Re: Did you watch LA Ink???

[Guest guest]

I wish I would¹ve watched LA Ink! I watched the House episode but I didn¹t

think they did a very good job at portraying disabled life, let alone SMA.

What did other people think?

On 10/9/07 11:44 PM, " cecysma " <cecysma@...> wrote:

> In tonights episode there was this girl with SMA. I dont know her.. she

> got a beautiful tatto of a mermaid and talked about SMA. I was happy to

> see that everyday theres is more about SMA in the media. Tonight SMA

> was in the show HOUSE too!!

>

>

[Guest guest]

House is a rather crass doc who should have had his medical license revoked

a long time ago, I don't think it was a very realistic portrayal of treating

someone with SMA.

On 10/9/07, <nicoleroberts@...> wrote:

>

> I wish I would¹ve watched LA Ink! I watched the House episode but I

> didn¹t

> think they did a very good job at portraying disabled life, let alone SMA.

> What did other people think?

>

> On 10/9/07 11:44 PM, " cecysma " <cecysma@... <cecysma%40>>

> wrote:

>

> > In tonights episode there was this girl with SMA. I dont know her.. she

> > got a beautiful tatto of a mermaid and talked about SMA. I was happy to

> > see that everyday theres is more about SMA in the media. Tonight SMA

> > was in the show HOUSE too!!

> >

> >

>

>

[Guest guest]

No definitely not realistic in terms of sma. But what really got me was

when the guy with sma said he wanted to die because he had lived 40 long

years in this useless body and now he just wanted to be free...or some such.

Gimmee a break it was worse than the telethon!!!!!!! :-P

On 10/10/07 12:02 AM, " Buck " <jared.buck@...> wrote:

> House is a rather crass doc who should have had his medical license revoked

> a long time ago, I don't think it was a very realistic portrayal of treating

> someone with SMA.

>

> On 10/9/07, <nicoleroberts@...

> <mailto:nicoleroberts%40usfamily.net> > wrote:

>> >

>> > I wish I would¹ve watched LA Ink! I watched the House episode but I

>> > didn¹t

>> > think they did a very good job at portraying disabled life, let alone SMA.

>> > What did other people think?

>> >

>> > On 10/9/07 11:44 PM, " cecysma " <cecysma@...

>> <mailto:cecysma%40> <cecysma%40>>

>> > wrote:

>> >

>>> > > In tonights episode there was this girl with SMA. I dont know her.. she

>>> > > got a beautiful tatto of a mermaid and talked about SMA. I was happy to

>>> > > see that everyday theres is more about SMA in the media. Tonight SMA

>>> > > was in the show HOUSE too!!

>>> > >

>>> > >

>> >

>> >

[Guest guest]

LOL, i agree there. I have a number of friends with SMA (including my best

friend Radmila) and never once have I heard them complain about their

quality of life. SMA may not be curable as it stands right now but most

certainly one with it can have a very good quality of life. Radmila keeps

telling me about all of her trips all over Europe and how much fun she has.

I think it's important to enjoy what you have instead of moping about what

you don't. I'm hard of hearing and wear a hearing aid but I don't complain

about the things I can't hear or understand sometimes - I just make do with

what I have.

On 10/9/07, <nicoleroberts@...> wrote:

>

> No definitely not realistic in terms of sma. But what really got me was

> when the guy with sma said he wanted to die because he had lived 40 long

> years in this useless body and now he just wanted to be free...or some

> such.

> Gimmee a break it was worse than the telethon!!!!!!! :-P

>

>

>

> On 10/10/07 12:02 AM, " Buck "

<jared.buck@...<jared.buck%40gmail.com>>

> wrote:

>

> > House is a rather crass doc who should have had his medical license

> revoked

> > a long time ago, I don't think it was a very realistic portrayal of

> treating

> > someone with SMA.

> >

> > On 10/9/07,

<nicoleroberts@...<nicoleroberts%40usfamily.net>

> > <mailto:nicoleroberts%40usfamily.net> > wrote:

> >> >

> >> > I wish I would¹ve watched LA Ink! I watched the House episode but I

> >> > didn¹t

> >> > think they did a very good job at portraying disabled life, let alone

> SMA.

> >> > What did other people think?

> >> >

> >> > On 10/9/07 11:44 PM, " cecysma " <cecysma@...<cecysma%40>

> >> <mailto:cecysma% <cecysma%25>40> <cecysma%40>>

> >> > wrote:

> >> >

> >>> > > In tonights episode there was this girl with SMA. I dont know

> her.. she

> >>> > > got a beautiful tatto of a mermaid and talked about SMA. I was

> happy to

> >>> > > see that everyday theres is more about SMA in the media. Tonight

> SMA

> >>> > > was in the show HOUSE too!!

> >>> > >

> >>> > >

> >> >

> >> >

[Guest guest]

I saw LA ink and House! It was so weird to see SMA in the media twice in one

day!

About the House episode, I think he said 20 years not 40 and honestly I can

understand him and I don't think its far from some peoples truth.  Of course it

would have been better if they portrayed him as a happy person with a full life,

but I think he knew it was his time to go.  Poor doggie though

Re: Did you watch LA Ink???

