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My daughter uses her cough machine everyday ... it is such a great machine

especially when she is sick! The air can move however you set it ... fast or

slow ..... but yes you do want the air to move quickly in and out ... that it

what triggers you to cough!

If you have any other questions please feel free to ask!

Shaylene

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you can adjust the settings so the pressure for both inhale and exhale are set

to your needs.

jvandyke <jvandyke@...> wrote: I had a question for anyone that has ever

seen, or especially used, one

of the Cough Assist machines.

The pics I saw on the weebsite made it look as if it does the air in and

out very slowly. Is this true? I've always needed the air to go out of

my lungs FAST in most cases to do any good. I've never gotten to see one

in person, and from talking to people and companies in my town, won't

get to see one without a purchase or a stay in the hospital.

I do keep hearing that most people do like their machines, but am still

wondering if the cough is abrupt, or just a slow exhale?

Thanks,

jvandyke

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I HATE this machine & wish I could drop kick it out the door!

I have a cough assist but never have gotten the hang of it.

Friends of mine swear by the thing.

I tried all kinds of settings and all I get is snot shooting out of

my nose and nasty shit getting drawn down the hose that's near

impossible to keep clean and dry. Using the mask destroyed my

sinuses, using the mouth piece shoots slime across the room.

I feel like I've been through an assault on the lowest settings even.

I hate, hate, HATE the damned cough assist!

I'm happy for those who benifit from this machine.

For me, pneaumonia is less painful to me than using a cough assist.

>

> My daughter uses her cough machine everyday ... it is such a great

machine

> especially when she is sick! The air can move however you set

it ... fast or

> slow ..... but yes you do want the air to move quickly in and

out ... that it

> what triggers you to cough!

> If you have any other questions please feel free to ask!

>

> Shaylene

>

>

>

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I was seriously considering purchasing the cough assist. It is not covered

by insurance here in Australia and will cost $10,000. However, after

reading the e-mail below, I am not sure what to do. I would hate to spend

$10,000 for something that isn't going to be useful. Any advice? Does

anyone else have bad experiences? I'd also like to hear about good

experiences too.

Thanks

Re: cough assist question

I HATE this machine & wish I could drop kick it out the door!

I have a cough assist but never have gotten the hang of it.

Friends of mine swear by the thing.

I tried all kinds of settings and all I get is snot shooting out of

my nose and nasty shit getting drawn down the hose that's near

impossible to keep clean and dry. Using the mask destroyed my

sinuses, using the mouth piece shoots slime across the room.

I feel like I've been through an assault on the lowest settings even.

I hate, hate, HATE the damned cough assist!

I'm happy for those who benifit from this machine.

For me, pneaumonia is less painful to me than using a cough assist.

>

> My daughter uses her cough machine everyday ... it is such a great

machine

> especially when she is sick! The air can move however you set

it ... fast or

> slow ..... but yes you do want the air to move quickly in and

out ... that it

> what triggers you to cough!

> If you have any other questions please feel free to ask!

>

> Shaylene

>

>

>

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Well right now with Ian being sick it is wonderful!! he has a weak cough and

the cough assist really helps him cough up the junk. His cough settles down for

a while after using it and is just wonderful. I know a lot of parents that are

very thankful for having one. I don't know what we would do without one. Ian

has been sick quite a bit this winter and it has been a wonderful help. And as

mentioned below yes it sucks his snot out too!! Which helps too because he

can't blow his nose good, and he wont' let me use the " snot suckers' you would

use on babies, and we dont' have a suction machine. I have exta hose to use

while the other one is drying. plus I dry them wiht the bipap too. I personally

don't have a bad thing to say about it when it comes to ian. He doesn't like ti

if he is healthy, but he has not put up a fight at all now that he is sick. He

knows it helps him.

Well hope that helped ya with the good things about it.

Missy

Taleporos <gtdeakin@...> wrote:

I was seriously considering purchasing the cough assist. It is not covered

by insurance here in Australia and will cost $10,000. However, after

reading the e-mail below, I am not sure what to do. I would hate to spend

$10,000 for something that isn't going to be useful. Any advice? Does

anyone else have bad experiences? I'd also like to hear about good

experiences too.

Thanks

Re: cough assist question

I HATE this machine & wish I could drop kick it out the door!

I have a cough assist but never have gotten the hang of it.

