Re: Re: skin breakdown in skin fold, advice please

[Guest guest]

thanks mary.

i cant really contact my gp until monday and will if this no better. i

often find with issues like this people here can have more practical tips

than professionals.

cheers

linda

On 8/12/06, Mari <pooh_bear_19362@...> wrote:

>

>

> Hi

> My advice would be to call a dermatologist and make an appointment or

> at the very least see your family doctor as soon as you can to

> prevent further problems/breakdown for advice

> Good Luck

>

>

>

> >

> > i have asked for advice before on how to avoid skin breakdown in the

> > fold of skin over my hip area and used that advice to keep that area

> > relatively healthy. the area gets wiped twice a day with a wet wipe,

> > dried with a hair dryer, sprinkled with anti fungal rice talc, then

> a

> > piece of cotton slipped in to keep skin from directly being in

> > constanct contact.

> >

> > now it seems that is not enough as the skin is flakey with the the

> top

> > layer of skin missing in a few areas. there are also about a dozen

> > small orangey spots. i have spoken to a local nurse who just says to

> > keep it as dry and clean as i can.

> >

> > i have to do this through pas so it is hard to be totally

> consistant,

> > especially as it hard for me to know if it has been dried enough.

> > today i got a pa to take a photo of it so i can monitor it more

> > carefully. are there any skin experts out there i could send the

> > photos to?

> >

> > i am not that expert with skin as i have luckily had skin good

> enough

> > to neglect for the last 40 years! it seems worse around my monthly

> > period. quite scared as pa who took photo said he had never seen it

> > this bad before.

> >

> > cheers

> > linda

> >

>

>

>

[Guest guest]

thanks alana

cant seem to find bag balm or Lantiseptic in england so can anyone from

england suggest somethng??

will get some calendula on monday.

cheers

linda

On 8/12/06, Alana <alrt@...> wrote:

>

> ,

>

> I've had some success with calendula salve and something called Bag

> Balm (not vegan - petroleum and lanolin).

>

> Alana

>

>

>

> >

> > thanks for that pamela, i was wondering ifi was over drying it. i

> have

> > always been concerned that using cream/salve would not keep my skin

> dry and

> > previously i had been told the key was to keep it dry. yes i should

> check

> > out the wet wipes too, they are so temptingly easy! it is to sore

> to wipe

> > currently so i just have a pa line the fold with a wet wipe then

> remove it,

> > no rubbing at all!

> >

> > i am in england so will look to see if there is a uk equivalent.

> any english

> > folk here with any ideas about good brands for creams/salves/wet

> wipes/soap?

> >

> > cheers

> > linda

> >

>

>

>

[Guest guest]

Bag balm is available from garden centers or animal feed stores. It's used

to keep cows udders soft.

Take care

Bye for now

[Guest guest]

Dear ,

Found this info on Lantiseptic. Bruce Medical ships internationally. Good luck.

1. By mail order / nationwide shipment

All of these companies sell to individuals as well as to nursing homes and the

home healthcare industry:

U.S.

Bruce Medical Supply

1-800-225-8446

brucemedical.com

Surgical Supply Service

1-800-523-0706

Skin Protectant

Therapeutic Cream

Direct Homecare Supply

1-888-764-6777

International

Bruce Medical Supply

1-800-225-8446

brucemedical.com

[Guest guest]

gosh thanks for taking the time to do that pamela. i had a bit of look but

did not come up with much. will get in touch with them and order some.

having said that i am still curious how putting cream/salve on keeps the

skin fold dry!

cheers

linda

On 8/14/06, Pamela Ortego <pamelamo@...> wrote:

>

> Dear ,

> Found this info on Lantiseptic. Bruce Medical ships internationally. Good

> luck.

>

> 1. By mail order / nationwide shipment

>

> All of these companies sell to individuals as well as to nursing homes and

> the home healthcare industry:

>

> U.S.

> Bruce Medical Supply

> 1-800-225-8446

> brucemedical.com

>

> Surgical Supply Service

> 1-800-523-0706

> Skin Protectant

> Therapeutic Cream

>

> Direct Homecare Supply

> 1-888-764-6777

>

> International

> Bruce Medical Supply

> 1-800-225-8446

> brucemedical.com

>

>

>

[Guest guest]

yes it is totally against logic and so i do struggle with the concept!

thanks for the input

cheers

linda

On 8/13/06, cenlared <cenlared@...> wrote:

>

> Hi ,

> Pamela is completely right. Certain powders and wet wipes over time

> can be very bad. I realize it goes against logic.

> (How would people from Louisiana know this stuff? It's 102 degrees

> outside my window!)

> Soft, non-drying soaps and a generous coating of 'barrier' cream or

> ointment are better. If you MUST disinfect, Bactine is better than

> regular antiseptics, I don't know why.

