Welcome, !

[Guest guest]

One thing I forgot to mention. I've done a lot of reading. I've heard several

say that self abusiveness can be a sign of pain. The child is in pain, and just

doesn't know how to deal with it. I know when had a headache, before he

was verbal, he would bang his head. Course, he also did it out of frustration

of not being able to communicate. We taught him sign language when he was about

2, and that was his road in to language. The GF diet has increased his

utterances from 1-4 words to 2-6, so it has helped.

Loriann

[Guest guest]

Hello, , and welcome to our list. My daughter , who is 9, can

also be described as " self-abusive and difficult to maintain, " like your

. The people on this list have been incredibly informative and

supportive. I hope you find it to be the same. Hang in there,

Maureen

[Guest guest]

I'm Alana, 41, SMA2. I live in Berkeley, CA with my partner of 7 years

and 2 cats of 5 years with finickiness. I work part-time as a self-

employed health care and cash benefits advocate, my partner is a

computer programmer/data architect, and we're fairly well-occupied with

fixing up the 1913 house we bought a year and a half ago. I'm working

very little this summer so instead can work on a book I abandoned 12

years ago. Tell us about you!

Alana

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> Hey just thought I would send a message I just joined and not sure

how this works so I'll just tell u a bit about me I'm laura I'm 17 and

have sma type 2 I joined hoping I could get in touch with some people

with the same condition if your interested in talking to me please e-

mail me at lauramechelle@...

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> Yours

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