Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 Hi all, I don't post very often but feel compelled to jump in here given the number of recent e-mails on this topic. As a parent of an 8 y/o boy with autism, I don't like to see parents of children with autism characterized in unflattering ways (desperate, gullible, angry, uneducated,...). As someone who has worked in the health care industry for 30 years, I also don't like to see disparaging and non- specific comments about " physicians " and the entire health care industry. True, there are many very serious and complex problems in our industry but it isn't fair (or accurate) to characterize physicians, in general, as arrogant, greedy, uneducated and the entire system as corrupt… We all need to remember that there are many wonderful physicians who are trying to help; many of whom have severely affected children. My best friend is a physician and her 11 year old son is one of the most severely affected kids I've ever met. He weighs about 50 pounds and may not survive his complex illnesses despite her courageous efforts. She is one of the sweetest, most thoughtful and compassionate people I've ever met. She's blazing trails for the rest of us. For those of us who have dedicated our lives to helping the sick, the experience of having a desperately ill child and being shunned by our colleagues is just devastating on many levels. We are all feeling the sting. Besides being a mom of an affected child, I not only worked as a nurse who volunteered in a free clinic and immunized hundreds of poor children, but in the early 1980's, I worked in a neonatal ICU and took care of infants who literally died my arms of Haemophilus influenzae type b (Hib). The process of learning that the vaccine industry and immunization is less than perfect is difficult and paradigm shattering. I've had plenty of nightmares and felt terribly conflicted and worried about the kids I immunized. I never ever intended to harm anyone. Some health care people are trying to listen and learn. Parent voices are being heard by policymakers and the system is responding. They are more likely to listen, however, if they are treated with the same measure of respect we want for ourselves. Vicky Quote Link to comment Share on other sites More sharing options...
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