Lookie Rods or Hearrington Rod????

[Guest guest]

my Question is this,i have a few close friends with sma,none of which

were given the option to have those surgical rods put next to the

spinal cord to keep it straight,now most of my friends have curvature

of there spine to around 45 degrees or more,don't quote me here,but

why does everyone that has spina bifida,and curvature of the

spine,automatically get rods in there back,whats wrong with these mda

doctors are they scared to do that kind of surgery,or why not just lie

to the patient with sma,and tell them if they put these rods in it

will kill them,Thats BS. the rods are put in to keep the spinal column

straight all the way through life.

My Fiancee is 40yrs old and got her Hearrington rod when she

was 13,the doctors told her that if she had not had this surgery,she

would have been paralyzed from the chest down.to this day her Spina

Bifida is weird,she's not paralyzed from the waist down or even from

the knees down,her left leg is paralyzed from the waist down,and she

can move her right leg,she's short at 4'5 " ,she does'nt have a Shunt.we

are getting married on 06/17/06 here in colorado springs

all replies welcome thanks john