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Re: h's wheelchair demo tomorrow morning

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Ooh! How exciting! I'm envious. I'm still demoing the Permobil right

now. All around, it's not for me. I've actually lost more independence

than have gained from the seat functions and I feel extremely unsafe

riding in the thing outside. I'm in touch now with a vendor who will

let me test drive the Bounder H-Plus!!! This is the one I want so much

so I hope I'm comfy and free in the thing! :D

<3 Kendra

> Tomorrow at 11:30 h is trying out two different powerchairs. The

two we're considering at this point are the TDX 5 and the new Quantum

600. The wheelchair guy is also bringing a few different types of

seating for her to try out. The honeycomb (can't remember what the

heck it's called) and one other. She's really excited so y'all cross

your fingers that one of them is exactly what she wants!

> We already know that the chair she gets is going to have the power

elevation, tilt, recline and elevating leg rests. The debate now is

whether 1mph difference in speed (the quantum only does 6.5 and the

TDX does 7.5) would override the fact that the quantum is rated for 4

inch curbs right now and they are testing them on higher curbs.

> Cross your fingers for us!!!!!!!!

>

>

>

> Love and Hugs

> Jeni

>

>

>

>

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In a message dated 8/3/2005 10:14:11 P.M. Central Standard Time,

mom2armybratz@... writes:

quantum only does 6.5 and the TDX does 7.5) would override the fact that the

quantum is rated for 4 inch curbs right now and they are testing them on

higher curbs.

I have a TDX for about a year. I'm not sure how strong h is but I can

say I don't think I'd like to go up/down four inches. I go over 1 inch and get

bounced around. My head falls. I might bite my tongue. If I did go down four

inches I would do it slow and with someone near by. A kid might go full blast

alone..... Will a kid know not to go down an 8 inch drop? I drove in the lake

when I was 4! lol

Most curbs (in my area) have curb cuts and most steps are more than 4inches.

Unless you go camping or travel to a country will less accessibility I'm not

sure climbing 4 inches is so great. If you have good upper body control yes

maybe it is.

I just got two fold up portable ramps. One is 3 ft for curbs and 1-2 steps

and one 8 ft for 4 steps. I can keep the small one in my mini van all the time

if I need to get up something on the spur of the moment. (oh, all my

friends/pa say my mini van drives like a car) If I go to a friends with 3 steps

I put

the 8 ft in.

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Thanks for your input! h tried them both out today and liked the way the

quantum felt much better than the TDX. In our area there aren't a lot of

sidewalks and in some places you might have to walk an additional several

hundred feet to get to a cut out where there are sidewalks. Anytime she went

down a curb there would obviously be an adult with her to ensure her safety and

I'm not sure that she'd even attempt it without an adult there to hold her head.

She's actually pretty cautious for a 9 year old so I don't worry too much about

that. Some of our family/friends have asked why she isn't getting that new i-bot

chair (that climbs steps) and the safety issue is the reason. Maybe when she's

older and understands the risks involved, but not now.

The best news of the day is that her vendor thinks he can have the chair to her

before Christmas! That would be one heck of a gift!!!!!!

Hugs

Jeni

esma1999@... wrote:

In a message dated 8/3/2005 10:14:11 P.M. Central Standard Time,

mom2armybratz@... writes:

quantum only does 6.5 and the TDX does 7.5) would override the fact that the

quantum is rated for 4 inch curbs right now and they are testing them on

higher curbs.

I have a TDX for about a year. I'm not sure how strong h is but I can

say I don't think I'd like to go up/down four inches. I go over 1 inch and get

bounced around. My head falls. I might bite my tongue. If I did go down four

inches I would do it slow and with someone near by. A kid might go full blast

alone..... Will a kid know not to go down an 8 inch drop? I drove in the lake

when I was 4! lol

Most curbs (in my area) have curb cuts and most steps are more than 4inches.

Unless you go camping or travel to a country will less accessibility I'm not

sure climbing 4 inches is so great. If you have good upper body control yes

maybe it is.

I just got two fold up portable ramps. One is 3 ft for curbs and 1-2 steps

and one 8 ft for 4 steps. I can keep the small one in my mini van all the time

if I need to get up something on the spur of the moment. (oh, all my

friends/pa say my mini van drives like a car) If I go to a friends with 3 steps

I put

the 8 ft in.

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I did have a sound system on mine in jr. high lol

That was coooooool!

Jenifer Woody <mom2armybratz@...> wrote:

The demo went great and we are going with the quantum 6000 (the 600 was a typo).

h loves the way the 600 (closest thing available to try since the 6000 isn't

out yet) feels and we can get all of the features she needs on it. Glenn (or

vendor) thinks he can have it to her by Christmas!!!!!!!!

I have told her that she better pick one she really likes cuz this is IT for

about 5 years. No more using the " she outgrew it " excuse. We may have a custom

paint job done on it as well since the frame is all painted instead of a shroud.

You know that paint that changes colors in the sun? We're considering have that

put on it! Then we're getting the ground effect lights and lighted anti-tip

wheels for her. All that will be missing is a sound system! *LOL*

Hope your chair comes through soon!!!

Hugs

Jeni

Kendra wrote:

Ooh! How exciting! I'm envious. I'm still demoing the Permobil right

now. All around, it's not for me. I've actually lost more independence

than have gained from the seat functions and I feel extremely unsafe

riding in the thing outside. I'm in touch now with a vendor who will

let me test drive the Bounder H-Plus!!! This is the one I want so much

so I hope I'm comfy and free in the thing! :D

<3 Kendra

> Tomorrow at 11:30 h is trying out two different powerchairs. The

two we're considering at this point are the TDX 5 and the new Quantum

600. The wheelchair guy is also bringing a few different types of

seating for her to try out. The honeycomb (can't remember what the

heck it's called) and one other. She's really excited so y'all cross

your fingers that one of them is exactly what she wants!

