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Hi ,

Here are some official links that might help you in your fight to

getting australia to recognise that there is a need to having 24hour

support. Quay has her own website about her personal assistant

needs, so I would certainly have a look at that site.

http://www.direct.gov.uk/DisabledPeople/fs/en

http://www.dpscotland.org.uk/

http://www.ilf.org.uk/home/index.html

http://www.ncil.org.uk/

http://www.hants.gov.uk/socservs/directpayments/

These sites will give you all the ammunition you need for a good

clean fight. They are a variety of voluntary organisations run by

people with disabilities and other are government sites.

I dont personally work but do voluntary work and outdoor pursuits

(http://www.trailo.org/ a great sport for people with SMA as it is

brains not braun involved.)

What they take into account is your partners earnings as well as

your own but (means testing is there favourite phrase.) They will

also consider any savings and pension funds that are in use etc. My

contributions are fairly minimal.

Well, I hope this helps, if you need any further help please do get

in touch.

All the best Vivien

>

> Thank you and Vivian, To people who receive 24-hour PCA

support, does

> the government put any restrictions on how many hours you can work

and how

> much income and savings you have? The direct payments system in

England

> seems to be the most progress to that I have heard old so far I

don't know a

> lot about it any more information on would-be very appreciated.

> Take care,

>

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