Re: SLIVA PROBLEM

[Guest guest]

My daughter having age of one year 4months from last 6 months caught by fever

and get infection in her lungs,presently admintted in the hospital due to sliva

and lack of oxygen during her breathing. When sliva is coming she cant swollow

properly she cant take breath properly and loose her breathing and reach near to

collaps.Her mouth form down is shrinking day by day.Please guide me and assisst

me to some directions.

Regard

Shafiq

United arab emirates

As long as you have a script, you are able to get it from a charity or

other organization.....that is how we got our original one and they worked with

our local DME to make sure it was ordered properly.

Kristal

Mom to Brett- SMA II- 7 years old!

" Life is 10% what happens to you and 90% how you respond to it. " ~anonymous

Visit Brett's website at: http://www.our-sma-angels.com/brett/index.htm

Learn more about SMA:

www.fsma.org

www.smasupport.com

Re: cough assist

We ran into this same problem. But, we were able to get a second

machine from a family whose son passed away from Duchenne's.

I can't remember who told me this, but I seem to recall hearing that a

Cough Assist is a prescription-only item, so charities and loan

closets are not permitted to give Cough Assist machines out to just

anybody. Supposedly, you have to have a doctor's script. Unlike a

stander or a wheelchair.

If anyone has heard different, I'd be interested to know.

>

> Does anyone know of a loan closet or some place I could contact

about getting a 2nd cough assist for my daughter to keep at school?

We all ready have one at home that our insurance has purchased so they

will not pay for another.

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