> We already know that the chair she gets is going to have the power

elevation, tilt, recline and elevating leg rests. The debate now is

whether 1mph difference in speed (the quantum only does 6.5 and the

TDX does 7.5) would override the fact that the quantum is rated for 4

inch curbs right now and they are testing them on higher curbs.

> Cross your fingers for us!!!!!!!!

>

>

>

> Love and Hugs

> Jeni

>

>

>

>

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Ok... you've gotta spill! How on earth did you put a sound system on it? If it

can be done we will get it done! As much as h loves her music and runs

around singing constantly it would be worth it!

Hugs

Jeni

Joy <j0yeuxx@...> wrote:

I did have a sound system on mine in jr. high lol

That was coooooool!

Jenifer Woody <mom2armybratz@...> wrote:

The demo went great and we are going with the quantum 6000 (the 600 was a typo).

h loves the way the 600 (closest thing available to try since the 6000 isn't

out yet) feels and we can get all of the features she needs on it. Glenn (or

vendor) thinks he can have it to her by Christmas!!!!!!!!

I have told her that she better pick one she really likes cuz this is IT for

about 5 years. No more using the " she outgrew it " excuse. We may have a custom

paint job done on it as well since the frame is all painted instead of a shroud.

You know that paint that changes colors in the sun? We're considering have that

put on it! Then we're getting the ground effect lights and lighted anti-tip

wheels for her. All that will be missing is a sound system! *LOL*

Hope your chair comes through soon!!!

Hugs

Jeni

Kendra wrote:

Ooh! How exciting! I'm envious. I'm still demoing the Permobil right

now. All around, it's not for me. I've actually lost more independence

than have gained from the seat functions and I feel extremely unsafe

riding in the thing outside. I'm in touch now with a vendor who will

let me test drive the Bounder H-Plus!!! This is the one I want so much

so I hope I'm comfy and free in the thing! :D

<3 Kendra

> Tomorrow at 11:30 h is trying out two different powerchairs. The

two we're considering at this point are the TDX 5 and the new Quantum

600. The wheelchair guy is also bringing a few different types of

seating for her to try out. The honeycomb (can't remember what the

heck it's called) and one other. She's really excited so y'all cross

your fingers that one of them is exactly what she wants!

> We already know that the chair she gets is going to have the power

elevation, tilt, recline and elevating leg rests. The debate now is

whether 1mph difference in speed (the quantum only does 6.5 and the

TDX does 7.5) would override the fact that the quantum is rated for 4

inch curbs right now and they are testing them on higher curbs.

> Cross your fingers for us!!!!!!!!

>

>

>

> Love and Hugs

> Jeni

>

>

>

>

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I went to MDA camp with a guy that put a system on his

chair! No idea how he did it, but he had speakers on

the back and everything!

--- Jenifer Woody <mom2armybratz@...> wrote:

> Ok... you've gotta spill! How on earth did you put a

> sound system on it? If it can be done we will get it

> done! As much as h loves her music and runs

> around singing constantly it would be worth it!

> Hugs

> Jeni

>

> Joy <j0yeuxx@...> wrote:

> I did have a sound system on mine in jr. high lol

> That was coooooool!

>

>

>

>

> Jenifer Woody <mom2armybratz@...> wrote:

> The demo went great and we are going with the

> quantum 6000 (the 600 was a typo). h loves the

> way the 600 (closest thing available to try since

> the 6000 isn't out yet) feels and we can get all of

> the features she needs on it. Glenn (or vendor)

> thinks he can have it to her by Christmas!!!!!!!!

> I have told her that she better pick one she really

> likes cuz this is IT for about 5 years. No more

> using the " she outgrew it " excuse. We may have a

> custom paint job done on it as well since the frame

> is all painted instead of a shroud. You know that

> paint that changes colors in the sun? We're

> considering have that put on it! Then we're getting

> the ground effect lights and lighted anti-tip wheels

> for her. All that will be missing is a sound system!

> *LOL*

> Hope your chair comes through soon!!!

> Hugs

> Jeni

>

> Kendra wrote:

> Ooh! How exciting! I'm envious. I'm still demoing

> the Permobil right

> now. All around, it's not for me. I've actually lost

> more independence

> than have gained from the seat functions and I feel

> extremely unsafe

> riding in the thing outside. I'm in touch now with a

> vendor who will

> let me test drive the Bounder H-Plus!!! This is the

> one I want so much

> so I hope I'm comfy and free in the thing! :D

>

> <3 Kendra

>

>

>

> > Tomorrow at 11:30 h is trying out two

> different powerchairs. The

> two we're considering at this point are the TDX 5

> and the new Quantum

> 600. The wheelchair guy is also bringing a few

> different types of

> seating for her to try out. The honeycomb (can't

> remember what the

> heck it's called) and one other. She's really

> excited so y'all cross

> your fingers that one of them is exactly what she

> wants!

> > We already know that the chair she gets is going

> to have the power

> elevation, tilt, recline and elevating leg rests.

> The debate now is

> whether 1mph difference in speed (the quantum only

> does 6.5 and the

> TDX does 7.5) would override the fact that the

> quantum is rated for 4

> inch curbs right now and they are testing them on

> higher curbs.

> > Cross your fingers for us!!!!!!!!

> >

> >

> >

> > Love and Hugs

> > Jeni

> >

> >

> >

> > [Non-text portions of this message have been

> removed]

>

>

>

>

>

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I second Kendra's comments! My brothers and I were little terrors in our

chairs sometimes. We got hurt on occassion. But no regrets! We both lived, just

like every other kid that sometimes fell off their bike. :)

-e

In a message dated 8/5/2005 10:24:29 AM Mountain Daylight Time,

kendranicole@... writes:

> I absolutely disagree. Yes, children can get wild and out of hand.

> This is something they will have to learn to control, as any child.

