Re: Elevated enzymes in liver?

[Guest guest]

I remember it just vaguely. I know my blood-work comes back and shows an

elevated something with my liver. It has for years and it isn't changing so my

doctor is not concerned, but he's monitoring. Maybe it does have something to

do with SMA, but I never found out for sure.

>

>

>

> Several years ago someone posted something regarding elevated liver enzymes

(fatty liver).  I remember someone saying that it is a possible side effect of

SMA, that it was due to a chemical that is produced by wasting muscle.  I

mentioned this to a G.I. doctor I saw last week and he looked at me like I was

an idiot.  Of course, later in the appointment he asked me again what my

condition was so he could write it down, so he obviously knows nothing about SMA

and I don't think he wanted to admit he didn't know something.

>

> Does anyone remember this topic?

>

> Thanks,

>

> Tom

>

>

[Guest guest]

I remember it well. My GI doc knew nothing about SMA or SMBA and its effects on

liver enzymes. I had to educate him myself. Check out the our-sma-angels.com

site. Only one of the two dozen docs that I saw over the years knew anything

about SMA. My GI still doesn't seem to understand the relationship between

muscle wasting and liver enzymes. I have very high CPK or CK and high

cholesterol which a good percentage of us have. He still is under the impression

that I have a slightly fatty liver because of my eating habits although I don't

eat any fatty foods or drinks at all and my weight is normal. My neurologist

told me to ignore him. That is one of the problems with the USA medical system

where all of my specialists are not on the same page. In contrast, when I go to

the VA hospital, if I have a hang nail, all the docs and specialists that I see

there know about it as soon as one of them enters it into the computer system.

That is one advantage of their closed medical records system. One of my non VA

docs said it would be decades before doctors are interconnected like that

outside of the VA. Yes, the VA also has many shortcomings but that is one thing

that they do right. I have both the VA and Medicare because we can never be sure

what will be covered by either system from year to year here.

>

>

>

> Several years ago someone posted something regarding elevated liver enzymes

(fatty liver).  I remember someone saying that it is a possible side effect of

SMA, that it was due to a chemical that is produced by wasting muscle.  I

mentioned this to a G.I. doctor I saw last week and he looked at me like I was

an idiot.  Of course, later in the appointment he asked me again what my

condition was so he could write it down, so he obviously knows nothing about SMA

and I don't think he wanted to admit he didn't know something.

>

> Does anyone remember this topic?

>

> Thanks,

>

> Tom

>

>

[Guest guest]

I'm curious at about what age (and type) these started showing for folks.

High Cholesteral already is genetic in my family despit strict dietary

changes... but I had no idea we were more prone... nor to elevated liver enzymes

unless on meds that may cause such. Def will be on the look out...

In process of having full blood work up done, except of course they could only

get blood for half the tests a week ago after many tries... but liver and

thyroid and most came back great - need to do CBC and lipid for another poking!

Does anybody take cholesteral lowerings meds?

My dad who doesnt have SMA has done all he can to get as low on the meds as

possible as he says he feels such a negative impact while theyre lowering his

choloesteral.

More joys we keep finding of SMA!

LB

>

>

>

> Several years ago someone posted something regarding elevated liver enzymes

(fatty liver).  I remember someone saying that it is a possible side effect of

SMA, that it was due to a chemical that is produced by wasting muscle.  I

mentioned this to a G.I. doctor I saw last week and he looked at me like I was

an idiot.  Of course, later in the appointment he asked me again what my

condition was so he could write it down, so he obviously knows nothing about SMA

and I don't think he wanted to admit he didn't know something.

>

> Does anyone remember this topic?

>

> Thanks,

>

> Tom

>

>

[Guest guest]

,

I'm type 3.  I got some blood work done in 2004 (when I was 34) that showed

slightly elevated enzymes.  I had a liver biopsy which was " inconclusive " . 

The doctor I was dealing with at the time was a complete idiot and I refused to

deal with her anymore.  This new GI doctor told me that the previous doctor was

supposed to tell me I was supposed to get this checked out every 6 months, but

she never did so I just forgot about it.  The current doctor is clueless to SMA

as well, so I'm going to get in touch with my neurologist before I let them do

anything else to me.