Friends of mine swear by the thing.

I tried all kinds of settings and all I get is snot shooting out of

my nose and nasty shit getting drawn down the hose that's near

impossible to keep clean and dry. Using the mask destroyed my

sinuses, using the mouth piece shoots slime across the room.

I feel like I've been through an assault on the lowest settings even.

I hate, hate, HATE the damned cough assist!

I'm happy for those who benifit from this machine.

For me, pneaumonia is less painful to me than using a cough assist.

>

> My daughter uses her cough machine everyday ... it is such a great

machine

> especially when she is sick! The air can move however you set

it ... fast or

> slow ..... but yes you do want the air to move quickly in and

out ... that it

> what triggers you to cough!

> If you have any other questions please feel free to ask!

>

> Shaylene

>

>

>

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Jordan actually has one of the more ancient cough machines, but really

likes it better...says it's more powerful (I think it's just louder and

so sounds like it's more powerful). It's a manual machine, not

automatic, and so we fully control how long the inhale and exhale are

with an aluminum valve. That way we can adjust it on the fly to address

what he feels he needs. The older automated machines had this

capability as well, but it was via a small, hard to use, plastic toggle

switch. I have no idea what the new ones have since Respironics

purchased the cough machine from Emerson. However, I would assume that

the inhale and exhale time are programmable...though someone who has a

newer device would be better to comment.

I would like to add that Jordan claims this is the single most

beneficial piece of equipment he has. Though he likes his BiPAP (which

is obviously for a completely different purpose), if he had to make a

choice between one or the other I'm sure he'd pick the cough machine.

Jay

cough assist question

I had a question for anyone that has ever seen, or especially used, one

of the Cough Assist machines.

The pics I saw on the weebsite made it look as if it does the air in and

out very slowly. Is this true? I've always needed the air to go out of

my lungs FAST in most cases to do any good. I've never gotten to see one

in person, and from talking to people and companies in my town, won't

get to see one without a purchase or a stay in the hospital.

I do keep hearing that most people do like their machines, but am still

wondering if the cough is abrupt, or just a slow exhale?

Thanks,

jvandyke

A FEW RULES

* The list members come from many backgrounds, ages and beliefs So all

members most be tolerant and respectful to all members.

* Some adult language and topics (like sexual health, swearing..) may

occur occasionally in emails. Over use of inappropriate language will

not be allowed. If your under 16 ask your parents/gaurdian before you

join the list.

* No SPAMMING or sending numerous emails unrelated to the topics of

spinal muscular atrophy, health, and the daily issues of the disabled.

Post message:

Subscribe: -subscribe

Unsubscribe: -unsubscribe

List manager: (Sexy Mature Artist) Email: Esma1999@...

oogroups.com

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If I can get a company to supply me with one (the doctors are helping

all they can), I'll have to see if that'll work for me.

jv

Kristal Koehler wrote:

> He also uses it when he has boogers....instead of coughing, he

> blows..then we use a nasal aspirator attachment on his suction

> machine and it clears it out well.

> Kristal

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I'm really appreciating the comments and feedback I've gotten on this.

I know it's been taking me forever to reply to anything.

Is there any way to have manual control of it on the end of a coiled

cord (a pendant control), with very-easy-to-push buttons? The time I

need to breathe in and blow out can vary considerably.

jv

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charmedcripchic wrote:

> I HATE this machine & wish I could drop kick it out the door!

Please don't hold back -- tell us hw you *really* feel! :-)

> I have a cough assist but never have gotten the hang of it.

> Friends of mine swear by the thing.

Sounds like ya either like it or hate it.

> I tried all kinds of settings and all I get is snot

> shooting out of my nose

Well... since I can't blow my nose, this may be kind of a gross advantage.

> and nasty shit getting drawn down the hose that's near

> impossible to keep clean and dry.

Yeah... I was kind of expecting that.

It's good to hear the bad news first.

What kind of hose does it use? Corrugated?

If so, I'll just get it in 100 ft rolls.

Pretty cheap that way.

> Using the mask destroyed my sinuses,

Yikes. What happened there?

Many years ago, I was very prone to nosebleeds.

> using the mouth piece shoots slime across the room.

Yech. Why doesn't it trap it? I was hoping to use a mouth piece during

the day, and use it on my trach at night (the only time I use that).