> It's about respect and responsibility. There are consequences for poor

> choices and bad behavior.

>

> I loved having a wheelchair at full speed when I was younger. It gave

> me more freedom - I could " run " with the other kids and play games. I

> could tag along while they took out their bikes. I was able to become

> a kid with them and it allowed me to more fully interact with my

> peers. Yes, I was a little devil with my wheelchair. I took that

> sucker down hills you'd never walk, through the woods, and even over

> cliffs. I've fallen. I've dropped. I've skidded. I was hurt a few

> times, but there were punishments for my reckless behavior beyond

> physical wounds.

>

> You cannot make up for a personal lack of involvement or control as a

> parent by taking away a child's essential right to be just that - a

> child, mistakes and all. Children are very responsible when they're

> taught with proper authority and privileges. They are not stupid,

> irresponsible, little brats incapable of making a decision so

> important to their own personal growth and life experience.

>

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As far as I can tell, my parents' view was basically like Kendra's saying.

They wanted me to have a wheelchair that gave me as much freedom as possible.

Then I had to learn how to use it responsibly. When I got my first power chair

at 6 years old, I could only use it to play in the backyard while I was

learning how to drive it. After getting used to it, it quickly became my

full-time

chair. I remember the vendors always asking my parents when we got new chairs

if they should set the speed down, even temporarily. My parents always laughed

and said no, they knew how much we'd hate that! My brother and I loved to push

the limits a little with our chairs, but we knew just how far they could be

pushed. Our parents trusted us not to do anything really dangerous.

-e

In a message dated 8/5/2005 11:01:37 AM Mountain Daylight Time,

angie@... writes:

> I'd like to know what you're parent's view was at that time?

>

> My parent's told me later on, say around 16yrs of age, that they curbed my

> choices and so when I thought I had the best-of-the-best, I chose the

> best-of-their-best and just drove it like a demon too.

>

> When it became my ultimate decision/choice, I researched every make and

> model

> for optimal speed and durance. I was an outdorsey girl into horses, hockey,

> cars, camping and road trips that my w/c always had spunk.

>

> I am by no means, a woman who would stiffle a kids spirit or endorse

> idealisms

> that SMA kids shouldn't be allowed to " run " . All I said to a parent to do

> what makes them comfy by echoing back to them some of their concerms in ways

>

> that will satisfy both Mommy & Daddy and the kids.

>

> I am sure, no parent would buy their kid an offroad dirt bike if they never

> rode even a tricycle? Assuring that the w/c can grow with the child's

> physical side is top priority for the parent's. What the chair is capable of

>

> is also their domain, but how the kid uses it is all up to them.

>

> Angie

>

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My wife had a CB radio on hers when she was a senior in high school in the

early 70's. Her handle was " Lady on Wheels " .

Bob

C. Manning, Jr

PO Box 1248

Decatur GA 30031-1248

Re: Re: h's wheelchair demo tomorrow morning

I went to MDA camp with a guy that put a system on his

chair! No idea how he did it, but he had speakers on

the back and everything!

--- Jenifer Woody <mom2armybratz@...> wrote:

> Ok... you've gotta spill! How on earth did you put a

> sound system on it? If it can be done we will get it

> done! As much as h loves her music and runs

> around singing constantly it would be worth it!

> Hugs

> Jeni

>

> Joy <j0yeuxx@...> wrote:

> I did have a sound system on mine in jr. high lol

> That was coooooool!

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On ebay? I gotta check that out!

And I hate that 'wider' problem. I wish I could shrink, not expand.

Jenn

Jenifer Woody wrote:

>You can get the lights and stuff on e-bay for under $50 if you're interested.

>BTW -- that getting wider thing....... gotta hate it but it's a fact of life. I

swear by butt gets bigger by the day *LOL*

>Hugs

>Jeni

>

>

>

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I would not want any child, say between 3 and 13yrs, to have an electric

wheelchair capable of " Evil Conevil maneuvers! " either.

I was 11 yrs old when I got my 1st E & J 3P power wheelchair and I actually ran

away from home and returned because the church was closed and I got a flat

tire! I ran because I had a fight with my sister .... she ate my potato

chips! LOL! Kids, eh? wink!

Seriously, unless h knows the realism about how vunerable she can be to

gravity and the laws of physics then you may want to get her a chair that

doesn't have too much torque/guts or speed until she is older.

Even if you're of the belief that one learns by their mistakes it wouldn't be

a good enough validation for such a chair. As a SMA2 kid, some of these

" mistake lessons " almost killed me. A bump or scape is more like a break or

gash! Such powerful chairs maybe easy to maneuver, joystick-wise, but how

kids see their world (as an open field) may not be something they can

control.

Use extreme, over-protective, parental care when deciding which chair to take.

Angie

On 2005.08.04 16:31, esma1999@... wrote:

> In a message dated 8/3/2005 10:14:11 P.M. Central Standard Time,

> mom2armybratz@... writes:

>

> quantum only does 6.5 and the TDX does 7.5) would override the fact that

> the quantum is rated for 4 inch curbs right now and they are testing them

> on higher curbs.

>

>

>

> I have a TDX for about a year. I'm not sure how strong h is but I can

> say I don't think I'd like to go up/down four inches. I go over 1 inch and

> get bounced around. My head falls. I might bite my tongue. If I did go down

> four inches I would do it slow and with someone near by. A kid might go

> full blast alone..... Will a kid know not to go down an 8 inch drop? I

> drove in the lake when I was 4! lol

>

> Most curbs (in my area) have curb cuts and most steps are more than

> 4inches. Unless you go camping or travel to a country will less

> accessibility I'm not sure climbing 4 inches is so great. If you have good

> upper body control yes maybe it is.

>

> I just got two fold up portable ramps. One is 3 ft for curbs and 1-2 steps

> and one 8 ft for 4 steps. I can keep the small one in my mini van all the

> time if I need to get up something on the spur of the moment. (oh, all my

> friends/pa say my mini van drives like a car) If I go to a friends with 3

> steps I put the 8 ft in.

