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Re: Petition: Cancel Humanitarian Award for Jerry

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Posted
Posted

To all your questions...yes. He made most of that possible. Of course while

going through an exam he isn't going to come hold our hands- that isn't his

place or purpose. Through his fund raisers, what he made possible was to delve

more into research and raise money for equipment and clinics, etc. which enabled

me and many others to live life fuller. My personal feeling is that it is time

to stop focusing on excuses and negativity. When is the last time you went out

and marveled at nature or just said " thank you " to make some body's day? 

 

 

From: Amy <charmedcripchic@...>

Subject: Re: Petition: Cancel Humanitarian Award for Jerry

Date: Sunday, January 11, 2009, 1:03 AM

Joy,

I had fun experiences too, but it dosen't excuse or erase the other 

exploitive or harmful things done to my friends, siblings, and I, in

the name of an organization that targets the same disabilties that we

happen to have in common.

I find sharing support, and validating the life journey realities of

our fellow people with disabilities, much more satisfying than any

token attention deigned onto me by a celebrity who makes a career out

insulting people and behaving innapropriately on camera and/or in

person.

Below are things we all need to ask ourselves while seperating the

good things MDA and SMA true supporters do, and the image of one

celebrity's routines played out year after year on stage.

Did Jerry ever attend your school open houses and assemblies?

Did he hold your hand during medical treatments, brace fittings,

blood gases, xrays, eeg and ekg tests? 

Did he bring your parents coffee while you were hospitalized?

Did he babysit any siblings while your parents dealt with your

medical needs? 

Did he personally pay for and/or directly administer clinics,

wheelchair fittings, flu vacines, physical therapy, accessible

transportion to clinics?

Take you horseback riding or swimming at camp?

Get you accessible sports equipment?

Etc.

I'm happy for those who have had truly good experiences with Jerry

.

In other situations, I question if people's memories of Jerry

are based on truly supportive deeds from Jerry himself? 

Or are people so devoted to an outdated image that they have to keep

moving as fast as theyy can to keep stockholm syndrome survival

coping mechanisms and myths alive?

> > >

> > > My husband and I signed.

> > >

> > > I can't stand Jerry and the way the telethon portrays

> people

> > with any form of MD.  Yes, it is horrible and yes, it kills. 

> > However, they never focus on the people with the diseases,

> jusy 'pity

> > them.'  The state levels aren't much better.  I was Colorado

state

> > poster child for several years and it really opens a 6-year-olds

> > eyes when your backstage at a telethon.  They made me stay on

> > location 1/2 the night so the audience could see how weak and

tired

> I

> > was as inspiration to call.  At one point they were interviewing

a

> > couple where the man had ALS.  They were pregnant with their 3rd

> > child and the interviewer was asking questions about how hard it

> had

> > been since the husband had been 'struck with the devestating

> > disease.'  The MDA staff were back stage going off about how that

> > couple needed to stop having children since the government would

> have

> > to support them once he was dead.

> > >  

> > > Milinovich, SMA Type I

> > > Wife to , Mommy to - 21 Months Old!

> > > http://www.myspace.com/kindrana 

> > > http://s174.photobucket.com/albums/w107/boramir/?start=0

> > >  

> > >

> > >

> > >

> > >

> > > ________________________________

> > > From: Alana <alrt@>

> > >

> > > Sent: Friday, January 9, 2009 4:23:29 PM

> > > Subject: Petition: Cancel Humanitarian Award for

> Jerry

> >

> > >

> > >

> > > I know not everyone here will agree with the following post,

but

> I

> > ask

> > > that those of you who do agree, please sign the petition and

> spread

> > > the word.

> > >

> > > In Solidarity,

> > > Alana

> > >

> > > Goto:

> > >

> > > http://www.petition online.com/ jlno2009/ petition. html

> > >

> > > The Academy of Motion Picture Arts and Sciences

> > >

> > > This petition has been launched to object to the Academy of

Motion

> > > Picture Arts and Sciences' announcement that it will give Jerry

> >

> > > its Hersholt Humanitarian Award at the Awards

ceremony

> on

> > > February 22, 2009.

> > >

> > > During his decades of hosting the Labor Day Telethon, Jerry

> > has

> > > helped to perpetuate negative, stereotypical attitudes toward

> people

> > > with muscular dystrophy and other disabilities. Jerry and

> the

> > > Telethon actively promote pity as a fundraising strategy.

Disabled

> > > people want RESPECT and RIGHTS, not pity and charity.

> > >

> > > In 1990, wrote that if he had muscular dystrophy and had

to

> > use

> > > a wheelchair, he would " just have to learn to try to be good at

> > being

> > > a half a person. " During the 1992 Telethon, he said that people

> with

> > > MD, whom he always insists on calling " my kids, " " cannot go

into

> the

> > > workplace. There's nothing they can do. " Comments like these

have

> > led

> > > disability activists and our allies to protest against Jerry

> .

> > > We've argued that he uses the Telethon to promote pity, a

> > > counterproductive emotion which undermines our social equality.

> > Here's

> > > how responded to the Telethon protesters during a 2001

> > > television interview: " Pity? You don't want to be pitied because

> > > you're a cripple in a wheelchair? Stay in your house! "

> > >

> > > Jerry has also made derogatory comments about women and

gay

> > men.

> > > His outdated attitudes and crude remarks are dehumanizing, not

> > > humanitarian.

> > >

> > > Therefore, we the undersigned support the actions and arguments

> of

> > the

> > > coalition group The Trouble with Jerry. We protest the Academy's

> > > characterization of Jerry as a " humanitarian. " And we

ask

> > that

> > > the Academy cancel its plans to give the Hersholt

> Humanitarian

> > > Award.

> > >

> > > Sincerely,

> > >

> > > The Undersigned

> > >

> > > 

> > >

> > >

> > >       

> > >

> > >

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Posted
Posted

I agree with here. Many of us have benefited from the work MDA

has done. Summer camp was pretty great except on the days the camera

crews were there, and Jerry became a household name bringing some

knowledge of Muscular Dystrophy with it. This is not a simple cut and

dry issue. When I support a candidate who actually gets elected, I let

them know both what I like and don't like about the work they're

doing. When my local independent living center, which has played a

vital role in my life, is doing something poorly I work to bring

attention to the problem. It's good and bad and a lot in between.

I've gotten good and bad things from my association with the MDA. I've

made lifelong friends and received helpful health care. I've also been

abused and humiliated through this same association. I can appreciate

things that I've received from the millions of people who have donated

time and money through the Muscular Dystrophy Association. At the same

time I can register my opposition to an internationally recognized

organization honoring someone with a humanitarian award who says

horrible things about all of us. Give an award to MDA...Give one to

the biggest donor...Give one to the phone bank volunteer who's never

missed a telethon... Don't give one to a man who, on numerous

documented occasions, said bad things about us and publically thwarted

are efforts to be seen as equal to our non-disabled peers.

Alana

> coverage.(aka pity party) And i totally disagree that is is

hypocritical to

> complain about aspects of an organisation even if you benefit from its

> existence. i often complain or point out failings of the National

Health

> Service here. Ii have also complained to centres for independent

living

> that i have used if i feel they are not acting in the broadest best

interest

> of disabled people.

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Posted
Posted

Thanks Alana.

This puts everything in a much better perspective. It's true that it's not

simple or a cut and dry issue. And everything MDA or Jerry does isn't

negative. It just gets old hearing only complaints all the time. There may be

some bad things about Jerry, but there are a lot of good things to notice too. I

like the idea of giving an award to MDA.

 

From: Alana <alrt@...>

Subject: Re: Petition: Cancel Humanitarian Award for Jerry

Date: Sunday, January 11, 2009, 2:55 PM

I agree with here.  Many of us have benefited from the work MDA

has done.  Summer camp was pretty great except on the days the camera

crews were there, and Jerry became a household name bringing some

knowledge of Muscular Dystrophy with it.  This is not a simple cut and

dry issue.  When I support a candidate who actually gets elected, I let

them know both what I like and don't like about the work they're

doing.  When my local independent living center, which has played a

vital role in my life, is doing something poorly I work to bring

attention to the problem.  It's good and bad and a lot in between.

I've gotten good and bad things from my association with the MDA.  I've

made lifelong friends and received helpful health care.  I've also been

abused and humiliated through this same association.  I can appreciate

things that I've received from the millions of people who have donated

time and money through the Muscular Dystrophy Association.  At the same

time I can register my opposition to an internationally recognized

organization honoring someone with a humanitarian award who says

horrible things about all of us.  Give an award to MDA...Give one to

the biggest donor...Give one to the phone bank volunteer who's never

missed a telethon...  Don't give one to a man who, on numerous

documented occasions, said bad things about us and publically thwarted

are efforts to be seen as equal to our non-disabled peers.

Alana

> coverage.(aka pity party) And i totally disagree that is is

hypocritical to

> complain about aspects of an organisation even if you benefit from its

> existence. i often complain or point out failings of the National

Health

> Service here.  Ii have also complained to centres for independent

living

> that i have used if i feel they are not acting in the broadest best

interest

> of disabled people.

------------------------------------

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members most be tolerant and respectful to all members.

* Some adult language and topics (like sexual health, swearing..) may

occur occasionally in emails. Over use of inappropriate language will

not be allowed. If your under 16 ask your parents/gaurdian before you

join the list.

* No SPAMMING or sending numerous emails unrelated to the topics of

spinal muscular atrophy, health, and the daily issues of the disabled.

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Posted
Posted

Maybe suggest that on the petition? MDA has been very defensive and

sometimes irrational in their defence of Jerry being their

spokesman. I'd feel much better about MDA if they took our concerns

seriously and recognized that we need more than a cure and summer

camp. We need lobbying for national personal assistance services

policy, we need accessible transportation in suburban and rural areas,

we need high expectations put upon us about our educations and

careers. We need to be seen as people who do grow up and work, and

love, and volunteer, and parent, and worship, and protest, and go out

for fun, and participate in the economy. We're not just cute and

desperate for help...Though, indeed, we're cute, and we need different

types of assistance as outlined above.

>

> Thanks Alana.

> This puts everything in a much better perspective. It's true that

it's not simple or a cut and dry issue. And everything MDA or Jerry

does isn't negative. It just gets old hearing only complaints all

the time. There may be some bad things about Jerry, but there are a lot

of good things to notice too. I like the idea of giving an award to MDA.

>  

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Guest guest

Posted
Posted

Alana you gracefully and fairly handle a tough job in my eyes. It's

a balancing act managing any webgroup.

For anyone here who gives a crap- MDA covered two wheelchairs that my

parents' military health insurance didn't cover BUT this financial

assistence came with horrible strings attached.

Understand how humiliating it would be for you to have the MDA

coordinator interupt you while playing in the middle of an MDA party,

surrounded by adults, children, party staff, strangers, to be put

through a suprise head to toe inspection in order to be

deemed 'worthy' of an MDA funded wheelchair.

That's exactly what happened to me during the 1981 MDA Christmas

party in Braintree Massachusetts. The MDA coordinator picked over

every inch of 14 year old me and the 8 yr old wheelchair my parents

scrimped to purchass for me as well as another powerchair for my

sister with no help from anybody, no discount, and out of pocket.

{Let alone the manual wheelchairs my parents bought preceeding the

power ones for three of us while my brother was still living}.

The regional MDA coordinator inspected me, right there during the

party, ogled at by all, as if part of the scheduled entertainment,

while circleing around me and eying me up and down, touching diferent

parts of me and my chair she announced to all, " Well you're

upolhstry's worn out...you're wearing the same dress and shoes as

last year...your sister is too...didn't you have a handicapped

brother that died?...well I guess I'll find the money SOMEWHERE so

YOU can get a new wheelchair. " ...step step step, everyone staring and

silent, and obviously taking it in. Music not starting up again for

a few momments while the party's hostess did this to me....

Yes MDA covered the cost of some medical equipment, camp, parties,

bowling leagues, and many events where I got to have some happy

memories and oppurtunities to conect with other MDA peers I wouldn't

have had a chance of knowing otherwise. I appreciate them fully.

Still it dosen't justify psychologically abusing the families they

are supposed to be helping.

Medicaid has been a challenge, but they never have used a social

gethering to have a suprise inspection on a child to discourage other

families from asking for 'too much'.

Members please learn from this- Help people heal and have dignity

instead of putting loyal blind allegiance on any abusive situation.

> > coverage.(aka pity party) And i totally disagree that is is

> hypocritical to

> > complain about aspects of an organisation even if you benefit

from its

> > existence. i often complain or point out failings of the National

> Health

> > Service here.  Ii have also complained to centres for independent

> living

> > that i have used if i feel they are not acting in the broadest

best

> interest

> > of disabled people.

>

>

>

> ------------------------------------

>

> A FEW RULES

>

> * The list members come from many backgrounds, ages and beliefs So

all

> members most be tolerant and respectful to all members.

>

> * Some adult language and topics (like sexual health, swearing..)

may

> occur occasionally in emails. Over use of inappropriate language

will

> not be allowed. If your under 16 ask your parents/gaurdian before

you

> join the list.

>

> * No SPAMMING or sending numerous emails unrelated to the topics of

> spinal muscular atrophy, health, and the daily issues of the

disabled.

>

> Post message:       

> Subscribe:     -subscribe    

> Unsubscribe:     -unsubscribe        

>    

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Posted
Posted

I wonder how many folks here know that your insurences and government

benefits pay for your clinics before MDA pays for any of it {if

anything at all}. Jerry isn't personally paying for your

clinics and only in very rare circumstances does MDA funding pay for

them.

I totally understand that our insurences SHOULD be billed first so

money goes to the biggest needs. What I dislike is how telethons

portray MDA as paying for things that in reality are covered by other

sources and not MDA.

The only thing MDA clinic has payed for outside of my insurence in

the past 22 years is an occasional parking discount cupon while I'm

at their clinics.

In 2003 I was refused by MDA any help for a back brace that my

medicaid wasn't covering at the time. MDA told me only braces to walk

were covered. Mean while the telethon holds up back braces during

appeals for donations every year.

As far as funding that MDA does cover- To me the credit and gratitude

belongs to the people who donate money and the workers who aren't in

the spotlight bafooning around and baby gaga talking to everybody

using a wheelchair. Those who work to help and don't do it to get on

stage with a captive audience every year are the ones who make MDA

services possible.

As for the other questions asked to me- I say thank you many times

everyday and enjoy nature as well. Just because I don't worship at

the first church of Jerry dosen't mean I'm selfish and nature

hating.

Anyone who takes a few minutes of time out of the world beyond the

end of their own nose, is aware of the many things I do to help make

the world a better place. A few of which MDA itself has given

recognition and awards to me for.

I happen to visit and thank firefighters doing boot drives and as a

matter of fact have volunteered for MDA causes in support of things

like their summer camps, and support groups and other things that

they do fund.

I don't hate MDA. I want the clown riding MDA's coat tail while

making an ass of himself to get off the stage and out of the way of

the people who can do the job without degrading tactics.

> > > >

> > > > My husband and I signed.

> > > >

> > > > I can't stand Jerry and the way the telethon portrays

> > people

> > > with any form of MD.  Yes, it is horrible and yes, it kills. 

> > > However, they never focus on the people with the diseases,

> > jusy 'pity

> > > them.'  The state levels aren't much better.  I was Colorado

> state

> > > poster child for several years and it really opens a 6-year-

olds

> > > eyes when your backstage at a telethon.  They made me stay on

> > > location 1/2 the night so the audience could see how weak and

> tired

> > I

> > > was as inspiration to call.  At one point they were

interviewing

> a

> > > couple where the man had ALS.  They were pregnant with their

3rd

> > > child and the interviewer was asking questions about how hard

it

> > had

> > > been since the husband had been 'struck with the devestating

> > > disease.'  The MDA staff were back stage going off about how

that

> > > couple needed to stop having children since the government

would

> > have

> > > to support them once he was dead.

> > > >  

> > > > Milinovich, SMA Type I

> > > > Wife to , Mommy to - 21 Months Old!

> > > > http://www.myspace.com/kindrana 

> > > > http://s174.photobucket.com/albums/w107/boramir/?start=0

> > > >  

> > > >

> > > >

> > > >

> > > >

> > > > ________________________________

> > > > From: Alana <alrt@>

> > > >

> > > > Sent: Friday, January 9, 2009 4:23:29 PM

> > > > Subject: Petition: Cancel Humanitarian Award for

> > Jerry

> > >

> > > >

> > > >

> > > > I know not everyone here will agree with the following post,

> but

> > I

> > > ask

> > > > that those of you who do agree, please sign the petition and

> > spread

> > > > the word.

