Re: Re: Creatine experiences/Mestinon users

[Guest guest]

Mestinon isnt " common " among SMA'ers since it is ideally prescribed for MG

patients (Marvius Gravis - weak facial and upper body muscles). It helps our

MN from depleting its acytacoline (pronounced as a-sit-a-cole-leen) levels

which is the chemical it uses to contract our muscle fibers to make us move.

Well it fights back the chemical / culprit that eats our acytacoline and that

lessens the fatigued feelings. Its an all around fix and affects all our

working MNs, so it has also improved other areas.

I am alot like u then (except I dont drive - couldnt afford it).

Ask ur neurologist about considering Mestinon as a backup incase the Creatine

causes future harm; if any.

Good luck & take care

Angie

On 2005.10.31 12:00, wrote:

> I'm probably a fairly strong Type II person. I can't transfer, but

> still have pretty good use of my arms and hands. Currently, I'm

> right on the border of losing some function in my arms, so a little

> strength variation in a given day as a large functional impact on me.

>

> For example, this morning, I started off feeling pretty good.

> Therefore the drive to work was easier and my day will go pretty

> smoothly. Too early to attribute that to Creatine though. On other

> days, I'll be just a little bit weaker and my entire day will be a

> bitch. Tough driving to work, hard getting through the day, tough

> driving home and then exhausted by 8pm.

>

> So I'm hoping Creatine gives me the little extra to make a big

> difference in my day.

>

> Mestinon, never heard of it. Is that prescribed? Common among

> folks with SMA?

>

> Thanks, .

>

>

> > > > > Hello all,

> > > > >

> > > > > I'm going to give Creatine a whirl for a few months to see

>

> if I

>

> > > can

> > >

> > > > > pick up a little additional energy through-out the day.

>

> It's the

>

> > > only

> > >

> > > > > supplement my neurologist will recommend. He said at worse,

>

> it

>

> > > won't

> > >

> > > > > hurt me and at best, I might get a little more energy for

>

> the day.

>

> > > > > I'm doing 5 ml mixed in juice every morning. I'm just

>

> curious to

>

> > > see

> > >

> > > > > what others have experienced with Creatine. More energy?

>

> Any

>

> > > side-

> > >

> > > > > effects?

> > > > >

> > > > > Thanks.

> > >

> > > A FEW RULES

> > >

> > > * The list members come from many backgrounds, ages and beliefs

>

> So all

>

> > > members most be tolerant and respectful to all members.

> > >

> > > * Some adult language and topics (like sexual health,

>

> swearing..) may

>

> > > occur occasionally in emails. Over use of inappropriate language

>

> will

>

> > > not be allowed. If your under 16 ask your parents/gaurdian

>

> before you

>

> > > join the list.

> > >

> > > * No SPAMMING or sending numerous emails unrelated to the topics

>

> of

>

> > > spinal muscular atrophy, health, and the daily issues of the

>

> disabled.

>

> > > Post message:

> > > Subscribe: -subscribe

> > > Unsubscribe: -unsubscribe

> > >

> > > List manager: (Sexy Mature Artist) Email: Esma1999@a...

> > >

> > >

> > >

> > >

> > > oogroups.com

> > >

> > > List manager: (Sexy Mature Artist) Email: Esma1999@a...

> > >

> > >

> > >

> > >

> > >

> > >