>

>

>

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Me too!

I had my walkman plugged into an amp that wired into my chair's batteries and

I had two Minima 8 speakers mounted behind me; one on each side. In college,

I'd be having a music war with the other Boom boxes! I'd win every time! I

had a 100W to burn!

Now it sits in a box downstairs, sigh! No place to mount my gear on this junk

chair, BOO!

Angie

On 2005.08.04 21:12, Joy wrote:

> I did have a sound system on mine in jr. high lol

> That was coooooool!

>

>

>

>

> Jenifer Woody <mom2armybratz@...> wrote:

> The demo went great and we are going with the quantum 6000 (the 600 was a

> typo). h loves the way the 600 (closest thing available to try since

> the 6000 isn't out yet) feels and we can get all of the features she needs

> on it. Glenn (or vendor) thinks he can have it to her by Christmas!!!!!!!!

> I have told her that she better pick one she really likes cuz this is IT

> for about 5 years. No more using the " she outgrew it " excuse. We may have a

> custom paint job done on it as well since the frame is all painted instead

> of a shroud. You know that paint that changes colors in the sun? We're

> considering have that put on it! Then we're getting the ground effect

> lights and lighted anti-tip wheels for her. All that will be missing is a

> sound system! *LOL* Hope your chair comes through soon!!!

> Hugs

> Jeni

>

> Kendra wrote:

> Ooh! How exciting! I'm envious. I'm still demoing the Permobil right

> now. All around, it's not for me. I've actually lost more independence

> than have gained from the seat functions and I feel extremely unsafe

> riding in the thing outside. I'm in touch now with a vendor who will

> let me test drive the Bounder H-Plus!!! This is the one I want so much

> so I hope I'm comfy and free in the thing! :D

>

> <3 Kendra

>

>

>

> > Tomorrow at 11:30 h is trying out two different powerchairs. The

>

> two we're considering at this point are the TDX 5 and the new Quantum

> 600. The wheelchair guy is also bringing a few different types of

> seating for her to try out. The honeycomb (can't remember what the

> heck it's called) and one other. She's really excited so y'all cross

> your fingers that one of them is exactly what she wants!

>

> > We already know that the chair she gets is going to have the power

>

> elevation, tilt, recline and elevating leg rests. The debate now is

> whether 1mph difference in speed (the quantum only does 6.5 and the

> TDX does 7.5) would override the fact that the quantum is rated for 4

> inch curbs right now and they are testing them on higher curbs.

>

> > Cross your fingers for us!!!!!!!!

> >

> >

> >

> > Love and Hugs

> > Jeni

> >

> >

> >

> >

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I absolutely disagree. Yes, children can get wild and out of hand.

This is something they will have to learn to control, as any child.

It's about respect and responsibility. There are consequences for poor

choices and bad behavior.

I loved having a wheelchair at full speed when I was younger. It gave

me more freedom - I could " run " with the other kids and play games. I

could tag along while they took out their bikes. I was able to become

a kid with them and it allowed me to more fully interact with my

peers. Yes, I was a little devil with my wheelchair. I took that

sucker down hills you'd never walk, through the woods, and even over

cliffs. I've fallen. I've dropped. I've skidded. I was hurt a few

times, but there were punishments for my reckless behavior beyond

physical wounds.

You cannot make up for a personal lack of involvement or control as a

parent by taking away a child's essential right to be just that - a

child, mistakes and all. Children are very responsible when they're

taught with proper authority and privileges. They are not stupid,

irresponsible, little brats incapable of making a decision so

important to their own personal growth and life experience.

<3 Kendra

> I would not want any child, say between 3 and 13yrs, to have an

electric

> wheelchair capable of " Evil Conevil maneuvers! " either.

>

> I was 11 yrs old when I got my 1st E & J 3P power wheelchair and I

actually ran

> away from home and returned because the church was closed and I got

a flat

> tire! I ran because I had a fight with my sister .... she ate my potato

> chips! LOL! Kids, eh? wink!

>

> Seriously, unless h knows the realism about how vunerable she

can be to

> gravity and the laws of physics then you may want to get her a chair

that

> doesn't have too much torque/guts or speed until she is older.

>

> Even if you're of the belief that one learns by their mistakes it

wouldn't be

> a good enough validation for such a chair. As a SMA2 kid, some of these

> " mistake lessons " almost killed me. A bump or scape is more like a

break or

> gash! Such powerful chairs maybe easy to maneuver, joystick-wise,

but how

> kids see their world (as an open field) may not be something they can

> control.

>

> Use extreme, over-protective, parental care when deciding which

chair to take.

>

> Angie

>

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Holy crap! I believe you mistook my words Kendra!

Sure, kids will be kids and even I was a " dare devil " , but then maybe's that's

because I had more physical proweress to handle it. It's my understanding

that h can be sometimes timid. No one should push a child into something

they might not want to do. All I said was to be " a parent " and maybe over

emphazied to be " extremely, over-protective " in a " parental " way because most

parents are by default and I didn't think it would hurt to let her know it's

okay to be that way.

What you've said is great too, from a kid's perspective which I have similar

recollections of too, so not too worry.

Even now I am in an electric wheelchair by Invacare which runs at 8mph only

because I am a light weight rider. I adore speed and sturdiness myself. Maybe

I felt the age range was good because all any of us have to draw upon are our

own experiences and for me, I was 11yrs old. I think h is 9, and read she

is a cautious child anyhow.

Neither you, me or anyone can tell h how to " run " . Offering a few words of

caution won't kill her either. Besides, I was referring to the wheelchair,

not h. So maybe now I have cleared this whole misunderstanding?

It's the chair that may need some " limits " applied just to minimize the

potential exposure to serious injury. This will enable h to grow into her

comfort zone better with her wheelchair's abilities and her personal

desires/wishes. Her chair will be her " legs " and she will figure out how far

she wants to " run " .

