of being on my own. It's been good, bad and ugly. Some

housemates assisted with my care, some not. Maybe I can lend a helpful

perspective.

Alana

[Guest guest]

Hi ,

I hear ya and am glad you wrote us. What state do you live in?

On 6/17/08 6:45 PM, " italianscorpio863 " <italianscorpio863@...> wrote:

> ladies and gentlemen i am 30 year old male with type 2 sma...ive

> lived on my own with roommates/friends/people who want a free ride in

> exchange for my care, since i was 18. i even OWN my own house that i

> could live in " if " i had care. i have always been treated/raised to

> think im " normal " . recently i got fed up with living with deadbeat

> people, just so i could remain " on my own " . so i told my mother and

> stepfather i wanted to move back in with them. it has been only 3

> months, and me and my mother just had our 2 fight because she

> says " why dont you find someone NEW to live with you at your house? "

> she is feeling very overwelmed!! i feel very trapped with no

> options...i feel like my mom,out of all people,dont want me!! i never

> EVER would have thought...see i could go live with my grandparents,

> but they're in there 70's and cant lift me...i think i just would

> like a nuetral person to talk to... " BUT ACTUALLY I JUST HAVE NEVER

> FELT LIKE THIS " im not very known on sma-friends...i dont even know

> if ANYONE ON HERE KNOWS ME. but i always read all the messeges on

> here, and i think its about time for me to become a part of the

> family...lol---pretty please :0( if anyone is out there who thinks

> they might could be a friend righnow. feel free to help...I REALLY

> ENJOY MY MESSENGER...MY NAME IS---italianscorpio863 my name is

> ...THANKS FOR YOUR TIME

>

>

[Guest guest]

Hi ,

My name is and I am 43 years old. Like you, I have SMA Type

2. I can relate to your situation. I have always wanted to live

independently and I am fortunate to have the financial support of my

family to employ personal care attendants. Of course, there's never

enough money and I've often traded rent for assistance. I have been

taken advantage of on many occasions. In fact, last year I

discovered one of my attendants had stolen checks and attempted

identity theft. We later discovered he had done this type of con

before. The difference is that we actively pursued him, got him

arrested and I'm happy to say he goes to trial later this month.

Just because we have a physical weakness, it doesn't mean we have to

be victims!

I strongly advise you to continue to pursue your independent life.

As you get more clear on who you are, you will find others who are

honest and supportive of you. I met my wife two years ago and she

has helped me to sort out my life and living situation. She is the

most wonderful and unexpected thing that's ever happened to me and I

love her very much.

Without a doubt family relationships are complicated. As you noted,

your mother is overhwelmed but she certainly loves you and wants the

best for you. Perhaps you could enlist her help in screening

potential helpmates/roommates? That could be a positive way she

could contribute to your independence which would add a new dimension

to the relationship.

On a more personal note, I have returned home after spending 3-1/2

months in the hospital. In that time my relationships with my wife,

my family and my network of friends took on new meaning. I am more

committed than ever to living life to the fullest and I know all of

them are ready to live that with me.

I wish you strength, faith and humor on your journey. Stay in touch.

>

> ladies and gentlemen i am 30 year old male with type 2 sma...ive

> lived on my own with roommates/friends/people who want a free ride

in

> exchange for my care, since i was 18. i even OWN my own house that

i

> could live in " if " i had care. i have always been treated/raised

to

> think im " normal " . recently i got fed up with living with deadbeat

> people, just so i could remain " on my own " . so i told my mother and

> stepfather i wanted to move back in with them. it has been only 3

> months, and me and my mother just had our 2 fight because she

> says " why dont you find someone NEW to live with you at your

house? "

> she is feeling very overwelmed!! i feel very trapped with no

> options...i feel like my mom,out of all people,dont want me!! i

never

> EVER would have thought...see i could go live with my grandparents,

> but they're in there 70's and cant lift me...i think i just would

> like a nuetral person to talk to... " BUT ACTUALLY I JUST HAVE NEVER

> FELT LIKE THIS " im not very known on sma-friends...i dont even know

> if ANYONE ON HERE KNOWS ME. but i always read all the messeges on

> here, and i think its about time for me to become a part of the

> family...lol---pretty please :0( if anyone is out there who

thinks

> they might could be a friend righnow. feel free to help...I REALLY

> ENJOY MY MESSENGER...MY NAME IS---italianscorpio863 my name

is

> ...THANKS FOR YOUR TIME

>

[Guest guest]

florida...and you?