> To heal, lanolin. To maintain, petrolatum. To find products with

> these ingredients in your area, search the net or call a pharmacist.

> Hope it's better soon.

> Cenlared

>

>

>

[Guest guest]

,

It does not keep the skin " dry " . It keeps it moisturized with the lanolin and

other ingredients that help keep the skin from flaking and splitting and keeps

the Ph(acidity) of the skin at the proper level. It also sets up a barrier over

the skin so perspiration and moisture never touch the skin to irritate it.

A baby wash cloth (purchase anywhere baby clothes are sold) is very soft and can

be laundered with your other clothes. I use oatmeal/lavender soap with no

preservatives.

Pamela

Re: Re: skin breakdown in skin fold, advice please

gosh thanks for taking the time to do that pamela. i had a bit of look but

did not come up with much. will get in touch with them and order some.

having said that i am still curious how putting cream/salve on keeps the

skin fold dry!

cheers

linda

On 8/14/06, Pamela Ortego <pamelamo@...> wrote:

>

> Dear ,

> Found this info on Lantiseptic. Bruce Medical ships internationally. Good

> luck.

>

> 1. By mail order / nationwide shipment

>

> All of these companies sell to individuals as well as to nursing homes and

> the home healthcare industry:

>

> U.S.

> Bruce Medical Supply

> 1-800-225-8446

> brucemedical.com

>

> Surgical Supply Service

> 1-800-523-0706

> Skin Protectant

> Therapeutic Cream

>

> Direct Homecare Supply

> 1-888-764-6777

>

> International

> Bruce Medical Supply

> 1-800-225-8446

> brucemedical.com

>

>

>

[Guest guest]

to pam and anyone else who isn't totally bored by my skin!

saw a doctor and she felt i had a fungal infection. she gave me some *Canesten

Hydrocortisone

and, like many of you said, she told me to stop using wet wipes as that was

keeping my skin TOO clean and so there were no of my own flora there to

fight of fungal infections. she said just water would be ok.

i tried ordering some of the cream you use pamela, but they were charging

over $30 for postage so i am going to get a friend of mine in ohio to get it

for me.

cheers

linda

*

On 8/15/06, Pamela Ortego <pamelamo@...> wrote:

>

> ,

> It does not keep the skin " dry " . It keeps it moisturized with the lanolin

> and other ingredients that help keep the skin from flaking and splitting and

> keeps the Ph(acidity) of the skin at the proper level. It also sets up a

> barrier over the skin so perspiration and moisture never touch the skin to

> irritate it.

> A baby wash cloth (purchase anywhere baby clothes are sold) is very soft

> and can be laundered with your other clothes. I use oatmeal/lavender soap

> with no preservatives.

>

> Pamela

>

> Re: Re: skin breakdown in skin fold, advice please

>

> gosh thanks for taking the time to do that pamela. i had a bit of look but

> did not come up with much. will get in touch with them and order some.

> having said that i am still curious how putting cream/salve on keeps the

> skin fold dry!

>

> cheers

> linda

>

> On 8/14/06, Pamela Ortego <pamelamo@... <pamelamo%40webtv.net>>

> wrote:

> >

> > Dear ,

> > Found this info on Lantiseptic. Bruce Medical ships internationally.

> Good

> > luck.

> >

> > 1. By mail order / nationwide shipment

> >

> > All of these companies sell to individuals as well as to nursing homes

> and

> > the home healthcare industry:

> >

> > U.S.

> > Bruce Medical Supply

> > 1-800-225-8446

> > brucemedical.com

> >

> > Surgical Supply Service

> > 1-800-523-0706

> > Skin Protectant

> > Therapeutic Cream

> >

> > Direct Homecare Supply

> > 1-888-764-6777

> >

> > International

> > Bruce Medical Supply

> > 1-800-225-8446

> > brucemedical.com

> >

> >

> >

[Guest guest]

Speaking of skin issues, my left ear is flipping killing me. My ear is THE

only place I have problems with and usually I just sit up more often then it

heals. My wheelchair seat rubs on it, when I lay down I'm on it... what can I

do other than lay on my right side periodically? I just wanna cut it off and

be done.

@<|:-) ._.~*~._. Amy & Will ._.~*~._. (-:|>@

Our big girl now

Our baby forever!

Happy 3rd Birthday Olivia!

Sept 18

>o<,,,,>o<

SS*'-'*SS

(3)..(_0__)....

,-||-.//_/.|......

|____|(_/__|......

{__|_______).sesm

Celebrating with baby brother Phineas!