Angie

On 2005.08.05 12:23, Kendra wrote:

> I absolutely disagree. Yes, children can get wild and out of hand.

> This is something they will have to learn to control, as any child.

> It's about respect and responsibility. There are consequences for poor

> choices and bad behavior.

>

> I loved having a wheelchair at full speed when I was younger. It gave

> me more freedom - I could " run " with the other kids and play games. I

> could tag along while they took out their bikes. I was able to become

> a kid with them and it allowed me to more fully interact with my

> peers. Yes, I was a little devil with my wheelchair. I took that

> sucker down hills you'd never walk, through the woods, and even over

> cliffs. I've fallen. I've dropped. I've skidded. I was hurt a few

> times, but there were punishments for my reckless behavior beyond

> physical wounds.

>

> You cannot make up for a personal lack of involvement or control as a

> parent by taking away a child's essential right to be just that - a

> child, mistakes and all. Children are very responsible when they're

> taught with proper authority and privileges. They are not stupid,

> irresponsible, little brats incapable of making a decision so

> important to their own personal growth and life experience.

>

> <3 Kendra

>

>

> > I would not want any child, say between 3 and 13yrs, to have an

>

> electric

>

> > wheelchair capable of " Evil Conevil maneuvers! " either.

> >

> > I was 11 yrs old when I got my 1st E & J 3P power wheelchair and I

>

> actually ran

>

> > away from home and returned because the church was closed and I got

>

> a flat

>

> > tire! I ran because I had a fight with my sister .... she ate my potato

> > chips! LOL! Kids, eh? wink!

> >

> > Seriously, unless h knows the realism about how vunerable she

>

> can be to

>

> > gravity and the laws of physics then you may want to get her a chair

>

> that

>

> > doesn't have too much torque/guts or speed until she is older.

> >

> > Even if you're of the belief that one learns by their mistakes it

>

> wouldn't be

>

> > a good enough validation for such a chair. As a SMA2 kid, some of these

> > " mistake lessons " almost killed me. A bump or scape is more like a

>

> break or

>

> > gash! Such powerful chairs maybe easy to maneuver, joystick-wise,

>

> but how

>

> > kids see their world (as an open field) may not be something they can

> > control.

> >

> > Use extreme, over-protective, parental care when deciding which

>

> chair to take.

>

> > Angie

>

>

> A FEW RULES

>

> * The list members come from many backgrounds, ages and beliefs So all

> members most be tolerant and respectful to all members.

>

> * Some adult language and topics (like sexual health, swearing..) may

> occur occasionally in emails. Over use of inappropriate language will

> not be allowed. If your under 16 ask your parents/gaurdian before you

> join the list.

>

> * No SPAMMING or sending numerous emails unrelated to the topics of

> spinal muscular atrophy, health, and the daily issues of the disabled.

>

> Post message:

> Subscribe: -subscribe

> Unsubscribe: -unsubscribe

>

> List manager: (Sexy Mature Artist) Email: Esma1999@...

>

>

>

>

> oogroups.com

>

> List manager: (Sexy Mature Artist) Email: Esma1999@...

>

>

>

>

>

>

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Guest guest

I'd like to know what you're parent's view was at that time?

My parent's told me later on, say around 16yrs of age, that they curbed my

choices and so when I thought I had the best-of-the-best, I chose the

best-of-their-best and just drove it like a demon too.

When it became my ultimate decision/choice, I researched every make and model

for optimal speed and durance. I was an outdorsey girl into horses, hockey,

cars, camping and road trips that my w/c always had spunk.

I am by no means, a woman who would stiffle a kids spirit or endorse idealisms

that SMA kids shouldn't be allowed to " run " . All I said to a parent to do

what makes them comfy by echoing back to them some of their concerms in ways

that will satisfy both Mommy & Daddy and the kids.

I am sure, no parent would buy their kid an offroad dirt bike if they never

rode even a tricycle? Assuring that the w/c can grow with the child's

physical side is top priority for the parent's. What the chair is capable of

is also their domain, but how the kid uses it is all up to them.

Angie

On 2005.08.05 12:31, PurplGurl3@... wrote:

> I second Kendra's comments! My brothers and I were little terrors in our

> chairs sometimes. We got hurt on occassion. But no regrets! We both lived,

> just like every other kid that sometimes fell off their bike. :)

>

> -e

>

> In a message dated 8/5/2005 10:24:29 AM Mountain Daylight Time,

>

> kendranicole@... writes:

> > I absolutely disagree. Yes, children can get wild and out of hand.

> > This is something they will have to learn to control, as any child.

> > It's about respect and responsibility. There are consequences for poor

> > choices and bad behavior.

> >

> > I loved having a wheelchair at full speed when I was younger. It gave

> > me more freedom - I could " run " with the other kids and play games. I

> > could tag along while they took out their bikes. I was able to become

> > a kid with them and it allowed me to more fully interact with my

> > peers. Yes, I was a little devil with my wheelchair. I took that

> > sucker down hills you'd never walk, through the woods, and even over

> > cliffs. I've fallen. I've dropped. I've skidded. I was hurt a few

> > times, but there were punishments for my reckless behavior beyond

> > physical wounds.

> >

> > You cannot make up for a personal lack of involvement or control as a

> > parent by taking away a child's essential right to be just that - a

> > child, mistakes and all. Children are very responsible when they're

> > taught with proper authority and privileges. They are not stupid,

> > irresponsible, little brats incapable of making a decision so

> > important to their own personal growth and life experience.

>

>

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Guest guest

yep it can be done. I had a speaker mounted by each handle bar. I don't

remember how everything was hooked up, but i did have the walkman kinda behind

by bottom where I could reach back and grab it to change tapes or radio....no

cds back then! lol

Jenifer Woody <mom2armybratz@...> wrote:

Ok... you've gotta spill! How on earth did you put a sound system on it? If it

can be done we will get it done! As much as h loves her music and runs

around singing constantly it would be worth it!

