HELLO

[Guest guest]

HI, MY NAME IS JESSICA AND I AM 22 YEARS OLD. ON SEPTEMBER 1, 2003; I GAVE

BIRTH TO A BEAUTIFUL BABY BOY (CARLOS). THE DOCTORS HANDED HIM TO ME AND

ASSURED THAT HE WAS PERFECTLY HEALTHY. ALTHOUGH FOR THE FIRST 9 MONTHS HE WAS

FREQUENTLY SICK HE STILL DEVELOPED NORMALLY. HE LIFT HIS HEAD, HE ROLLED OVER,

HE TOOK HIS FIRST STEPS ... HE WAS SO FULL OF LIFE. SHORTLY AFTER THAT I

STARTED TO NOTICE A CHANGE HE COULD DO THOSE THINGS WITH EASE, HE STARTED TO

REGRESS AND IT HURT BECAUSE ALL THE DOCTORS SAID HE WAS FINE AND IT WAS NORMAL.

IN JULY 2005, JUST 2 MONTHS BEFORE HIS BIRTH DATE I FOUND A DOCTOR WHO WOULD

LISTEN AND SHORTLY AFTER THAT I GOT A CALL. THEY TOLD HE HAD SPINAL MUSCULAR

ATROPHY TYPE 2 BUT DIDN'T THINK HE WOULD LEAVE FOR TO MUCH LONGER. HE FIGHTS

EVERY DAY TO DO THE THINGS HIS COUSIN ARE DOING. HIS SMILE AND SPIRIT JUST

LIGHT YOU UP. WE HAVE STRUGGLED AND JUST WHEN WE THOUGHT WE COULD REST MY SON

WAS HOSPITALIZED WITH PNEUMONIA IN APRIL 2006. HIS LUNG

COLLAPSED AND WE HAD TO MAKE A DECISION ABOUT MY SON'S LIFE BUT ON THE DAY WE

WERE GOING TO ALLOW THEM TO PUT A TUBE TO EASE HIS BREATHING ... MY SONS LUNG

STARTED TO RECOVER. HE STILL HAS A LOT OF BREATHING DIFFICULTY AND MORE FEEDING

ISSUES BUT HE WILL BE TURNING 3 THIS SEPTEMBER AND WE ARE LOOKING FOR TO HAVING

A BIG PARTY. I HOPE THAT THIS INFOTRMATION HELPS YOU TO GET TO KNOW A LITTLE

ABOUT ME AND MY FAMILY.

IF ANYONE HAS OR KNOWS A FEEDING TUBE PLEASE TELL ME ABOUT YOUR EXPIERENCE SO

THAT I CAN DECIDE WHETHER OR NOT THIS IS THE ONLY WAY TO GO FOR MY SON.

SINCERELY,

JESSICA AND CARLOS

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