ABC News Segment Someone You Should Know - Airs Tuesday, November 14, 2006

[Guest guest]

Hi again,

The interview went very well today, the kids did great! Even Harley warmed

up to the point of being willing to talk on camera. Harry Porterfield is

quite the gentleman, and, once again, I was highly impressed by his warmth

and compassion!

The segment is scheduled to air during the 5:00 PM news tomorrow evening,

Tuesday, November 14th. For those of you who are not local or miss it on TV

(and wish to see it), the piece can be viewed online by going to

http://abclocal.go.com/wls/. Simply click on the News tab, and go to Someone

You Should Know when given the list of options.

Thanks again for all your support. SMA and the different organizations were

discussed in depth, but we'll see what actually makes it to the air. I'm a

little nervous about where this will lead simply because he kept asking if I

ever went public with my life story, have I even thought about it, and would

I be willing to do so. We shall see...

Amy M. Marquez (Ames) - Families of SMA Illinois Chapter Vice President

McHenry, Illinois

" You can go on living, or you can go on dying...the choice is yours! "

ABC News Segment " Someone You Should Know "

Hi again,

Okay, here is a little bit of history that most of you may

not know about me. Back in Spring 1992, my boss at the time called Harry

Porterfield from ABC News to inquire how he learned of people he featured on

his segment " Someone You Should Know " (a special news feature highlighting

people who have accomplished a great deal despite a variety of odds). He

asked her if she knew of someone and encouraged her to tell him about this

person. Unbeknownst to me, she began telling him about me, he requested an

interview, and I learned of it after the fact when I was asked of my

availability by my boss. In the end, I agreed to meet with Mr. Porterfield,

who came with a camera crew to the local MDA Camp (where I was a camper for

the week), and we shot the interview on the grounds of Camp Hastings in

Northern Illinois. The bit was aired in June of that year, and it was, all

around, a cool experience.

All these years, my meeting with Mr. Porterfield has stuck

with me. He was one of the most genuine and warmest individuals I have ever

met, especially within the showbiz industry. Recently I was surfing the net,

came to the website for ABC News, and decided to drop Mr. Porterfield an

e-mail thanking him for the opportunity so many years ago, for being such a

kind person, and providing him with a brief update as to the directions my

life had taken over the years. Roughly a week later I received a phone call

from Mr. Porterfield, himself, thanking me for my note and asking if I would

allow him to interview me again, to do another segment kind of as a then and

now. I agreed, and he is coming to my home on Monday, November 13th to shoot

the feature. I am not aware, as of yet, when it will air, but I will update

as soon as I have that information.

Until then, thanks for your continual support.

Amy M. Marquez - FSMA IL Chapter VP

Diagnosed SMA Type 1 (3 Months of Age)

Trach, Suction Machine, Nebulizer, Cough-Assist,

BiPap/BiFlex

Married to Steve - Since October 1998

Mom to le Coral, Born July 1999 (SMA Free)

Mom to Harley Jasmine, Born March 2004 (SMA Free)

Service Dog Team - Since July 1995

[Guest guest]

Sounds great and I am eager to see it online. As I can't find it - is

it online yet?

Have a nice day,

Camilla

Germany

>

> Hi again,

>

> The interview went very well today, the kids did great! Even Harley

warmed

> up to the point of being willing to talk on camera. Harry

Porterfield is

> quite the gentleman, and, once again, I was highly impressed by his

warmth

> and compassion!

>

> The segment is scheduled to air during the 5:00 PM news tomorrow

evening,

> Tuesday, November 14th. For those of you who are not local or miss

it on TV

> (and wish to see it), the piece can be viewed online by going to

> http://abclocal.go.com/wls/. Simply click on the News tab, and go

to Someone

> You Should Know when given the list of options.

>

> Thanks again for all your support. SMA and the different

organizations were

> discussed in depth, but we'll see what actually makes it to the

air. I'm a

> little nervous about where this will lead simply because he kept

asking if I

> ever went public with my life story, have I even thought about it,

and would

> I be willing to do so. We shall see...

>

>

> Amy M. Marquez (Ames) - Families of SMA Illinois Chapter Vice

President

> McHenry, Illinois

>

> " You can go on living, or you can go on dying...the choice is

yours! "

>

> ABC News Segment " Someone You Should Know "

>

> Hi again,

>

> Okay, here is a little bit of history that most of

you may

> not know about me. Back in Spring 1992, my boss at the time called

Harry

> Porterfield from ABC News to inquire how he learned of people he

featured on

> his segment " Someone You Should Know " (a special news feature

highlighting

> people who have accomplished a great deal despite a variety of

odds). He

> asked her if she knew of someone and encouraged her to tell him

about this

> person. Unbeknownst to me, she began telling him about me, he

requested an

> interview, and I learned of it after the fact when I was asked of my

> availability by my boss. In the end, I agreed to meet with Mr.

Porterfield,

> who came with a camera crew to the local MDA Camp (where I was a

camper for

> the week), and we shot the interview on the grounds of Camp

Hastings in

> Northern Illinois. The bit was aired in June of that year, and it

was, all

> around, a cool experience.

>

> All these years, my meeting with Mr. Porterfield has

stuck

> with me. He was one of the most genuine and warmest individuals I

have ever

> met, especially within the showbiz industry. Recently I was surfing

the net,

> came to the website for ABC News, and decided to drop Mr.

Porterfield an

> e-mail thanking him for the opportunity so many years ago, for

being such a

> kind person, and providing him with a brief update as to the

directions my

> life had taken over the years. Roughly a week later I received a

phone call

> from Mr. Porterfield, himself, thanking me for my note and asking

if I would

> allow him to interview me again, to do another segment kind of as a

then and

> now. I agreed, and he is coming to my home on Monday, November 13th

to shoot

> the feature. I am not aware, as of yet, when it will air, but I

will update

> as soon as I have that information.

>

> Until then, thanks for your continual support.

>

> Amy M. Marquez - FSMA IL Chapter VP

> Diagnosed SMA Type 1 (3 Months of Age)

> Trach, Suction Machine, Nebulizer, Cough-Assist,

> BiPap/BiFlex

> Married to Steve - Since October 1998

> Mom to le Coral, Born July 1999 (SMA Free)

> Mom to Harley Jasmine, Born March 2004 (SMA Free)

> Service Dog Team - Since July 1995

>

>

>