Hugs

Jeni

Joy wrote:

I did have a sound system on mine in jr. high lol

That was coooooool!

Jenifer Woody wrote:

The demo went great and we are going with the quantum 6000 (the 600 was a typo).

h loves the way the 600 (closest thing available to try since the 6000 isn't

out yet) feels and we can get all of the features she needs on it. Glenn (or

vendor) thinks he can have it to her by Christmas!!!!!!!!

I have told her that she better pick one she really likes cuz this is IT for

about 5 years. No more using the " she outgrew it " excuse. We may have a custom

paint job done on it as well since the frame is all painted instead of a shroud.

You know that paint that changes colors in the sun? We're considering have that

put on it! Then we're getting the ground effect lights and lighted anti-tip

wheels for her. All that will be missing is a sound system! *LOL*

Hope your chair comes through soon!!!

Hugs

Jeni

Kendra wrote:

Ooh! How exciting! I'm envious. I'm still demoing the Permobil right

now. All around, it's not for me. I've actually lost more independence

than have gained from the seat functions and I feel extremely unsafe

riding in the thing outside. I'm in touch now with a vendor who will

let me test drive the Bounder H-Plus!!! This is the one I want so much

so I hope I'm comfy and free in the thing! :D

<3 Kendra

> Tomorrow at 11:30 h is trying out two different powerchairs. The

two we're considering at this point are the TDX 5 and the new Quantum

600. The wheelchair guy is also bringing a few different types of

seating for her to try out. The honeycomb (can't remember what the

heck it's called) and one other. She's really excited so y'all cross

your fingers that one of them is exactly what she wants!

> We already know that the chair she gets is going to have the power

elevation, tilt, recline and elevating leg rests. The debate now is

whether 1mph difference in speed (the quantum only does 6.5 and the

TDX does 7.5) would override the fact that the quantum is rated for 4

inch curbs right now and they are testing them on higher curbs.

> Cross your fingers for us!!!!!!!!

>

>

>

> Love and Hugs

> Jeni

>

>

>

>

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In a message dated 8/4/2005 4:49:03 P.M. Central Standard Time,

mom2armybratz@... writes:

In our area there aren't a lot of sidewalks and in some places you might

have to walk an additional several hundred feet to get to a cut out where there

are sidewalks. Anytime she went down a curb there would obviously be an adult

with her to ensure her safety and I'm not sure that she'd even attempt it

without an adult there to hold her head. She's actually pretty cautious for a 9

year old so I don't worry too much about that.

That's cool. Sounds like it will work for her.

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I don't believe a chair should have limits. It's not up to a parent to

limit their child's freedom when it comes to something such as

mobility. All chairs, by default, have safety features she needs to be

taught to use properly such as seatbelts, speed controls and footrests.

Limiting the speed of a wheelchair at manufacture because a parent

does not want to have to worry about their child running away or being

reckless is not right. There are ways to control a child and make her

safe without actually taking away or limiting what little power they

have. You set rules and boundaries over your child's behavior by

influencing them and giving them choices - some with benefits and

others with consequences - NOT by offering them only one thing and

saying oh well with it. Children need to be able to make their own

choices with guidance. It's part of growing up. Give her speed and set

rules. She will grow into it, yes. This is when you expand THE RULES

and HER RIGHTS. She'll loathe her chair and her life if you don't get

one with speed to accommodate being a child (or human) until she's older.

Being OVER-protective is not good for children's personal or social

growth.

<3 Kendra

> > > I would not want any child, say between 3 and 13yrs, to have an

> >

> > electric

> >

> > > wheelchair capable of " Evil Conevil maneuvers! " either.

> > >

> > > I was 11 yrs old when I got my 1st E & J 3P power wheelchair and I

> >

> > actually ran

> >

> > > away from home and returned because the church was closed and I got

> >

> > a flat

> >

> > > tire! I ran because I had a fight with my sister .... she ate my

potato

> > > chips! LOL! Kids, eh? wink!

> > >

> > > Seriously, unless h knows the realism about how vunerable she

> >

> > can be to

> >

> > > gravity and the laws of physics then you may want to get her a chair

> >

> > that

> >

> > > doesn't have too much torque/guts or speed until she is older.

> > >

> > > Even if you're of the belief that one learns by their mistakes it

> >

> > wouldn't be

> >

> > > a good enough validation for such a chair. As a SMA2 kid, some

of these

> > > " mistake lessons " almost killed me. A bump or scape is more like a

> >

> > break or

> >

> > > gash! Such powerful chairs maybe easy to maneuver, joystick-wise,

> >

> > but how

> >

> > > kids see their world (as an open field) may not be something

they can

> > > control.

> > >

> > > Use extreme, over-protective, parental care when deciding which

> >

> > chair to take.

> >

> > > Angie

> >

> >

> > A FEW RULES

> >

> > * The list members come from many backgrounds, ages and beliefs So all

> > members most be tolerant and respectful to all members.

> >

> > * Some adult language and topics (like sexual health, swearing..) may

> > occur occasionally in emails. Over use of inappropriate language will

> > not be allowed. If your under 16 ask your parents/gaurdian before you

> > join the list.

> >

> > * No SPAMMING or sending numerous emails unrelated to the topics of

> > spinal muscular atrophy, health, and the daily issues of the disabled.

> >

> > Post message:

> > Subscribe: -subscribe

> > Unsubscribe: -unsubscribe

> >

> > List manager: (Sexy Mature Artist) Email: Esma1999@a...

> >

> >

> >

> >

> > oogroups.com

> >

> > List manager: (Sexy Mature Artist) Email: Esma1999@a...

