Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 This is the e-mail I received and he copied his assistant I believe: We need to start her on Depakote. Ms. , there seems to be some evidence to suggest that Depakote, a medication normally used for epilepsy and mania, helps make patients with SMA3 stronger. Would you be willing to try it before you see me? We can do this through your primary care physician. Those Two <those2@...> wrote: Agreeing to be in a clinical trial with full disclosure of risks and benefits is very different than a stranger asking you to start a medication even before they meet. L Jenifer Woody wrote: > go to www.fsma.org and read up on the CarniVal trial!!!!!!! This is > actually being tested as a treatment for SMA with VERY promising > results - including the results I've seen firsthand in my own daughter. > Hugs > Jeni > A FEW RULES * The list members come from many backgrounds, ages and beliefs So all members most be tolerant and respectful to all members. * Some adult language and topics (like sexual health, swearing..) may occur occasionally in emails. Over use of inappropriate language will not be allowed. If your under 16 ask your parents/gaurdian before you join the list. * No SPAMMING or sending numerous emails unrelated to the topics of spinal muscular atrophy, health, and the daily issues of the disabled. Post message: Subscribe: -subscribe Unsubscribe: -unsubscribe List manager: (Sexy Mature Artist) Email: Esma1999@... oogroups.com List manager: (Sexy Mature Artist) Email: Esma1999@... Quote Link to comment Share on other sites More sharing options...
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