[Guest guest]

alana gave me a great tip as i get a painful ear from lying on it. stuff a

sock with a small towel to make like a fat sausage pillow, then i put it in

the crook of my neck, tucked right under my ear so there is no pressure on

my ear, then i have my regular pillow just above my ear so it supports the

top of my head

linda

On 8/17/06, blueyedaze@... <blueyedaze@...> wrote:

>

> Speaking of skin issues, my left ear is flipping killing me. My ear is

> THE

> only place I have problems with and usually I just sit up more often then

> it

> heals. My wheelchair seat rubs on it, when I lay down I'm on it... what

> can I

> do other than lay on my right side periodically? I just wanna cut it off

> and

> be done.

>

> @<|:-) ._.~*~._. Amy & Will ._.~*~._. (-:|>@

> Our big girl now

> Our baby forever!

> Happy 3rd Birthday Olivia!

> Sept 18

> >o<,,,,>o<

> SS*'-'*SS

> (3)..(_0__)....

> ,-||-.//_/.|......

> |____|(_/__|......

> {__|_______).sesm

> Celebrating with baby brother Phineas!

>

>

>

[Guest guest]

-----Original Message-----

[Guest guest]

,

Hope it all works out and your skin gets better. Probably all our skin problems

are caused by a combination of factors. Any or all of the suggestions you

received could help.

Re: Re: skin breakdown in skin fold, advice please

>

> gosh thanks for taking the time to do that pamela. i had a bit of look but

> did not come up with much. will get in touch with them and order some.

> having said that i am still curious how putting cream/salve on keeps the

> skin fold dry!

>

> cheers

> linda

>

> On 8/14/06, Pamela Ortego <pamelamo@... <pamelamo%40webtv.net>>

> wrote:

> >

> > Dear ,

> > Found this info on Lantiseptic. Bruce Medical ships internationally.

> Good

> > luck.

> >

> > 1. By mail order / nationwide shipment

> >

> > All of these companies sell to individuals as well as to nursing homes

> and

> > the home healthcare industry:

> >

> > U.S.

> > Bruce Medical Supply

> > 1-800-225-8446

> > brucemedical.com

> >

> > Surgical Supply Service

> > 1-800-523-0706

> > Skin Protectant

> > Therapeutic Cream

> >

> > Direct Homecare Supply

> > 1-888-764-6777

> >

> > International

> > Bruce Medical Supply

> > 1-800-225-8446

> > brucemedical.com

> >

> >

> >

[Guest guest]

I had that same ear problem. For years I had a sore on my left ear. I

only sleep with my head turned to the left. Well, recently we switched

to satin pillowcases and we covered the roll under my neck with a satin

pillowcase (no pillow). With these two changes, the sore is complete

healed. :-)

For anyone the skin breakdown, xenaderm is a very good prescription cream.

Lori

blueyedaze@... wrote:

> Speaking of skin issues, my left ear is flipping killing me. My ear is

> THE

> only place I have problems with and usually I just sit up more often

> then it

> heals. My wheelchair seat rubs on it, when I lay down I'm on it...

> what can I

> do other than lay on my right side periodically? I just wanna cut it

> off and

> be done.

>

> @<|:-) ._.~*~._. Amy & Will ._.~*~._. (-:|>@

> Our big girl now

> Our baby forever!

> Happy 3rd Birthday Olivia!

> Sept 18

> >o<,,,,>o<

> SS*'-'*SS

> (3)..(_0__)....

> ,-||-.//_/.|......

> |____|(_/__|......

> {__|_______).sesm

> Celebrating with baby brother Phineas!

>

>

[Guest guest]

many thanks for your very kind offer camilla. my skin problem has now healed

at last :-) . i used a combination of the tips from here and found a way

that seems to have worked well for me. sorry i did not reply earlier but i

have labyrinthitis, an ear infection which causes dizziness.

cheers

linda

On 8/19/06, sonnengelb12 <Ca-mil-la@...> wrote:

>

> Hi ,

>

> I never had skin breaking problems but I use a cream called " Kaufmanns

> Haut- und Kindercreme " for years now.

>

> I had a look at Google but could not find out if you can purchase it in

> England too. Its basis is Vaseline and it works wonders. For more than

> 50 years it is available in Germany now and many parents use it for

> their babies.

>

> If you would like to give it a try I offer to send it to you - no

> problem. In that case please feel free to mail me at

Ca-mil-la@...<Ca-mil-la%40web.de>

>

> Have a nice day,

> Camilla

>

>

>

[Guest guest]

Hi friends,

I remember several messages concerning what could be used to heal the breakdown

of skin. Unfortunately, I deleted them. Now, I find my brother Bill needs the

information. He has adult onset SMA and his head leans to the left on his

shoulder most all the time. The skin is becoming raw. Would you mind E-mailing

the message again concerning soltutions for skin breakdown. My E-mail is

mbc543@...