<nicoleroberts@...> wrote:

Hi ,

I hear ya and am glad you wrote us. What state do you live in?

On 6/17/08 6:45 PM, " italianscorpio863 " <italianscorpio863@...> wrote:

> ladies and gentlemen i am 30 year old male with type 2 sma...ive

> lived on my own with roommates/friends/people who want a free ride in

> exchange for my care, since i was 18. i even OWN my own house that i

> could live in " if " i had care. i have always been treated/raised to

> think im " normal " . recently i got fed up with living with deadbeat

> people, just so i could remain " on my own " . so i told my mother and

> stepfather i wanted to move back in with them. it has been only 3

> months, and me and my mother just had our 2 fight because she

> says " why dont you find someone NEW to live with you at your house? "

> she is feeling very overwelmed!! i feel very trapped with no

> options...i feel like my mom,out of all people,dont want me!! i never

> EVER would have thought...see i could go live with my grandparents,

> but they're in there 70's and cant lift me...i think i just would

> like a nuetral person to talk to... " BUT ACTUALLY I JUST HAVE NEVER

> FELT LIKE THIS " im not very known on sma-friends...i dont even know

> if ANYONE ON HERE KNOWS ME. but i always read all the messeges on

> here, and i think its about time for me to become a part of the

> family...lol---pretty please :0( if anyone is out there who thinks

> they might could be a friend righnow. feel free to help...I REALLY

> ENJOY MY MESSENGER...MY NAME IS---italianscorpio863 my name is

> ...THANKS FOR YOUR TIME

>

>

[Guest guest]

hi keith im glad you wrote me...i do partisipate in all the requirments and

interviews with my care...i think the main thing im feeling rightnow is " im not

wanting to settle for all these low lifes to take care of me " and all the b.s.

that goes with it. but---i know i will bounce back--and be ready to try it

again...but i would really like to keep in touch on a regular bascis. not to

call you old by any means, lol but---im very big into believing the older-the

wiser. and not only are you older than me, but you also have sma, so keith---i

look at you as a very good resource for me...and im going to tell you--- " YOUR

STUCK WITH ME FOR LIFE " ...lol please write back...and thanks again...

<kh78748@...> wrote: Hi ,

My name is and I am 43 years old. Like you, I have SMA Type

2. I can relate to your situation. I have always wanted to live

independently and I am fortunate to have the financial support of my

family to employ personal care attendants. Of course, there's never

enough money and I've often traded rent for assistance. I have been

taken advantage of on many occasions. In fact, last year I

discovered one of my attendants had stolen checks and attempted

identity theft. We later discovered he had done this type of con

before. The difference is that we actively pursued him, got him

arrested and I'm happy to say he goes to trial later this month.

Just because we have a physical weakness, it doesn't mean we have to

be victims!

I strongly advise you to continue to pursue your independent life.

As you get more clear on who you are, you will find others who are

honest and supportive of you. I met my wife two years ago and she

has helped me to sort out my life and living situation. She is the

most wonderful and unexpected thing that's ever happened to me and I

love her very much.

Without a doubt family relationships are complicated. As you noted,

your mother is overhwelmed but she certainly loves you and wants the

best for you. Perhaps you could enlist her help in screening

potential helpmates/roommates? That could be a positive way she

could contribute to your independence which would add a new dimension

to the relationship.

On a more personal note, I have returned home after spending 3-1/2

months in the hospital. In that time my relationships with my wife,

my family and my network of friends took on new meaning. I am more

committed than ever to living life to the fullest and I know all of

them are ready to live that with me.

I wish you strength, faith and humor on your journey. Stay in touch.

