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Re: Intimacy and SMA

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I am also an ablebodied women, my husband has SMA and is mostly immobile as

well. We just did what seemed natural, and it works great :) Do you have and

specific questions?

Love, Peace and Green Day,

Ali +

Intimacy and SMA

Hey everyone,

I'm writing in need of some advice. I'm an ablebodied woman, dating a

man with SMA. He is mostly immobile.

Does anyone have any advice or technical knowledge about SMA that

might be helpful when it comes to intimacy?

B

A FEW RULES

* The list members come from many backgrounds, ages and beliefs So all

members most be tolerant and respectful to all members.

* Some adult language and topics (like sexual health, swearing..) may

occur occasionally in emails. Over use of inappropriate language will

not be allowed. If your under 16 ask your parents/gaurdian before you

join the list.

* No SPAMMING or sending numerous emails unrelated to the topics of

spinal muscular atrophy, health, and the daily issues of the disabled.

Post message:

Subscribe: -subscribe

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List manager: (Sexy Mature Artist) Email: Esma1999@...

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List manager: (Sexy Mature Artist) Email: Esma1999@...

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Guest guest

I am also an ablebodied women, my husband has SMA and is mostly immobile as

well. We just did what seemed natural, and it works great :) Do you have and

specific questions?

Love, Peace and Green Day,

Ali +

Intimacy and SMA

Hey everyone,

I'm writing in need of some advice. I'm an ablebodied woman, dating a

man with SMA. He is mostly immobile.

Does anyone have any advice or technical knowledge about SMA that

might be helpful when it comes to intimacy?

B

A FEW RULES

* The list members come from many backgrounds, ages and beliefs So all

members most be tolerant and respectful to all members.

* Some adult language and topics (like sexual health, swearing..) may

occur occasionally in emails. Over use of inappropriate language will

not be allowed. If your under 16 ask your parents/gaurdian before you

join the list.

* No SPAMMING or sending numerous emails unrelated to the topics of

spinal muscular atrophy, health, and the daily issues of the disabled.

Post message:

Subscribe: -subscribe

Unsubscribe: -unsubscribe

List manager: (Sexy Mature Artist) Email: Esma1999@...

oogroups.com

List manager: (Sexy Mature Artist) Email: Esma1999@...

Link to comment
Share on other sites

Guest guest

So - and this is really embarrassing - everything, you know, works?

Also, how do you handle reactions of others to your relationship?

>

> I am also an ablebodied women, my husband has SMA and is mostly

immobile as well. We just did what seemed natural, and it works great

:) Do you have and specific questions?

>

> Love, Peace and Green Day,

> Ali +

>

>

> Intimacy and SMA

>

>

> Hey everyone,

>

> I'm writing in need of some advice. I'm an ablebodied woman, dating a

> man with SMA. He is mostly immobile.

>

> Does anyone have any advice or technical knowledge about SMA that

> might be helpful when it comes to intimacy?

> B

>

>

>

>

>

> A FEW RULES

>

> * The list members come from many backgrounds, ages and beliefs So all

> members most be tolerant and respectful to all members.

>

> * Some adult language and topics (like sexual health, swearing..) may

> occur occasionally in emails. Over use of inappropriate language will

> not be allowed. If your under 16 ask your parents/gaurdian before you

> join the list.

>

> * No SPAMMING or sending numerous emails unrelated to the topics of

> spinal muscular atrophy, health, and the daily issues of the disabled.

>

> Post message:

> Subscribe: -subscribe

> Unsubscribe: -unsubscribe

>

> List manager: (Sexy Mature Artist) Email: Esma1999@...

>

>

>

>

> oogroups.com

>

> List manager: (Sexy Mature Artist) Email: Esma1999@...

>

>

>

>

>

>

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Guest guest

" Everything " works unless he has another condition unrelated to SMA.

I, too, have very limited mobility. Over the years I've let go of

any shyness about sex...The more verbal communication we use about

how to move what limb where, the better the experience. Laughing at

the awkwardness helps, too.

As for other people's reactions to us, most people are polite after

they're done being taken aback. On ex-girlfriend's older brother

was unphase by her dating a woman, but he was worried she'd end

taking care of me for the rest of our lives. LOL...I took care of at

least as much as she did of me. It's a little awkward for me now

when Chuck and I go to his company holiday party...They assume I'm

his sister. Chuck's family is great about us, though, his sisters

were at first concerned because I've decided not to have kids. Both

of our friends and family are have really embraced our relationship.

They're glad to see us so happy.

Hope this is helpful.

Alana

> >

> > I am also an ablebodied women, my husband has SMA and is mostly

> immobile as well. We just did what seemed natural, and it works

great

> :) Do you have and specific questions?

> >

> > Love, Peace and Green Day,

> > Ali +

> >

> >

> > Intimacy and SMA

> >

> >

> > Hey everyone,

> >

> > I'm writing in need of some advice. I'm an ablebodied woman,

dating a

> > man with SMA. He is mostly immobile.

> >

> > Does anyone have any advice or technical knowledge about SMA that

> > might be helpful when it comes to intimacy?

> > B

> >

> >

> >

> >

> >

> > A FEW RULES

> >

> > * The list members come from many backgrounds, ages and beliefs

So all

> > members most be tolerant and respectful to all members.

> >

> > * Some adult language and topics (like sexual health, swearing..)

may

> > occur occasionally in emails. Over use of inappropriate language

will

> > not be allowed. If your under 16 ask your parents/gaurdian before

you

> > join the list.

