FYI - My respiratory results

[Guest guest]

Wow, I had no idea what my stats were for my lungs.

The last time I had a pulmonary test (the breathing test where you breathe in,

out, in, out, in, out and then inhale quickly and exhale hard and squeeze all

the air out, out, out, out, out, out ....... till you drop! LOL!) was way

back when I was a kid sometime after my back surgery. I never knew my stats

then, but it didn't freak my GP out, so I suppose I was " normal " for a SMA II

kid.

Now as an adult based on my height of 5 foot / 5 foot one, 95-100 pounds and

41 years old my lungs capacity is 28% Is that typical? Who knows, who cares.

Maybe for an able-bodied woman, 28% is bad. All I know is my oxygen levels,

blood-wise and my sleep quality and breathing behaviour has been unchanged

for years except I know I have sleep apnea and been on a CPAP for the last 4

years. No headaches, no gasping for air, breathing the same sitting up or

lying down and air is reaching my lower lobes when I breath deep.

The only thing I have stopped doing is sing and my blue-balls chamber

exercises. Since the resp.dr wants to see me next year and do a comparison, I

will increase my efforts of lung exercises to see if I can actually increase

my capacity.

--

Angie

Please visit my favourite websites:

for Ford Model A enthusiast

http://www.recap.on.ca

a memorial website of my father

http://www.roybebee.ca

The Monarchs (50's & 60's band my Uncle plays in)

http://www.the-monarchs.ca

a chapter of Model A Owners of Canada Inc

http://www.trilliumchapter.ca

an electric wheelchair hockey league

http://www.cewha.ca

[Guest guest]

The numbers you get with those tests are supposed to be a percent of

normal. If you were 28%, that would be 28% of what it should be for a

woman of your age and weight. But I think 28% is ok for someone with

SMA. I have DMD, but I don't think that matters for this. I got my

ventilator when my vital capacity was something like 6%. I had a BIPAP

before that, but I don't think the doctors thought I should be on any

kind of breathing support until I was like 10%.

Angie wrote:

>

> Wow, I had no idea what my stats were for my lungs.

> The last time I had a pulmonary test (the breathing test where you

> breathe in,

> out, in, out, in, out and then inhale quickly and exhale hard and

> squeeze all

> the air out, out, out, out, out, out ....... till you drop! LOL!) was way

> back when I was a kid sometime after my back surgery. I never knew my

> stats

> then, but it didn't freak my GP out, so I suppose I was " normal " for a

> SMA II

> kid.

>

> Now as an adult based on my height of 5 foot / 5 foot one, 95-100

> pounds and

> 41 years old my lungs capacity is 28% Is that typical? Who knows, who

> cares.

> Maybe for an able-bodied woman, 28% is bad. All I know is my oxygen

> levels,

> blood-wise and my sleep quality and breathing behaviour has been

> unchanged

> for years except I know I have sleep apnea and been on a CPAP for the

> last 4

> years. No headaches, no gasping for air, breathing the same sitting up or

> lying down and air is reaching my lower lobes when I breath deep.

>

> The only thing I have stopped doing is sing and my blue-balls chamber

> exercises. Since the resp.dr wants to see me next year and do a

> comparison, I

> will increase my efforts of lung exercises to see if I can actually

> increase

> my capacity.

>

> --

> Angie

>

>

[Guest guest]

Does anyone know what a normal Oxygen level is for someone with SMA?

What does it average about.

> >

> > Wow, I had no idea what my stats were for my lungs.

> > The last time I had a pulmonary test (the breathing test where

you

> > breathe in,

> > out, in, out, in, out and then inhale quickly and exhale hard and

> > squeeze all

> > the air out, out, out, out, out, out ....... till you drop! LOL!)

was way

> > back when I was a kid sometime after my back surgery. I never

knew my

> > stats

> > then, but it didn't freak my GP out, so I suppose I was " normal "

for a

> > SMA II

> > kid.

> >

> > Now as an adult based on my height of 5 foot / 5 foot one, 95-100

> > pounds and

> > 41 years old my lungs capacity is 28% Is that typical? Who knows,

who

> > cares.

> > Maybe for an able-bodied woman, 28% is bad. All I know is my

oxygen

> > levels,

> > blood-wise and my sleep quality and breathing behaviour has been

> > unchanged

> > for years except I know I have sleep apnea and been on a CPAP for

the

> > last 4

> > years. No headaches, no gasping for air, breathing the same

sitting up or

> > lying down and air is reaching my lower lobes when I breath deep.

> >

> > The only thing I have stopped doing is sing and my blue-balls

chamber

> > exercises. Since the resp.dr wants to see me next year and do a

> > comparison, I

> > will increase my efforts of lung exercises to see if I can

actually

> > increase

> > my capacity.

> >

> > --

> > Angie

> >

> >

>

[Guest guest]

Normal is all relative. Everyone is different. For what I was told, the

blood's oxygen levels for inactive people can range from 80-95 percent. I am

94% and I have type II, age 41 and weigh about 100lbs at 5ft 1in tall.

Angie

Note: My lung's capacity is only 28%

On Saturday 02 September 2006 18:26, Kay wrote:

> Does anyone know what a normal Oxygen level is for someone with SMA?

> What does it average about.

>

>

> > > Wow, I had no idea what my stats were for my lungs.