Tom

Re: Elevated enzymes in liver?

 

I'm curious at about what age (and type) these started showing for folks.

High Cholesteral already is genetic in my family despit strict dietary

changes... but I had no idea we were more prone... nor to elevated liver enzymes

unless on meds that may cause such. Def will be on the look out...

In process of having full blood work up done, except of course they could only

get blood for half the tests a week ago after many tries... but liver and

thyroid and most came back great - need to do CBC and lipid for another poking!

Does anybody take cholesteral lowerings meds?

My dad who doesnt have SMA has done all he can to get as low on the meds as

possible as he says he feels such a negative impact while theyre lowering his

choloesteral.

More joys we keep finding of SMA!

LB

>

>

>

> Several years ago someone posted something regarding elevated liver enzymes

(fatty liver).  I remember someone saying that it is a possible side effect

of SMA, that it was due to a chemical that is produced by wasting muscle.  I

mentioned this to a G.I. doctor I saw last week and he looked at me like I was

an idiot.  Of course, later in the appointment he asked me again what my

condition was so he could write it down, so he obviously knows nothing about SMA

and I don't think he wanted to admit he didn't know something.

>

> Does anyone remember this topic?

>

> Thanks,

>

> Tom

>

>

[Guest guest]

I guess that if anyone that is pretty healthy stopped being active and got

little exercise would end up with some bad blood work results also. So I think

even if we were able to exercise more that we would still have numbers that are

not normal. Even when I was still active and working my blood tests starting

getting out of line even though I always had a good diet and went to the gym

regularly. Getting rid of the ailment seems to be the only way that all things

might be able to return to near normal. But that won't happen in my lifetime

probably.

>

>

>

> Several years ago someone posted something regarding elevated liver enzymes

(fatty liver).  I remember someone saying that it is a possible side effect of

SMA, that it was due to a chemical that is produced by wasting muscle.  I

mentioned this to a G.I. doctor I saw last week and he looked at me like I was

an idiot.  Of course, later in the appointment he asked me again what my

condition was so he could write it down, so he obviously knows nothing about SMA

and I don't think he wanted to admit he didn't know something.

>

> Does anyone remember this topic?

>

> Thanks,

>

> Tom

>

>

[Guest guest]

I started Zocor about 3 month ago.  My LDL is 150 which is a concern to me. 

It was 124 a few months ago (before starting Zocor...ugh, it's supposed to go

down).  Trying to eat healthier.  I haven't heard that it is associated with

SMA and would depend on written medical references rather than some

unsupported comment from any physician since most are very unfamiliar with

SMA.  

Oh, no side-effects from Zocor.

Lori

I am Bippy on Twitter.

________________________________

From: laurenmarie791 <laurenmarie791@...>

Sent: Fri, March 5, 2010 2:27:26 AM

Subject: Re: Elevated enzymes in liver?

 

I'm curious at about what age (and type) these started showing for folks.

High Cholesteral already is genetic in my family despit strict dietary

changes... but I had no idea we were more prone... nor to elevated liver enzymes

unless on meds that may cause such. Def will be on the look out...

In process of having full blood work up done, except of course they could only

get blood for half the tests a week ago after many tries... but liver and

thyroid and most came back great - need to do CBC and lipid for another poking!

Does anybody take cholesteral lowerings meds?

My dad who doesnt have SMA has done all he can to get as low on the meds as

possible as he says he feels such a negative impact while theyre lowering his

choloesteral.

More joys we keep finding of SMA!

LB

>

>

>

> Several years ago someone posted something regarding elevated liver enzymes

(fatty liver).  I remember someone saying that it is a possible side effect

of SMA, that it was due to a chemical that is produced by wasting muscle.  I

mentioned this to a G.I. doctor I saw last week and he looked at me like I was

an idiot.  Of course, later in the appointment he asked me again what my

condition was so he could write it down, so he obviously knows nothing about SMA

and I don't think he wanted to admit he didn't know something.

>

> Does anyone remember this topic?

>

> Thanks,

>

> Tom

>

>

[Guest guest]

Oh, got my test results in the mail today.  My overall cholesterol is 155 and

LDL is 79.  Both within normal limits so all is well.  I'll still try to eat

healthier.