>

> ladies and gentlemen i am 30 year old male with type 2 sma...ive

> lived on my own with roommates/friends/people who want a free ride

in

> exchange for my care, since i was 18. i even OWN my own house that

i

> could live in " if " i had care. i have always been treated/raised

to

> think im " normal " . recently i got fed up with living with deadbeat

> people, just so i could remain " on my own " . so i told my mother and

> stepfather i wanted to move back in with them. it has been only 3

> months, and me and my mother just had our 2 fight because she

> says " why dont you find someone NEW to live with you at your

house? "

> she is feeling very overwelmed!! i feel very trapped with no

> options...i feel like my mom,out of all people,dont want me!! i

never

> EVER would have thought...see i could go live with my grandparents,

> but they're in there 70's and cant lift me...i think i just would

> like a nuetral person to talk to... " BUT ACTUALLY I JUST HAVE NEVER

> FELT LIKE THIS " im not very known on sma-friends...i dont even know

> if ANYONE ON HERE KNOWS ME. but i always read all the messeges on

> here, and i think its about time for me to become a part of the

> family...lol---pretty please :0( if anyone is out there who

thinks

> they might could be a friend righnow. feel free to help...I REALLY

> ENJOY MY MESSENGER...MY NAME IS---italianscorpio863 my name

is

> ...THANKS FOR YOUR TIME

>

[Guest guest]

Hi ,

 

Getting older is better than the alternative, or so I have been told...lol.   I

don't know about that for sure, but I certainly enjoy my life and look back on

the experiences I have with a smile.  As my wife Ruth says, anything you survive

was a good idea...if you don't survive, it might not have been such a great

idea  ;-)

 

I'd be happy to share my thoughts and experiences with you.  Of course any

advice I give will be worth every sent you pay for it!  So, for my best advice

mail your check to...lol, just kidding.

 

Your friend,

& quot;May I become at all times, both now and forever

A protector for those without protection

A guide for those who have lost their way

A ship for those with oceans to cross

A bridge for those with rivers to cross

A sanctuary for those in danger

A lamp for those without light

A place of refuge for those who lack shelter

And a servant to all in need. & quot;

The Dalai Lama, Insight from the Dalai Lama

Messenger: kh78748

Skype: kh78748

Hi ,

My name is and I am 43 years old. Like you, I have SMA Type

2. I can relate to your situation. I have always wanted to live

independently and I am fortunate to have the financial support of my

family to employ personal care attendants. Of course, there's never

enough money and I've often traded rent for assistance. I have been

taken advantage of on many occasions. In fact, last year I

discovered one of my attendants had stolen checks and attempted

identity theft. We later discovered he had done this type of con

before. The difference is that we actively pursued him, got him

arrested and I'm happy to say he goes to trial later this month.

Just because we have a physical weakness, it doesn't mean we have to

be victims!

I strongly advise you to continue to pursue your independent life.

As you get more clear on who you are, you will find others who are

honest and supportive of you. I met my wife two years ago and she

has helped me to sort out my life and living situation. She is the

most wonderful and unexpected thing that's ever happened to me and I

love her very much.

Without a doubt family relationships are complicated. As you noted,

your mother is overhwelmed but she certainly loves you and wants the

best for you. Perhaps you could enlist her help in screening

potential helpmates/roommates ? That could be a positive way she

could contribute to your independence which would add a new dimension

to the relationship.

On a more personal note, I have returned home after spending 3-1/2

months in the hospital. In that time my relationships with my wife,

my family and my network of friends took on new meaning. I am more

committed than ever to living life to the fullest and I know all of

them are ready to live that with me.

I wish you strength, faith and humor on your journey. Stay in touch.

>

> ladies and gentlemen i am 30 year old male with type 2 sma...ive

> lived on my own with roommates/friends/ people who want a free ride

in

> exchange for my care, since i was 18. i even OWN my own house that

i

> could live in " if " i had care. i have always been treated/raised

to

> think im " normal " . recently i got fed up with living with deadbeat

> people, just so i could remain " on my own " . so i told my mother and

> stepfather i wanted to move back in with them. it has been only 3

> months, and me and my mother just had our 2 fight because she

> says " why dont you find someone NEW to live with you at your

house? "

