Re: high blood pressure and SMA

[Guest guest]

Hi Alice,

I'm sorry this is happening. I'm now 40 and have only seen a slight

increase in my blood pressure - It's usually around 115/75. It's a

little higher when I have a UTI or have pain...hip, back, catheter,

etc.

I hope you figure it out soon.

Alana

>

> Hi everyone,

>

> My blood pressure has been slowing increasing this past year and

now it's at the point

> where it's rather high (157/100). I have no idea why this is

happening. I have SMA 2 and

> use a Bi-Pap at night. My diet is healthy and I don't smoke (of

course). I just had an echo

> to see if my heart is weakening. Is this something to expect with

the progression of SMA?

> Could it be related to cardiomyopathy? I haven't had any signs of

that yet (until I get the

> results of the echo). I'll probably be put on meds to control the

blood pressure but I'd

> appreciate any advice.

>

> Alice

>

[Guest guest]

Hi Alice,

I'm 58 with SMA 3. I wasn't aware of my high blood pressure until I was

hospitalized a little over a year ago. My doctor said it is something that

generally comes with age and he doesn't think it has anything to do with my SMA.

I take 1/2 of a 25 MG tablet of Hydroclorathiazide when I get up (I have odd

hours but he said that was OK, just take it when I get up) and I take 100 MG of

Toprol XL at right before I go to bed. This is working well for me and I'm

getting 2 extra benefits from this medication. 1. It has slowed my heart rate

down from 120 or more to the 70's to 80's. I've always had a fast heart rate and

didn't know what to do to slow it down. But it always worried me in the back of

my mind. 2. Since taking this medication I hardly ever have migraine headaches

which I used to have all the time. They were not severe or debilitating ( I've

had those kind but only 3 or 4 in my life) but they were true migraines which I

took 1/2 tablet of Tylenol and Codeine for.

But I hardly ever have one anymore. What a bonus that is.

You didn't say how old you are but in my case it seems to be a symptom of

age progression, not SMA progression. I only weigh 75 lbs so my Dr and I

started out with a very low dosage and increased it slightly until we got the

desired results. One thing I just remembered.. I have a friend who is a quad

and weighs about twice as much as I do who tried taking Hydraclorathiazide and

it make him so sleepy and lethargic that he literally could not stay awake. His

doctor changed the Rx and he is fine.

Let me know what you and your Doctor decide to do. Good luck.

Lainie

alwong1_99 <alwong1_99@...> wrote: Hi

everyone,

My blood pressure has been slowing increasing this past year and now it's at

the point

where it's rather high (157/100). I have no idea why this is happening. I

have SMA 2 and

use a Bi-Pap at night. My diet is healthy and I don't smoke (of course). I

just had an echo

to see if my heart is weakening. Is this something to expect with the

progression of SMA?

Could it be related to cardiomyopathy? I haven't had any signs of that yet

(until I get the

results of the echo). I'll probably be put on meds to control the blood

pressure but I'd

appreciate any advice.

Alice

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Autos.

[Guest guest]

Hydrochlorothiazide is a thiazide diuretic (water pill). It decreases the amount

of fluid in the body by increasing the amount of salt and water lost in the

urine. Hydrochlorothiazide is used to lower blood pressure and to decrease edema

(swelling).

I have the Adult Onset of SMA..I am 48 years old and use to take HTCZ and no

longer need/have to take it.... My BP runs 110/60

Take Care

" Lainie H. " <bizybull2@...> wrote:

Hi Alice,

I'm 58 with SMA 3. I wasn't aware of my high blood pressure until I was

hospitalized a little over a year ago. My doctor said it is something that

generally comes with age and he doesn't think it has anything to do with my SMA.

I take 1/2 of a 25 MG tablet of Hydroclorathiazide when I get up (I have odd

hours but he said that was OK, just take it when I get up) and I take 100 MG of

Toprol XL at right before I go to bed. This is working well for me and I'm

getting 2 extra benefits from this medication. 1. It has slowed my heart rate

down from 120 or more to the 70's to 80's. I've always had a fast heart rate and

didn't know what to do to slow it down. But it always worried me in the back of

my mind. 2. Since taking this medication I hardly ever have migraine headaches

which I used to have all the time. They were not severe or debilitating ( I've

had those kind but only 3 or 4 in my life) but they were true migraines which I

took 1/2 tablet of Tylenol and Codeine for.

But I hardly ever have one anymore. What a bonus that is.

You didn't say how old you are but in my case it seems to be a symptom of age

progression, not SMA progression. I only weigh 75 lbs so my Dr and I started out

with a very low dosage and increased it slightly until we got the desired

results. One thing I just remembered.. I have a friend who is a quad and weighs

about twice as much as I do who tried taking Hydraclorathiazide and it make him

so sleepy and lethargic that he literally could not stay awake. His doctor

changed the Rx and he is fine.

Let me know what you and your Doctor decide to do. Good luck.

Lainie

alwong1_99 wrote: Hi everyone,

My blood pressure has been slowing increasing this past year and now it's at the

point

where it's rather high (157/100). I have no idea why this is happening. I have

SMA 2 and

use a Bi-Pap at night. My diet is healthy and I don't smoke (of course). I just

had an echo

to see if my heart is weakening. Is this something to expect with the

progression of SMA?