> > > >

> > > > In Solidarity,

> > > > Alana

> > > >

> > > > Goto:

> > > >

> > > > http://www.petition online.com/ jlno2009/ petition. html

> > > >

> > > > The Academy of Motion Picture Arts and Sciences

> > > >

> > > > This petition has been launched to object to the Academy of

> Motion

> > > > Picture Arts and Sciences' announcement that it will give

Jerry

> > >

> > > > its Hersholt Humanitarian Award at the Awards

> ceremony

> > on

> > > > February 22, 2009.

> > > >

> > > > During his decades of hosting the Labor Day Telethon, Jerry

>

> > > has

> > > > helped to perpetuate negative, stereotypical attitudes toward

> > people

> > > > with muscular dystrophy and other disabilities. Jerry

and

> > the

> > > > Telethon actively promote pity as a fundraising strategy.

> Disabled

> > > > people want RESPECT and RIGHTS, not pity and charity.

> > > >

> > > > In 1990, wrote that if he had muscular dystrophy and

had

> to

> > > use

> > > > a wheelchair, he would " just have to learn to try to be good

at

> > > being

> > > > a half a person. " During the 1992 Telethon, he said that

people

> > with

> > > > MD, whom he always insists on calling " my kids, " " cannot go

> into

> > the

> > > > workplace. There's nothing they can do. " Comments like these

> have

> > > led

> > > > disability activists and our allies to protest against Jerry

> > .

> > > > We've argued that he uses the Telethon to promote pity, a

> > > > counterproductive emotion which undermines our social

equality.

> > > Here's

> > > > how responded to the Telethon protesters during a 2001

> > > > television interview: " Pity? You don't want to be pitied

because

> > > > you're a cripple in a wheelchair? Stay in your house! "

> > > >

> > > > Jerry has also made derogatory comments about women and

> gay

> > > men.

> > > > His outdated attitudes and crude remarks are dehumanizing, not

> > > > humanitarian.

> > > >

> > > > Therefore, we the undersigned support the actions and

arguments

> > of

> > > the

> > > > coalition group The Trouble with Jerry. We protest the

Academy's

> > > > characterization of Jerry as a " humanitarian. " And we

> ask

> > > that

> > > > the Academy cancel its plans to give the Hersholt

> > Humanitarian

> > > > Award.

> > > >

> > > > Sincerely,

> > > >

> > > > The Undersigned

> > > >

> > > > 

> > > >

> > > >

> > > >       

> > > >

> > > >

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Posted
Posted

You don't hate MDA??  You sound like you do.

Clinic funding-of course your insurance should be filed first.  MDA has a

limited amount to spend on each person each year and should be used wisely.  You

" totally understand " that insurance should be billed?  Then why bring it up as

if they are doing something wrong like hoarding all the money and going on

lavish spa retreats (oh wait, that was AIG...maybe you should direct your anger

and bitterness toward them).

I am thankful for the assistance MDA has provided to me over the years.  For

example, it is quite comforting to know that if my wheelchair needs repair this

year (and every year), MDA will cover up to $500.00 of those costs.

L

________________________________

From: Amy <charmedcripchic@...>

Sent: Monday, January 12, 2009 5:43:44 PM

Subject: Re: Petition: Cancel Humanitarian Award for Jerry

I wonder how many folks here know that your insurences and government

benefits pay for your clinics before MDA pays for any of it {if

anything at all}. Jerry isn't personally paying for your

clinics and only in very rare circumstances does MDA funding pay for

them.

I totally understand that our insurences SHOULD be billed first so

money goes to the biggest needs. What I dislike is how telethons

portray MDA as paying for things that in reality are covered by other

sources and not MDA.

The only thing MDA clinic has payed for outside of my insurence in

the past 22 years is an occasional parking discount cupon while I'm

at their clinics.

In 2003 I was refused by MDA any help for a back brace that my

medicaid wasn't covering at the time. MDA told me only braces to walk

were covered. Mean while the telethon holds up back braces during

appeals for donations every year.

As far as funding that MDA does cover- To me the credit and gratitude

belongs to the people who donate money and the workers who aren't in

the spotlight bafooning around and baby gaga talking to everybody

using a wheelchair. Those who work to help and don't do it to get on

stage with a captive audience every year are the ones who make MDA

services possible.

As for the other questions asked to me- I say thank you many times

everyday and enjoy nature as well. Just because I don't worship at

the first church of Jerry dosen't mean I'm selfish and nature

hating.

Anyone who takes a few minutes of time out of the world beyond the

end of their own nose, is aware of the many things I do to help make

the world a better place. A few of which MDA itself has given

recognition and awards to me for.

I happen to visit and thank firefighters doing boot drives and as a

matter of fact have volunteered for MDA causes in support of things

like their summer camps, and support groups and other things that

they do fund.

I don't hate MDA. I want the clown riding MDA's coat tail while

making an ass of himself to get off the stage and out of the way of

the people who can do the job without degrading tactics.

> > > >

> > > > My husband and I signed.

> > > >

> > > > I can't stand Jerry and the way the telethon portrays

> > people

> > > with any form of MD.  Yes, it is horrible and yes, it kills. 

> > > However, they never focus on the people with the diseases,

> > jusy 'pity

> > > them.'  The state levels aren't much better.  I was Colorado

> state

> > > poster child for several years and it really opens a 6-year-

olds

> > > eyes when your backstage at a telethon.  They made me stay on

> > > location 1/2 the night so the audience could see how weak and

> tired

> > I

> > > was as inspiration to call.  At one point they were

interviewing

> a

> > > couple where the man had ALS.  They were pregnant with their

3rd

> > > child and the interviewer was asking questions about how hard

it

> > had

> > > been since the husband had been 'struck with the devestating

> > > disease.'  The MDA staff were back stage going off about how

that

> > > couple needed to stop having children since the government

would

> > have

> > > to support them once he was dead.

> > > >  

> > > > Milinovich, SMA Type I

> > > > Wife to , Mommy to - 21 Months Old!

> > > > http://www.myspace. com/kindrana 

> > > > http://s174. photobucket. com/albums/ w107/boramir/ ?start=0

> > > >  

> > > >

> > > >

> > > >

> > > >

> > > > ____________ _________ _________ __

> > > > From: Alana <alrt@>

> > > > @gro ups.com

> > > > Sent: Friday, January 9, 2009 4:23:29 PM

> > > > Subject: Petition: Cancel Humanitarian Award for

> > Jerry

> > >

> > > >

> > > >

> > > > I know not everyone here will agree with the following post,

> but

> > I

> > > ask

> > > > that those of you who do agree, please sign the petition and

> > spread

> > > > the word.

> > > >

> > > > In Solidarity,

> > > > Alana

> > > >

> > > > Goto:

> > > >

> > > > http://www.petition online.com/ jlno2009/ petition. html

> > > >

> > > > The Academy of Motion Picture Arts and Sciences

> > > >

> > > > This petition has been launched to object to the Academy of

> Motion

> > > > Picture Arts and Sciences' announcement that it will give

Jerry

> > >

> > > > its Hersholt Humanitarian Award at the Awards

> ceremony

> > on

> > > > February 22, 2009.

> > > >

> > > > During his decades of hosting the Labor Day Telethon, Jerry

>

> > > has

> > > > helped to perpetuate negative, stereotypical attitudes toward

> > people

> > > > with muscular dystrophy and other disabilities. Jerry

and

> > the

> > > > Telethon actively promote pity as a fundraising strategy.

> Disabled

> > > > people want RESPECT and RIGHTS, not pity and charity.

> > > >

> > > > In 1990, wrote that if he had muscular dystrophy and

had

> to

> > > use

> > > > a wheelchair, he would " just have to learn to try to be good

at

> > > being

> > > > a half a person. " During the 1992 Telethon, he said that

people

> > with

> > > > MD, whom he always insists on calling " my kids, " " cannot go

> into

> > the

> > > > workplace. There's nothing they can do. " Comments like these

> have

> > > led

> > > > disability activists and our allies to protest against Jerry

> > .

> > > > We've argued that he uses the Telethon to promote pity, a

> > > > counterproductive emotion which undermines our social

equality.

> > > Here's

> > > > how responded to the Telethon protesters during a 2001

> > > > television interview: " Pity? You don't want to be pitied

because

> > > > you're a cripple in a wheelchair? Stay in your house! "

> > > >

> > > > Jerry has also made derogatory comments about women and

> gay

> > > men.

> > > > His outdated attitudes and crude remarks are dehumanizing, not

> > > > humanitarian.

> > > >

> > > > Therefore, we the undersigned support the actions and

arguments

> > of

> > > the

> > > > coalition group The Trouble with Jerry. We protest the

Academy's

> > > > characterization of Jerry as a " humanitarian. " And we

> ask

> > > that

> > > > the Academy cancel its plans to give the Hersholt

> > Humanitarian

> > > > Award.

> > > >

> > > > Sincerely,

> > > >

> > > > The Undersigned

> > > >

> > > > 

> > > >

> > > >

> > > >       

> > > >

> > > >

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Guest guest

Guest guest

Posted
Posted

hmmm not sure i picked up any bitterness from amy. i guess i am coming to

this from a european perspective slightly. in england you dont have to use

the begging bowl of charity to get and maintain a wheelchair. so for that

$500 we wouldnt have to look less than whole. the price of that $500 could

well be enormous in other ways in terms of how society treats you and the

opportunites afforded you.

maybe obama might gradually shift this into a rights issue!?!?

cheers

linda

2009/1/13 Lori G <lorig713@...>

> You don't hate MDA?? You sound like you do.

>

> Clinic funding-of course your insurance should be filed first. MDA has a

> limited amount to spend on each person each year and should be used wisely.

> You " totally understand " that insurance should be billed? Then why bring it

> up as if they are doing something wrong like hoarding all the money and

> going on lavish spa retreats (oh wait, that was AIG...maybe you should

> direct your anger and bitterness toward them).

>

> I am thankful for the assistance MDA has provided to me over the years.

> For example, it is quite comforting to know that if my wheelchair needs

> repair this year (and every year), MDA will cover up to $500.00 of those

> costs.

>

> L

>

> ________________________________

>

> From: Amy <charmedcripchic@... <charmedcripchic%40>>

> <%40>

> Sent: Monday, January 12, 2009 5:43:44 PM

> Subject: Re: Petition: Cancel Humanitarian Award for Jerry

>

>

> I wonder how many folks here know that your insurences and government

> benefits pay for your clinics before MDA pays for any of it {if

> anything at all}. Jerry isn't personally paying for your

> clinics and only in very rare circumstances does MDA funding pay for

> them.

>

> I totally understand that our insurences SHOULD be billed first so

> money goes to the biggest needs. What I dislike is how telethons

> portray MDA as paying for things that in reality are covered by other

> sources and not MDA.

>

> The only thing MDA clinic has payed for outside of my insurence in

> the past 22 years is an occasional parking discount cupon while I'm

> at their clinics.

>

> In 2003 I was refused by MDA any help for a back brace that my

> medicaid wasn't covering at the time. MDA told me only braces to walk

> were covered. Mean while the telethon holds up back braces during

> appeals for donations every year.

>

> As far as funding that MDA does cover- To me the credit and gratitude

> belongs to the people who donate money and the workers who aren't in

> the spotlight bafooning around and baby gaga talking to everybody

> using a wheelchair. Those who work to help and don't do it to get on

> stage with a captive audience every year are the ones who make MDA

> services possible.

>

> As for the other questions asked to me- I say thank you many times

> everyday and enjoy nature as well. Just because I don't worship at

> the first church of Jerry dosen't mean I'm selfish and nature

> hating.

>

> Anyone who takes a few minutes of time out of the world beyond the

> end of their own nose, is aware of the many things I do to help make

> the world a better place. A few of which MDA itself has given

> recognition and awards to me for.

>

> I happen to visit and thank firefighters doing boot drives and as a

> matter of fact have volunteered for MDA causes in support of things

> like their summer camps, and support groups and other things that

> they do fund.

>

> I don't hate MDA. I want the clown riding MDA's coat tail while

> making an ass of himself to get off the stage and out of the way of

> the people who can do the job without degrading tactics.

>

>

> > > > >

> > > > > My husband and I signed.

> > > > >

> > > > > I can't stand Jerry and the way the telethon portrays

> > > people

> > > > with any form of MD. Yes, it is horrible and yes, it kills.

> > > > However, they never focus on the people with the diseases,

> > > jusy 'pity

> > > > them.' The state levels aren't much better. I was Colorado

> > state

> > > > poster child for several years and it really opens a 6-year-

> olds

> > > > eyes when your backstage at a telethon. They made me stay on

> > > > location 1/2 the night so the audience could see how weak and

> > tired

> > > I

> > > > was as inspiration to call. At one point they were

> interviewing

> > a

> > > > couple where the man had ALS. They were pregnant with their

> 3rd

> > > > child and the interviewer was asking questions about how hard

> it

> > > had

> > > > been since the husband had been 'struck with the devestating

> > > > disease.' The MDA staff were back stage going off about how

> that

> > > > couple needed to stop having children since the government

> would

> > > have

> > > > to support them once he was dead.

> > > > >

> > > > > Milinovich, SMA Type I

> > > > > Wife to , Mommy to - 21 Months Old!

> > > > > http://www.myspace. com/kindrana

> > > > > http://s174. photobucket. com/albums/ w107/boramir/ ?start=0

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ____________ _________ _________ __

> > > > > From: Alana <alrt@>

> > > > > @gro ups.com

>

> > > > > Sent: Friday, January 9, 2009 4:23:29 PM

> > > > > Subject: Petition: Cancel Humanitarian Award for

> > > Jerry

> > > >

> > > > >

> > > > >

> > > > > I know not everyone here will agree with the following post,

> > but

> > > I

> > > > ask

> > > > > that those of you who do agree, please sign the petition and

> > > spread

> > > > > the word.

> > > > >

> > > > > In Solidarity,

> > > > > Alana

> > > > >

> > > > > Goto:

> > > > >

> > > > > http://www.petition online.com/ jlno2009/ petition. html

> > > > >

> > > > > The Academy of Motion Picture Arts and Sciences

> > > > >

> > > > > This petition has been launched to object to the Academy of

> > Motion

> > > > > Picture Arts and Sciences' announcement that it will give

> Jerry

> > > >

> > > > > its Hersholt Humanitarian Award at the Awards

> > ceremony

> > > on

> > > > > February 22, 2009.

> > > > >

> > > > > During his decades of hosting the Labor Day Telethon, Jerry

> >

> > > > has

> > > > > helped to perpetuate negative, stereotypical attitudes toward

> > > people

> > > > > with muscular dystrophy and other disabilities. Jerry

> and

> > > the

> > > > > Telethon actively promote pity as a fundraising strategy.

> > Disabled

> > > > > people want RESPECT and RIGHTS, not pity and charity.

> > > > >

> > > > > In 1990, wrote that if he had muscular dystrophy and

> had

> > to

> > > > use

> > > > > a wheelchair, he would " just have to learn to try to be good

> at

> > > > being

> > > > > a half a person. " During the 1992 Telethon, he said that

> people

> > > with

> > > > > MD, whom he always insists on calling " my kids, " " cannot go

> > into

> > > the

> > > > > workplace. There's nothing they can do. " Comments like these

> > have

> > > > led

> > > > > disability activists and our allies to protest against Jerry

> > > .

> > > > > We've argued that he uses the Telethon to promote pity, a

> > > > > counterproductive emotion which undermines our social

> equality.

> > > > Here's

> > > > > how responded to the Telethon protesters during a 2001

> > > > > television interview: " Pity? You don't want to be pitied

> because

> > > > > you're a cripple in a wheelchair? Stay in your house! "

> > > > >

> > > > > Jerry has also made derogatory comments about women and

> > gay

> > > > men.

> > > > > His outdated attitudes and crude remarks are dehumanizing, not

> > > > > humanitarian.

> > > > >

> > > > > Therefore, we the undersigned support the actions and

> arguments

> > > of

> > > > the

> > > > > coalition group The Trouble with Jerry. We protest the

> Academy's

> > > > > characterization of Jerry as a " humanitarian. " And we

> > ask

> > > > that

> > > > > the Academy cancel its plans to give the Hersholt

> > > Humanitarian

> > > > > Award.