> she is feeling very overwelmed!! i feel very trapped with no

> options...i feel like my mom,out of all people,dont want me!! i

never

> EVER would have thought...see i could go live with my grandparents,

> but they're in there 70's and cant lift me...i think i just would

> like a nuetral person to talk to... " BUT ACTUALLY I JUST HAVE NEVER

> FELT LIKE THIS " im not very known on sma-friends. ..i dont even know

> if ANYONE ON HERE KNOWS ME. but i always read all the messeges on

> here, and i think its about time for me to become a part of the

> family...lol- --pretty please :0( if anyone is out there who

thinks

> they might could be a friend righnow. feel free to help...I REALLY

> ENJOY MY MESSENGER... MY NAME IS---italianscorpio 863 my name

is

> ...THANKS FOR YOUR TIME

>

[Guest guest]

hey i have two ideas for books or documentary...and ive ben looking for a

partner to journey with...would you be interested? if so LETS DO IT!! if not, do

you have any connections or know where to start? do you use messenger?so

we can chat live my screen name is---- italianscorpio863 add me

Hogan <kh78748@...> wrote: Hi ,

Getting older is better than the alternative, or so I have been told...lol. I

don't know about that for sure, but I certainly enjoy my life and look back on

the experiences I have with a smile. As my wife Ruth says, anything you survive

was a good idea...if you don't survive, it might not have been such a great idea

;-)

I'd be happy to share my thoughts and experiences with you. Of course any

advice I give will be worth every sent you pay for it! So, for my best advice

mail your check to...lol, just kidding.

Your friend,

& quot;May I become at all times, both now and forever

A protector for those without protection

A guide for those who have lost their way

A ship for those with oceans to cross

A bridge for those with rivers to cross

A sanctuary for those in danger

A lamp for those without light

A place of refuge for those who lack shelter

And a servant to all in need. & quot;

The Dalai Lama, Insight from the Dalai Lama

Messenger: kh78748

Skype: kh78748

Hi ,

My name is and I am 43 years old. Like you, I have SMA Type

2. I can relate to your situation. I have always wanted to live

independently and I am fortunate to have the financial support of my

family to employ personal care attendants. Of course, there's never

enough money and I've often traded rent for assistance. I have been

taken advantage of on many occasions. In fact, last year I

discovered one of my attendants had stolen checks and attempted

identity theft. We later discovered he had done this type of con

before. The difference is that we actively pursued him, got him

arrested and I'm happy to say he goes to trial later this month.

Just because we have a physical weakness, it doesn't mean we have to

be victims!

I strongly advise you to continue to pursue your independent life.

As you get more clear on who you are, you will find others who are

honest and supportive of you. I met my wife two years ago and she

has helped me to sort out my life and living situation. She is the

most wonderful and unexpected thing that's ever happened to me and I

love her very much.

Without a doubt family relationships are complicated. As you noted,

your mother is overhwelmed but she certainly loves you and wants the

best for you. Perhaps you could enlist her help in screening

potential helpmates/roommates ? That could be a positive way she

could contribute to your independence which would add a new dimension

to the relationship.

On a more personal note, I have returned home after spending 3-1/2

months in the hospital. In that time my relationships with my wife,

my family and my network of friends took on new meaning. I am more

committed than ever to living life to the fullest and I know all of

them are ready to live that with me.

I wish you strength, faith and humor on your journey. Stay in touch.

>

> ladies and gentlemen i am 30 year old male with type 2 sma...ive

> lived on my own with roommates/friends/ people who want a free ride

in

> exchange for my care, since i was 18. i even OWN my own house that

i

> could live in " if " i had care. i have always been treated/raised

to

> think im " normal " . recently i got fed up with living with deadbeat

> people, just so i could remain " on my own " . so i told my mother and

> stepfather i wanted to move back in with them. it has been only 3

> months, and me and my mother just had our 2 fight because she

> says " why dont you find someone NEW to live with you at your

house? "

> she is feeling very overwelmed!! i feel very trapped with no

> options...i feel like my mom,out of all people,dont want me!! i

never

> EVER would have thought...see i could go live with my grandparents,

> but they're in there 70's and cant lift me...i think i just would

> like a nuetral person to talk to... " BUT ACTUALLY I JUST HAVE NEVER

> FELT LIKE THIS " im not very known on sma-friends. ..i dont even know

> if ANYONE ON HERE KNOWS ME. but i always read all the messeges on

> here, and i think its about time for me to become a part of the

> family...lol- --pretty please :0( if anyone is out there who

thinks

> they might could be a friend righnow. feel free to help...I REALLY

> ENJOY MY MESSENGER... MY NAME IS---italianscorpio 863 my name

is

> ...THANKS FOR YOUR TIME

>

[Guest guest]

I¹m in minnesota. I just wondered if you lived where there might be good or

decent governmental assistance to pay pcas...but I don¹t think FL is one of

the real helpful ones. :-(

On 6/18/08 6:08 PM, " JOEY JENNINGS " <italianscorpio863@...> wrote:

> florida...and you?

