reflux and urination (now there's a pair!)

[Guest guest]

I have a question. I was wondering if others have difficulty with acid

reflux, or more specifically, regergitation of food after eating? My 26 yr

old son,(his birthday was yesterday!) has this problem and I was wondering

if it was related to his SMA, or something else. Does anyone else have this

issue?

Also, he has been having trouble lately getting to the bathroom in time to

urinate, particularly in the morning. I guess his legs are more stiff in

the morning and he is starting to not make it to the toilet in time. Is this

what we should expect...that it will only worsen?

Mom to , SMA not sure if Type III or IV

Indianapolis, IN

>From: " Taija Heinonen KOTI " <taija.heinonen@...>

>Reply-

>< >

>Subject: Re: [ROSKAPOSTI] Re: Choking and SMA

>Date: Wed, 3 Jan 2007 21:32:06 +0200

>

>Hi

>

>I have similar issues so I've done some research into it. Basically the

>only advice is to change the consistence of the food. Make it softer, if

>it's hard. Make it finer, if it's something like rice or corn. Use a

>blender or some similar kitchen utensil.

>

>Always chew well. Don't talk and eat at the same time (as I always do).

>

>Nuts of all kinds, uncooked apple, pop corn are all notorious for choking.

>So I've stopped eating them. Beans and corn can be hard too because of the

>shell.

>

>Clear liquids can be harder to swallow than liquids that are slightly

>thicker. That may be why you find drinking milk helpful - milk is thicker

>than water. There are even specific thickeners that you can add to juice or

>water to make it thicker and easier to follow.

>

>For me, I have also found it that sometimes food that was stuck is

>dislodged when I lie down on my left side. Don't know why. The scary part

>in this is that sometimes I did not even notice that there were any pieces

>of food lurking in my throat. I am afraid that if I don't know they are

>there then it increases their likelihood of them getting in my airways

>which can be very dangerous.

>

>And finally, to make you really scared , it IS possible to die of choking

>on food. So it may be a good idea for your carers to be knowledgeable about

>first aid. Plus food that goes in the airways can cause a severe case of

>pneumonia.

>

>You can have a swallow study done in a hospital to determine how serious

>your swallowing problems are.

>

>Probably all this just served to scare you. but I send you many

>smiles anyway

>

>Taya

>37 years with SMA type II

>

> [ROSKAPOSTI] Re: Choking and SMA

>

>

> I've started doing that too over the past two years or so. It doesn't

> matter what I eat either. Even pudding I will have a hard time getting

> down. I tip my head to the left (guess you could go either direction)

> and tip it forward at the same time. It gives a direct path for the

> food to go down. When I asked my Doctor about it she told me to do what

> I just said. I told her I guess it was natural instinct to do it that

> way cuz thats what I've been doing. I just don't like doing it when we

> are eating out. Things still get stuck but I don't choke. I always have

> a big glass of milk too just incase I need something to push it down

> altho some times the milk just passes by what ever is stuck. Just

> relax, breathe slow and stay calm and it will go down.

>

>

> >

> > Lately I've noticed that I choke alot on food, simple things like

> > rice or corn can cause a choking fit. Is this part of SMA? Does

> > this mean that I will have to get a feeding tube soon? I'm pretty

> > worried, so any advice is appreciated.

> >

> > Simone (totally freaking out right now)

> >

>

>

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