> > > > >

> > > > > Sincerely,

> > > > >

> > > > > The Undersigned

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

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Posted
Posted

just wanted to add actually though to be fair to the MD group here in

england it was their campaigning that pushed the govt into providing power

outdoor chairs, prior to that it was only power indoor chairs and manual

chairs

cheers

linda

2009/1/13 Moss <lindajmoss@...>

> hmmm not sure i picked up any bitterness from amy. i guess i am coming to

> this from a european perspective slightly. in england you dont have to use

> the begging bowl of charity to get and maintain a wheelchair. so for that

> $500 we wouldnt have to look less than whole. the price of that $500 could

> well be enormous in other ways in terms of how society treats you and the

> opportunites afforded you.

>

> maybe obama might gradually shift this into a rights issue!?!?

>

> cheers

> linda

>

> 2009/1/13 Lori G <lorig713@...>

>

> You don't hate MDA?? You sound like you do.

>>

>> Clinic funding-of course your insurance should be filed first. MDA has a

>> limited amount to spend on each person each year and should be used wisely.

>> You " totally understand " that insurance should be billed? Then why bring it

>> up as if they are doing something wrong like hoarding all the money and

>> going on lavish spa retreats (oh wait, that was AIG...maybe you should

>> direct your anger and bitterness toward them).

>>

>> I am thankful for the assistance MDA has provided to me over the years.

>> For example, it is quite comforting to know that if my wheelchair needs

>> repair this year (and every year), MDA will cover up to $500.00 of those

>> costs.

>>

>> L

>>

>> ________________________________

>>

>> From: Amy <charmedcripchic@... <charmedcripchic%40>>

>> <%40>

>> Sent: Monday, January 12, 2009 5:43:44 PM

>> Subject: Re: Petition: Cancel Humanitarian Award for Jerry

>>

>>

>> I wonder how many folks here know that your insurences and government

>> benefits pay for your clinics before MDA pays for any of it {if

>> anything at all}. Jerry isn't personally paying for your

>> clinics and only in very rare circumstances does MDA funding pay for

>> them.

>>

>> I totally understand that our insurences SHOULD be billed first so

>> money goes to the biggest needs. What I dislike is how telethons

>> portray MDA as paying for things that in reality are covered by other

>> sources and not MDA.

>>

>> The only thing MDA clinic has payed for outside of my insurence in

>> the past 22 years is an occasional parking discount cupon while I'm

>> at their clinics.

>>

>> In 2003 I was refused by MDA any help for a back brace that my

>> medicaid wasn't covering at the time. MDA told me only braces to walk

>> were covered. Mean while the telethon holds up back braces during

>> appeals for donations every year.

>>

>> As far as funding that MDA does cover- To me the credit and gratitude

>> belongs to the people who donate money and the workers who aren't in

>> the spotlight bafooning around and baby gaga talking to everybody

>> using a wheelchair. Those who work to help and don't do it to get on

>> stage with a captive audience every year are the ones who make MDA

>> services possible.

>>

>> As for the other questions asked to me- I say thank you many times

>> everyday and enjoy nature as well. Just because I don't worship at

>> the first church of Jerry dosen't mean I'm selfish and nature

>> hating.

>>

>> Anyone who takes a few minutes of time out of the world beyond the

>> end of their own nose, is aware of the many things I do to help make

>> the world a better place. A few of which MDA itself has given

>> recognition and awards to me for.

>>

>> I happen to visit and thank firefighters doing boot drives and as a

>> matter of fact have volunteered for MDA causes in support of things

>> like their summer camps, and support groups and other things that

>> they do fund.

>>

>> I don't hate MDA. I want the clown riding MDA's coat tail while

>> making an ass of himself to get off the stage and out of the way of

>> the people who can do the job without degrading tactics.

>>

>>

>> > > > >

>> > > > > My husband and I signed.

>> > > > >

>> > > > > I can't stand Jerry and the way the telethon portrays

>> > > people

>> > > > with any form of MD. Yes, it is horrible and yes, it kills.

>> > > > However, they never focus on the people with the diseases,

>> > > jusy 'pity

>> > > > them.' The state levels aren't much better. I was Colorado

>> > state

>> > > > poster child for several years and it really opens a 6-year-

>> olds

>> > > > eyes when your backstage at a telethon. They made me stay on

>> > > > location 1/2 the night so the audience could see how weak and

>> > tired

>> > > I

>> > > > was as inspiration to call. At one point they were

>> interviewing

>> > a

>> > > > couple where the man had ALS. They were pregnant with their

>> 3rd

>> > > > child and the interviewer was asking questions about how hard

>> it

>> > > had

>> > > > been since the husband had been 'struck with the devestating

>> > > > disease.' The MDA staff were back stage going off about how

>> that

>> > > > couple needed to stop having children since the government

>> would

>> > > have

>> > > > to support them once he was dead.

>> > > > >

>> > > > > Milinovich, SMA Type I

>> > > > > Wife to , Mommy to - 21 Months Old!

>> > > > > http://www.myspace. com/kindrana

>> > > > > http://s174. photobucket. com/albums/ w107/boramir/ ?start=0

>> > > > >

>> > > > >

>> > > > >

>> > > > >

>> > > > >

>> > > > > ____________ _________ _________ __

>> > > > > From: Alana <alrt@>

>> > > > > @gro ups.com

>>

>> > > > > Sent: Friday, January 9, 2009 4:23:29 PM

>> > > > > Subject: Petition: Cancel Humanitarian Award for

>> > > Jerry

>> > > >

>> > > > >

>> > > > >

>> > > > > I know not everyone here will agree with the following post,

>> > but

>> > > I

>> > > > ask

>> > > > > that those of you who do agree, please sign the petition and

>> > > spread

>> > > > > the word.

>> > > > >

>> > > > > In Solidarity,

>> > > > > Alana

>> > > > >

>> > > > > Goto:

>> > > > >

>> > > > > http://www.petition online.com/ jlno2009/ petition. html

>> > > > >

>> > > > > The Academy of Motion Picture Arts and Sciences

>> > > > >

>> > > > > This petition has been launched to object to the Academy of

>> > Motion

>> > > > > Picture Arts and Sciences' announcement that it will give

>> Jerry

>> > > >

>> > > > > its Hersholt Humanitarian Award at the Awards

>> > ceremony

>> > > on

>> > > > > February 22, 2009.

>> > > > >

>> > > > > During his decades of hosting the Labor Day Telethon, Jerry

>> >

>> > > > has

>> > > > > helped to perpetuate negative, stereotypical attitudes toward

>> > > people

>> > > > > with muscular dystrophy and other disabilities. Jerry

>> and

>> > > the

>> > > > > Telethon actively promote pity as a fundraising strategy.

>> > Disabled

>> > > > > people want RESPECT and RIGHTS, not pity and charity.

>> > > > >

>> > > > > In 1990, wrote that if he had muscular dystrophy and

>> had

>> > to

>> > > > use

>> > > > > a wheelchair, he would " just have to learn to try to be good

>> at

>> > > > being

>> > > > > a half a person. " During the 1992 Telethon, he said that

>> people

>> > > with

>> > > > > MD, whom he always insists on calling " my kids, " " cannot go

>> > into

>> > > the

>> > > > > workplace. There's nothing they can do. " Comments like these

>> > have

>> > > > led

>> > > > > disability activists and our allies to protest against Jerry

>> > > .

>> > > > > We've argued that he uses the Telethon to promote pity, a

>> > > > > counterproductive emotion which undermines our social

>> equality.

>> > > > Here's

>> > > > > how responded to the Telethon protesters during a 2001

>> > > > > television interview: " Pity? You don't want to be pitied

>> because

>> > > > > you're a cripple in a wheelchair? Stay in your house! "

>> > > > >

>> > > > > Jerry has also made derogatory comments about women and

>> > gay

>> > > > men.

>> > > > > His outdated attitudes and crude remarks are dehumanizing, not

>> > > > > humanitarian.

>> > > > >

>> > > > > Therefore, we the undersigned support the actions and

>> arguments

>> > > of

>> > > > the

>> > > > > coalition group The Trouble with Jerry. We protest the

>> Academy's

>> > > > > characterization of Jerry as a " humanitarian. " And we

>> > ask

>> > > > that

>> > > > > the Academy cancel its plans to give the Hersholt

>> > > Humanitarian

>> > > > > Award.

>> > > > >

>> > > > > Sincerely,

>> > > > >

>> > > > > The Undersigned

>> > > > >

>> > > > >

>> > > > >

>> > > > >

>> > > > >

>> > > > >

>> > > > >

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Guest guest

Guest guest

Posted
Posted

I am not exactly sure what you are saying. 

As far as the U.K. healthcare system, I can't help but remember that our Tufty

Sue went into the hospital for a routine trach change and didn't come out alive.

Yes, I have high hopes for our new president.  We shall see.

L

________________________________

From: Moss <lindajmoss@...>

Sent: Monday, January 12, 2009 7:11:56 PM

Subject: Re: Re: Petition: Cancel Humanitarian Award for Jerry

hmmm not sure i picked up any bitterness from amy. i guess i am coming to

this from a european perspective slightly. in england you dont have to use

the begging bowl of charity to get and maintain a wheelchair. so for that

$500 we wouldnt have to look less than whole. the price of that $500 could

well be enormous in other ways in terms of how society treats you and the

opportunites afforded you.

maybe obama might gradually shift this into a rights issue!?!?

cheers

linda

2009/1/13 Lori G <lorig713 (DOT) com>

> You don't hate MDA?? You sound like you do.

>

> Clinic funding-of course your insurance should be filed first. MDA has a

> limited amount to spend on each person each year and should be used wisely.

> You " totally understand " that insurance should be billed? Then why bring it

> up as if they are doing something wrong like hoarding all the money and

> going on lavish spa retreats (oh wait, that was AIG...maybe you should

> direct your anger and bitterness toward them).

>

> I am thankful for the assistance MDA has provided to me over the years.

> For example, it is quite comforting to know that if my wheelchair needs

> repair this year (and every year), MDA will cover up to $500.00 of those

> costs.

>

> L

>

> ____________ _________ _________ __

>

> From: Amy <charmedcripchic <charmedcripchic% 40> >

> @gro ups.com <% 40groups. com>

> Sent: Monday, January 12, 2009 5:43:44 PM

> Subject: Re: Petition: Cancel Humanitarian Award for Jerry

>

>

> I wonder how many folks here know that your insurences and government

> benefits pay for your clinics before MDA pays for any of it {if

> anything at all}. Jerry isn't personally paying for your

> clinics and only in very rare circumstances does MDA funding pay for

> them.

>

> I totally understand that our insurences SHOULD be billed first so

> money goes to the biggest needs. What I dislike is how telethons

> portray MDA as paying for things that in reality are covered by other

> sources and not MDA.

>

> The only thing MDA clinic has payed for outside of my insurence in

> the past 22 years is an occasional parking discount cupon while I'm

> at their clinics.

>

> In 2003 I was refused by MDA any help for a back brace that my

> medicaid wasn't covering at the time. MDA told me only braces to walk

> were covered. Mean while the telethon holds up back braces during

> appeals for donations every year.

>

> As far as funding that MDA does cover- To me the credit and gratitude

> belongs to the people who donate money and the workers who aren't in

> the spotlight bafooning around and baby gaga talking to everybody

> using a wheelchair. Those who work to help and don't do it to get on

> stage with a captive audience every year are the ones who make MDA

> services possible.

>

> As for the other questions asked to me- I say thank you many times

> everyday and enjoy nature as well. Just because I don't worship at

> the first church of Jerry dosen't mean I'm selfish and nature

> hating.

>

> Anyone who takes a few minutes of time out of the world beyond the

> end of their own nose, is aware of the many things I do to help make

> the world a better place. A few of which MDA itself has given

> recognition and awards to me for.

>

> I happen to visit and thank firefighters doing boot drives and as a

> matter of fact have volunteered for MDA causes in support of things

> like their summer camps, and support groups and other things that

> they do fund.

>

> I don't hate MDA. I want the clown riding MDA's coat tail while

> making an ass of himself to get off the stage and out of the way of

> the people who can do the job without degrading tactics.

>

>

> > > > >

> > > > > My husband and I signed.

> > > > >

> > > > > I can't stand Jerry and the way the telethon portrays

> > > people

> > > > with any form of MD. Yes, it is horrible and yes, it kills.

> > > > However, they never focus on the people with the diseases,

> > > jusy 'pity

> > > > them.' The state levels aren't much better. I was Colorado

> > state

> > > > poster child for several years and it really opens a 6-year-

> olds

> > > > eyes when your backstage at a telethon. They made me stay on

> > > > location 1/2 the night so the audience could see how weak and

> > tired

> > > I

> > > > was as inspiration to call. At one point they were

> interviewing

> > a

> > > > couple where the man had ALS. They were pregnant with their

> 3rd

> > > > child and the interviewer was asking questions about how hard

> it

> > > had

> > > > been since the husband had been 'struck with the devestating

> > > > disease.' The MDA staff were back stage going off about how

> that

> > > > couple needed to stop having children since the government

> would

> > > have

> > > > to support them once he was dead.

> > > > >

> > > > > Milinovich, SMA Type I

> > > > > Wife to , Mommy to - 21 Months Old!

> > > > > http://www.myspace. com/kindrana

> > > > > http://s174. photobucket. com/albums/ w107/boramir/ ?start=0

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ____________ _________ _________ __

> > > > > From: Alana <alrt@>

> > > > > @gro ups.com

>

> > > > > Sent: Friday, January 9, 2009 4:23:29 PM

> > > > > Subject: Petition: Cancel Humanitarian Award for

> > > Jerry

> > > >

> > > > >

> > > > >

> > > > > I know not everyone here will agree with the following post,

> > but

> > > I

> > > > ask

> > > > > that those of you who do agree, please sign the petition and

> > > spread

> > > > > the word.

> > > > >

> > > > > In Solidarity,

> > > > > Alana

> > > > >

> > > > > Goto:

> > > > >

> > > > > http://www.petition online.com/ jlno2009/ petition. html

> > > > >

> > > > > The Academy of Motion Picture Arts and Sciences

> > > > >

> > > > > This petition has been launched to object to the Academy of

> > Motion

> > > > > Picture Arts and Sciences' announcement that it will give

> Jerry

> > > >

> > > > > its Hersholt Humanitarian Award at the Awards

> > ceremony

> > > on

> > > > > February 22, 2009.

> > > > >

> > > > > During his decades of hosting the Labor Day Telethon, Jerry

> >

> > > > has

> > > > > helped to perpetuate negative, stereotypical attitudes toward

> > > people

> > > > > with muscular dystrophy and other disabilities. Jerry

> and

> > > the

> > > > > Telethon actively promote pity as a fundraising strategy.

> > Disabled

> > > > > people want RESPECT and RIGHTS, not pity and charity.

> > > > >

> > > > > In 1990, wrote that if he had muscular dystrophy and

> had

> > to

> > > > use

> > > > > a wheelchair, he would " just have to learn to try to be good

> at

> > > > being

> > > > > a half a person. " During the 1992 Telethon, he said that

> people

> > > with

> > > > > MD, whom he always insists on calling " my kids, " " cannot go

> > into

> > > the

> > > > > workplace. There's nothing they can do. " Comments like these

> > have

> > > > led

> > > > > disability activists and our allies to protest against Jerry

> > > .

> > > > > We've argued that he uses the Telethon to promote pity, a

> > > > > counterproductive emotion which undermines our social

> equality.

> > > > Here's

> > > > > how responded to the Telethon protesters during a 2001

> > > > > television interview: " Pity? You don't want to be pitied

> because

> > > > > you're a cripple in a wheelchair? Stay in your house! "

> > > > >

> > > > > Jerry has also made derogatory comments about women and

> > gay

> > > > men.

> > > > > His outdated attitudes and crude remarks are dehumanizing, not

> > > > > humanitarian.

> > > > >

> > > > > Therefore, we the undersigned support the actions and

> arguments

> > > of

> > > > the

> > > > > coalition group The Trouble with Jerry. We protest the

> Academy's

> > > > > characterization of Jerry as a " humanitarian. " And we

> > ask

> > > > that

> > > > > the Academy cancel its plans to give the Hersholt

> > > Humanitarian

> > > > > Award.

> > > > >

> > > > > Sincerely,

> > > > >

> > > > > The Undersigned

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

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Posted
Posted

here with have a right to a power chair through the National Health Service

it is not something we have to hold out a begging bowl for. this way

disabled people get the mobility they need and it is not a matter of people

with MD getting one rather than someone with Spina Bifida just because the

MD group might be better at pushing the pity button on peoples purses or

vice versa.

yes it was tragic what happened to sue, and unfortunately i dont think

english health care has a monopoly on some peoples hearts giving out even

when under relatively minor stress

cheers

linda

2009/1/13 Lori G <lorig713@...>

> I am not exactly sure what you are saying.

