Re: Has anyone used a therbite??????

[Guest guest]

How do I get one, and what's the cost?

Sebastianelli wrote:

>

> My son SMA II has been using a Therabite since Aug. he started out

> with a mouth opening of approx. 13mm. Since using the Therabite his

> opening

> is approx. 18mm to 19mm. This device is working great for him.

> The reason why I am writing is to found out if anyone else has used this

> device and if they would mind sharing their experiences with it.

> I am trying to get it covered thru my insurance but they have called it

> experimental. No research to back it up. So I thought maybe if I had some

> other SMA users it may satisfy this criteria. Thanks for the help.

>

>

>

> __________________________________________________________

> Get live scores and news about your team: Add the Live.com Football Page

> www.live.com/?addtemplate=football & icid=T001MSN30A0701

>

>

[Guest guest]

Nick,

I remember asking questions if anyone used this last year. Here is the website:

http://www.atosmedical.com/Products/Mouth_Jaw.aspx/

I could not find the price anywhere, but it sounds expensive. Here is an e-mail

to contact the company for information:

info@...

We are going to try to get one for Brett- as I have noticed the decrease in how

wide he can open his mouth over the past year. Good luck!

Kristal

Mom to Brett- SMA II- 7 years old!!!!!

" Life is 10% what happens to you and 90% how you respond to it. " ~anonymous

Visit Brett's website at: http://www.our-sma-angels.com/brett/index.htm

Learn more about SMA:

www.fsma.org

www.smasupport.com

Re: Has anyone used a therbite??????

How do I get one, and what's the cost?

Sebastianelli wrote:

>

> My son SMA II has been using a Therabite since Aug. he started out

> with a mouth opening of approx. 13mm. Since using the Therabite his

> opening

> is approx. 18mm to 19mm. This device is working great for him.

> The reason why I am writing is to found out if anyone else has used this

> device and if they would mind sharing their experiences with it.

> I am trying to get it covered thru my insurance but they have called it

> experimental. No research to back it up. So I thought maybe if I had some

> other SMA users it may satisfy this criteria. Thanks for the help.

>

>

>

> __________________________________________________________

> Get live scores and news about your team: Add the Live.com Football Page

> www.live.com/?addtemplate=football & icid=T001MSN30A0701

>

>

[Guest guest]

Most insurance companies will dismiss peer testimonials from other SMA patients

as

anecdotal evidence. You can try, but it probably won't work. Remember; the

insurance

company is looking for reasons to NOT pay for this item. Try the Therabite

manufacturer's

website, here:

http://www.atosmedical.se/Products/Mouth_Jaw/Clinical%20Evidence.aspx

Most of what is listed is about post-surgical oral cancer rehabilitation, but

you might find

something of use there. If you need help getting an appeal together, feel free

to call me.

I'm a volunteer with SMA Support and one of my main roles in that organization

is to help

with insurance appeals. I might be hard to reach since I still have lots of

holiday stuff to

do, but I'll get back to you as soon as I can. 864-845-8816

Piedmont, SC

>

>

> My son SMA II has been using a Therabite since Aug. he started out

> with a mouth opening of approx. 13mm. Since using the Therabite his opening

> is approx. 18mm to 19mm. This device is working great for him.

> The reason why I am writing is to found out if anyone else has used this

> device and if they would mind sharing their experiences with it.

> I am trying to get it covered thru my insurance but they have called it

> experimental. No research to back it up. So I thought maybe if I had some

> other SMA users it may satisfy this criteria. Thanks for the help.

>

>

>

> _________________________________________________________________

> Get live scores and news about your team: Add the Live.com Football Page

> www.live.com/?addtemplate=football & icid=T001MSN30A0701

>

[Guest guest]

The Therabite cost around $ 500.00

What happen was our primary ins.Keystone approved it with an authorization

no. and we got the device then when the Therabite company submitted for

payment the ins. comp. denied it. Now it is in review. 's secondary

ins. is thru Gateway HMO Medicaid I just got a denial from them on my 2nd

level grievance. They just keep you jumping through hoops. I feel this is

important medically for and ins. should cover it. I have letters from

a plastic surgeon, neurologist,Dr, of Physical Therapy, his primary care doc

and a case manager of ventilation program RN still they are not approving

device. After the beginning of year I will continue this fight.

