Guest guest Posted August 10, 2006 Report Share Posted August 10, 2006 Hey , I am a type II, 41yrs old, a woman who has found a friendly drug that helps me glide through my days with minimal frustrations. It is Mestinon and I take only 30mg/day right when I wake up. Of course, it took me some time to settle on a dosage that worked well for me without a lot of side effects like diarrhea or over active bladder. Mestinon is not addictive and I really don't have to take it to function, but I do as it relieves some of my frustration and mild fatigueness. Run Mestinon by your neurologist and see what he thinks. It is meant for folks with MG (mavias gravis ... can't spell that one). It helps keep your MN's acetylcholine levels up longer so you don't poop out. Angie On Thursday 10 August 2006 12:04, wrote: > Great info Mitch. I'll bring your post to my doctors appointment > for good discussion point. > > I believe they are under the assumption that the results are better > with a higher SMN2 count. But what you say makes sense too. > > Thanks for the well wishes, I'll definitely do the routine blood- > tests to make sure nothing nasty is happening. I don't hold out > high hopes, but it worth a shot. > > > > > > > A neurgolist here in the Twin Cities said he would > > > be willing to > > > prescribe CARNI-VALfor me. They've asked for a > > > blood-test to see how > > > many back-up copies of SMN2 I have. If enough (I > > > don't know what the > > > number is) they'll put me on the drug. > > > > > > Any pointers from those that have tried this > > > approach? > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
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