Lori

I am Bippy on Twitter.

________________________________

From: Lori G <lorig713@...>

Sent: Sat, March 6, 2010 12:30:40 PM

Subject: Re: Re: Elevated enzymes in liver?

I started Zocor about 3 month ago.  My LDL is 150 which is a concern to me. 

It was 124 a few months ago (before starting Zocor...ugh, it's supposed to go

down).  Trying to eat healthier.  I haven't heard that it is associated with

SMA and would depend on written medical references rather than some

unsupported comment from any physician since most are very unfamiliar with

SMA.  

Oh, no side-effects from Zocor.

Lori

I am Bippy on Twitter.

________________________________

From: laurenmarie791 <laurenmarie791@...>

Sent: Fri, March 5, 2010 2:27:26 AM

Subject: Re: Elevated enzymes in liver?

 

I'm curious at about what age (and type) these started showing for folks.

High Cholesteral already is genetic in my family despit strict dietary

changes... but I had no idea we were more prone... nor to elevated liver enzymes

unless on meds that may cause such. Def will be on the look out...

In process of having full blood work up done, except of course they could only

get blood for half the tests a week ago after many tries... but liver and

thyroid and most came back great - need to do CBC and lipid for another poking!

Does anybody take cholesteral lowerings meds?

My dad who doesnt have SMA has done all he can to get as low on the meds as

possible as he says he feels such a negative impact while theyre lowering his

choloesteral.

More joys we keep finding of SMA!

LB

>

>

>

> Several years ago someone posted something regarding elevated liver enzymes

(fatty liver).  I remember someone saying that it is a possible side effect

of SMA, that it was due to a chemical that is produced by wasting muscle.  I

mentioned this to a G.I. doctor I saw last week and he looked at me like I was

an idiot.  Of course, later in the appointment he asked me again what my

condition was so he could write it down, so he obviously knows nothing about SMA

and I don't think he wanted to admit he didn't know something.

>

> Does anyone remember this topic?

>

> Thanks,

>

> Tom

>

>

[Guest guest]

Here is an excerpt of the reply I received from my neurologist. Basically, I

think he is saying " maybe " .

" SMA has different manifestations and are seen mostly in children/infants with

SMA. One of these is alterations in Fatty acid metabolism. When plasma free

fatty acid concentrations are high, dicarboxylic acids are formed in the liver

and kidney, more often than in muscle. Some infants with severe SMA have fatty

vacuolisation of the liver, characteristic of most disorders of fatty acid

oxidation. "

Re: Elevated enzymes in liver?

I remember it well. My GI doc knew nothing about SMA or SMBA and its effects on

liver enzymes. I had to educate him myself. Check out the our-sma-angels.com

site. Only one of the two dozen docs that I saw over the years knew anything

about SMA. My GI still doesn't seem to understand the relationship between

muscle wasting and liver enzymes. I have very high CPK or CK and high

cholesterol which a good percentage of us have. He still is under the impression

that I have a slightly fatty liver because of my eating habits although I don't

eat any fatty foods or drinks at all and my weight is normal. My neurologist

told me to ignore him. That is one of the problems with the USA medical system

where all of my specialists are not on the same page. In contrast, when I go to

the VA hospital, if I have a hang nail, all the docs and specialists that I see

there know about it as soon as one of them enters it into the computer system.

That is one advantage of their closed medical records system. One of my non VA

docs said it would be decades before doctors are interconnected like that

outside of the VA. Yes, the VA also has many shortcomings but that is one thing

that they do right. I have both the VA and Medicare because we can never be sure

what will be covered by either system from year to year here.

>

>

>

> Several years ago someone posted something regarding elevated liver enzymes

(fatty liver). I remember someone saying that it is a possible side effect of

SMA, that it was due to a chemical that is produced by wasting muscle. I

mentioned this to a G.I. doctor I saw last week and he looked at me like I was

an idiot. Of course, later in the appointment he asked me again what my

condition was so he could write it down, so he obviously knows nothing about SMA

and I don't think he wanted to admit he didn't know something.

>

> Does anyone remember this topic?

>

> Thanks,

>

> Tom

>

>