> > > The last time I had a pulmonary test (the breathing test where

>

> you

>

> > > breathe in,

> > > out, in, out, in, out and then inhale quickly and exhale hard and

> > > squeeze all

> > > the air out, out, out, out, out, out ....... till you drop! LOL!)

>

> was way

>

> > > back when I was a kid sometime after my back surgery. I never

>

> knew my

>

> > > stats

> > > then, but it didn't freak my GP out, so I suppose I was " normal "

>

> for a

>

> > > SMA II

> > > kid.

> > >

> > > Now as an adult based on my height of 5 foot / 5 foot one, 95-100

> > > pounds and

> > > 41 years old my lungs capacity is 28% Is that typical? Who knows,

>

> who

>

> > > cares.

> > > Maybe for an able-bodied woman, 28% is bad. All I know is my

>

> oxygen

>

> > > levels,

> > > blood-wise and my sleep quality and breathing behaviour has been

> > > unchanged

> > > for years except I know I have sleep apnea and been on a CPAP for

>

> the

>

> > > last 4

> > > years. No headaches, no gasping for air, breathing the same

>

> sitting up or

>

> > > lying down and air is reaching my lower lobes when I breath deep.

> > >

> > > The only thing I have stopped doing is sing and my blue-balls

>

> chamber

>

> > > exercises. Since the resp.dr wants to see me next year and do a

> > > comparison, I

> > > will increase my efforts of lung exercises to see if I can

>

> actually

>

> > > increase

> > > my capacity.

> > >

> > > --

> > > Angie

>

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[Guest guest]

Mine is 97-99%.

>

> Does anyone know what a normal Oxygen level is for someone with SMA?

> What does it average about.

>

[Guest guest]

Mine is between 95-100%.

>

> Does anyone know what a normal Oxygen level is for someone with SMA?

> What does it average about.

[Guest guest]

I've always been around 98%.

> >

> > Does anyone know what a normal Oxygen level is for someone with SMA?

> > What does it average about.

> >

>

[Guest guest]

I have type II and mine is 99%, I'm 33 and weigh 87lbs

at 5ft tall, and my lung capacity is 27%.

Simone

--- Angie <angie@...> wrote:

> Normal is all relative. Everyone is different. For

> what I was told, the

> blood's oxygen levels for inactive people can range

> from 80-95 percent. I am

> 94% and I have type II, age 41 and weigh about

> 100lbs at 5ft 1in tall.

>

> Angie

>

> Note: My lung's capacity is only 28%

>

> On Saturday 02 September 2006 18:26, Kay wrote:

> > Does anyone know what a normal Oxygen level is for

> someone with SMA?

> > What does it average about.

> >

> >

> > > > Wow, I had no idea what my stats were for my

> lungs.

> > > > The last time I had a pulmonary test (the

> breathing test where

> >

> > you

> >

> > > > breathe in,

> > > > out, in, out, in, out and then inhale quickly

> and exhale hard and

> > > > squeeze all

> > > > the air out, out, out, out, out, out .......

> till you drop! LOL!)

> >

> > was way

> >

> > > > back when I was a kid sometime after my back

> surgery. I never

> >

> > knew my

> >

> > > > stats

> > > > then, but it didn't freak my GP out, so I

> suppose I was " normal "

> >

> > for a

> >

> > > > SMA II

> > > > kid.

> > > >

> > > > Now as an adult based on my height of 5 foot /

> 5 foot one, 95-100

> > > > pounds and

> > > > 41 years old my lungs capacity is 28% Is that

> typical? Who knows,

> >

> > who

> >

> > > > cares.

> > > > Maybe for an able-bodied woman, 28% is bad.

> All I know is my

> >

> > oxygen

> >

> > > > levels,

> > > > blood-wise and my sleep quality and breathing

> behaviour has been

> > > > unchanged

> > > > for years except I know I have sleep apnea and

> been on a CPAP for

> >

> > the

> >

> > > > last 4

> > > > years. No headaches, no gasping for air,

> breathing the same

> >

> > sitting up or

> >

> > > > lying down and air is reaching my lower lobes

> when I breath deep.

> > > >

> > > > The only thing I have stopped doing is sing

> and my blue-balls

> >

> > chamber

> >

> > > > exercises. Since the resp.dr wants to see me

> next year and do a

> > > > comparison, I

> > > > will increase my efforts of lung exercises to

> see if I can

> >

> > actually

> >

> > > > increase

> > > > my capacity.

> > > >

> > > > --

> > > > Angie

> >

> > A FEW RULES

> >

> > * The list members come from many backgrounds,

> ages and beliefs So all

> > members most be tolerant and respectful to all

> members.

> >

> > * Some adult language and topics (like sexual

> health, swearing..) may

> > occur occasionally in emails. Over use of

> inappropriate language will

> > not be allowed. If your under 16 ask your

> parents/gaurdian before you

> > join the list.

> >

> > * No SPAMMING or sending numerous emails unrelated

> to the topics of

> > spinal muscular atrophy, health, and the daily

> issues of the disabled.

> >

> > Post message:

> > Subscribe: -subscribe

> > Unsubscribe:

> -unsubscribe

> >

> > List manager: (Sexy Mature Artist) Email:

> Esma1999@...

> >

> >

> >

> >

> > oogroups.com

> >

> > List manager: (Sexy Mature Artist) Email:

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