Re: Where a very medicated Jenn waxes on and on about her we...

[Guest guest]

In a message dated 8/17/2006 1:19:59 PM Eastern Standard Time,

nekrosys@... writes:

I agree. I feel like the only way I'm going to loose weight is by drinking

water and eating

plain brown rice!

Is it dangerous to diet when you have SMA?!

By the way, SO glad you're up and well. I knew you'd be ok. =D

@<|:-) ._.~*~._. Amy & Will ._.~*~._. (-:|>@

Our big girl now

Our baby forever!

Happy 3rd Birthday Olivia!

Sept 18

>o<,,,,>o<

SS*'-'*SS

(3)..(_0__)....

,-||-.//_/.|......

|____|(_/__|......

{__|_______).sesm

Celebrating with baby brother Phineas!

[Guest guest]

I'm there with you on the can't-lose-weight end of the spectrum. Of all the

symptoms of SMA I was stuck with, WHY did I miss out on that one?

I finally have a possible explanation for myself though. I was diagnosed

with hypothyroidism a few months ago, which can cause an inability to lose

weight. Since I've been taking my thyroid medicine, my metabolism has definitely

sped up. I can't tell if I've lost any weight, maybe a little, but I could feel

a definite change in my metabolism within the first week or two.

-e

[Guest guest]

> Is it dangerous to diet when you have SMA?!

I think it's mostly a matter of *how* you diet. Besides that

I'm clueless.

But I am *so* glad to have that gallbladder thing over with!

I'm glad you knew I was going to make it, because I sure

didn't think I would!

Jenn

[Guest guest]

>

> I'm there with you on the can't-lose-weight end of the spectrum. Of all the

> symptoms of SMA I was stuck with, WHY did I miss out on that one?

I ask myself that same question all the time!

> I finally have a possible explanation for myself though. I was diagnosed

> with hypothyroidism a few months ago, which can cause an inability to lose

> weight. Since I've been taking my thyroid medicine, my metabolism has

definitely

> sped up. I can't tell if I've lost any weight, maybe a little, but I could

feel

> a definite change in my metabolism within the first week or two.

I really am beginning to think something like that is going on with

me too. But as I said to , getting a doctor to consider it is

another thing all together.

Jenn

[Guest guest]

In a message dated 8/17/2006 9:23:33 PM Eastern Standard Time,

nekrosys@... writes:

Believe it or not, it was *awesome* as far as such horrid things go.

The anesthesiologist put me in " twilight sleep " and *then*

intubated me. After that, they gave me the general. I guess

I stayed " under " an unusually long time afterwards so they took

the tube out when I was just coming around. I don't

remember that either, except for maybe some foggy voices

saying, " We're gonna get that out of you now. " The only

injury involved a bloody nose. When the anesthesiologist

apologized for giving me a bloody nose (he *apologized*apologized

believe it?!), I said a bloody nose was *nothing* compared to

past experiences with " the tube. " I told him I loved him.

Oh Jenn, that's awesome! I know how scared you were (no lie, I was having

anxiety attacks FOR you the night before) so what a relief it wasn't very

traumatic. They ended up giving me some sort of nice anti-anxiety med

immediately

before intubating me for Phin which helped somewhat, but it's still awfully

vivid. I remember 5 seconds before they took the tube out, the

anesthesiologist told me to cough. I thought for sure I was doomed if this

asshole thought I

could cough. =) I also had blood issues except it consisted of a giant blood

clot in the back of my nose/throat. Grrrrrrrrrrross.

Amy

Wife to Will 11/3/95

Mama to Olivia Isabelle 9/18/03

&

Phineas Maximilian 11/30/05

[Guest guest]

Maybe once all this gallbladder stuff gets settled, I'll see if

I can get a referral to a specialist. Even a dietician that

actually knew how to deal with a person like me would be

nice.

Jenn

>

>

> It's true, convincing doctors is never fun. But of all the disagreements

> I've ever had with doctors since I was a little kid, I've ALWAYS been right.

>

> I would look into the thyroid thing, you never know. My mom just found out

> she has it too, even though she'd tested negatively for years. Apparently the

> specialists can do more in depth tests.

>

> -e

[Guest guest]

> So, seriously, how did the intubation/extubation go? Better or worse than

> with the kids?

Believe it or not, it was *awesome* as far as such horrid things go.

The anesthesiologist put me in " twilight sleep " and *then*

intubated me. After that, they gave me the general. I guess

I stayed " under " an unusually long time afterwards so they took

the tube out when I was just coming around. I don't

remember that either, except for maybe some foggy voices

saying, " We're gonna get that out of you now. " The only

injury involved a bloody nose. When the anesthesiologist

apologized for giving me a bloody nose (he *apologized*, can you

believe it?!), I said a bloody nose was *nothing* compared to

past experiences with " the tube. " I told him I loved him.

Jenn

[Guest guest]

When I went to the MDA clinic my Dr. talked to me about dieting and said because

of my SMA most foods including carrots, oranges and anything with starches can't

be processed the same way that normal people can. I wish he would of let me know

what I can eat though because I really need to lose over 60 pounds and it is

making me very depressed. I am supposed to have my thyroid checked at my next

visit next week and am hoping this is the cause of my trouble, but my

neurologist said that it was OK for me to diet because the weight loss will help

cause less stress on my body.

Tammy

jennifer <nekrosys@...> wrote:

> Is it dangerous to diet when you have SMA?!

I think it's mostly a matter of *how* you diet. Besides that

I'm clueless.

But I am *so* glad to have that gallbladder thing over with!

I'm glad you knew I was going to make it, because I sure

didn't think I would!

Jenn

---------------------------------

Stay in the know. Pulse on the new .com. Check it out.

[Guest guest]

I'm right there with you. I just wish someone would

tell me what and what not to eat. Following the

typical " dieting diet, " even reducing the calorie intake

suggested for " able-bodied " folks, just doesn't seem

to work at all for me. I'm convinced our body

chemistry is different and we just process foods

differently. I just wish someone would outline these

differences for me so I can use them to my

advantage. It's so frustrating!

Jenn

>

> When I went to the MDA clinic my Dr. talked to me about dieting and said

because of my

SMA most foods including carrots, oranges and anything with starches can't be

processed

the same way that normal people can. I wish he would of let me know what I can

eat

though because I really need to lose over 60 pounds and it is making me very

depressed. I

am supposed to have my thyroid checked at my next visit next week and am hoping

this is

the cause of my trouble, but my neurologist said that it was OK for me to diet

because the

weight loss will help cause less stress on my body.

>

> Tammy