>

> As far as the U.K. healthcare system, I can't help but remember that our

> Tufty Sue went into the hospital for a routine trach change and didn't come

> out alive.

>

> Yes, I have high hopes for our new president. We shall see.

>

> L

>

> ________________________________

> From: Moss <lindajmoss@... <lindajmoss%40gmail.com>>

> <%40>

> Sent: Monday, January 12, 2009 7:11:56 PM

> Subject: Re: Re: Petition: Cancel Humanitarian Award for Jerry

>

>

>

> hmmm not sure i picked up any bitterness from amy. i guess i am coming to

> this from a european perspective slightly. in england you dont have to use

> the begging bowl of charity to get and maintain a wheelchair. so for that

> $500 we wouldnt have to look less than whole. the price of that $500 could

> well be enormous in other ways in terms of how society treats you and the

> opportunites afforded you.

>

> maybe obama might gradually shift this into a rights issue!?!?

>

> cheers

> linda

>

> 2009/1/13 Lori G <lorig713 (DOT) com>

>

> > You don't hate MDA?? You sound like you do.

> >

> > Clinic funding-of course your insurance should be filed first. MDA has a

> > limited amount to spend on each person each year and should be used

> wisely.

> > You " totally understand " that insurance should be billed? Then why bring

> it

> > up as if they are doing something wrong like hoarding all the money and

> > going on lavish spa retreats (oh wait, that was AIG...maybe you should

> > direct your anger and bitterness toward them).

> >

> > I am thankful for the assistance MDA has provided to me over the years.

> > For example, it is quite comforting to know that if my wheelchair needs

> > repair this year (and every year), MDA will cover up to $500.00 of those

> > costs.

> >

> > L

> >

> > ____________ _________ _________ __

> >

> > From: Amy <charmedcripchic <charmedcripchic% 40> >

> > @gro ups.com <% 40groups. com>

>

> > Sent: Monday, January 12, 2009 5:43:44 PM

> > Subject: Re: Petition: Cancel Humanitarian Award for Jerry

> >

> >

> > I wonder how many folks here know that your insurences and government

> > benefits pay for your clinics before MDA pays for any of it {if

> > anything at all}. Jerry isn't personally paying for your

> > clinics and only in very rare circumstances does MDA funding pay for

> > them.

> >

> > I totally understand that our insurences SHOULD be billed first so

> > money goes to the biggest needs. What I dislike is how telethons

> > portray MDA as paying for things that in reality are covered by other

> > sources and not MDA.

> >

> > The only thing MDA clinic has payed for outside of my insurence in

> > the past 22 years is an occasional parking discount cupon while I'm

> > at their clinics.

> >

> > In 2003 I was refused by MDA any help for a back brace that my

> > medicaid wasn't covering at the time. MDA told me only braces to walk

> > were covered. Mean while the telethon holds up back braces during

> > appeals for donations every year.

> >

> > As far as funding that MDA does cover- To me the credit and gratitude

> > belongs to the people who donate money and the workers who aren't in

> > the spotlight bafooning around and baby gaga talking to everybody

> > using a wheelchair. Those who work to help and don't do it to get on

> > stage with a captive audience every year are the ones who make MDA

> > services possible.

> >

> > As for the other questions asked to me- I say thank you many times

> > everyday and enjoy nature as well. Just because I don't worship at

> > the first church of Jerry dosen't mean I'm selfish and nature

> > hating.

> >

> > Anyone who takes a few minutes of time out of the world beyond the

> > end of their own nose, is aware of the many things I do to help make

> > the world a better place. A few of which MDA itself has given

> > recognition and awards to me for.

> >

> > I happen to visit and thank firefighters doing boot drives and as a

> > matter of fact have volunteered for MDA causes in support of things

> > like their summer camps, and support groups and other things that

> > they do fund.

> >

> > I don't hate MDA. I want the clown riding MDA's coat tail while

> > making an ass of himself to get off the stage and out of the way of

> > the people who can do the job without degrading tactics.

> >

> >

> > > > > >

> > > > > > My husband and I signed.

> > > > > >

> > > > > > I can't stand Jerry and the way the telethon portrays

> > > > people

> > > > > with any form of MD. Yes, it is horrible and yes, it kills.

> > > > > However, they never focus on the people with the diseases,

> > > > jusy 'pity

> > > > > them.' The state levels aren't much better. I was Colorado

> > > state

> > > > > poster child for several years and it really opens a 6-year-

> > olds

> > > > > eyes when your backstage at a telethon. They made me stay on

> > > > > location 1/2 the night so the audience could see how weak and

> > > tired

> > > > I

> > > > > was as inspiration to call. At one point they were

> > interviewing

> > > a

> > > > > couple where the man had ALS. They were pregnant with their

> > 3rd

> > > > > child and the interviewer was asking questions about how hard

> > it

> > > > had

> > > > > been since the husband had been 'struck with the devestating

> > > > > disease.' The MDA staff were back stage going off about how

> > that

> > > > > couple needed to stop having children since the government

> > would

> > > > have

> > > > > to support them once he was dead.

> > > > > >

> > > > > > Milinovich, SMA Type I

> > > > > > Wife to , Mommy to - 21 Months Old!

> > > > > > http://www.myspace. com/kindrana

> > > > > > http://s174. photobucket. com/albums/ w107/boramir/ ?start=0

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > ____________ _________ _________ __

> > > > > > From: Alana <alrt@>

> > > > > > @gro ups.com

> >

> > > > > > Sent: Friday, January 9, 2009 4:23:29 PM

> > > > > > Subject: Petition: Cancel Humanitarian Award for

> > > > Jerry

> > > > >

> > > > > >

> > > > > >

> > > > > > I know not everyone here will agree with the following post,

> > > but

> > > > I

> > > > > ask

> > > > > > that those of you who do agree, please sign the petition and

> > > > spread

> > > > > > the word.

> > > > > >

> > > > > > In Solidarity,

> > > > > > Alana

> > > > > >

> > > > > > Goto:

> > > > > >

> > > > > > http://www.petition online.com/ jlno2009/ petition. html

> > > > > >

> > > > > > The Academy of Motion Picture Arts and Sciences

> > > > > >

> > > > > > This petition has been launched to object to the Academy of

> > > Motion

> > > > > > Picture Arts and Sciences' announcement that it will give

> > Jerry

> > > > >

> > > > > > its Hersholt Humanitarian Award at the Awards

> > > ceremony

> > > > on

> > > > > > February 22, 2009.

> > > > > >

> > > > > > During his decades of hosting the Labor Day Telethon, Jerry

> > >

> > > > > has

> > > > > > helped to perpetuate negative, stereotypical attitudes toward

> > > > people

> > > > > > with muscular dystrophy and other disabilities. Jerry

> > and

> > > > the

> > > > > > Telethon actively promote pity as a fundraising strategy.

> > > Disabled

> > > > > > people want RESPECT and RIGHTS, not pity and charity.

> > > > > >

> > > > > > In 1990, wrote that if he had muscular dystrophy and

> > had

> > > to

> > > > > use

> > > > > > a wheelchair, he would " just have to learn to try to be good

> > at

> > > > > being

> > > > > > a half a person. " During the 1992 Telethon, he said that

> > people

> > > > with

> > > > > > MD, whom he always insists on calling " my kids, " " cannot go

> > > into

> > > > the

> > > > > > workplace. There's nothing they can do. " Comments like these

> > > have

> > > > > led

> > > > > > disability activists and our allies to protest against Jerry

> > > > .

> > > > > > We've argued that he uses the Telethon to promote pity, a

> > > > > > counterproductive emotion which undermines our social

> > equality.

> > > > > Here's

> > > > > > how responded to the Telethon protesters during a 2001

> > > > > > television interview: " Pity? You don't want to be pitied

> > because

> > > > > > you're a cripple in a wheelchair? Stay in your house! "

> > > > > >

> > > > > > Jerry has also made derogatory comments about women and

> > > gay

> > > > > men.

> > > > > > His outdated attitudes and crude remarks are dehumanizing, not

> > > > > > humanitarian.

> > > > > >

> > > > > > Therefore, we the undersigned support the actions and

> > arguments

> > > > of

> > > > > the

> > > > > > coalition group The Trouble with Jerry. We protest the

> > Academy's

> > > > > > characterization of Jerry as a " humanitarian. " And we

> > > ask

> > > > > that

> > > > > > the Academy cancel its plans to give the Hersholt

> > > > Humanitarian

> > > > > > Award.

> > > > > >

> > > > > > Sincerely,

> > > > > >

> > > > > > The Undersigned

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

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Guest guest

Guest guest

Posted
Posted

hmmm with = we

2009/1/13 Moss <lindajmoss@...>

> here with have a right to a power chair through the National Health Service

> it is not something we have to hold out a begging bowl for. this way

> disabled people get the mobility they need and it is not a matter of people

> with MD getting one rather than someone with Spina Bifida just because the

> MD group might be better at pushing the pity button on peoples purses or

> vice versa.

>

> yes it was tragic what happened to sue, and unfortunately i dont think

> english health care has a monopoly on some peoples hearts giving out even

> when under relatively minor stress

>

>

> cheers

> linda

>

> 2009/1/13 Lori G <lorig713@...>

>

>> I am not exactly sure what you are saying.

>>

>> As far as the U.K. healthcare system, I can't help but remember that our

>> Tufty Sue went into the hospital for a routine trach change and didn't come

>> out alive.

>>

>> Yes, I have high hopes for our new president. We shall see.

>>

>> L

>>

>> ________________________________

>> From: Moss <lindajmoss@... <lindajmoss%40gmail.com>>

>> <%40>

>> Sent: Monday, January 12, 2009 7:11:56 PM

>> Subject: Re: Re: Petition: Cancel Humanitarian Award for

>> Jerry

>>

>>

>> hmmm not sure i picked up any bitterness from amy. i guess i am coming to

>> this from a european perspective slightly. in england you dont have to use

>> the begging bowl of charity to get and maintain a wheelchair. so for that

>> $500 we wouldnt have to look less than whole. the price of that $500 could

>> well be enormous in other ways in terms of how society treats you and the

>> opportunites afforded you.

>>

>> maybe obama might gradually shift this into a rights issue!?!?

>>

>> cheers

>> linda

>>

>> 2009/1/13 Lori G <lorig713 (DOT) com>

>>

>> > You don't hate MDA?? You sound like you do.

>> >

>> > Clinic funding-of course your insurance should be filed first. MDA has a

>> > limited amount to spend on each person each year and should be used

>> wisely.

>> > You " totally understand " that insurance should be billed? Then why bring

>> it

>> > up as if they are doing something wrong like hoarding all the money and

>> > going on lavish spa retreats (oh wait, that was AIG...maybe you should

>> > direct your anger and bitterness toward them).

>> >

>> > I am thankful for the assistance MDA has provided to me over the years.

>> > For example, it is quite comforting to know that if my wheelchair needs

>> > repair this year (and every year), MDA will cover up to $500.00 of those

>> > costs.

>> >

>> > L

>> >

>> > ____________ _________ _________ __

>> >

>> > From: Amy <charmedcripchic <charmedcripchic% 40> >

>> > @gro ups.com <% 40groups. com>

>>

>> > Sent: Monday, January 12, 2009 5:43:44 PM

>> > Subject: Re: Petition: Cancel Humanitarian Award for Jerry

>> >

>> >

>> > I wonder how many folks here know that your insurences and government

>> > benefits pay for your clinics before MDA pays for any of it {if

>> > anything at all}. Jerry isn't personally paying for your

>> > clinics and only in very rare circumstances does MDA funding pay for

>> > them.

>> >

>> > I totally understand that our insurences SHOULD be billed first so

>> > money goes to the biggest needs. What I dislike is how telethons

>> > portray MDA as paying for things that in reality are covered by other

>> > sources and not MDA.

>> >

>> > The only thing MDA clinic has payed for outside of my insurence in

>> > the past 22 years is an occasional parking discount cupon while I'm

>> > at their clinics.

>> >

>> > In 2003 I was refused by MDA any help for a back brace that my

>> > medicaid wasn't covering at the time. MDA told me only braces to walk

>> > were covered. Mean while the telethon holds up back braces during

>> > appeals for donations every year.

>> >

>> > As far as funding that MDA does cover- To me the credit and gratitude

>> > belongs to the people who donate money and the workers who aren't in

>> > the spotlight bafooning around and baby gaga talking to everybody

>> > using a wheelchair. Those who work to help and don't do it to get on

>> > stage with a captive audience every year are the ones who make MDA

>> > services possible.

>> >

>> > As for the other questions asked to me- I say thank you many times

>> > everyday and enjoy nature as well. Just because I don't worship at

>> > the first church of Jerry dosen't mean I'm selfish and nature

>> > hating.

>> >

>> > Anyone who takes a few minutes of time out of the world beyond the

>> > end of their own nose, is aware of the many things I do to help make

>> > the world a better place. A few of which MDA itself has given

>> > recognition and awards to me for.

>> >

>> > I happen to visit and thank firefighters doing boot drives and as a

>> > matter of fact have volunteered for MDA causes in support of things

>> > like their summer camps, and support groups and other things that

>> > they do fund.

>> >

>> > I don't hate MDA. I want the clown riding MDA's coat tail while

>> > making an ass of himself to get off the stage and out of the way of

>> > the people who can do the job without degrading tactics.

>> >

>> >

>> > > > > >

>> > > > > > My husband and I signed.

>> > > > > >

>> > > > > > I can't stand Jerry and the way the telethon portrays

>> > > > people

>> > > > > with any form of MD. Yes, it is horrible and yes, it kills.

>> > > > > However, they never focus on the people with the diseases,

>> > > > jusy 'pity

>> > > > > them.' The state levels aren't much better. I was Colorado

>> > > state

>> > > > > poster child for several years and it really opens a 6-year-

>> > olds

>> > > > > eyes when your backstage at a telethon. They made me stay on

>> > > > > location 1/2 the night so the audience could see how weak and

>> > > tired

>> > > > I

>> > > > > was as inspiration to call. At one point they were

>> > interviewing

>> > > a

>> > > > > couple where the man had ALS. They were pregnant with their

>> > 3rd

>> > > > > child and the interviewer was asking questions about how hard

>> > it

>> > > > had

>> > > > > been since the husband had been 'struck with the devestating

>> > > > > disease.' The MDA staff were back stage going off about how

>> > that

>> > > > > couple needed to stop having children since the government

>> > would

>> > > > have

>> > > > > to support them once he was dead.

>> > > > > >

>> > > > > > Milinovich, SMA Type I

>> > > > > > Wife to , Mommy to - 21 Months Old!

>> > > > > > http://www.myspace. com/kindrana

>> > > > > > http://s174. photobucket. com/albums/ w107/boramir/ ?start=0

>> > > > > >

>> > > > > >

>> > > > > >

>> > > > > >

>> > > > > >

>> > > > > > ____________ _________ _________ __

>> > > > > > From: Alana <alrt@>

>> > > > > > @gro ups.com

>> >

>> > > > > > Sent: Friday, January 9, 2009 4:23:29 PM

>> > > > > > Subject: Petition: Cancel Humanitarian Award for

>> > > > Jerry

>> > > > >

>> > > > > >

>> > > > > >

>> > > > > > I know not everyone here will agree with the following post,

>> > > but

>> > > > I

>> > > > > ask

>> > > > > > that those of you who do agree, please sign the petition and

>> > > > spread

>> > > > > > the word.

>> > > > > >

>> > > > > > In Solidarity,

>> > > > > > Alana

>> > > > > >

>> > > > > > Goto:

>> > > > > >

>> > > > > > http://www.petition online.com/ jlno2009/ petition. html

>> > > > > >

>> > > > > > The Academy of Motion Picture Arts and Sciences

>> > > > > >

>> > > > > > This petition has been launched to object to the Academy of

>> > > Motion

>> > > > > > Picture Arts and Sciences' announcement that it will give

>> > Jerry

>> > > > >

>> > > > > > its Hersholt Humanitarian Award at the Awards

>> > > ceremony

>> > > > on

>> > > > > > February 22, 2009.

>> > > > > >

>> > > > > > During his decades of hosting the Labor Day Telethon, Jerry

>> > >

>> > > > > has

>> > > > > > helped to perpetuate negative, stereotypical attitudes toward

>> > > > people

>> > > > > > with muscular dystrophy and other disabilities. Jerry

>> > and

>> > > > the

>> > > > > > Telethon actively promote pity as a fundraising strategy.