> >

> >

> >

> >

> >

> >

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Guest guest

I have to agree with you here. I was always asked if I

wanted a chair that could climb curbs or one that was

fast... mine was always the fast one because I wanted

to be able to run and keep up with my friends when

they were playing... not the one sitting 'on the

bench' watching everyone else have fun. I did stupid

things and I learned my lesson... but for the most

part I knew that if I did something tooo stupid it

could hurt me really bad... and I knew that at a young

age. I think it all just depends on the maturity of

your kid.

--- Kendra <kendranicole@...>

wrote:

> I absolutely disagree. Yes, children can get wild

> and out of hand.

> This is something they will have to learn to

> control, as any child.

> It's about respect and responsibility. There are

> consequences for poor

> choices and bad behavior.

>

> I loved having a wheelchair at full speed when I was

> younger. It gave

> me more freedom - I could " run " with the other kids

> and play games. I

> could tag along while they took out their bikes. I

> was able to become

> a kid with them and it allowed me to more fully

> interact with my

> peers. Yes, I was a little devil with my wheelchair.

> I took that

> sucker down hills you'd never walk, through the

> woods, and even over

> cliffs. I've fallen. I've dropped. I've skidded. I

> was hurt a few

> times, but there were punishments for my reckless

> behavior beyond

> physical wounds.

>

> You cannot make up for a personal lack of

> involvement or control as a

> parent by taking away a child's essential right to

> be just that - a

> child, mistakes and all. Children are very

> responsible when they're

> taught with proper authority and privileges. They

> are not stupid,

> irresponsible, little brats incapable of making a

> decision so

> important to their own personal growth and life

> experience.

>

> <3 Kendra

>

>

>

> > I would not want any child, say between 3 and

> 13yrs, to have an

> electric

> > wheelchair capable of " Evil Conevil maneuvers! "

> either.

> >

> > I was 11 yrs old when I got my 1st E & J 3P power

> wheelchair and I

> actually ran

> > away from home and returned because the church was

> closed and I got

> a flat

> > tire! I ran because I had a fight with my sister

> .... she ate my potato

> > chips! LOL! Kids, eh? wink!

> >

> > Seriously, unless h knows the realism about

> how vunerable she

> can be to

> > gravity and the laws of physics then you may want

> to get her a chair

> that

> > doesn't have too much torque/guts or speed until

> she is older.

> >

> > Even if you're of the belief that one learns by

> their mistakes it

> wouldn't be

> > a good enough validation for such a chair. As a

> SMA2 kid, some of these

> > " mistake lessons " almost killed me. A bump or

> scape is more like a

> break or

> > gash! Such powerful chairs maybe easy to maneuver,

> joystick-wise,

> but how

> > kids see their world (as an open field) may not be

> something they can

> > control.

> >

> > Use extreme, over-protective, parental care when

> deciding which

> chair to take.

> >

> > Angie

> >

>

>

>

>

____________________________________________________

Start your day with - make it your home page

http://www./r/hs

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yeah...i jumped little 2 " ramps with the neighborhood boys on their bmx

bicycles, played tag and hide-n-seek, ran through sprinklers, played dodge ball

(always got nailed first...lol), trekked around the perimeter of a cornfield to

get to the shopping mall, and towed my younger sister and brother around on

roller skates and skateboards. what a blast! during those moments i felt like

a " normal " kid with a cool toy. when i banged my knees, scraped elbows and very

rarely tipped, i learned to be careful and bragged about my wounds with the

other kids. when i ran their toes over they got pissed amd ribbed me for being

a sucky driver, so i paid more attention.

i've worked with a lot of disabled adults who came from over-protective

environments. they often don't do so well living independently, lacking

confidence and being afraid to make mistakes.

I second Kendra's comments! My brothers and I were little terrors in our

chairs sometimes. We got hurt on occassion. But no regrets! We both lived, just

like every other kid that sometimes fell off their bike. :)

-e

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Guest guest

Well that is interesting.

I've lived 24yrs with parents who showed their protectiveness in such ways

that you despise ... hm?

Their RULEs led me to learn just how to make and set my own RULES ... and as a

child, I was oblivious to how my parents " worked " . To me, it was love. By

example my parents set RULES which shaped me. Never once did it stop me from

being who I am. That inner part of child rearing manifested itself as

creativeness, imagination, curiousity and a wee bit of retaliation and

rambunctiousness. Parents should set limits for their children that are age

approbriate ... Dr. Phil says so, wink! Parents are a child's safeguard until

their own minds can make the " calls " themselves. The trick is knowing when

that time is right.

I don't view the w/c components as safety features. It's the overall

sturdiness or ruggedness of the w/c and how it handles that should be

safety-tested better. For example, the motors on my w/c will automatically

kick in more torque/power when faced with inclines or rough terrain without

throwing my joystick any further ahead; like when they were more mechanical

if on rough ground a bump meant I had to push my joystick ahead more (to give

it more gas) and back off when I felt the chair's frame lunge forward. In

this w/c, I am over compensating all the time no matter how it's programmed!

I suppose if I was a car driver, I'd want my standard versus an automatic

transmission. I've unknowingly ran over purses, shoes, feet, hanger-posts

because I'd be slightly moving the joystick, at a creepy, crawly speed and

the frame, not flexing, with the motors silently " kicking " in makes me lose

my balance, hear someone say OW, scared by a snap! or dumped on by a clothes

rack! All because this w/c's safety feature suck! It's not safe to have

" intelligent " motors ..... I'd say let the driver drive the chair, not the

chair drive the driver.

Angie

On 2005.08.05 13:19, Kendra wrote:

> I don't believe a chair should have limits. It's not up to a parent to

> limit their child's freedom when it comes to something such as

> mobility. All chairs, by default, have safety features she needs to be

> taught to use properly such as seatbelts, speed controls and footrests.