LOL, i agree there. I have a number of friends with SMA (including my best

friend Radmila) and never once have I heard them complain about their

quality of life. SMA may not be curable as it stands right now but most

certainly one with it can have a very good quality of life. Radmila keeps

telling me about all of her trips all over Europe and how much fun she has.

I think it's important to enjoy what you have instead of moping about what

you don't. I'm hard of hearing and wear a hearing aid but I don't complain

about the things I can't hear or understand sometimes - I just make do with

what I have.

On 10/9/07, <nicoleroberts@...> wrote:

>

> No definitely not realistic in terms of sma. But what really got me was

> when the guy with sma said he wanted to die because he had lived 40 long

> years in this useless body and now he just wanted to be free...or some

> such.

> Gimmee a break it was worse than the telethon!!!!!!! :-P

>

>

>

> On 10/10/07 12:02 AM, " Buck "

<jared.buck@...<jared.buck%40gmail.com>>

> wrote:

>

> > House is a rather crass doc who should have had his medical license

> revoked

> > a long time ago, I don't think it was a very realistic portrayal of

> treating

> > someone with SMA.

> >

> > On 10/9/07,

<nicoleroberts@...<nicoleroberts%40usfamily.net>

> > <mailto:nicoleroberts%40usfamily.net> > wrote:

> >> >

> >> > I wish I would¹ve watched LA Ink! I watched the House episode but I

> >> > didn¹t

> >> > think they did a very good job at portraying disabled life, let alone

> SMA.

> >> > What did other people think?

> >> >

> >> > On 10/9/07 11:44 PM, " cecysma " <cecysma@...<cecysma%40>

> >> <mailto:cecysma% <cecysma%25>40> <cecysma%40>>

> >> > wrote:

> >> >

> >>> > > In tonights episode there was this girl with SMA. I dont know

> her.. she

> >>> > > got a beautiful tatto of a mermaid and talked about SMA. I was

> happy to

> >>> > > see that everyday theres is more about SMA in the media. Tonight

> SMA

> >>> > > was in the show HOUSE too!!

> >>> > >

> >>> > >

> >> >

> >> >

[Guest guest]

I was offended by the guy's comment, I mean seriously, just because you can't

walk doesn't mean you want to die. I think it made us look like wimps waiting

to die.

Simone

Album: http://community.webshots.com/user/ssegerter

Website: http://simoneegerter.org

" Character cannot be developed in ease and quiet. Only through experience of

trial and suffering can the soul be strengthened, vision cleared, ambition

inspired, and success achieved. "

Re: Did you watch LA Ink???

No definitely not realistic in terms of sma. But what really got me was

when the guy with sma said he wanted to die because he had lived 40 long

years in this useless body and now he just wanted to be free...or some such.

Gimmee a break it was worse than the telethon!!!! !!! :-P

On 10/10/07 12:02 AM, " Buck " <jared.buckgmail (DOT) com> wrote:

> House is a rather crass doc who should have had his medical license revoked

> a long time ago, I don't think it was a very realistic portrayal of treating

> someone with SMA.

>

> On 10/9/07, <nicoleroberts@ usfamily. net

> <mailto:nicolerober ts%40usfamily. net> > wrote:

>> >

>> > I wish I would¹ve watched LA Ink! I watched the House episode but I

>> > didn¹t

>> > think they did a very good job at portraying disabled life, let alone SMA.

>> > What did other people think?

>> >

>> > On 10/9/07 11:44 PM, " cecysma " <cecysma (DOT) com

>> <mailto:cecysma% 40> <cecysma%40. com>>

>> > wrote:

>> >

>>> > > In tonights episode there was this girl with SMA. I dont know her.. she

>>> > > got a beautiful tatto of a mermaid and talked about SMA. I was happy to

>>> > > see that everyday theres is more about SMA in the media. Tonight SMA

>>> > > was in the show HOUSE too!!

>>> > >

>>> > >

>> >

>> >

[Guest guest]

I guess I'm the oddball here. A lot of what that guy said I have said to myself

a few times.

--------- Re: Did you watch LA Ink???

No definitely not realistic in terms of sma. But what really got me was

when the guy with sma said he wanted to die because he had lived 40 long

years in this useless body and now he just wanted to be free...or some such.

Gimmee a break it was worse than the telethon!!!! !!! :-P

On 10/10/07 12:02 AM, " Buck " <jared.buckgmail (DOT) com> wrote:

> House is a rather crass doc who should have had his medical license revoked

> a long time ago, I don't think it was a very realistic portrayal of treating

> someone with SMA.

>

> On 10/9/07, <nicoleroberts@ usfamily. net

> <mailto:nicolerober ts%40usfamily. net> > wrote:

>> >

>> > I wish I would¹ve watched LA Ink! I watched the House episode but I

>> > didn¹t

>> > think they did a very good job at portraying disabled life, let alone SMA.

>> > What did other people think?