>> > > Disabled

>> > > > > > people want RESPECT and RIGHTS, not pity and charity.

>> > > > > >

>> > > > > > In 1990, wrote that if he had muscular dystrophy and

>> > had

>> > > to

>> > > > > use

>> > > > > > a wheelchair, he would " just have to learn to try to be good

>> > at

>> > > > > being

>> > > > > > a half a person. " During the 1992 Telethon, he said that

>> > people

>> > > > with

>> > > > > > MD, whom he always insists on calling " my kids, " " cannot go

>> > > into

>> > > > the

>> > > > > > workplace. There's nothing they can do. " Comments like these

>> > > have

>> > > > > led

>> > > > > > disability activists and our allies to protest against Jerry

>> > > > .

>> > > > > > We've argued that he uses the Telethon to promote pity, a

>> > > > > > counterproductive emotion which undermines our social

>> > equality.

>> > > > > Here's

>> > > > > > how responded to the Telethon protesters during a 2001

>> > > > > > television interview: " Pity? You don't want to be pitied

>> > because

>> > > > > > you're a cripple in a wheelchair? Stay in your house! "

>> > > > > >

>> > > > > > Jerry has also made derogatory comments about women and

>> > > gay

>> > > > > men.

>> > > > > > His outdated attitudes and crude remarks are dehumanizing, not

>> > > > > > humanitarian.

>> > > > > >

>> > > > > > Therefore, we the undersigned support the actions and

>> > arguments

>> > > > of

>> > > > > the

>> > > > > > coalition group The Trouble with Jerry. We protest the

>> > Academy's

>> > > > > > characterization of Jerry as a " humanitarian. " And we

>> > > ask

>> > > > > that

>> > > > > > the Academy cancel its plans to give the Hersholt

>> > > > Humanitarian

>> > > > > > Award.

>> > > > > >

>> > > > > > Sincerely,

>> > > > > >

>> > > > > > The Undersigned

>> > > > > >

>> > > > > >

>> > > > > >

>> > > > > >

>> > > > > >

>> > > > > >

>> > > > > >

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Share on other sites
Guest guest

Guest guest

Posted
Posted

I agree completely with nationalized health care.  I hope our new

administration can put something in place that allows for quality health care

for our citizens.

L

________________________________

From: Moss <lindajmoss@...>

Sent: Monday, January 12, 2009 7:42:16 PM

Subject: Re: Re: Petition: Cancel Humanitarian Award for Jerry

here with have a right to a power chair through the National Health Service

it is not something we have to hold out a begging bowl for. this way

disabled people get the mobility they need and it is not a matter of people

with MD getting one rather than someone with Spina Bifida just because the

MD group might be better at pushing the pity button on peoples purses or

vice versa.

yes it was tragic what happened to sue, and unfortunately i dont think

english health care has a monopoly on some peoples hearts giving out even

when under relatively minor stress

cheers

linda

2009/1/13 Lori G <lorig713 (DOT) com>

> I am not exactly sure what you are saying.

>

> As far as the U.K. healthcare system, I can't help but remember that our

> Tufty Sue went into the hospital for a routine trach change and didn't come

> out alive.

>

> Yes, I have high hopes for our new president. We shall see.

>

> L

>

> ____________ _________ _________ __

> From: Moss <lindajmossgmail (DOT) com <lindajmoss% 40gmail.com> >

> @gro ups.com <% 40groups. com>

> Sent: Monday, January 12, 2009 7:11:56 PM

> Subject: Re: Re: Petition: Cancel Humanitarian Award for Jerry

>

>

>

> hmmm not sure i picked up any bitterness from amy. i guess i am coming to

> this from a european perspective slightly. in england you dont have to use

> the begging bowl of charity to get and maintain a wheelchair. so for that

> $500 we wouldnt have to look less than whole. the price of that $500 could

> well be enormous in other ways in terms of how society treats you and the

> opportunites afforded you.

>

> maybe obama might gradually shift this into a rights issue!?!?

>

> cheers

> linda

>

> 2009/1/13 Lori G <lorig713 (DOT) com>

>

> > You don't hate MDA?? You sound like you do.

> >

> > Clinic funding-of course your insurance should be filed first. MDA has a

> > limited amount to spend on each person each year and should be used

> wisely.

> > You " totally understand " that insurance should be billed? Then why bring

> it

> > up as if they are doing something wrong like hoarding all the money and

> > going on lavish spa retreats (oh wait, that was AIG...maybe you should

> > direct your anger and bitterness toward them).

> >

> > I am thankful for the assistance MDA has provided to me over the years.

> > For example, it is quite comforting to know that if my wheelchair needs

> > repair this year (and every year), MDA will cover up to $500.00 of those

> > costs.

> >

> > L

> >

> > ____________ _________ _________ __

> >

> > From: Amy <charmedcripchic <charmedcripchic% 40> >

> > @gro ups.com <% 40groups. com>

>

> > Sent: Monday, January 12, 2009 5:43:44 PM

> > Subject: Re: Petition: Cancel Humanitarian Award for Jerry

> >

> >

> > I wonder how many folks here know that your insurences and government

> > benefits pay for your clinics before MDA pays for any of it {if

> > anything at all}. Jerry isn't personally paying for your

> > clinics and only in very rare circumstances does MDA funding pay for

> > them.

> >

> > I totally understand that our insurences SHOULD be billed first so

> > money goes to the biggest needs. What I dislike is how telethons

> > portray MDA as paying for things that in reality are covered by other

> > sources and not MDA.

> >

> > The only thing MDA clinic has payed for outside of my insurence in

> > the past 22 years is an occasional parking discount cupon while I'm

> > at their clinics.

> >

> > In 2003 I was refused by MDA any help for a back brace that my

> > medicaid wasn't covering at the time. MDA told me only braces to walk

> > were covered. Mean while the telethon holds up back braces during

> > appeals for donations every year.

> >

> > As far as funding that MDA does cover- To me the credit and gratitude

> > belongs to the people who donate money and the workers who aren't in

> > the spotlight bafooning around and baby gaga talking to everybody

> > using a wheelchair. Those who work to help and don't do it to get on

> > stage with a captive audience every year are the ones who make MDA

> > services possible.

> >

> > As for the other questions asked to me- I say thank you many times

> > everyday and enjoy nature as well. Just because I don't worship at

> > the first church of Jerry dosen't mean I'm selfish and nature

> > hating.

> >

> > Anyone who takes a few minutes of time out of the world beyond the

> > end of their own nose, is aware of the many things I do to help make

> > the world a better place. A few of which MDA itself has given

> > recognition and awards to me for.

> >

> > I happen to visit and thank firefighters doing boot drives and as a

> > matter of fact have volunteered for MDA causes in support of things

> > like their summer camps, and support groups and other things that

> > they do fund.

> >

> > I don't hate MDA. I want the clown riding MDA's coat tail while

> > making an ass of himself to get off the stage and out of the way of

> > the people who can do the job without degrading tactics.

> >

> >

> > > > > >

> > > > > > My husband and I signed.

> > > > > >

> > > > > > I can't stand Jerry and the way the telethon portrays

> > > > people

> > > > > with any form of MD. Yes, it is horrible and yes, it kills.

> > > > > However, they never focus on the people with the diseases,

> > > > jusy 'pity

> > > > > them.' The state levels aren't much better. I was Colorado

> > > state

> > > > > poster child for several years and it really opens a 6-year-

> > olds

> > > > > eyes when your backstage at a telethon. They made me stay on

> > > > > location 1/2 the night so the audience could see how weak and

> > > tired

> > > > I

> > > > > was as inspiration to call. At one point they were

> > interviewing

> > > a

> > > > > couple where the man had ALS. They were pregnant with their

> > 3rd

> > > > > child and the interviewer was asking questions about how hard

> > it

> > > > had

> > > > > been since the husband had been 'struck with the devestating

> > > > > disease.' The MDA staff were back stage going off about how

> > that

> > > > > couple needed to stop having children since the government

> > would

> > > > have

> > > > > to support them once he was dead.

> > > > > >

> > > > > > Milinovich, SMA Type I

> > > > > > Wife to , Mommy to - 21 Months Old!

> > > > > > http://www.myspace. com/kindrana

> > > > > > http://s174. photobucket. com/albums/ w107/boramir/ ?start=0

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > ____________ _________ _________ __

> > > > > > From: Alana <alrt@>

> > > > > > @gro ups.com

> >

> > > > > > Sent: Friday, January 9, 2009 4:23:29 PM

> > > > > > Subject: Petition: Cancel Humanitarian Award for

> > > > Jerry

> > > > >

> > > > > >

> > > > > >

> > > > > > I know not everyone here will agree with the following post,

> > > but

> > > > I

> > > > > ask

> > > > > > that those of you who do agree, please sign the petition and

> > > > spread

> > > > > > the word.

> > > > > >

> > > > > > In Solidarity,

> > > > > > Alana

> > > > > >

> > > > > > Goto:

> > > > > >

> > > > > > http://www.petition online.com/ jlno2009/ petition. html

> > > > > >

> > > > > > The Academy of Motion Picture Arts and Sciences

> > > > > >

> > > > > > This petition has been launched to object to the Academy of

> > > Motion

> > > > > > Picture Arts and Sciences' announcement that it will give

> > Jerry

> > > > >

> > > > > > its Hersholt Humanitarian Award at the Awards

> > > ceremony

> > > > on

> > > > > > February 22, 2009.

> > > > > >

> > > > > > During his decades of hosting the Labor Day Telethon, Jerry

> > >

> > > > > has

> > > > > > helped to perpetuate negative, stereotypical attitudes toward

> > > > people

> > > > > > with muscular dystrophy and other disabilities. Jerry

> > and

> > > > the

> > > > > > Telethon actively promote pity as a fundraising strategy.

> > > Disabled

> > > > > > people want RESPECT and RIGHTS, not pity and charity.

> > > > > >

> > > > > > In 1990, wrote that if he had muscular dystrophy and

> > had

> > > to

> > > > > use

> > > > > > a wheelchair, he would " just have to learn to try to be good

> > at

> > > > > being

> > > > > > a half a person. " During the 1992 Telethon, he said that

> > people

> > > > with

> > > > > > MD, whom he always insists on calling " my kids, " " cannot go

> > > into

> > > > the

> > > > > > workplace. There's nothing they can do. " Comments like these

> > > have

> > > > > led

> > > > > > disability activists and our allies to protest against Jerry

> > > > .

> > > > > > We've argued that he uses the Telethon to promote pity, a

> > > > > > counterproductive emotion which undermines our social

> > equality.

> > > > > Here's

> > > > > > how responded to the Telethon protesters during a 2001

> > > > > > television interview: " Pity? You don't want to be pitied

> > because

> > > > > > you're a cripple in a wheelchair? Stay in your house! "

> > > > > >

> > > > > > Jerry has also made derogatory comments about women and

> > > gay

> > > > > men.

> > > > > > His outdated attitudes and crude remarks are dehumanizing, not

> > > > > > humanitarian.

> > > > > >

> > > > > > Therefore, we the undersigned support the actions and

> > arguments

> > > > of

> > > > > the

> > > > > > coalition group The Trouble with Jerry. We protest the

> > Academy's

> > > > > > characterization of Jerry as a " humanitarian. " And we

> > > ask

> > > > > that

> > > > > > the Academy cancel its plans to give the Hersholt

> > > > Humanitarian

> > > > > > Award.

> > > > > >

> > > > > > Sincerely,

> > > > > >

> > > > > > The Undersigned

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

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Posted
Posted

I had no insurance and no government pay at the time when the MDA paid for all

my doctor visits and meds and tests. they also also helped me buy a portable

electric wheelchair during that time.

From: Amy <charmedcripchic@...>

Subject: Re: Petition: Cancel Humanitarian Award for Jerry

Date: Monday, January 12, 2009, 3:43 PM

I wonder how many folks here know that your insurences and government

benefits pay for your clinics before MDA pays for any of it {if

anything at all}.  Jerry isn't personally paying for your

clinics and only in very rare circumstances does MDA funding pay for

them.

I totally understand that our insurences SHOULD be billed first so

money goes to the biggest needs.  What I dislike is how telethons

portray MDA as paying for things that in reality are covered by other

sources and not MDA.

The only thing MDA clinic has payed for outside of my insurence in

the past 22 years is an occasional parking discount cupon while I'm

at their clinics.

In 2003 I was refused by MDA any help for a back brace that my

medicaid wasn't covering at the time. MDA told me only braces to walk

were covered.  Mean while the telethon holds up back braces during

appeals for donations every year.

As far as funding that MDA does cover- To me the credit and gratitude

belongs to the people who donate money and the workers who aren't in

the spotlight bafooning around and baby gaga talking to everybody

using a wheelchair.  Those who work to help and don't do it to get on

stage with a captive audience every year are the ones who make MDA

services possible. 

As for the other questions asked to me- I say thank you many times

everyday and enjoy nature as well.  Just because I don't worship at

the first church of Jerry dosen't mean I'm selfish and nature

hating.

Anyone who takes a few minutes of time out of the world beyond the

end of their own nose, is aware of the many things I do to help make

the world a better place.  A few of which MDA itself has given   

recognition and awards to me for.

I happen to visit and thank firefighters doing boot drives and as a

matter of fact have volunteered for MDA causes in support of things

like their summer camps, and support groups and other things that

they do fund.

I don't hate MDA.  I want the clown riding MDA's coat tail while

making an ass of himself to get off the stage and out of the way of

the people who can do the job without degrading tactics.

> > > >

> > > > My husband and I signed.

> > > >

> > > > I can't stand Jerry and the way the telethon portrays

> > people

> > > with any form of MD.  Yes, it is horrible and yes, it kills. 

> > > However, they never focus on the people with the diseases,

> > jusy 'pity

> > > them.'  The state levels aren't much better.  I was Colorado

> state

> > > poster child for several years and it really opens a 6-year-

olds

> > > eyes when your backstage at a telethon.  They made me stay on

> > > location 1/2 the night so the audience could see how weak and

> tired

> > I

> > > was as inspiration to call.  At one point they were

interviewing

> a

> > > couple where the man had ALS.  They were pregnant with their

3rd

> > > child and the interviewer was asking questions about how hard

it

> > had

> > > been since the husband had been 'struck with the devestating

> > > disease.'  The MDA staff were back stage going off about how

that

> > > couple needed to stop having children since the government

would

> > have

> > > to support them once he was dead.

> > > >  

> > > > Milinovich, SMA Type I

> > > > Wife to , Mommy to - 21 Months Old!

> > > > http://www.myspace.com/kindrana 

> > > > http://s174.photobucket.com/albums/w107/boramir/?start=0

> > > >  

> > > >

> > > >

> > > >

> > > >

> > > > ________________________________

> > > > From: Alana <alrt@>

> > > >

> > > > Sent: Friday, January 9, 2009 4:23:29 PM

> > > > Subject: Petition: Cancel Humanitarian Award for

> > Jerry

> > >

> > > >

> > > >

> > > > I know not everyone here will agree with the following post,

> but

> > I

> > > ask

> > > > that those of you who do agree, please sign the petition and

> > spread

> > > > the word.

> > > >

> > > > In Solidarity,

> > > > Alana

> > > >

> > > > Goto:

> > > >

> > > > http://www.petition online.com/ jlno2009/ petition. html

> > > >

> > > > The Academy of Motion Picture Arts and Sciences

> > > >

> > > > This petition has been launched to object to the Academy of

> Motion

> > > > Picture Arts and Sciences' announcement that it will give

Jerry

> > >

> > > > its Hersholt Humanitarian Award at the Awards

> ceremony

> > on

> > > > February 22, 2009.

> > > >

> > > > During his decades of hosting the Labor Day Telethon, Jerry

>

> > > has

> > > > helped to perpetuate negative, stereotypical attitudes toward

> > people

> > > > with muscular dystrophy and other disabilities. Jerry

and

> > the

> > > > Telethon actively promote pity as a fundraising strategy.

> Disabled

> > > > people want RESPECT and RIGHTS, not pity and charity.

> > > >

> > > > In 1990, wrote that if he had muscular dystrophy and

had

> to

> > > use

> > > > a wheelchair, he would " just have to learn to try to be good

at

> > > being

> > > > a half a person. " During the 1992 Telethon, he said that

people

> > with

> > > > MD, whom he always insists on calling " my kids, " " cannot go

> into

> > the

> > > > workplace. There's nothing they can do. " Comments like these

> have

> > > led

> > > > disability activists and our allies to protest against Jerry

> > .