Could it be related to cardiomyopathy? I haven't had any signs of that yet

(until I get the

results of the echo). I'll probably be put on meds to control the blood pressure

but I'd

appreciate any advice.

Alice

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Autos.

[Guest guest]

I used to have high bp before I was put on the vent 2 years ago. I took

Avapro for it. I no longer need meds to control it, as it runs around 110/70.

Vicki

************************************** See what's free at http://www.aol.com.

[Guest guest]

Alice,

I'm only 28 but I've never had chronic issues with my blood pressure being high;

even when I was pregnant, it was normal. The only time it has risen is when I

am in a lot of pain that has gotten out of control or when I have a really bad

pneumonia which causes me to cough my head off.

Milinovich

SMA Type I

high blood pressure and SMA

Hi everyone,

My blood pressure has been slowing increasing this past year and now it's at the

point

where it's rather high (157/100). I have no idea why this is happening. I have

SMA 2 and

use a Bi-Pap at night. My diet is healthy and I don't smoke (of course). I just

had an echo

to see if my heart is weakening. Is this something to expect with the

progression of SMA?

Could it be related to cardiomyopathy? I haven't had any signs of that yet

(until I get the

results of the echo). I'll probably be put on meds to control the blood pressure

but I'd

appreciate any advice.

Alice

__________________________________________________

[Guest guest]

My blood pressure is extremely high and difficult to read. My cardiologist

uses a Doppler system so he can get the best read that he can. I take both

Toprol and Caduet to keep it under control, which means my top number is in

the 130 to 140-range. I have SMA-II and weigh about 40 pounds. I'm 33 years

old and do not yet use any assistive breathing or feeding intervention. My

doctor hasn't been too concerned about figuring out the cause of my high blood

pressure, primarily I think, because it is controllable with the meds.

Bethany

In a message dated 5/7/2007 3:53:23 PM Eastern Daylight Time,

alwong1_99@... writes:

Hi everyone,

My blood pressure has been slowing increasing this past year and now it's at

the point

where it's rather high (157/100). I have no idea why this is happening. I

have SMA 2 and

use a Bi-Pap at night. My diet is healthy and I don't smoke (of course). I

just had an echo

to see if my heart is weakening. Is this something to expect with the

progression of SMA?

Could it be related to cardiomyopathy? I haven't had any signs of that yet

(until I get the

results of the echo). I'll probably be put on meds to control the blood

pressure but I'd

appreciate any advice.

Alice

************************************** See what's free at http://www.aol.com.

[Guest guest]

High blood pressure could be caused by a lot of things including

simply that you inherited it from your one of your parents. The

only sure fire guaranteed way to permanently bring it back down

without drugs is to lose weight if you are currently over weight.

The most common drug used to treat high blood pressure is some form

of diahretic, which makes you have to pee constantly. If you use a

wheelchair during the day, that could be a problem because you will

have to pee about every 15 minutes for the first few hours after

taking the drug. Typically, you take the pill (like HCTZ) every

morning, so I imagine you would have to make sure someone can take

you to the bathroom throughout every morning.

>

> Hi everyone,

>

> My blood pressure has been slowing increasing this past year and

now it's at the point

> where it's rather high (157/100). I have no idea why this is

happening. I have SMA 2 and

> use a Bi-Pap at night. My diet is healthy and I don't smoke (of

course). I just had an echo

> to see if my heart is weakening. Is this something to expect with

the progression of SMA?

> Could it be related to cardiomyopathy? I haven't had any signs of

that yet (until I get the

> results of the echo). I'll probably be put on meds to control the

blood pressure but I'd

> appreciate any advice.

>

> Alice

>

[Guest guest]

I'm not over weight. I weigh 75 lbs.. And the medication in the dosage I take

does not make me pee any more than I did before I started taking it. But you're

right, that is what the medication usually does.

Lainie

<way2square@...> wrote: High blood

pressure could be caused by a lot of things including

simply that you inherited it from your one of your parents. The

only sure fire guaranteed way to permanently bring it back down

without drugs is to lose weight if you are currently over weight.

The most common drug used to treat high blood pressure is some form

of diahretic, which makes you have to pee constantly. If you use a

wheelchair during the day, that could be a problem because you will

have to pee about every 15 minutes for the first few hours after

taking the drug. Typically, you take the pill (like HCTZ) every

morning, so I imagine you would have to make sure someone can take

you to the bathroom throughout every morning.

>

> Hi everyone,

>

> My blood pressure has been slowing increasing this past year and

now it's at the point

> where it's rather high (157/100). I have no idea why this is

happening. I have SMA 2 and

> use a Bi-Pap at night. My diet is healthy and I don't smoke (of

course). I just had an echo

> to see if my heart is weakening. Is this something to expect with

the progression of SMA?

> Could it be related to cardiomyopathy? I haven't had any signs of

that yet (until I get the

> results of the echo). I'll probably be put on meds to control the

blood pressure but I'd

> appreciate any advice.

>

> Alice

>

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Autos.