Thanks and Peace to You,

Beth

Re: Re: skin breakdown in skin fold, advice please

many thanks for your very kind offer camilla. my skin problem has now healed

at last :-) . i used a combination of the tips from here and found a way

that seems to have worked well for me. sorry i did not reply earlier but i

have labyrinthitis, an ear infection which causes dizziness.

cheers

linda

On 8/19/06, sonnengelb12 <Ca-mil-la@...> wrote:

>

> Hi ,

>

> I never had skin breaking problems but I use a cream called " Kaufmanns

> Haut- und Kindercreme " for years now.

>

> I had a look at Google but could not find out if you can purchase it in

> England too. Its basis is Vaseline and it works wonders. For more than

> 50 years it is available in Germany now and many parents use it for

> their babies.

>

> If you would like to give it a try I offer to send it to you - no

> problem. In that case please feel free to mail me at

Ca-mil-la@...<Ca-mil-la%40web.de>

>

> Have a nice day,

> Camilla

>

>

>

[Guest guest]

hello beth

a good place to look for old messages is in the archive for this

group. if that doesnt work i will look for the emails i have when i get back

in later, just about to dash out!

cheers

linda

On 8/28/06, Beth Carollo <mbc543@...> wrote:

>

> Hi friends,

> I remember several messages concerning what could be used to heal the

> breakdown of skin. Unfortunately, I deleted them. Now, I find my brother

> Bill needs the information. He has adult onset SMA and his head leans to the

> left on his shoulder most all the time. The skin is becoming raw. Would you

> mind E-mailing the message again concerning soltutions for skin breakdown.

> My E-mail is mbc543@... <mbc543%40qwest.net>

> Thanks and Peace to You,

> Beth

>

> Re: Re: skin breakdown in skin fold, advice please

>

> many thanks for your very kind offer camilla. my skin problem has now

> healed

> at last :-) . i used a combination of the tips from here and found a way

> that seems to have worked well for me. sorry i did not reply earlier but i

> have labyrinthitis, an ear infection which causes dizziness.

>

> cheers

> linda

>

> On 8/19/06, sonnengelb12 <Ca-mil-la@... <Ca-mil-la%40web.de>> wrote:

> >

> > Hi ,

> >

> > I never had skin breaking problems but I use a cream called " Kaufmanns

> > Haut- und Kindercreme " for years now.

> >

> > I had a look at Google but could not find out if you can purchase it in

> > England too. Its basis is Vaseline and it works wonders. For more than

> > 50 years it is available in Germany now and many parents use it for

> > their babies.

> >

> > If you would like to give it a try I offer to send it to you - no

> > problem. In that case please feel free to mail me at

Ca-mil-la@...<Ca-mil-la%40web.de>

> <Ca-mil-la%40web.de>

>

> >

> > Have a nice day,

> > Camilla

> >

> >

> >

>

>

[Guest guest]

Here are excerpts from the recent posts on the issue:

I use a salve in a jar called Lantiseptic. Walgreens carries it or will special

order it for you. I have my PAs put it on liberally after cleaning off the old

each day. It has done wonders on skin in creases that used to split when rubbed

or touched.

I've had some success with calendula salve and something called Bag

Balm (not vegan - petroleum and lanolin). Bag balm is available from garden

centers or animal feed stores. It's used to keep cows udders soft.

Soft, non-drying soaps and a generous coating of 'barrier' cream or

ointment are better. If you MUST disinfect, Bactine is better than

regular antiseptics, I don't know why.

To heal, lanolin. To maintain, petrolatum. To find products with

these ingredients in your area, search the net or call a pharmacist.

I do is use an everyday face cloth suds up by Safeguard bar soap that is then

pat-dried.

Hope that helps.

Kristal

Mom to Brett- SMA II- 6-1/2 years old

Visit Brett's website at: http://www.our-sma-angels.com/brett/index.htm

Learn more about SMA:

www.fsma.org

www.smasupport.com

Re: Re: skin breakdown in skin fold, advice please

many thanks for your very kind offer camilla. my skin problem has now healed

at last :-) . i used a combination of the tips from here and found a way

that seems to have worked well for me. sorry i did not reply earlier but i

have labyrinthitis, an ear infection which causes dizziness.

cheers

linda

On 8/19/06, sonnengelb12 <Ca-mil-la@...> wrote:

>

> Hi ,

>

> I never had skin breaking problems but I use a cream called " Kaufmanns

> Haut- und Kindercreme " for years now.

>

> I had a look at Google but could not find out if you can purchase it in

> England too. Its basis is Vaseline and it works wonders. For more than

> 50 years it is available in Germany now and many parents use it for

> their babies.

>

> If you would like to give it a try I offer to send it to you - no

> problem. In that case please feel free to mail me at

Ca-mil-la@...<Ca-mil-la%40web.de>

>

> Have a nice day,

> Camilla

>

>

>