MJ Update - Life is an adventure

[Guest guest]

Hi everyone:

Week 9 is over and done. Class wise, everything went well…life, well, you

know me and life surely got in the way this week. You know my motto: Life is

an adventure!!

Monday, we got the Neurotin, which after half a dose, quickly managed my pain

for a few hours, so that was excellent. Thank you Dr. Proskin, you are the

best. I had my math test too, which seemed almost too easy.

Tuesday, I had my meeting with my English teacher to see how I was doing in

class and what I needed to do to my final papers. Of course, he started off by

saying, “I have good news and bad news!†I hate conversations like that

when it is about my classwork or anything really. The good news was that I

“don’t have to†rewrite my papers and I would end up with an A….the bad

news was that he forgot my papers. We talked for awhile and then and I

went to head back to the apartment. Life got in the way. Got loaded into the

van and well, the van was dead. I mean dead!!! GRRRRR! It wouldn’t turn

over or anything, except the radio worked. Well, talked to dad, talked to MC

Mobility, tried Wheelchair Getaways, etc…nothing. Called dad back who called

MC Mobility and Wheelchair Getaways (boy, did I ever need a getaway).

and I walked over to get something to eat, but while in the cafeteria,

Wheelchair Getaways called to say that a minivan was going to be delivered

shortly, so could we meet the driver outside. Skip food, grab a drink, and

walked back to the dead van. We sat and waited for an hour, when MC Mobility

called saying they were on their way. We waited 10 minutes and headed outside

to get what we needed out of the van. Kenny showed up with the minivan we

rented in October and we were on our way. Now to deal with the dead van. Kenny

was going to ask around for who could come get the van, which didn’t happen

until later so we had to go to the Union to get a temporary parking permit to

leave the big van parked on campus. Finally heard from the company at 5pm and

that they would get the van in the morning.

Wednesday morning we got up for class and had to leave early because they wanted

to get the van right away. Of course, forgot to grab the ice scraper so

we had to sit in the van for the windows to clear. Headed to campus and grabbed

the ice scraper out of the big van and headed to class. The shop took the van

so that was good. We headed home and ate lunch and I changed clothes (since I

had metal on my pants) and did some homework before we headed to Children’s.

I had my MRI scheduled. They wanted me to stop “eating†at 3pm and only

drink clear liquids. The techs said that my formula would be fine, but I hate

to tell them, that my Tolerex isn’t ever really clear. LOL! Well, we just

kept the regular mixture and watered it down some more so it was a murky clear.

They didn’t even look. It was a challenge getting the lift in the minivan but

we got it. Transferring onto the table was fine, it was the moving me into

position that sucked. The test took less than an hour and by the time it was

done, my legs were completely numb and I was a mess. My back hurt from being on

the table, my legs were numb and gaining feeling quickly and painfully, my arm

and collar bone hurt from the position my arm was in, and my neck hurt from the

angle I was laying. I felt like I was run over by a truck. UGH. We ran into

Dr. Mueller and talked to him about how we got Dr. Proskin to call in my

prescription for Neurotin. Told him that we were sick of the policy of

“stepping on toes†and were done with their idiotic ways. He was actually

embarrassed and apologized for what we had to go through. I told him that I was

done with all the tests and if the MRI didn’t show anything, it just doesn’t

matter any more. I finally have something that helps the pain and that was the

most important thing. We think he got the point and he offered to fill or write

a prescription for whatever we want to try or need. We headed home and ate a

quick dinner and headed to bed.

Thankfully, I didn’t have English class on Thursday, so I got to sleep in

until 11am. Got up and headed to my afternoon class. After class we went and

got my packages after mailing out 3 more blankets. Of course, we had the

minivan and of course, it was all of my medical supplies. I had 7 boxes that

needed to fit in our minivan. After a bunch of squishing boxes, all 7 made it

in (with none on my lap) and back to the apartment. and I were both very

tired today, so ignored the boxes (after she drug them into the

apartment) and we ate dinner and went to bed early.

Yesterday, we had a pretty good day. I was still sore from the MRI, but was a

little better pain wise, but was more congested. I did start antibiotics on

Sunday and was feeling better but Friday was having more issues with coughing.

Who knows!!??!! Came back to the apartment and worked on websites while

emptied the medical supply boxes and cleaned some. We then did our Friday

afternoon routine…which is pick up packages from Residence Services, get

groceries, and go eat dinner. We found a Qdoba restaurant nearby that does take

out so we went in and I ordered a naked chicken burrito and ordered a

beef taco salad. Delicious!! Will definitely eat there again! Did more

websites and went to bed.

Today, I slept in which was much needed. I will be working on papers this

weekend. I have 3 papers to write for Psychology class, rewrite 2 papers for

Disability in Literature and Culture and work on my final paper, and was

supposed to rewrite my English papers if I wanted to, but my teacher has yet to

email them to me. I will also do some math homework (isn’t due until

Wednesday, but might as well get it started). I am not going to go visit

grandma today as I am still feeling chunky and don’t want to risk giving or

getting something else. Hopefully, we will go visit on Wednesday. Grandma June

sounded great when I talked to her, she is getting around good and is off pain

meds. Hooray!! Thanks to everyone who has prayed for her. Her recovery has

been pretty easy and she is enjoying herself at the nursing home.

Next week, is the last week of class before finals. English class is over on

Thursday, so I will be done with that one early. Next weekend is the Miracle

for Madison and Friends event in Columbus. We are heading over for that. Not

sure how long we will stay, depends on how I feel after a long week of classes,

but can’t wait to meet some new families that I have talked to online but

never met in person. Until next week, everyone stay safe and hope everyone

feels better that is under the weather this week.

Quotes of the week:

The purpose of life, after all, is to live it, to taste experience to the

utmost, to reach out eagerly and without fear for newer and richer experiences.

~ Eleanor Roosevelt ~

The quality of a person's life is in direct proportion to their commitment to

excellence, regardless of their chosen field of endeavor. ~ Lombardi ~

MJ

www.our-sma-angels.com/Margaret - My website

www.our-sma-angels.com/b4sma - My organization

________________________________________________________________________

AOL now offers free email to everyone. Find out more about what's free from AOL

at AOL.com.