Fatigue Relief & Joke Needed

May 19, 2006

Is anyone taking anything good for fatigue??? I always feel so worn out,

without having done anything.

By the way, my arms still hurt a lot. I guess this pain is never going

away. :-(

Meg

PS - Does anyone know any good jokes? I could use a laugh. :-) Please!

May 20, 2006

Sorry, I don't have a joke to share that isn't a " clean " one, but I take

Mestinon to reduce my fatigueness.

How would you describe your fatigue? Are you in the middle of doing something

you normally do (without even thinking about it) and suddenly you're

straining to keep going or you can't continue without resting for small

periods? It takes longer for you to complete tasks that took very little time

or effort to do before ... this what I experienced and my neurologist put me

on Mestinon.

However, if you're more like yawning, feeling sleepy /nodding off for no

apparent reason or having a hard time concentrating then it could be due to

lack of proper sleep or diet related. Have you considered having a pulmonary

test or sleep study done to rule them out?

Just a few thoughts from your fellow SMA'er who is a type II and 41 plus a

woman (if it means anything now-a-days).

Angie

On Friday 19 May 2006 18:28, Meg W. wrote:

> Is anyone taking anything good for fatigue??? I always feel so worn out,

> without having done anything.

>

> By the way, my arms still hurt a lot. I guess this pain is never going

> away. :-(

>

> Meg

>

> PS - Does anyone know any good jokes? I could use a laugh. :-) Please!

>

May 20, 2006

Sorry-I've no advice re. fatigue - but I hope you find

some relief soon. Here's a couple of good ones, safe

for mixed company of all ages, that my son Bryce told

me lately...

Why did the person take a bowling ball into the

restroom?

To see the toilet bowl.

What do you call two banana peels on the floor?

A pair of slippers.

What do you call it when two dinosaurs crash into each

other?

A Tyrannosaurus Wreck.

And, one more oldie but a goodie...

How many people with Attention Deficit Disorder does

it take to screw in a light bulb?

What color is your bike?

That's all I've got for now. Hope everyone is well,

and that spring is bringing happiness and hope.

Mitch

--- " Meg W. " <pink-tulip@...> wrote:

> Is anyone taking anything good for fatigue??? I

> always feel so worn out,

> without having done anything.

>

> By the way, my arms still hurt a lot. I guess this

> pain is never going

> away. :-(

>

> Meg

>

> PS - Does anyone know any good jokes? I could use a

> laugh. :-) Please!

>

> [Non-text portions of this message have been

> removed]

>

__________________________________________________

May 21, 2006

>

> Is anyone taking anything good for fatigue??? I always feel so

worn out,

> without having done anything.

>

> By the way, my arms still hurt a lot. I guess this pain is never

going

> away. :-(

>

> Meg

>

> PS - Does anyone know any good jokes? I could use a laugh. :-)

Please!

>

hey meg, i have intence arm pain, my arms tire very easy also i've

found loratab works fine for the pain and rest for the tiredness do

you have leg pain in your upper thighs mine burn all the time are

you still working?? i am, but its really getting hard to do things

> i'll forward a couple jokes to if thats ok there funny

May 27, 2006

Angie,

I tried the Mestinon. I was constantly nauseous and still felt tired. My

fatigue starts when I get in my chair, I guess. My breathing has been ruled

out as a cause. My arms have the same strength as before, so do my legs.

My arms still hurt and maybe having this constant pain drains my energy. I

have good moments during the day, but they are few. My doctor also ruled

out that its my SMA(2) progressing. He keeps telling me not to do so much

and gives me pain killers, which of course, cause some drowsiness. But I've

never felt this tired, even when on more pain meds.

I give up.

Blessed Be,

Meg

( <http://www.myspace.com/sexytear> http://www.myspace.com/sexytear)

( <http://blog.myspace.com/sexytear> http://blog.myspace.com/sexytear)

_____

From: [mailto: ] On

Behalf Of Angie

Sent: Saturday, May 20, 2006 7:51 AM

Subject: Re: Fatigue Relief & Joke Needed

Sorry, I don't have a joke to share that isn't a " clean " one, but I take

Mestinon to reduce my fatigueness.

How would you describe your fatigue? Are you in the middle of doing

something

you normally do (without even thinking about it) and suddenly you're

straining to keep going or you can't continue without resting for small

periods? It takes longer for you to complete tasks that took very little

time

or effort to do before ... this what I experienced and my neurologist put me

on Mestinon.

However, if you're more like yawning, feeling sleepy /nodding off for no

apparent reason or having a hard time concentrating then it could be due to

lack of proper sleep or diet related. Have you considered having a pulmonary

test or sleep study done to rule them out?

Just a few thoughts from your fellow SMA'er who is a type II and 41 plus a

woman (if it means anything now-a-days).

Angie

On Friday 19 May 2006 18:28, Meg W. wrote:

> Is anyone taking anything good for fatigue??? I always feel so worn out,

> without having done anything.

>

> By the way, my arms still hurt a lot. I guess this pain is never going

> away. :-(

>

> Meg

>

> PS - Does anyone know any good jokes? I could use a laugh. :-) Please!

>

May 27, 2006

Hey Meg,

Have you been checked for repetitive stress injuries like carpal tunnel syndrome

and tennis elbow? (You can get TE from using a computer too...weird, but true.)

There's also cumulative trauma disorder, which is a combination of various RSI

symptoms.

Blessings,

Holly

>

> From: " Meg W. " <pink-tulip@...>

> Date: 2006/05/27 Sat PM 04:32:16 GST

> < >

> Subject: RE: Fatigue Relief & Joke Needed

>

May 27, 2006

Meg, never say that.

