[SMAFriends] Siblings/Surgery/Arm Pain/Angie

[Guest guest]

Another plea for help…

So, I survived the dental surgery. All 21 teeth gone! It was more

painful than I thought it would be. Then I woke up in the recovery

room, with a tube down my throat. Apparently, my breathing wasn’t so

good during surgery. I went home the same day. It was a bad

experience, but I’m glad its done with. Now, I have a problem. I

keep getting dizzy. My gums are healing fine, I am off the

antibiotics, but I am dizzy. Its worst when I go from a laying down

position to sitting up. I am assuming I lost lots of blood and my

anemia is just worse. But I haven’t gone to my doctor yet. I haven’t

left the house since the surgery, except for my follow up with the

surgeon.

In addition to the dizziness, my eyes are dark and pupils very

dilated. I look like someone hit me in the face with a shovel. Feel

like that too, my gums are still sore.

In addition to the above addition, my arms feel weaker and hurt more.

Could that be caused by me being under full anesthesia during surgery?

But why would having my teeth removed make my whole body feel so damn

weak?

Oh, the Mestinon has stopped working, it seems. I went from taking

half a pill (30mg) once a day to taking 1 (60mg) pill 3 times a day.

Angie, what should I do? Why would that large dose not work for me

anymore? What the hell is wrong with me??? :-(

I’m going to take 1 and ½ and see if it helps. I can’t take this, my

arms are killing me. Perfect timing too, just when I find a job which

requires typing, my arms are dying out on me. I’m scared. :-(

And about the torturous siblings, my younger brother (19 yr. old), had

been teasing me about my current toothless condition, especially since

its Halloween! However, he actually helped me yesterday. I was

eating dinner, on a large ceramic plate. I didn’t like it and tried

to take it back to the kitchen myself. I underestimated my arm

weakness. The plate started falling down my knees, as I was

struggling to hold it with one hand, with the food flowing down into

my hand, then my joystick moved away and it took me forever to bring

it back so I could get myself closer to the phone. I paged him. So

he came from his room and grabbed the plate and saved me. He’s also

in a chair and has SMA-II, just like me. He keeps telling me not to

try lifting heavy stuff myself, but I do it anyway. Despite him

annoying the crap out of me on a daily basis, I love him to death.

Then I went to my bathroom to wash my hands off from the food, and I

looked up and saw myself in the mirror, looking sick and my mouth dark

and empty, and I broke down crying. I felt so worthless and pathetic.

:-(

The arm pain and weakness is killing me. Help! Anyone, just help me!

God Bless!

~ Meg ~

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