>> >

>> > On 10/9/07 11:44 PM, " cecysma " <cecysma (DOT) com

>> <mailto:cecysma% 40> <cecysma%40. com>>

>> > wrote:

>> >

>>> > > In tonights episode there was this girl with SMA. I dont know her.. she

>>> > > got a beautiful tatto of a mermaid and talked about SMA. I was happy to

>>> > > see that everyday theres is more about SMA in the media. Tonight SMA

>>> > > was in the show HOUSE too!!

>>> > >

>>> > >

>> >

>> >

[Guest guest]

Tom, I couldn't agree more with you. I think anyone here who has this

disease that says other wise is not being honest.

> >> >

> >>> > > In tonights episode there was this girl with SMA. I dont

know her.. she

> >>> > > got a beautiful tatto of a mermaid and talked about SMA. I

was happy to

> >>> > > see that everyday theres is more about SMA in the media.

Tonight SMA

> >>> > > was in the show HOUSE too!!

> >>> > >

> >>> > >

> >> >

> >> >

[Guest guest]

I would say that, like most people, we have good days and bad days. I have to

agree that life is what you make it. By far, my good days far outweigh the

not-so-good ones. Much of my happiness has to do with the choices I have made

in my life and where they have lead me (college-->meet and married awesome,

wonderful man who is my heart and life-->graduate school-->dream job-->ability

to buy dream house and modified vans-->etc.). Had I choose to stay at home and

live with my parents until they were no longer able to care for me, I would

surely be living/dying in a nursing home bed compliments of Medicaid.

Yeah, feeding myself is a struggle these days and many nights I aspirate and

wake up choking. Big deal, we adjust and do the best we can.

Well, that's my 2.5 cents for today. Take it or leave it.

Lori

Re: Did you watch LA Ink???

Tom, I couldn't agree more with you. I think anyone here who has this

disease that says other wise is not being honest.

> >> >

> >>> > > In tonights episode there was this girl with SMA. I dont

know her.. she

> >>> > > got a beautiful tatto of a mermaid and talked about SMA. I

was happy to

> >>> > > see that everyday theres is more about SMA in the media.

Tonight SMA

> >>> > > was in the show HOUSE too!!

> >>> > >

> >>> > >

> >> >

> >> >

[Guest guest]

The guy on the TV show was depressed. Who wouldn¹t be depressed when they

are so sick and surrounded by obviously idiot drs!!?? When our life

situation is hard or hopeless feeling we get depressed, that is ONLY NATURAL

--even animals get depressed when life is hard or hopeless. In any given

year 10% of americans are suffering from depression ‹ in a lifetime 1 in 3

people will at some point suffer from depression. But SMA does not equal

depression. Depression comes when our life situation seems hard or

unbearable. Yes, sometimes having SMA causes our lives to get hard, but so

do a lot of other things like being alone, having no friends or family

around, having no job or being unhappy at work ­ most people who have

depression do not have SMA or a disability. a large percent of elderly

people are depressed because our society does not value older people so they

are treated very poorly, not given the care or attention they need, dumped

in a nursing home or left home to watch miserable TV shows all day!!!! ;-)

If we are physically ill and can¹t breathe or feel sick or in pain all the

time then it¹s pretty normal to have depressed thoughts. However, being

disabled doesn¹t make us depressed, our life situation makes us depressed

and many times our life situation can be altered with support services ‹ IF

we are lucky enough to have support services offered in our area which I

realize a lot of us aren¹t...but have you ever wondered why there aren¹t

more supports offered (such as homecare, accessible transportation, ability

to get a job, people interesting in having a romantic relationship with

people with disabilities, etc etc)???? These things are not commonly

available to us because our society in general views people with

disabilities as useless and tragic so why invest money, time, and/or

resources into a population who they themselves (us) even feel would be

better off dead??? If we don¹t value our lives then no one else will and

thus the cycle of depression just grows and grows. This show was just

another validation for why NOT to hire or invest in people with

disabilities. Yay ­ just what we need!

On 10/10/07 1:33 PM, " terrynow " <terrynow@...> wrote:

> Tom, I couldn't agree more with you. I think anyone here who has this

> disease that says other wise is not being honest.

>

>

>>>>> > >> >

>>>>>>> > >>> > > In tonights episode there was this girl with SMA. I dont

> know her.. she

>>>>>>> > >>> > > got a beautiful tatto of a mermaid and talked about SMA. I

> was happy to

>>>>>>> > >>> > > see that everyday theres is more about SMA in the media.

> Tonight SMA

>>>>>>> > >>> > > was in the show HOUSE too!!

>>>>>>> > >>> > >

>>>>>>> > >>> > >

>>>>> > >> >

>>>>> > >> >

[Guest guest]

" If we don¹t value our lives then no one else will and

thus the cycle of depression just grows and grows. This show was just

another validation for why NOT to hire or invest in people with

disabilities. Yay ­ just what we need! "

Yet the MDA shows the worse cases year after year on the telethon,

telling everyone how short of a life some of us have and have raised

150 billion dollars. Yes I hate how they do it, but it's what works.