> I feel like I've been through an assault on the lowest settings even.

Sounds like it!

> I hate, hate, HATE the damned cough assist!

You're SURE about that? :-))

> For me, pneaumonia is less painful to me than using a cough assist.

For me, pneumonia (at best) is 2 solid weeks of people pushing on my

stomach, and bunches of antibiotics. Sometimes I have to have 2 people

push at the same time, and I've had to have 350 lb people flop

themselves over my stomach as hard as they can to hlp cough stuff up.

After a week of that, I'm real sore. After 2 weeks, I'm /really/ sore.

jv

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Glad to know you can set it fast/ slow, etc. I'd want to be able to set

it for slow inhale, and fast exhale. Ideally, I'd want to breathe in on

my own and at my own speed, then blast everything out in one fast blow.

That works best most of the time when I have people push my stomach...

but I also know this won't be the same.

jv

journey1414@... wrote:

> The air can move however you set it ... fast or slow ..... but yes

> you do want the air to move quickly in and out ... that it what

> triggers you to cough!

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I use that " jump on my stomach " cough technique too. Sometimes with

lighter folks, I have them sit on me and kind of bounce up and down.

I really need to find something I can do when I'm at home alone though.

Jenn

> For me, pneumonia (at best) is 2 solid weeks of people pushing on my

> stomach, and bunches of antibiotics. Sometimes I have to have 2 people

> push at the same time, and I've had to have 350 lb people flop

> themselves over my stomach as hard as they can to hlp cough stuff up.

> After a week of that, I'm real sore. After 2 weeks, I'm /really/ sore.

> jv

>

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jennifer wrote:

> I use that " jump on my stomach " cough technique too. Sometimes with

> lighter folks, I have them sit on me and kind of bounce up and down.

I think we've done that 2 or 3 times in my life, but it's too easy to

make the ol' innards hurt doing that...

> I really need to find something I can do when I'm at home alone though.

>

> Jenn

I need that situation, too.

jv

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Ya Know- I said : " I'm happy for people the cough assist works

for " ....thanX for the know-it-all-ness.[NOT] Please don't assume you

know my life- Especially when I don't do that to you......

Around here medicaid only pays for 1 tube [ & NOT a corrugated one] a

year. If I could've got disposable corrugated tubes I would've.

AND I can't get 100ft ata time - even out of my own pocket- because

of state medicaid regs.

Uh- YES- I know what manuel cough assist is, the pros cons & etc.

If I had the 'flop' cough assist you speak of I'd have broken ribs

and eternal organ damage [i have OI as well as SMA].

>

> > I HATE this machine & wish I could drop kick it out the door!

>

> Please don't hold back -- tell us hw you *really* feel! :-)

>

> > I have a cough assist but never have gotten the hang of it.

> > Friends of mine swear by the thing.

>

> Sounds like ya either like it or hate it.

>

> > I tried all kinds of settings and all I get is snot

> > shooting out of my nose

>

> Well... since I can't blow my nose, this may be kind of a gross

advantage.

>

> > and nasty shit getting drawn down the hose that's near

> > impossible to keep clean and dry.

>

> Yeah... I was kind of expecting that.

> It's good to hear the bad news first.

>

> What kind of hose does it use? Corrugated?

> If so, I'll just get it in 100 ft rolls.

> Pretty cheap that way.

>

> > Using the mask destroyed my sinuses,

>

> Yikes. What happened there?

> Many years ago, I was very prone to nosebleeds.

>

> > using the mouth piece shoots slime across the room.

>

> Yech. Why doesn't it trap it? I was hoping to use a mouth piece

during

> the day, and use it on my trach at night (the only time I use that).

>

> > I feel like I've been through an assault on the lowest settings

even.

>

> Sounds like it!

>

> > I hate, hate, HATE the damned cough assist!

>

> You're SURE about that? :-))

>

> > For me, pneaumonia is less painful to me than using a cough

assist.

>

> For me, pneumonia (at best) is 2 solid weeks of people pushing on my

> stomach, and bunches of antibiotics. Sometimes I have to have 2

people

> push at the same time, and I've had to have 350 lb people flop

> themselves over my stomach as hard as they can to hlp cough stuff

up.

> After a week of that, I'm real sore. After 2 weeks, I'm /really/

sore.

> jv

>

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