> > > > We've argued that he uses the Telethon to promote pity, a

> > > > counterproductive emotion which undermines our social

equality.

> > > Here's

> > > > how responded to the Telethon protesters during a 2001

> > > > television interview: " Pity? You don't want to be pitied

because

> > > > you're a cripple in a wheelchair? Stay in your house! "

> > > >

> > > > Jerry has also made derogatory comments about women and

> gay

> > > men.

> > > > His outdated attitudes and crude remarks are dehumanizing, not

> > > > humanitarian.

> > > >

> > > > Therefore, we the undersigned support the actions and

arguments

> > of

> > > the

> > > > coalition group The Trouble with Jerry. We protest the

Academy's

> > > > characterization of Jerry as a " humanitarian. " And we

> ask

> > > that

> > > > the Academy cancel its plans to give the Hersholt

> > Humanitarian

> > > > Award.

> > > >

> > > > Sincerely,

> > > >

> > > > The Undersigned

> > > >

> > > > 

> > > >

> > > >

> > > >       

> > > >

> > > >

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Guest guest

Guest guest

Posted
Posted

yes then hopefully as that develops it could free up organisations like the

MDA from actually trying to met basic needs. then it could focus

on campaigning, and advocacy and information services to enable disabled

people to be active citizens.

go obama!

cheers

linda

2009/1/13 Lori G <lorig713@...>

> I agree completely with nationalized health care. I hope our new

> administration can put something in place that allows for quality health

> care for our citizens.

>

>

> L

>

> ________________________________

> From: Moss <lindajmoss@... <lindajmoss%40gmail.com>>

> <%40>

> Sent: Monday, January 12, 2009 7:42:16 PM

> Subject: Re: Re: Petition: Cancel Humanitarian Award for Jerry

>

>

> here with have a right to a power chair through the National Health Service

> it is not something we have to hold out a begging bowl for. this way

> disabled people get the mobility they need and it is not a matter of people

> with MD getting one rather than someone with Spina Bifida just because the

> MD group might be better at pushing the pity button on peoples purses or

> vice versa.

>

> yes it was tragic what happened to sue, and unfortunately i dont think

> english health care has a monopoly on some peoples hearts giving out even

> when under relatively minor stress

>

> cheers

> linda

>

> 2009/1/13 Lori G <lorig713 (DOT) com>

>

> > I am not exactly sure what you are saying.

> >

> > As far as the U.K. healthcare system, I can't help but remember that our

> > Tufty Sue went into the hospital for a routine trach change and didn't

> come

> > out alive.

> >

> > Yes, I have high hopes for our new president. We shall see.

> >

> > L

> >

> > ____________ _________ _________ __

> > From: Moss <lindajmossgmail (DOT) com <lindajmoss% 40gmail.com> >

>

> > @gro ups.com <% 40groups. com>

> > Sent: Monday, January 12, 2009 7:11:56 PM

> > Subject: Re: Re: Petition: Cancel Humanitarian Award for

> Jerry

> >

> >

> >

> > hmmm not sure i picked up any bitterness from amy. i guess i am coming to

> > this from a european perspective slightly. in england you dont have to

> use

> > the begging bowl of charity to get and maintain a wheelchair. so for that

> > $500 we wouldnt have to look less than whole. the price of that $500

> could

> > well be enormous in other ways in terms of how society treats you and the

> > opportunites afforded you.

> >

> > maybe obama might gradually shift this into a rights issue!?!?

> >

> > cheers

> > linda

> >

> > 2009/1/13 Lori G <lorig713 (DOT) com>

> >

> > > You don't hate MDA?? You sound like you do.

> > >

> > > Clinic funding-of course your insurance should be filed first. MDA has

> a

> > > limited amount to spend on each person each year and should be used

> > wisely.

> > > You " totally understand " that insurance should be billed? Then why

> bring

> > it

> > > up as if they are doing something wrong like hoarding all the money and

> > > going on lavish spa retreats (oh wait, that was AIG...maybe you should

> > > direct your anger and bitterness toward them).

> > >

> > > I am thankful for the assistance MDA has provided to me over the years.

> > > For example, it is quite comforting to know that if my wheelchair needs

> > > repair this year (and every year), MDA will cover up to $500.00 of

> those

> > > costs.

> > >

> > > L

> > >

> > > ____________ _________ _________ __

> > >

> > > From: Amy <charmedcripchic <charmedcripchic% 40> >

> > > @gro ups.com <% 40groups. com>

> >

> > > Sent: Monday, January 12, 2009 5:43:44 PM

> > > Subject: Re: Petition: Cancel Humanitarian Award for Jerry

> > >

> > >

> > > I wonder how many folks here know that your insurences and government

> > > benefits pay for your clinics before MDA pays for any of it {if

> > > anything at all}. Jerry isn't personally paying for your

> > > clinics and only in very rare circumstances does MDA funding pay for

> > > them.

> > >

> > > I totally understand that our insurences SHOULD be billed first so

> > > money goes to the biggest needs. What I dislike is how telethons

> > > portray MDA as paying for things that in reality are covered by other

> > > sources and not MDA.

> > >

> > > The only thing MDA clinic has payed for outside of my insurence in

> > > the past 22 years is an occasional parking discount cupon while I'm

> > > at their clinics.

> > >

> > > In 2003 I was refused by MDA any help for a back brace that my

> > > medicaid wasn't covering at the time. MDA told me only braces to walk

> > > were covered. Mean while the telethon holds up back braces during

> > > appeals for donations every year.

> > >

> > > As far as funding that MDA does cover- To me the credit and gratitude

> > > belongs to the people who donate money and the workers who aren't in

> > > the spotlight bafooning around and baby gaga talking to everybody

> > > using a wheelchair. Those who work to help and don't do it to get on

> > > stage with a captive audience every year are the ones who make MDA

> > > services possible.

> > >

> > > As for the other questions asked to me- I say thank you many times

> > > everyday and enjoy nature as well. Just because I don't worship at

> > > the first church of Jerry dosen't mean I'm selfish and nature

> > > hating.

> > >

> > > Anyone who takes a few minutes of time out of the world beyond the

> > > end of their own nose, is aware of the many things I do to help make

> > > the world a better place. A few of which MDA itself has given

> > > recognition and awards to me for.

> > >

> > > I happen to visit and thank firefighters doing boot drives and as a

> > > matter of fact have volunteered for MDA causes in support of things

> > > like their summer camps, and support groups and other things that

> > > they do fund.

> > >

> > > I don't hate MDA. I want the clown riding MDA's coat tail while

> > > making an ass of himself to get off the stage and out of the way of

> > > the people who can do the job without degrading tactics.

> > >

> > >

> > > > > > >

> > > > > > > My husband and I signed.

> > > > > > >

> > > > > > > I can't stand Jerry and the way the telethon portrays

> > > > > people

> > > > > > with any form of MD. Yes, it is horrible and yes, it kills.

> > > > > > However, they never focus on the people with the diseases,

> > > > > jusy 'pity

> > > > > > them.' The state levels aren't much better. I was Colorado

> > > > state

> > > > > > poster child for several years and it really opens a 6-year-

> > > olds

> > > > > > eyes when your backstage at a telethon. They made me stay on

> > > > > > location 1/2 the night so the audience could see how weak and

> > > > tired

> > > > > I

> > > > > > was as inspiration to call. At one point they were

> > > interviewing

> > > > a

> > > > > > couple where the man had ALS. They were pregnant with their

> > > 3rd

> > > > > > child and the interviewer was asking questions about how hard

> > > it

> > > > > had

> > > > > > been since the husband had been 'struck with the devestating

> > > > > > disease.' The MDA staff were back stage going off about how

> > > that

> > > > > > couple needed to stop having children since the government

> > > would

> > > > > have

> > > > > > to support them once he was dead.

> > > > > > >

> > > > > > > Milinovich, SMA Type I

> > > > > > > Wife to , Mommy to - 21 Months Old!

> > > > > > > http://www.myspace. com/kindrana

> > > > > > > http://s174. photobucket. com/albums/ w107/boramir/ ?start=0

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > ____________ _________ _________ __

> > > > > > > From: Alana <alrt@>

> > > > > > > @gro ups.com

> > >

> > > > > > > Sent: Friday, January 9, 2009 4:23:29 PM

> > > > > > > Subject: Petition: Cancel Humanitarian Award for

> > > > > Jerry

> > > > > >

> > > > > > >

> > > > > > >

> > > > > > > I know not everyone here will agree with the following post,

> > > > but

> > > > > I

> > > > > > ask

> > > > > > > that those of you who do agree, please sign the petition and

> > > > > spread

> > > > > > > the word.

> > > > > > >

> > > > > > > In Solidarity,

> > > > > > > Alana

> > > > > > >

> > > > > > > Goto:

> > > > > > >

> > > > > > > http://www.petition online.com/ jlno2009/ petition. html

> > > > > > >

> > > > > > > The Academy of Motion Picture Arts and Sciences

> > > > > > >

> > > > > > > This petition has been launched to object to the Academy of

> > > > Motion

> > > > > > > Picture Arts and Sciences' announcement that it will give

> > > Jerry

> > > > > >

> > > > > > > its Hersholt Humanitarian Award at the Awards

> > > > ceremony

> > > > > on

> > > > > > > February 22, 2009.

> > > > > > >

> > > > > > > During his decades of hosting the Labor Day Telethon, Jerry

> > > >

> > > > > > has

> > > > > > > helped to perpetuate negative, stereotypical attitudes toward

> > > > > people

> > > > > > > with muscular dystrophy and other disabilities. Jerry

> > > and

> > > > > the

> > > > > > > Telethon actively promote pity as a fundraising strategy.

> > > > Disabled

> > > > > > > people want RESPECT and RIGHTS, not pity and charity.

> > > > > > >

> > > > > > > In 1990, wrote that if he had muscular dystrophy and

> > > had

> > > > to

> > > > > > use

> > > > > > > a wheelchair, he would " just have to learn to try to be good

> > > at

> > > > > > being

> > > > > > > a half a person. " During the 1992 Telethon, he said that

> > > people

> > > > > with

> > > > > > > MD, whom he always insists on calling " my kids, " " cannot go

> > > > into

> > > > > the

> > > > > > > workplace. There's nothing they can do. " Comments like these

> > > > have

> > > > > > led

> > > > > > > disability activists and our allies to protest against Jerry

> > > > > .

> > > > > > > We've argued that he uses the Telethon to promote pity, a

> > > > > > > counterproductive emotion which undermines our social

> > > equality.

> > > > > > Here's

> > > > > > > how responded to the Telethon protesters during a 2001

> > > > > > > television interview: " Pity? You don't want to be pitied

> > > because

> > > > > > > you're a cripple in a wheelchair? Stay in your house! "

> > > > > > >

> > > > > > > Jerry has also made derogatory comments about women and

> > > > gay

> > > > > > men.

> > > > > > > His outdated attitudes and crude remarks are dehumanizing, not

> > > > > > > humanitarian.

> > > > > > >

> > > > > > > Therefore, we the undersigned support the actions and

> > > arguments

> > > > > of

> > > > > > the

> > > > > > > coalition group The Trouble with Jerry. We protest the

> > > Academy's

> > > > > > > characterization of Jerry as a " humanitarian. " And we

> > > > ask

> > > > > > that

> > > > > > > the Academy cancel its plans to give the Hersholt

> > > > > Humanitarian

> > > > > > > Award.

> > > > > > >

> > > > > > > Sincerely,

> > > > > > >

> > > > > > > The Undersigned

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

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Guest guest

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Posted
Posted

I go to the MDA clinic on a regular basis. I have had my fair share

of bad doctor's appointments. However, I have never had a bad

experience at the clinic. The doctor and staff that I see have always

been respectful and NEVER made me feel " less than " .

> > > > >

> > > > > My husband and I signed.

> > > > >

> > > > > I can't stand Jerry and the way the telethon portrays

> > > people

> > > > with any form of MD.  Yes, it is horrible and yes, it kills. 

> > > > However, they never focus on the people with the diseases,

> > > jusy 'pity

> > > > them.'  The state levels aren't much better.  I was Colorado

> > state

> > > > poster child for several years and it really opens a 6-year-

> olds

> > > > eyes when your backstage at a telethon.  They made me stay on

> > > > location 1/2 the night so the audience could see how weak and

> > tired

> > > I

> > > > was as inspiration to call.  At one point they were

> interviewing

> > a

> > > > couple where the man had ALS.  They were pregnant with their

> 3rd

> > > > child and the interviewer was asking questions about how hard

> it

> > > had

> > > > been since the husband had been 'struck with the devestating

> > > > disease.'  The MDA staff were back stage going off about how

> that

> > > > couple needed to stop having children since the government

> would

> > > have

> > > > to support them once he was dead.

> > > > >  

> > > > > Milinovich, SMA Type I

> > > > > Wife to , Mommy to - 21 Months Old!

> > > > > http://www.myspace.com/kindrana 

> > > > > http://s174.photobucket.com/albums/w107/boramir/?start=0

> > > > >  

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ________________________________

> > > > > From: Alana <alrt@>

> > > > >

> > > > > Sent: Friday, January 9, 2009 4:23:29 PM

> > > > > Subject: Petition: Cancel Humanitarian Award for

> > > Jerry

> > > >

> > > > >

> > > > >

> > > > > I know not everyone here will agree with the following post,

> > but

> > > I

> > > > ask

> > > > > that those of you who do agree, please sign the petition and

> > > spread

> > > > > the word.

> > > > >

> > > > > In Solidarity,

> > > > > Alana

> > > > >

> > > > > Goto:

> > > > >

> > > > > http://www.petition online.com/ jlno2009/ petition. html

> > > > >

> > > > > The Academy of Motion Picture Arts and Sciences

> > > > >

> > > > > This petition has been launched to object to the Academy of

> > Motion

> > > > > Picture Arts and Sciences' announcement that it will give

> Jerry

> > > >

> > > > > its Hersholt Humanitarian Award at the Awards

> > ceremony

> > > on

> > > > > February 22, 2009.

> > > > >

> > > > > During his decades of hosting the Labor Day Telethon, Jerry

> >

> > > > has

> > > > > helped to perpetuate negative, stereotypical attitudes toward

> > > people

> > > > > with muscular dystrophy and other disabilities. Jerry

> and

> > > the

> > > > > Telethon actively promote pity as a fundraising strategy.

> > Disabled

> > > > > people want RESPECT and RIGHTS, not pity and charity.

> > > > >

> > > > > In 1990, wrote that if he had muscular dystrophy and

> had

> > to

> > > > use

> > > > > a wheelchair, he would " just have to learn to try to be good

> at

> > > > being

> > > > > a half a person. " During the 1992 Telethon, he said that

> people

> > > with

> > > > > MD, whom he always insists on calling " my kids, " " cannot go

> > into

> > > the

> > > > > workplace. There's nothing they can do. " Comments like these

> > have

> > > > led

> > > > > disability activists and our allies to protest against Jerry

> > > .

> > > > > We've argued that he uses the Telethon to promote pity, a

> > > > > counterproductive emotion which undermines our social

> equality.

> > > > Here's

> > > > > how responded to the Telethon protesters during a 2001

> > > > > television interview: " Pity? You don't want to be pitied

> because

> > > > > you're a cripple in a wheelchair? Stay in your house! "

> > > > >

> > > > > Jerry has also made derogatory comments about women and

> > gay

> > > > men.

> > > > > His outdated attitudes and crude remarks are dehumanizing, not

> > > > > humanitarian.

> > > > >

> > > > > Therefore, we the undersigned support the actions and

> arguments

> > > of

> > > > the

> > > > > coalition group The Trouble with Jerry. We protest the

> Academy's

> > > > > characterization of Jerry as a " humanitarian. " And we

> > ask

> > > > that

> > > > > the Academy cancel its plans to give the Hersholt

> > > Humanitarian

> > > > > Award.

> > > > >

> > > > > Sincerely,

> > > > >

> > > > > The Undersigned

> > > > >

> > > > > 

> > > > >

> > > > >

> > > > >       

> > > > >

> > > > >

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Guest guest

Guest guest

Posted
Posted

I hope you're right

> > > > > >

> > > > > > My husband and I signed.

> > > > > >

> > > > > > I can't stand Jerry and the way the telethon

portrays

> > > > people

> > > > > with any form of MD. Yes, it is horrible and yes, it kills.