>

>

> <nicoleroberts@...

> <mailto:nicoleroberts%40usfamily.net> > wrote:

> Hi ,

>

> I hear ya and am glad you wrote us. What state do you live in?

>

>

>

> On 6/17/08 6:45 PM, " italianscorpio863 " <italianscorpio863@...

> <mailto:italianscorpio863%40> > wrote:

>

>> > ladies and gentlemen i am 30 year old male with type 2 sma...ive

>> > lived on my own with roommates/friends/people who want a free ride in

>> > exchange for my care, since i was 18. i even OWN my own house that i

>> > could live in " if " i had care. i have always been treated/raised to

>> > think im " normal " . recently i got fed up with living with deadbeat

>> > people, just so i could remain " on my own " . so i told my mother and

>> > stepfather i wanted to move back in with them. it has been only 3

>> > months, and me and my mother just had our 2 fight because she

>> > says " why dont you find someone NEW to live with you at your house? "

>> > she is feeling very overwelmed!! i feel very trapped with no

>> > options...i feel like my mom,out of all people,dont want me!! i never

>> > EVER would have thought...see i could go live with my grandparents,

>> > but they're in there 70's and cant lift me...i think i just would

>> > like a nuetral person to talk to... " BUT ACTUALLY I JUST HAVE NEVER

>> > FELT LIKE THIS " im not very known on sma-friends...i dont even know

>> > if ANYONE ON HERE KNOWS ME. but i always read all the messeges on

>> > here, and i think its about time for me to become a part of the

>> > family...lol---pretty please :0( if anyone is out there who thinks

>> > they might could be a friend righnow. feel free to help...I REALLY

>> > ENJOY MY MESSENGER...MY NAME IS---italianscorpio863 my name is

>> > ...THANKS FOR YOUR TIME

>> >

>> >

>

>

[Guest guest]

no florida is in the bottom 3 in the u.s.

<nicoleroberts@...> wrote: I¹m in minnesota. I

just wondered if you lived where there might be good or

decent governmental assistance to pay pcas...but I don¹t think FL is one of

the real helpful ones. :-(

On 6/18/08 6:08 PM, " JOEY JENNINGS " <italianscorpio863@...> wrote:

> florida...and you?

>

>

> <nicoleroberts@...

> <mailto:nicoleroberts%40usfamily.net> > wrote:

> Hi ,

>

> I hear ya and am glad you wrote us. What state do you live in?

>

>

>

> On 6/17/08 6:45 PM, " italianscorpio863 " <italianscorpio863@...

> <mailto:italianscorpio863%40> > wrote:

>

>> > ladies and gentlemen i am 30 year old male with type 2 sma...ive

>> > lived on my own with roommates/friends/people who want a free ride in

>> > exchange for my care, since i was 18. i even OWN my own house that i

>> > could live in " if " i had care. i have always been treated/raised to

>> > think im " normal " . recently i got fed up with living with deadbeat

>> > people, just so i could remain " on my own " . so i told my mother and

>> > stepfather i wanted to move back in with them. it has been only 3

>> > months, and me and my mother just had our 2 fight because she

>> > says " why dont you find someone NEW to live with you at your house? "

>> > she is feeling very overwelmed!! i feel very trapped with no

>> > options...i feel like my mom,out of all people,dont want me!! i never

>> > EVER would have thought...see i could go live with my grandparents,

>> > but they're in there 70's and cant lift me...i think i just would

>> > like a nuetral person to talk to... " BUT ACTUALLY I JUST HAVE NEVER

>> > FELT LIKE THIS " im not very known on sma-friends...i dont even know

>> > if ANYONE ON HERE KNOWS ME. but i always read all the messeges on

>> > here, and i think its about time for me to become a part of the

>> > family...lol---pretty please :0( if anyone is out there who thinks

>> > they might could be a friend righnow. feel free to help...I REALLY

>> > ENJOY MY MESSENGER...MY NAME IS---italianscorpio863 my name is

>> > ...THANKS FOR YOUR TIME

>> >

>> >

>

>

[Guest guest]

>

> ladies and gentlemen i am 30 year old male with type 2 sma...ive

> lived on my own with roommates/friends/people who want a free ride in

> exchange for my care, since i was 18. i even OWN my own house that i

> could live in " if " i had care. i have always been treated/raised to

> think im " normal " . recently i got fed up with living with deadbeat

> people, just so i could remain " on my own " .