Don't give up. Now that you have explained your fatigue-ness better, it may be

related to your diet. I am no dietitian, but I know foods can effect your

moods and MO-JO. Also, just breathing during the day wasn't what I tried to

convey ... it is your actual sleep behaviour that I was referring to. If you

don't get enough recuperative sleep your body doesn't recharge properly.

Too much mestinon does create weakness and can make you feel tired, so you

likely took too much or took it too late. Every person is different and we

process stuff differently too. I would like to know when you took the

mestinon, how much and for how long? It is also important to note, never wait

too long b4 eatting after you take a mestinon dose. I know no SMA person to

take the regular dose a MG person does (which is one whole pill, three times

a day). If you did then no wonder you " fell apart " .

I am just curious, so answer only if you want to.

Angie

On Saturday 27 May 2006 14:32, Meg W. wrote:

> Angie,

>

> I tried the Mestinon. I was constantly nauseous and still felt tired. My

> fatigue starts when I get in my chair, I guess. My breathing has been

> ruled out as a cause. My arms have the same strength as before, so do my

> legs. My arms still hurt and maybe having this constant pain drains my

> energy. I have good moments during the day, but they are few. My doctor

> also ruled out that its my SMA(2) progressing. He keeps telling me not to

> do so much and gives me pain killers, which of course, cause some

> drowsiness. But I've never felt this tired, even when on more pain meds.

>

> I give up.

>

> Blessed Be,

>

> Meg

>

> ( <http://www.myspace.com/sexytear> http://www.myspace.com/sexytear)

>

> ( <http://blog.myspace.com/sexytear> http://blog.myspace.com/sexytear)

>

> _____

>

> From: [mailto: ] On

> Behalf Of Angie

> Sent: Saturday, May 20, 2006 7:51 AM

>

> Subject: Re: Fatigue Relief & Joke Needed

>

> Sorry, I don't have a joke to share that isn't a " clean " one, but I take

> Mestinon to reduce my fatigueness.

>

> How would you describe your fatigue? Are you in the middle of doing

> something

> you normally do (without even thinking about it) and suddenly you're

> straining to keep going or you can't continue without resting for small

> periods? It takes longer for you to complete tasks that took very little

> time

> or effort to do before ... this what I experienced and my neurologist put

> me

>

> on Mestinon.

>

> However, if you're more like yawning, feeling sleepy /nodding off for no

> apparent reason or having a hard time concentrating then it could be due to

> lack of proper sleep or diet related. Have you considered having a

> pulmonary

>

> test or sleep study done to rule them out?

>

> Just a few thoughts from your fellow SMA'er who is a type II and 41 plus a

> woman (if it means anything now-a-days).

>

> Angie

>

> On Friday 19 May 2006 18:28, Meg W. wrote:

> > Is anyone taking anything good for fatigue??? I always feel so worn out,

> > without having done anything.

> >

> > By the way, my arms still hurt a lot. I guess this pain is never going

> > away. :-(

> >

> > Meg

> >

> > PS - Does anyone know any good jokes? I could use a laugh. :-) Please!

> >

May 28, 2006

Angie,

I think I get enough sleep. I do need assistance to be turned from one side

to another, usually three times a night. I seem to sleep more then before I

was on any antidepressants. I started on Lexapro over a year ago, but its

affects have been wearing off, so now I am taking Cymbalta 60mg. I see a

slight improvement, not much.

For my fatigue, my shrink put me on Adderall, to be taken only in the

morning. I've been on it for about 2-3 weeks, not much improvement, if any.

The Mestinon was started at 60mg three times a day, after a meal. Is that

too much? I'm 5'0 " and probably 95-100lbs. I'm still taking the

Hydrocodone (325/10mg) for the arm pain and Xanax (.5mg) three times a day.

I have noticed that my appetite has become worse. I always ate like a bird,

but since the Mestinon, I lost my appetite. I begin eating after 2-3pm or

later. And I have to force myself to eat.

The only positive effect I felt from the Mestinon was that I woke up in the

mornings rapidly, not sleepy, feeling awake and alert. Yet, as the day

progressed, same amount of fatigue and headaches and nausea.

My left arm hurts so badly now, just from typing this email. The MD doc

told me I have tendonitis and the syndrome people get from typing in both my

arms, plus I have thin bones. And that was it. I got a prescription for

Darvecet. It doesn't touch my pain.

I need serious help. I can't live like this anymore. The pain never stops,

nor the fatigue. Our new family doctor told my mom on Friday, that I like

to exaggerate how much pain I am in. I'm changing doctors. How can a

doctor help me if he doesn't believe me?

How do I not give up Angie??? Some days are unbearable for me. Help me.

Blessed Be,

Meg

( <http://www.myspace.com/sexytear> http://www.myspace.com/sexytear)

( <http://blog.myspace.com/sexytear> http://blog.myspace.com/sexytear)

_____

From: [mailto: ] On

Behalf Of Angie

Sent: Saturday, May 27, 2006 3:40 PM

Subject: Re: Fatigue Relief & Joke Needed

Meg, never say that.

Don't give up. Now that you have explained your fatigue-ness better, it may

be

related to your diet. I am no dietitian, but I know foods can effect your

moods and MO-JO. Also, just breathing during the day wasn't what I tried to

convey ... it is your actual sleep behaviour that I was referring to. If you

don't get enough recuperative sleep your body doesn't recharge properly.

Too much mestinon does create weakness and can make you feel tired, so you

likely took too much or took it too late. Every person is different and we

process stuff differently too. I would like to know when you took the

mestinon, how much and for how long? It is also important to note, never

wait