> > > > > However, they never focus on the people with the diseases,

> > > > jusy 'pity

> > > > > them.' The state levels aren't much better. I was Colorado

> > > state

> > > > > poster child for several years and it really opens a 6-year-

> > olds

> > > > > eyes when your backstage at a telethon. They made me stay

on

> > > > > location 1/2 the night so the audience could see how weak

and

> > > tired

> > > > I

> > > > > was as inspiration to call. At one point they were

> > interviewing

> > > a

> > > > > couple where the man had ALS. They were pregnant with their

> > 3rd

> > > > > child and the interviewer was asking questions about how

hard

> > it

> > > > had

> > > > > been since the husband had been 'struck with the devestating

> > > > > disease.' The MDA staff were back stage going off about how

> > that

> > > > > couple needed to stop having children since the government

> > would

> > > > have

> > > > > to support them once he was dead.

> > > > > >

> > > > > > Milinovich, SMA Type I

> > > > > > Wife to , Mommy to - 21 Months Old!

> > > > > > http://www.myspace. com/kindrana

> > > > > > http://s174. photobucket. com/albums/ w107/boramir/ ?

start=0

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > ____________ _________ _________ __

> > > > > > From: Alana <alrt@>

> > > > > > @gro ups.com

> >

> > > > > > Sent: Friday, January 9, 2009 4:23:29 PM

> > > > > > Subject: Petition: Cancel Humanitarian Award

for

> > > > Jerry

> > > > >

> > > > > >

> > > > > >

> > > > > > I know not everyone here will agree with the following

post,

> > > but

> > > > I

> > > > > ask

> > > > > > that those of you who do agree, please sign the petition

and

> > > > spread

> > > > > > the word.

> > > > > >

> > > > > > In Solidarity,

> > > > > > Alana

> > > > > >

> > > > > > Goto:

> > > > > >

> > > > > > http://www.petition online.com/ jlno2009/ petition. html

> > > > > >

> > > > > > The Academy of Motion Picture Arts and Sciences

> > > > > >

> > > > > > This petition has been launched to object to the Academy

of

> > > Motion

> > > > > > Picture Arts and Sciences' announcement that it will give

> > Jerry

> > > > >

> > > > > > its Hersholt Humanitarian Award at the Awards

> > > ceremony

> > > > on

> > > > > > February 22, 2009.

> > > > > >

> > > > > > During his decades of hosting the Labor Day Telethon,

Jerry

> > >

> > > > > has

> > > > > > helped to perpetuate negative, stereotypical attitudes

toward

> > > > people

> > > > > > with muscular dystrophy and other disabilities. Jerry

> > and

> > > > the

> > > > > > Telethon actively promote pity as a fundraising strategy.

> > > Disabled

> > > > > > people want RESPECT and RIGHTS, not pity and charity.

> > > > > >

> > > > > > In 1990, wrote that if he had muscular dystrophy and

> > had

> > > to

> > > > > use

> > > > > > a wheelchair, he would " just have to learn to try to be

good

> > at

> > > > > being

> > > > > > a half a person. " During the 1992 Telethon, he said that

> > people

> > > > with

> > > > > > MD, whom he always insists on calling " my kids, " " cannot

go

> > > into

> > > > the

> > > > > > workplace. There's nothing they can do. " Comments like

these

> > > have

> > > > > led

> > > > > > disability activists and our allies to protest against

Jerry

> > > > .

> > > > > > We've argued that he uses the Telethon to promote pity, a

> > > > > > counterproductive emotion which undermines our social

> > equality.

> > > > > Here's

> > > > > > how responded to the Telethon protesters during a

2001

> > > > > > television interview: " Pity? You don't want to be pitied

> > because

> > > > > > you're a cripple in a wheelchair? Stay in your house! "

> > > > > >

> > > > > > Jerry has also made derogatory comments about women

and

> > > gay

> > > > > men.

> > > > > > His outdated attitudes and crude remarks are

dehumanizing, not

> > > > > > humanitarian.

> > > > > >

> > > > > > Therefore, we the undersigned support the actions and

> > arguments

> > > > of

> > > > > the

> > > > > > coalition group The Trouble with Jerry. We protest the

> > Academy's

> > > > > > characterization of Jerry as a " humanitarian. " And

we

> > > ask

> > > > > that

> > > > > > the Academy cancel its plans to give the Hersholt

> > > > Humanitarian

> > > > > > Award.

> > > > > >

> > > > > > Sincerely,

> > > > > >

> > > > > > The Undersigned

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

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Guest guest

Guest guest

Posted
Posted

Lori,

I though this was a discussion board not a take no prisoners go for

the throat war zone.

I've been showing you respect and space for your own beliefs while

you personally attack me while I try have mine.

You harass me and personally attack me.

I do not do that to you.

You need to be reminded of some reasonable respect of other peoples'

boundries, feelings, and value them as human beings with other ideas

then yours.

Have an opinion without denegrating me because I might not agree with

you.

If I did happen to agree with you I don't think you'd even allow it

to go by peacefully.

Nobody here attacks you the way you personally pick and back bite and

snipe away at whoever didn't bow and worship your ideas.

So knock off the bullshit and let other people have their own

opinions.

> > > > >

> > > > > My husband and I signed.

> > > > >

> > > > > I can't stand Jerry and the way the telethon portrays

> > > people

> > > > with any form of MD.  Yes, it is horrible and yes, it kills. 

> > > > However, they never focus on the people with the diseases,

> > > jusy 'pity

> > > > them.'  The state levels aren't much better.  I was Colorado

> > state

> > > > poster child for several years and it really opens a 6-year-

> olds

> > > > eyes when your backstage at a telethon.  They made me stay on

> > > > location 1/2 the night so the audience could see how weak and

> > tired

> > > I

> > > > was as inspiration to call.  At one point they were

> interviewing

> > a

> > > > couple where the man had ALS.  They were pregnant with their

> 3rd

> > > > child and the interviewer was asking questions about how hard

> it

> > > had

> > > > been since the husband had been 'struck with the devestating

> > > > disease.'  The MDA staff were back stage going off about how

> that

> > > > couple needed to stop having children since the government

> would

> > > have

> > > > to support them once he was dead.

> > > > >  

> > > > > Milinovich, SMA Type I

> > > > > Wife to , Mommy to - 21 Months Old!

> > > > > http://www.myspace. com/kindrana 

> > > > > http://s174. photobucket. com/albums/ w107/boramir/ ?start=0

> > > > >  

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ____________ _________ _________ __

> > > > > From: Alana <alrt@>

> > > > > @gro ups.com

> > > > > Sent: Friday, January 9, 2009 4:23:29 PM

> > > > > Subject: Petition: Cancel Humanitarian Award

for

> > > Jerry

> > > >

> > > > >

> > > > >

> > > > > I know not everyone here will agree with the following

post,

> > but

> > > I

> > > > ask

> > > > > that those of you who do agree, please sign the petition

and

> > > spread

> > > > > the word.

> > > > >

> > > > > In Solidarity,

> > > > > Alana

> > > > >

> > > > > Goto:

> > > > >

> > > > > http://www.petition online.com/ jlno2009/ petition. html

> > > > >

> > > > > The Academy of Motion Picture Arts and Sciences

> > > > >

> > > > > This petition has been launched to object to the Academy of

> > Motion

> > > > > Picture Arts and Sciences' announcement that it will give

> Jerry

> > > >

> > > > > its Hersholt Humanitarian Award at the Awards

> > ceremony

> > > on

> > > > > February 22, 2009.

> > > > >

> > > > > During his decades of hosting the Labor Day Telethon, Jerry

> >

> > > > has

> > > > > helped to perpetuate negative, stereotypical attitudes

toward

> > > people

> > > > > with muscular dystrophy and other disabilities. Jerry

> and

> > > the

> > > > > Telethon actively promote pity as a fundraising strategy.

> > Disabled

> > > > > people want RESPECT and RIGHTS, not pity and charity.

> > > > >

> > > > > In 1990, wrote that if he had muscular dystrophy and

> had

> > to

> > > > use

> > > > > a wheelchair, he would " just have to learn to try to be

good

> at

> > > > being

> > > > > a half a person. " During the 1992 Telethon, he said that

> people

> > > with

> > > > > MD, whom he always insists on calling " my kids, " " cannot go

> > into

> > > the

> > > > > workplace. There's nothing they can do. " Comments like

these

> > have

> > > > led

> > > > > disability activists and our allies to protest against

Jerry

> > > .

> > > > > We've argued that he uses the Telethon to promote pity, a

> > > > > counterproductive emotion which undermines our social

> equality.

> > > > Here's

> > > > > how responded to the Telethon protesters during a 2001

> > > > > television interview: " Pity? You don't want to be pitied

> because

> > > > > you're a cripple in a wheelchair? Stay in your house! "

> > > > >

> > > > > Jerry has also made derogatory comments about women

and

> > gay

> > > > men.

> > > > > His outdated attitudes and crude remarks are dehumanizing,

not

> > > > > humanitarian.

> > > > >

> > > > > Therefore, we the undersigned support the actions and

> arguments

> > > of

> > > > the

> > > > > coalition group The Trouble with Jerry. We protest the

> Academy's

> > > > > characterization of Jerry as a " humanitarian. " And

we

> > ask

> > > > that

> > > > > the Academy cancel its plans to give the Hersholt

> > > Humanitarian

> > > > > Award.

> > > > >

> > > > > Sincerely,

> > > > >

> > > > > The Undersigned

> > > > >

> > > > > 

> > > > >

> > > > >

> > > > >       

> > > > >

> > > > >

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Guest guest

Guest guest

Posted
Posted

Isn't Lori just precious- she just fought her own escalated argument

while using the innapropriate ammunition of the death of another

SMAer who isn't here to defend the true circumstances and experiences

of her own death.

Tufty Sue was made of better stuff than you display. Tufty Sue

supported people and didn't use their deaths as a low, cheap, and

selfish, way to win an argument. Lori you should apologise to Tufty's

dignity and memory, let alone her survivors, for such insensitivity.

How do you think Tufty's loved ones feel to see her death exploited

this way.

Using Tufty Sue's death as leverage in the relentless self promotion

of your own little narrow minder back biting ways is way lower than I

thought even you would snipe Lori.

Tufty Sue's memory is worth risking my membership here. Her memory

should be honored and not exploited.

Going so far as using other people's with SMAs' deaths to hammer into

others your own petty grudges delusional of Jerry worship is

not just unreasonable it's abusive and sociopathic.

If you said the shit you just did about Tufty Sue in person you would

have earned yourself the hardest ass kicking back to your slimey

gutter snipe cage ever seen in history.

> > > > > >

> > > > > > My husband and I signed.

> > > > > >

> > > > > > I can't stand Jerry and the way the telethon

portrays

> > > > people

> > > > > with any form of MD. Yes, it is horrible and yes, it kills.

> > > > > However, they never focus on the people with the diseases,

> > > > jusy 'pity

> > > > > them.' The state levels aren't much better. I was Colorado

> > > state

> > > > > poster child for several years and it really opens a 6-year-

> > olds

> > > > > eyes when your backstage at a telethon. They made me stay on

> > > > > location 1/2 the night so the audience could see how weak

and

> > > tired

> > > > I

> > > > > was as inspiration to call. At one point they were

> > interviewing

> > > a

> > > > > couple where the man had ALS. They were pregnant with their

> > 3rd

> > > > > child and the interviewer was asking questions about how

hard

> > it

> > > > had

> > > > > been since the husband had been 'struck with the devestating

> > > > > disease.' The MDA staff were back stage going off about how

> > that

> > > > > couple needed to stop having children since the government

> > would

> > > > have

> > > > > to support them once he was dead.

> > > > > >

> > > > > > Milinovich, SMA Type I

> > > > > > Wife to , Mommy to - 21 Months Old!

> > > > > > http://www.myspace. com/kindrana

> > > > > > http://s174. photobucket. com/albums/ w107/boramir/ ?

start=0

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > ____________ _________ _________ __

> > > > > > From: Alana <alrt@>

> > > > > > @gro ups.com

> >

> > > > > > Sent: Friday, January 9, 2009 4:23:29 PM

> > > > > > Subject: Petition: Cancel Humanitarian Award

for

> > > > Jerry

> > > > >

> > > > > >

> > > > > >

> > > > > > I know not everyone here will agree with the following

post,

> > > but

> > > > I

> > > > > ask

> > > > > > that those of you who do agree, please sign the petition

and

> > > > spread

> > > > > > the word.

> > > > > >

> > > > > > In Solidarity,

> > > > > > Alana

> > > > > >

> > > > > > Goto:

> > > > > >

> > > > > > http://www.petition online.com/ jlno2009/ petition. html

> > > > > >

> > > > > > The Academy of Motion Picture Arts and Sciences

> > > > > >

> > > > > > This petition has been launched to object to the Academy

of

> > > Motion

> > > > > > Picture Arts and Sciences' announcement that it will give

> > Jerry

> > > > >

> > > > > > its Hersholt Humanitarian Award at the Awards

> > > ceremony

> > > > on

> > > > > > February 22, 2009.

> > > > > >

> > > > > > During his decades of hosting the Labor Day Telethon,

Jerry

> > >

> > > > > has

> > > > > > helped to perpetuate negative, stereotypical attitudes

toward

> > > > people

> > > > > > with muscular dystrophy and other disabilities. Jerry

> > and

> > > > the

> > > > > > Telethon actively promote pity as a fundraising strategy.

> > > Disabled

> > > > > > people want RESPECT and RIGHTS, not pity and charity.

> > > > > >

> > > > > > In 1990, wrote that if he had muscular dystrophy and

> > had

> > > to

> > > > > use

> > > > > > a wheelchair, he would " just have to learn to try to be

good

> > at

> > > > > being

> > > > > > a half a person. " During the 1992 Telethon, he said that

> > people

> > > > with

> > > > > > MD, whom he always insists on calling " my kids, " " cannot

go

> > > into

> > > > the

> > > > > > workplace. There's nothing they can do. " Comments like

these

> > > have

> > > > > led

> > > > > > disability activists and our allies to protest against

Jerry

> > > > .

> > > > > > We've argued that he uses the Telethon to promote pity, a

> > > > > > counterproductive emotion which undermines our social

> > equality.

> > > > > Here's

> > > > > > how responded to the Telethon protesters during a

2001

> > > > > > television interview: " Pity? You don't want to be pitied

> > because

> > > > > > you're a cripple in a wheelchair? Stay in your house! "

> > > > > >

> > > > > > Jerry has also made derogatory comments about women

and

> > > gay

> > > > > men.

> > > > > > His outdated attitudes and crude remarks are

dehumanizing, not

> > > > > > humanitarian.

> > > > > >

> > > > > > Therefore, we the undersigned support the actions and

> > arguments

> > > > of

> > > > > the

> > > > > > coalition group The Trouble with Jerry. We protest the

> > Academy's

> > > > > > characterization of Jerry as a " humanitarian. " And

we

> > > ask

> > > > > that

> > > > > > the Academy cancel its plans to give the Hersholt

> > > > Humanitarian

> > > > > > Award.

> > > > > >

> > > > > > Sincerely,

> > > > > >

> > > > > > The Undersigned

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

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Guest guest

Guest guest

Posted
Posted

Wait a minute! I do not always agree with Lori...or even Alana for that

matter.....but I do not condescendingly slander them in public emails. Both are

my

friends.

Have some respect for the rest of us and please be gracious. Take it in

private...okay?

Vicki

P.S. Everyone, remember the cardinal rule of debate: no character attacks!

**************Inauguration '09: Get complete coverage from the nation's

capital.

(http://news.aol.com/main/politics/inauguration?ncid=emlcntusnews00000003)

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Guest guest

Guest guest

Posted
Posted

Interesting that you talk so much about the importance of dignity and respect

for people with disabilities and then in the next keystroke use such language to

tear down a fellow member of this list.

 

I am not a person who enjoys conflict. I joined this list with the belief that

it was a forum to share information, ideas, and assist each other with problems

and concerns. I don't post much, but I do read many of the messages, and have

learned valuable information. I have also asked questions and have received a

lot of good advice. I'm not naive; I understand that we're not always going to

get along. But the venom I have seen on this list during the past two

weeks...with everything we already have to deal with in our lives, do we really

want to spend our time and energy attacking each other? I understand you feel

strongly about your position, and that's fine. But intelligent people can argue

and debate with taking it to the gutter, and I believe you are an intelligent

person, even though I don't really know you. I have enough to deal with in my

life without coming to a list that I thought was for support and exchange of

information and instead

seeing such disrespect and immaturity.  