>From: " Kristal Koehler " <kkoehler47@...>

>Reply-

>< >

>Subject: Re: Has anyone used a therbite??????

>Date: Wed, 27 Dec 2006 10:48:42 -0600

>

>Nick,

>I remember asking questions if anyone used this last year. Here is the

>website:

>

>http://www.atosmedical.com/Products/Mouth_Jaw.aspx/

>

>I could not find the price anywhere, but it sounds expensive. Here is an

>e-mail to contact the company for information:

>

>info@...

>

>We are going to try to get one for Brett- as I have noticed the decrease in

>how wide he can open his mouth over the past year. Good luck!

>

>Kristal

>Mom to Brett- SMA II- 7 years old!!!!!

> " Life is 10% what happens to you and 90% how you respond to it. " ~anonymous

>Visit Brett's website at: http://www.our-sma-angels.com/brett/index.htm

>Learn more about SMA:

>www.fsma.org

>www.smasupport.com

> Re: Has anyone used a therbite??????

>

>

> How do I get one, and what's the cost?

>

> Sebastianelli wrote:

>

> >

> > My son SMA II has been using a Therabite since Aug. he started

>out

> > with a mouth opening of approx. 13mm. Since using the Therabite his

> > opening

> > is approx. 18mm to 19mm. This device is working great for him.

> > The reason why I am writing is to found out if anyone else has used

>this

> > device and if they would mind sharing their experiences with it.

> > I am trying to get it covered thru my insurance but they have called

>it

> > experimental. No research to back it up. So I thought maybe if I had

>some

> > other SMA users it may satisfy this criteria. Thanks for the help.

> >

> >

> >

> > __________________________________________________________

> > Get live scores and news about your team: Add the Live.com Football

>Page

> > www.live.com/?addtemplate=football & icid=T001MSN30A0701

> >

> >

>

>

>

>

>

>

[Guest guest]

Could you educate me as to what the " therabite " is? Thanks so much.

Beth

Re: Has anyone used a therbite??????

>

>

> How do I get one, and what's the cost?

>

> Sebastianelli wrote:

>

> >

> > My son SMA II has been using a Therabite since Aug. he started

>out

> > with a mouth opening of approx. 13mm. Since using the Therabite his

> > opening

> > is approx. 18mm to 19mm. This device is working great for him.

> > The reason why I am writing is to found out if anyone else has used

>this

> > device and if they would mind sharing their experiences with it.

> > I am trying to get it covered thru my insurance but they have called

>it

> > experimental. No research to back it up. So I thought maybe if I had

>some

> > other SMA users it may satisfy this criteria. Thanks for the help.

> >

> >

> >

> > __________________________________________________________

> > Get live scores and news about your team: Add the Live.com Football

>Page

> > www.live.com/?addtemplate=football & icid=T001MSN30A0701

> >

> >

>

>

>

>

>

>

[Guest guest]

Hi all Therabite-Users,

some days ago I received my Therabite and love it! The only problem is that I

can not squeeze down the lever as much as I would like. My jaw is stronger than

I am. :-)

Has anyone of you found out how to use it on your own?

I will write a mail to the producer to ask if there is a method to step up

pressure but maybe one of you had a great idea and I do not have to ask my

assistants for help anytime I use it.

Have a nice day

Camilla

Germany

>

>

> My son SMA II has been using a Therabite since Aug. he started out

> with a mouth opening of approx. 13mm. Since using the Therabite his opening

> is approx. 18mm to 19mm. This device is working great for him.

> The reason why I am writing is to found out if anyone else has used this

> device and if they would mind sharing their experiences with it.

> I am trying to get it covered thru my insurance but they have called it

> experimental. No research to back it up. So I thought maybe if I had some

> other SMA users it may satisfy this criteria. Thanks for the help.

>

>

>

> _________________________________________________________________

> Get live scores and news about your team: Add the Live.com Football Page

> www.live.com/?addtemplate=football & icid=T001MSN30A0701

>