Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Hi all: We had a fairly quiet day today. MJ had a pretty good day. She asked for homework so she is bored. Surgery came in this morning and transferred her care officially to Pulmonology or more specifically, Dr. Mueller since he knows her. MJ was also transferred from PICU to IMCU (Intermediate Medical Care Unit or step-down). We didn't change rooms or anything, just status and a slightly cheaper room rate!!! LOL! Dr. Mueller came by and adjusted things in her TPN calculations and agreed with the status of waiting pattern. Grandma June and Aunt Jill came down to visit today and the nurses said we were having too much fun. After they left, I went to the apartment. MJ made me a list of things she wanted. Tomorrow, MJ has to start getting up in her chair for at least an hour a day. MJ's right hand is very stiff and weak, so not sure if she will be able to drive tomorrow and she hasn't sat up straight since then, so we will see how it goes. MJ also heard back from most of her teachers and they were all wonderful about helping her finish the semester off. Thanks everyone who has called, emailed or sent gifts. They have really helped cheer MJ up. This was not on her " schedule of fun things to do " list and hates the waiting. At least surgery was avoided so that is even better. Not sure when I will send another update since nothing is scheduled until Tuesday. Big hugs to all. MJ Purk SMA type I+, 19 years old “Our deepest fear is not that we are inadequate. Our deepest fear is that we are powerful beyond measure. It is our light, not our darkness that most frightens us. We ask ourselves, Who am I to be brilliant, gorgeous, talented, fabulous? Actually, who are you not to be?†~ nne on Ask me about B4SMA – Blankets for SMA kids, Our-SMA-Angels websites, and Personalized Merchandise! See the links below for more information! www.our-sma-angels.com/b4sma - B4SMA, My organization www.our-sma-angels.com/Margaret - My website www.cafepress.com/b4sma - My Shop ________________________________________________________________________ Email and AIM finally together. You've gotta check out free AOL Mail! - http://mail.aol.com Quote Link to comment Share on other sites More sharing options...
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