Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 Autism Speaks is making an initial three-year commitment to the project, beginning with an award of $2,266,000 for the first year. This is the first award of over a million dollars given out by Autism Speaks, which was founded in February 2005. http://www.kennedykrieger.org/kki_news.jsp?pid=4921“The funding of this program is an important first step in Autism Speaks’ efforts to advance innovative autism research,” said Mark Roithmayr, president of Autism Speaks. “The database project has the potential to create a powerful tool for thousands of families, educators and researchers across the country and around the world.”The national online autism database will serve as a shared resource to centralize registration of families and individuals with autism spectrum disorders and connect them with researchers, parents and other individuals with autism throughout the country and the world. In addition to supporting scientific investigation, it will provide individuals and families affected by autism with unprecedented information about the experiences of others and serve as an open resource for educators and policy makers. A longitudinal database will enable families and individuals to participate in an online study aimed at understanding the patterns of treatment use and responses to those treatments. Online community features including internal message boards, researcher chat sessions, member profiles, a calendar, and links to outside autism resources are also planned. The fostering of communication between families and the research community will not only lead to research of the highest quality, but also invite parents to have direct input regarding the scientific and policy questions to be investigated. Does this sound familiar? It is the Schafer Report with $2.2 + million worth of bells and whistles. Perhaps the money is already committed to keep this alive. The object would be not to have parents pay out of pocket, they do enough of that. Does anyone have a thought, a contact, a strategy, or possibly a plan? Suggest - keeping Lenny I would gladly pay $12 (more!) for the free time this gives me to actually have a tiny bit of life outside of autism. Lenny then employs someone to do what he does for love, keeping a light touch on the cradle but letting the SAR baby grow. Where's your Paypal account, Lenny? P.S. Anybody got thses skills Lenny is advertising for? Volunteer your skills to help stop the epidemic!Programmer. If you have experience with html or java coding for form generated tabular matter or automated composition, we could use your help as a paid volunteer on a project basis. Contact the publisher.Graphic artist. Render spot art for the Calendar of Events. Lots of small projects mostly. Contact publisher. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 AS wouldn’t touch Lenny with his openness to vaccine damage stance. Not on your life. From: EOHarm [mailto:EOHarm ] On Behalf Of Cregar Sent: Saturday, March 11, 2006 2:33 PM EOHarm Subject: RE: Suggest - keeping Lenny Autism Speaks is making an initial three-year commitment to the project, beginning with an award of $2,266,000 for the first year. This is the first award of over a million dollars given out by Autism Speaks, which was founded in February 2005. http://www.kennedykrieger.org/kki_news.jsp?pid=4921 “The funding of this program is an important first step in Autism Speaks’ efforts to advance innovative autism research,” said Mark Roithmayr, president of Autism Speaks. “The database project has the potential to create a powerful tool for thousands of families, educators and researchers across the country and around the world.” The national online autism database will serve as a shared resource to centralize registration of families and individuals with autism spectrum disorders and connect them with researchers, parents and other individuals with autism throughout the country and the world. In addition to supporting scientific investigation, it will provide individuals and families affected by autism with unprecedented information about the experiences of others and serve as an open resource for educators and policy makers. A longitudinal database will enable families and individuals to participate in an online study aimed at understanding the patterns of treatment use and responses to those treatments. Online community features including internal message boards, researcher chat sessions, member profiles, a calendar, and links to outside autism resources are also planned. The fostering of communication between families and the research community will not only lead to research of the highest quality, but also invite parents to have direct input regarding the scientific and policy questions to be investigated. Does this sound familiar? It is the Schafer Report with $2.2 + million worth of bells and whistles. Perhaps the money is already committed to keep this alive. The object would be not to have parents pay out of pocket, they do enough of that. Does anyone have a thought, a contact, a strategy, or possibly a plan? Suggest - keeping Lenny I would gladly pay $12 (more!) for the free time this gives me to actually have a tiny bit of life outside of autism. Lenny then employs someone to do what he does for love, keeping a light touch on the cradle but letting the SAR baby grow. Where's your Paypal account, Lenny? P.S. Anybody got thses skills Lenny is advertising for? Volunteer your skills to help stop the epidemic! Programmer. If you have experience with html or java coding for form generated tabular matter or automated composition, we could use your help as a paid volunteer on a project basis. Contact the publisher. Graphic artist. Render spot art for the Calendar of Events. Lots of small projects mostly. Contact publisher. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 The fostering of communication between families and the research community will not only lead to research of the highest quality, but also invite parents to have direct input regarding the scientific and policy questions to be investigated. The Schafer Report has fostered communication between families and the research community for many years. It has given parents direct input. It is an existing, high-quality, autism resource. We are still talking about http://chemdat.merck.de/pls/pi03/web2.search_page2?text=thimerosal & lang=4 And the debate is not yet over... F. Kennedy Jr.: Time for CDC to Come Clean Wed Mar 1, 12:10 AM ET http://tinyurl.com/rzbz6 F. Kennedy Jr.: A Poisonous Move for Kids by CDC Mon Mar 6, 8:48 PM ET http://tinyurl.com/njczw Suggest - keeping Lenny I would gladly pay $12 (more!) for the free time this gives me to actually have a tiny bit of life outside of autism. Lenny then employs someone to do what he does for love, keeping a light touch on the cradle but letting the SAR baby grow. Where's your Paypal account, Lenny? P.S. Anybody got thses skills Lenny is advertising for? Volunteer your skills to help stop the epidemic!Programmer. If you have experience with html or java coding for form generated tabular matter or automated composition, we could use your help as a paid volunteer on a project basis. Contact the publisher.Graphic artist. Render spot art for the Calendar of Events. Lots of small projects mostly. Contact publisher. Quote Link to comment Share on other sites More sharing options...
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