Amen brother!!!

I have SMA III and am 52. I have been on my own in Florida for 9

years. Moved from West Kentucky and grew up around Syracuse, NY. I

have a bother, sister and a mom in town. I don't count or expect much

from them for various reasons. If you can't pay top dollar for helpers

you might as well paint a bull's eye on your back for every lying,

cheating con artist out there. Florida is the worst state I've

experienced. You need the skills of a Psychiatrist to deal with the

disorders of some these people.

I had thought the only way out was to team up with like persons

combine resources. I don't know what extent of help you require but I

can't get Home Health Aids HHA to come for two hrs a visit at $10/hr

plus gas. That's sometimes more than I need and definitely all I can

afford. Now if there was another person living here that needed and

can afford to pay for help you'd have top notch quality people begging

for work. Not mention a second pinion on hiring.

I agree if you place an ad to hire or exchange room (this is not good

in Florida) for help you will get all the recovery drug/alcohol

rehabbers applying with the best thought out deceptions, they usually

have been doing this there whole life. If not them then the most

extreme behavior disorders you'll ever want to see. Have I got

stories!!! What makes it worse is the family cops this attitude of

" Well he must like it or else he would get somebody else " , and want to

laugh.

What do you think?

[Guest guest]

well first off...ide really like to thank everyone from the depths of my hearts

for embracing me and my thoughts. now mr. don, i think we need to set up some

type of meeting online between me and you. im thinking maybe through

messenger? ive met three gentlemen that i think will be lifelong friends. tell

me your thoughts...but for " me and you " , i think we need some type of

meeting---thanks,

Don <thnkingman@...> wrote:

>

> ladies and gentlemen i am 30 year old male with type 2 sma...ive

> lived on my own with roommates/friends/people who want a free ride in

> exchange for my care, since i was 18. i even OWN my own house that i

> could live in " if " i had care. i have always been treated/raised to

> think im " normal " . recently i got fed up with living with deadbeat

> people, just so i could remain " on my own " .

Amen brother!!!

I have SMA III and am 52. I have been on my own in Florida for 9

years. Moved from West Kentucky and grew up around Syracuse, NY. I

have a bother, sister and a mom in town. I don't count or expect much

from them for various reasons. If you can't pay top dollar for helpers

you might as well paint a bull's eye on your back for every lying,

cheating con artist out there. Florida is the worst state I've

experienced. You need the skills of a Psychiatrist to deal with the

disorders of some these people.

I had thought the only way out was to team up with like persons

combine resources. I don't know what extent of help you require but I

can't get Home Health Aids HHA to come for two hrs a visit at $10/hr

plus gas. That's sometimes more than I need and definitely all I can

afford. Now if there was another person living here that needed and

can afford to pay for help you'd have top notch quality people begging

for work. Not mention a second pinion on hiring.

I agree if you place an ad to hire or exchange room (this is not good

in Florida) for help you will get all the recovery drug/alcohol

rehabbers applying with the best thought out deceptions, they usually

have been doing this there whole life. If not them then the most

extreme behavior disorders you'll ever want to see. Have I got

stories!!! What makes it worse is the family cops this attitude of

" Well he must like it or else he would get somebody else " , and want to

laugh.

What do you think?

[Guest guest]

>

> well first off...ide really like to thank everyone from the depths

of my hearts for embracing me and my thoughts. now mr. don, i think

we need to set up some type of meeting online between me and you. im

thinking maybe through messenger? ive met three gentlemen that i

think will be lifelong friends. tell me your thoughts...but for " me

and you " , i think we need some type of meeting---thanks,

>

I will email your email above and we'll talk. No reason why

others can't inject there thought here as well. Maybe there's a

solution for others as well.