> >

> > * No SPAMMING or sending numerous emails unrelated to the topics

of

> > spinal muscular atrophy, health, and the daily issues of the

disabled.

> >

> > Post message:

> > Subscribe: -subscribe

> > Unsubscribe: -unsubscribe

> >

> > List manager: (Sexy Mature Artist) Email: Esma1999@

> >

> >

> >

> >

> > oogroups.com

> >

> > List manager: (Sexy Mature Artist) Email: Esma1999@

> >

> >

> >

> >

> >

> >

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Guest guest

This is really helpful, Alana. It's good just knowing that we're not

really boldly going where no one has gone before (although it's felt

that way to us.) Thank you.

B

> > >

> > > I am also an ablebodied women, my husband has SMA and is mostly

> > immobile as well. We just did what seemed natural, and it works

> great

> > :) Do you have and specific questions?

> > >

> > > Love, Peace and Green Day,

> > > Ali +

> > >

> > >

> > > Intimacy and SMA

> > >

> > >

> > > Hey everyone,

> > >

> > > I'm writing in need of some advice. I'm an ablebodied woman,

> dating a

> > > man with SMA. He is mostly immobile.

> > >

> > > Does anyone have any advice or technical knowledge about SMA that

> > > might be helpful when it comes to intimacy?

> > > B

> > >

> > >

> > >

> > >

> > >

> > > A FEW RULES

> > >

> > > * The list members come from many backgrounds, ages and beliefs

> So all

> > > members most be tolerant and respectful to all members.

> > >

> > > * Some adult language and topics (like sexual health, swearing..)

> may

> > > occur occasionally in emails. Over use of inappropriate language

> will

> > > not be allowed. If your under 16 ask your parents/gaurdian before

> you

> > > join the list.

> > >

> > > * No SPAMMING or sending numerous emails unrelated to the topics

> of

> > > spinal muscular atrophy, health, and the daily issues of the

> disabled.

> > >

> > > Post message:

> > > Subscribe: -subscribe

> > > Unsubscribe: -unsubscribe

> > >

> > > List manager: (Sexy Mature Artist) Email: Esma1999@

> > >

> > >

> > >

> > >

> > > oogroups.com

> > >

> > > List manager: (Sexy Mature Artist) Email: Esma1999@

> > >

> > >

> > >

> > >

> > >

> > >

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Guest guest

I agree with Alana. Everything is better with open communication and

the ability to get over the awkwardness and laugh. This isn't true for

just persons with disabilities - all of my girlfriends express that

their love lives are much more satisfying when they are able to talk

to their lovers about what they like and how to do things differently.

If your boyfriend isn't being open and asking you to move an arm or

reposition him in some manner, ask him if he'd like you to do that for

him. It may settle his nerves about being open if you begin the

communication and make it clear that expressing those needs are

welcomed on your end.

<3Kendra

> > >

> > > I am also an ablebodied women, my husband has SMA and is mostly

> > immobile as well. We just did what seemed natural, and it works

> great

> > :) Do you have and specific questions?

> > >

> > > Love, Peace and Green Day,

> > > Ali +

> > >

> > >

> > > Intimacy and SMA

> > >

> > >

> > > Hey everyone,

> > >

> > > I'm writing in need of some advice. I'm an ablebodied woman,

> dating a

> > > man with SMA. He is mostly immobile.

> > >

> > > Does anyone have any advice or technical knowledge about SMA that

> > > might be helpful when it comes to intimacy?

> > > B

> > >

> > >

> > >

> > >

> > >

> > > A FEW RULES

> > >

> > > * The list members come from many backgrounds, ages and beliefs

> So all

> > > members most be tolerant and respectful to all members.

> > >

> > > * Some adult language and topics (like sexual health, swearing..)

> may

> > > occur occasionally in emails. Over use of inappropriate language

> will

> > > not be allowed. If your under 16 ask your parents/gaurdian before

> you

> > > join the list.

> > >

> > > * No SPAMMING or sending numerous emails unrelated to the topics

> of

> > > spinal muscular atrophy, health, and the daily issues of the

> disabled.

> > >

> > > Post message:

> > > Subscribe: -subscribe

> > > Unsubscribe: -unsubscribe

> > >

> > > List manager: (Sexy Mature Artist) Email: Esma1999@

> > >

> > >

> > >

> > >

> > > oogroups.com

> > >

> > > List manager: (Sexy Mature Artist) Email: Esma1999@

> > >

> > >

> > >

> > >

> > >

> > >

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Guest guest

I'm a woman with SMA and my husband is the able-bodied one. My best

advice is to experiment, experiment, experiment. We've found a few

good positions that we even made up names for! We must be doing

something right, because we have two daughters that resulted from our

nocturnal activities. I second the need for humor and communication.

One of my most favorites " moments " was when the both of us almost

fell out of bed. We laughed and laughed trying to think of a way to

explain the injuries we might have gotten to our doctors!

People's reactions are a whole other topic. We've had every reaction

ranging from abject horror to folks practically canonizing us as

Saints. Add motherhood to the mix, and folks get really crazy! Humor

can help with this as well.

Jenn

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Guest guest

I was wondering if anyone would be willing to chat with me off-group,

as I have questions about this myself.

Feel free to contact me via email or messenger at the same s/n.

Thank you

Mike

>

> Hey everyone,

>

> I'm writing in need of some advice. I'm an ablebodied woman, dating a

> man with SMA. He is mostly immobile.

>

> Does anyone have any advice or technical knowledge about SMA that

> might be helpful when it comes to intimacy?

> B

>

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