 

Dina

 

 

From: Amy <charmedcripchic@...>

Subject: Re: Petition: Cancel Humanitarian Award for Jerry

Date: Tuesday, January 13, 2009, 11:58 PM

Isn't Lori just precious- she just fought her own escalated argument

while using the innapropriate ammunition of the death of another

SMAer who isn't here to defend the true circumstances and experiences

of her own death.

Tufty Sue was made of better stuff than you display. Tufty Sue

supported people and didn't use their deaths as a low, cheap, and

selfish, way to win an argument. Lori you should apologise to Tufty's

dignity and memory, let alone her survivors, for such insensitivity.

How do you think Tufty's loved ones feel to see her death exploited

this way.

Using Tufty Sue's death as leverage in the relentless self promotion

of your own little narrow minder back biting ways is way lower than I

thought even you would snipe Lori.

Tufty Sue's memory is worth risking my membership here. Her memory

should be honored and not exploited.

Going so far as using other people's with SMAs' deaths to hammer into

others your own petty grudges delusional of Jerry worship is

not just unreasonable it's abusive and sociopathic.

If you said the shit you just did about Tufty Sue in person you would

have earned yourself the hardest ass kicking back to your slimey

gutter snipe cage ever seen in history.

> > > > > >

> > > > > > My husband and I signed.

> > > > > >

> > > > > > I can't stand Jerry and the way the telethon

portrays

> > > > people

> > > > > with any form of MD. Yes, it is horrible and yes, it kills.

> > > > > However, they never focus on the people with the diseases,

> > > > jusy 'pity

> > > > > them.' The state levels aren't much better. I was Colorado

> > > state

> > > > > poster child for several years and it really opens a 6-year-

> > olds

> > > > > eyes when your backstage at a telethon. They made me stay on

> > > > > location 1/2 the night so the audience could see how weak

and

> > > tired

> > > > I

> > > > > was as inspiration to call. At one point they were

> > interviewing

> > > a

> > > > > couple where the man had ALS. They were pregnant with their

> > 3rd

> > > > > child and the interviewer was asking questions about how

hard

> > it

> > > > had

> > > > > been since the husband had been 'struck with the devestating

> > > > > disease.' The MDA staff were back stage going off about how

> > that

> > > > > couple needed to stop having children since the government

> > would

> > > > have

> > > > > to support them once he was dead.

> > > > > >

> > > > > > Milinovich, SMA Type I

> > > > > > Wife to , Mommy to - 21 Months Old!

> > > > > > http://www.myspace. com/kindrana

> > > > > > http://s174. photobucket. com/albums/ w107/boramir/ ?

start=0

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > > ____________ _________ _________ __

> > > > > > From: Alana <alrt@>

> > > > > > @gro ups.com

> >

> > > > > > Sent: Friday, January 9, 2009 4:23:29 PM

> > > > > > Subject: Petition: Cancel Humanitarian Award

for

> > > > Jerry

> > > > >

> > > > > >

> > > > > >

> > > > > > I know not everyone here will agree with the following

post,

> > > but

> > > > I

> > > > > ask

> > > > > > that those of you who do agree, please sign the petition

and

> > > > spread

> > > > > > the word.

> > > > > >

> > > > > > In Solidarity,

> > > > > > Alana

> > > > > >

> > > > > > Goto:

> > > > > >

> > > > > > http://www.petition online.com/ jlno2009/ petition. html

> > > > > >

> > > > > > The Academy of Motion Picture Arts and Sciences

> > > > > >

> > > > > > This petition has been launched to object to the Academy

of

> > > Motion

> > > > > > Picture Arts and Sciences' announcement that it will give

> > Jerry

> > > > >

> > > > > > its Hersholt Humanitarian Award at the Awards

> > > ceremony

> > > > on

> > > > > > February 22, 2009.

> > > > > >

> > > > > > During his decades of hosting the Labor Day Telethon,

Jerry

> > >

> > > > > has

> > > > > > helped to perpetuate negative, stereotypical attitudes

toward

> > > > people

> > > > > > with muscular dystrophy and other disabilities. Jerry

> > and

> > > > the

> > > > > > Telethon actively promote pity as a fundraising strategy.

> > > Disabled

> > > > > > people want RESPECT and RIGHTS, not pity and charity.

> > > > > >

> > > > > > In 1990, wrote that if he had muscular dystrophy and

> > had

> > > to

> > > > > use

> > > > > > a wheelchair, he would " just have to learn to try to be

good

> > at

> > > > > being

> > > > > > a half a person. " During the 1992 Telethon, he said that

> > people

> > > > with

> > > > > > MD, whom he always insists on calling " my kids, " " cannot

go

> > > into

> > > > the

> > > > > > workplace. There's nothing they can do. " Comments like

these

> > > have

> > > > > led

> > > > > > disability activists and our allies to protest against

Jerry

> > > > .

> > > > > > We've argued that he uses the Telethon to promote pity, a

> > > > > > counterproductive emotion which undermines our social

> > equality.

> > > > > Here's

> > > > > > how responded to the Telethon protesters during a

2001

> > > > > > television interview: " Pity? You don't want to be pitied

> > because

> > > > > > you're a cripple in a wheelchair? Stay in your house! "

> > > > > >

> > > > > > Jerry has also made derogatory comments about women

and

> > > gay

> > > > > men.

> > > > > > His outdated attitudes and crude remarks are

dehumanizing, not

> > > > > > humanitarian.

> > > > > >

> > > > > > Therefore, we the undersigned support the actions and

> > arguments

> > > > of

> > > > > the

> > > > > > coalition group The Trouble with Jerry. We protest the

> > Academy's

> > > > > > characterization of Jerry as a " humanitarian. " And

we

> > > ask

> > > > > that

> > > > > > the Academy cancel its plans to give the Hersholt

> > > > Humanitarian

> > > > > > Award.

> > > > > >

> > > > > > Sincerely,

> > > > > >

> > > > > > The Undersigned

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

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Guest guest

Guest guest

Posted
Posted

My feelings exactly!

> > > > > > >

> > > > > > > My husband and I signed.

> > > > > > >

> > > > > > > I can't stand Jerry and the way the telethon

> portrays

> > > > > people

> > > > > > with any form of MD. Yes, it is horrible and yes, it kills.

> > > > > > However, they never focus on the people with the diseases,

> > > > > jusy 'pity

> > > > > > them.' The state levels aren't much better. I was Colorado

> > > > state

> > > > > > poster child for several years and it really opens a 6-year-

> > > olds

> > > > > > eyes when your backstage at a telethon. They made me stay on

> > > > > > location 1/2 the night so the audience could see how weak

> and

> > > > tired

> > > > > I

> > > > > > was as inspiration to call. At one point they were

> > > interviewing

> > > > a

> > > > > > couple where the man had ALS. They were pregnant with their

> > > 3rd

> > > > > > child and the interviewer was asking questions about how

> hard

> > > it

> > > > > had

> > > > > > been since the husband had been 'struck with the devestating

> > > > > > disease.' The MDA staff were back stage going off about how

> > > that

> > > > > > couple needed to stop having children since the government

> > > would

> > > > > have

> > > > > > to support them once he was dead.

> > > > > > >

> > > > > > > Milinovich, SMA Type I

> > > > > > > Wife to , Mommy to - 21 Months Old!

> > > > > > > http://www.myspace. com/kindrana

> > > > > > > http://s174. photobucket. com/albums/ w107/boramir/ ?

> start=0

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > > ____________ _________ _________ __

> > > > > > > From: Alana <alrt@>

> > > > > > > @gro ups.com

> > >

> > > > > > > Sent: Friday, January 9, 2009 4:23:29 PM

> > > > > > > Subject: Petition: Cancel Humanitarian Award

> for

> > > > > Jerry

> > > > > >

> > > > > > >

> > > > > > >

> > > > > > > I know not everyone here will agree with the following

> post,

> > > > but

> > > > > I

> > > > > > ask

> > > > > > > that those of you who do agree, please sign the petition

> and

> > > > > spread

> > > > > > > the word.

> > > > > > >

> > > > > > > In Solidarity,

> > > > > > > Alana

> > > > > > >

> > > > > > > Goto:

> > > > > > >

> > > > > > > http://www.petition online.com/ jlno2009/ petition. html

> > > > > > >

> > > > > > > The Academy of Motion Picture Arts and Sciences

> > > > > > >

> > > > > > > This petition has been launched to object to the Academy

> of

> > > > Motion

> > > > > > > Picture Arts and Sciences' announcement that it will give

> > > Jerry

> > > > > >

> > > > > > > its Hersholt Humanitarian Award at the Awards

> > > > ceremony

> > > > > on

> > > > > > > February 22, 2009.

> > > > > > >

> > > > > > > During his decades of hosting the Labor Day Telethon,

> Jerry

> > > >

> > > > > > has

> > > > > > > helped to perpetuate negative, stereotypical attitudes

> toward

> > > > > people

> > > > > > > with muscular dystrophy and other disabilities. Jerry

>

> > > and

> > > > > the

> > > > > > > Telethon actively promote pity as a fundraising strategy.

> > > > Disabled

> > > > > > > people want RESPECT and RIGHTS, not pity and charity.

> > > > > > >

> > > > > > > In 1990, wrote that if he had muscular dystrophy and

> > > had

> > > > to

> > > > > > use

> > > > > > > a wheelchair, he would " just have to learn to try to be

> good

> > > at

> > > > > > being

> > > > > > > a half a person. " During the 1992 Telethon, he said that

> > > people

> > > > > with

> > > > > > > MD, whom he always insists on calling " my kids, " " cannot

> go

> > > > into

> > > > > the

> > > > > > > workplace. There's nothing they can do. " Comments like

> these

> > > > have

> > > > > > led

> > > > > > > disability activists and our allies to protest against

> Jerry

> > > > > .

> > > > > > > We've argued that he uses the Telethon to promote pity, a

> > > > > > > counterproductive emotion which undermines our social

> > > equality.

> > > > > > Here's

> > > > > > > how responded to the Telethon protesters during a

> 2001

> > > > > > > television interview: " Pity? You don't want to be pitied

> > > because

> > > > > > > you're a cripple in a wheelchair? Stay in your house! "

> > > > > > >

> > > > > > > Jerry has also made derogatory comments about women

> and

> > > > gay

> > > > > > men.

> > > > > > > His outdated attitudes and crude remarks are

> dehumanizing, not

> > > > > > > humanitarian.

> > > > > > >

> > > > > > > Therefore, we the undersigned support the actions and

> > > arguments

> > > > > of

> > > > > > the

> > > > > > > coalition group The Trouble with Jerry. We protest the

> > > Academy's

> > > > > > > characterization of Jerry as a " humanitarian. " And

> we

> > > > ask

> > > > > > that

> > > > > > > the Academy cancel its plans to give the Hersholt

> > > > > Humanitarian

> > > > > > > Award.

> > > > > > >

> > > > > > > Sincerely,

> > > > > > >

> > > > > > > The Undersigned

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

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Guest guest

Guest guest

Posted
Posted

Lori- we're not fools here.

If you really do

" agree completely with nationalized health

care " [unquote] then why have you posted that it was a system that

Tufty Sue died under?

>

> I agree completely with nationalized health care.  I hope our new

administration can put something in place that allows for quality

health care for our citizens.

>

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Guest guest

Guest guest

Posted
Posted

What slander?

>

> Wait a minute! I do not always agree with Lori...or even Alana for

that

> matter.....but I do not condescendingly slander them in public

emails. Both are my

> friends.

>

> Have some respect for the rest of us and please be gracious. Take

it in

> private...okay?

>

> Vicki

>

> P.S. Everyone, remember the cardinal rule of debate: no character

attacks!

> **************Inauguration '09: Get complete coverage from the

nation's

> capital. (http://news.aol.com/main/politics/inauguration?

ncid=emlcntusnews00000003)

>

>

>

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Guest guest

Guest guest

Posted
Posted

With MDA there are no procedures or reasonable avenues to appeal or

report the quality or errors of MDA's services.

Even medicaid has approvals/denials sent to us in writing and open

information to appeal their decisions.

The telethon and brochures report how MDA provides services that I

see client after client be denied.

I'm happy you got that help from MDA. It's nice to know MDA fund

raising got to somebody who needed it. That is a good reason to

support MDA.

> > > > >

> > > > > My husband and I signed.

> > > > >

> > > > > I can't stand Jerry and the way the telethon portrays

> > > people

> > > > with any form of MD.  Yes, it is horrible and yes, it kills. 

> > > > However, they never focus on the people with the diseases,

> > > jusy 'pity

> > > > them.'  The state levels aren't much better.  I was Colorado

> > state

> > > > poster child for several years and it really opens a 6-year-

> olds

> > > > eyes when your backstage at a telethon.  They made me stay on

> > > > location 1/2 the night so the audience could see how weak and

> > tired

> > > I

> > > > was as inspiration to call.  At one point they were

> interviewing

> > a

> > > > couple where the man had ALS.  They were pregnant with their

> 3rd

> > > > child and the interviewer was asking questions about how hard

> it

> > > had

> > > > been since the husband had been 'struck with the devestating

> > > > disease.'  The MDA staff were back stage going off about how

> that

> > > > couple needed to stop having children since the government

> would

> > > have

> > > > to support them once he was dead.

> > > > >  

> > > > > Milinovich, SMA Type I

> > > > > Wife to , Mommy to - 21 Months Old!

> > > > > http://www.myspace.com/kindrana 

> > > > > http://s174.photobucket.com/albums/w107/boramir/?start=0

> > > > >  

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > ________________________________

> > > > > From: Alana <alrt@>

> > > > >

> > > > > Sent: Friday, January 9, 2009 4:23:29 PM

> > > > > Subject: Petition: Cancel Humanitarian Award

for

> > > Jerry

> > > >

> > > > >

> > > > >

> > > > > I know not everyone here will agree with the following

post,

> > but

> > > I

> > > > ask

> > > > > that those of you who do agree, please sign the petition

and

> > > spread

> > > > > the word.

> > > > >

> > > > > In Solidarity,

> > > > > Alana

> > > > >

> > > > > Goto:

> > > > >

> > > > > http://www.petition online.com/ jlno2009/ petition. html

> > > > >

> > > > > The Academy of Motion Picture Arts and Sciences

> > > > >

> > > > > This petition has been launched to object to the Academy of

> > Motion

> > > > > Picture Arts and Sciences' announcement that it will give

> Jerry

> > > >

> > > > > its Hersholt Humanitarian Award at the Awards

> > ceremony

> > > on

> > > > > February 22, 2009.

> > > > >

> > > > > During his decades of hosting the Labor Day Telethon, Jerry

> >

> > > > has

> > > > > helped to perpetuate negative, stereotypical attitudes

toward

> > > people

> > > > > with muscular dystrophy and other disabilities. Jerry

> and

> > > the

> > > > > Telethon actively promote pity as a fundraising strategy.

> > Disabled

> > > > > people want RESPECT and RIGHTS, not pity and charity.

> > > > >

> > > > > In 1990, wrote that if he had muscular dystrophy and

> had

> > to

> > > > use

> > > > > a wheelchair, he would " just have to learn to try to be

good

> at

> > > > being

> > > > > a half a person. " During the 1992 Telethon, he said that

> people

> > > with

> > > > > MD, whom he always insists on calling " my kids, " " cannot go

> > into

> > > the

> > > > > workplace. There's nothing they can do. " Comments like

these

> > have

> > > > led

> > > > > disability activists and our allies to protest against

Jerry

> > > .

> > > > > We've argued that he uses the Telethon to promote pity, a

> > > > > counterproductive emotion which undermines our social

> equality.

> > > > Here's

> > > > > how responded to the Telethon protesters during a 2001

> > > > > television interview: " Pity? You don't want to be pitied

> because

> > > > > you're a cripple in a wheelchair? Stay in your house! "

> > > > >

> > > > > Jerry has also made derogatory comments about women

and

> > gay

> > > > men.

> > > > > His outdated attitudes and crude remarks are dehumanizing,

not

> > > > > humanitarian.

> > > > >

> > > > > Therefore, we the undersigned support the actions and

> arguments

> > > of

> > > > the

> > > > > coalition group The Trouble with Jerry. We protest the

> Academy's

> > > > > characterization of Jerry as a " humanitarian. " And

we

> > ask

> > > > that

> > > > > the Academy cancel its plans to give the Hersholt

> > > Humanitarian

> > > > > Award.

> > > > >

> > > > > Sincerely,

> > > > >

> > > > > The Undersigned

> > > > >

> > > > > 

> > > > >

> > > > >

> > > > >       

> > > > >

> > > > >

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