Re: reflux and urination (now there's a pair!)

[Guest guest]

Hi . I don't know if the relfux is SMA related or not but I do get that

sometimes. I have had heartburn and acid reflux for a while and I was put on

Prilosec. That pretty much eliminated the heartburn but I sometimes do

regurgitate just a little bit of food. After the news about Prilosec weakening

bones (something to do with the absorption of calcium) I am a little concerned.

I've had a few falls but no broken bones.

As far as urination, that is very familiar to me. I have type 3 and I'm 36.

About 6 years ago I began keeping a plastic urinal next to my bed. I didn't

like the idea at first but it makes things a whole lot easier. If I get a

sudden urge, and I'm in bed, I can just use that rather than try to get to the

bathroom too quickly and either not making it in time or stumble because I'm in

a hurry. I'd definitely recommend getting a couple of those. Feel free to

write if you have any more questions.

Tom

--------- [ROSKAPOSTI] Re: Choking and SMA

>

>

> I've started doing that too over the past two years or so. It doesn't

> matter what I eat either. Even pudding I will have a hard time getting

> down. I tip my head to the left (guess you could go either direction)

> and tip it forward at the same time. It gives a direct path for the

> food to go down. When I asked my Doctor about it she told me to do what

> I just said. I told her I guess it was natural instinct to do it that

> way cuz thats what I've been doing. I just don't like doing it when we

> are eating out. Things still get stuck but I don't choke. I always have

> a big glass of milk too just incase I need something to push it down

> altho some times the milk just passes by what ever is stuck. Just

> relax, breathe slow and stay calm and it will go down.

>

>

> >

> > Lately I've noticed that I choke alot on food, simple things like

> > rice or corn can cause a choking fit. Is this part of SMA? Does

> > this mean that I will have to get a feeding tube soon? I'm pretty

> > worried, so any advice is appreciated.

> >

> > Simone (totally freaking out right now)

> >

>

>

>

>

>

>

[Guest guest]

Thanks, Tom. I did go out and buy a urinal, so now he can avoid

accidents. Thanks for responding.

>From: tshindle@...

>Reply-

>

>Subject: Re: reflux and urination (now there's a pair!)

>Date: Thu, 04 Jan 2007 00:55:34 +0000

>

>Hi . I don't know if the relfux is SMA related or not but I do get

>that sometimes. I have had heartburn and acid reflux for a while and I was

>put on Prilosec. That pretty much eliminated the heartburn but I sometimes

>do regurgitate just a little bit of food. After the news about Prilosec

>weakening bones (something to do with the absorption of calcium) I am a

>little concerned. I've had a few falls but no broken bones.

>As far as urination, that is very familiar to me. I have type 3 and I'm

>36. About 6 years ago I began keeping a plastic urinal next to my bed. I

>didn't like the idea at first but it makes things a whole lot easier. If I

>get a sudden urge, and I'm in bed, I can just use that rather than try to

>get to the bathroom too quickly and either not making it in time or stumble

>because I'm in a hurry. I'd definitely recommend getting a couple of

>those. Feel free to write if you have any more questions.

>Tom

>

>--------- [ROSKAPOSTI] Re: Choking and SMA

> >

> >

> > I've started doing that too over the past two years or so. It doesn't

> > matter what I eat either. Even pudding I will have a hard time getting

> > down. I tip my head to the left (guess you could go either direction)

> > and tip it forward at the same time. It gives a direct path for the

> > food to go down. When I asked my Doctor about it she told me to do what

> > I just said. I told her I guess it was natural instinct to do it that

> > way cuz thats what I've been doing. I just don't like doing it when we

> > are eating out. Things still get stuck but I don't choke. I always have

> > a big glass of milk too just incase I need something to push it down

> > altho some times the milk just passes by what ever is stuck. Just

> > relax, breathe slow and stay calm and it will go down.

> >

> >

> > >

> > > Lately I've noticed that I choke alot on food, simple things like

> > > rice or corn can cause a choking fit. Is this part of SMA? Does

> > > this mean that I will have to get a feeding tube soon? I'm pretty

> > > worried, so any advice is appreciated.

> > >

> > > Simone (totally freaking out right now)

> > >

> >

> >

> >

> >

> >

> >

[Guest guest]

Plastic milk cartons can be a cheap substitute if you're a careful

person (they have sharp edges inside).

jeff

KAREN HUNT wrote on 01/04/07 06:26:

> Thanks, Tom. I did go out and buy a urinal, so now he can avoid

> accidents. Thanks for responding.

>

>

[Guest guest]

Ouch! Not a bad idea though, in a pinch (no pun intended!). I'll keep that

in mind. Thanks.

>From: Jeff <jeff@...>

>Reply-

>

>Subject: Re: reflux and urination (now there's a pair!)

>Date: Thu, 04 Jan 2007 11:36:29 -0600

>

>Plastic milk cartons can be a cheap substitute if you're a careful

>person (they have sharp edges inside).

>

>jeff

>

>KAREN HUNT wrote on 01/04/07 06:26:

> > Thanks, Tom. I did go out and buy a urinal, so now he can avoid

> > accidents. Thanks for responding.

> >

> >

>

[Guest guest]

It only takes once to learn to be careful!

KAREN HUNT wrote on 01/04/07 11:53:

> Ouch! Not a bad idea though, in a pinch (no pun intended!). I'll keep that

> in mind. Thanks.

>

>

>

>

>

>>From: Jeff <jeff@...>

>>Reply-

>>

>>Subject: Re: reflux and urination (now there's a pair!)

>>Date: Thu, 04 Jan 2007 11:36:29 -0600

>>

>>Plastic milk cartons can be a cheap substitute if you're a careful

>>person (they have sharp edges inside).

>>

>>jeff

>>

>>KAREN HUNT wrote on 01/04/07 06:26:

>>

>>>Thanks, Tom. I did go out and buy a urinal, so now he can avoid

>>>accidents. Thanks for responding.

>>>

>>>

>>

>

>

>

>

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