>

> Limiting the speed of a wheelchair at manufacture because a parent

> does not want to have to worry about their child running away or being

> reckless is not right. There are ways to control a child and make her

> safe without actually taking away or limiting what little power they

> have. You set rules and boundaries over your child's behavior by

> influencing them and giving them choices - some with benefits and

> others with consequences - NOT by offering them only one thing and

> saying oh well with it. Children need to be able to make their own

> choices with guidance. It's part of growing up. Give her speed and set

> rules. She will grow into it, yes. This is when you expand THE RULES

> and HER RIGHTS. She'll loathe her chair and her life if you don't get

> one with speed to accommodate being a child (or human) until she's older.

>

> Being OVER-protective is not good for children's personal or social

> growth.

>

> <3 Kendra

>

>

> > > > I would not want any child, say between 3 and 13yrs, to have an

> > >

> > > electric

> > >

> > > > wheelchair capable of " Evil Conevil maneuvers! " either.

> > > >

> > > > I was 11 yrs old when I got my 1st E & J 3P power wheelchair and I

> > >

> > > actually ran

> > >

> > > > away from home and returned because the church was closed and I got

> > >

> > > a flat

> > >

> > > > tire! I ran because I had a fight with my sister .... she ate my

>

> potato

>

> > > > chips! LOL! Kids, eh? wink!

> > > >

> > > > Seriously, unless h knows the realism about how vunerable she

> > >

> > > can be to

> > >

> > > > gravity and the laws of physics then you may want to get her a chair

> > >

> > > that

> > >

> > > > doesn't have too much torque/guts or speed until she is older.

> > > >

> > > > Even if you're of the belief that one learns by their mistakes it

> > >

> > > wouldn't be

> > >

> > > > a good enough validation for such a chair. As a SMA2 kid, some

>

> of these

>

> > > > " mistake lessons " almost killed me. A bump or scape is more like a

> > >

> > > break or

> > >

> > > > gash! Such powerful chairs maybe easy to maneuver, joystick-wise,

> > >

> > > but how

> > >

> > > > kids see their world (as an open field) may not be something

>

> they can

>

> > > > control.

> > > >

> > > > Use extreme, over-protective, parental care when deciding which

> > >

> > > chair to take.

> > >

> > > > Angie

> > >

> > > A FEW RULES

> > >

> > > * The list members come from many backgrounds, ages and beliefs So all

> > > members most be tolerant and respectful to all members.

> > >

> > > * Some adult language and topics (like sexual health, swearing..) may

> > > occur occasionally in emails. Over use of inappropriate language will

> > > not be allowed. If your under 16 ask your parents/gaurdian before you

> > > join the list.

> > >

> > > * No SPAMMING or sending numerous emails unrelated to the topics of

> > > spinal muscular atrophy, health, and the daily issues of the disabled.

> > >

> > > Post message:

> > > Subscribe: -subscribe

> > > Unsubscribe: -unsubscribe

> > >

> > > List manager: (Sexy Mature Artist) Email: Esma1999@a...

> > >

> > >

> > >

> > >

> > > oogroups.com

> > >

> > > List manager: (Sexy Mature Artist) Email: Esma1999@a...

> > >

> > >

> > >

> > >

> > >

> > >

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Guest guest

Bingo! , I agree - " I think it all just depends on the maturity of

your kid. "

Had I come to that point first then the chair limits I would have avoided this

whole mess.

Angie

On 2005.08.05 13:35, *~~* wrote:

> I have to agree with you here. I was always asked if I

> wanted a chair that could climb curbs or one that was

> fast... mine was always the fast one because I wanted

> to be able to run and keep up with my friends when

> they were playing... not the one sitting 'on the

> bench' watching everyone else have fun. I did stupid

> things and I learned my lesson... but for the most

> part I knew that if I did something tooo stupid it

> could hurt me really bad... and I knew that at a young

> age. I think it all just depends on the maturity of

> your kid.

>

> --- Kendra <kendranicole@...>

>

> wrote:

> > I absolutely disagree. Yes, children can get wild

> > and out of hand.

> > This is something they will have to learn to

> > control, as any child.

> > It's about respect and responsibility. There are

> > consequences for poor

> > choices and bad behavior.

> >

> > I loved having a wheelchair at full speed when I was

> > younger. It gave

> > me more freedom - I could " run " with the other kids

> > and play games. I

> > could tag along while they took out their bikes. I

> > was able to become

> > a kid with them and it allowed me to more fully

> > interact with my

> > peers. Yes, I was a little devil with my wheelchair.

> > I took that

> > sucker down hills you'd never walk, through the

> > woods, and even over

> > cliffs. I've fallen. I've dropped. I've skidded. I

> > was hurt a few

> > times, but there were punishments for my reckless

> > behavior beyond

> > physical wounds.

> >

> > You cannot make up for a personal lack of

> > involvement or control as a

> > parent by taking away a child's essential right to

> > be just that - a

> > child, mistakes and all. Children are very

> > responsible when they're

> > taught with proper authority and privileges. They

> > are not stupid,

> > irresponsible, little brats incapable of making a

> > decision so

> > important to their own personal growth and life

> > experience.

> >

> > <3 Kendra

> >

> >

> >

> > > I would not want any child, say between 3 and

> >

> > 13yrs, to have an

> > electric

> >

> > > wheelchair capable of " Evil Conevil maneuvers! "

> >

> > either.

> >

> > > I was 11 yrs old when I got my 1st E & J 3P power

> >

> > wheelchair and I

> > actually ran

> >

> > > away from home and returned because the church was

> >

> > closed and I got

> > a flat

> >

> > > tire! I ran because I had a fight with my sister

> >

> > .... she ate my potato

> >

> > > chips! LOL! Kids, eh? wink!

> > >

> > > Seriously, unless h knows the realism about

> >

> > how vunerable she

> > can be to

> >

> > > gravity and the laws of physics then you may want

> >

> > to get her a chair

> > that

> >

> > > doesn't have too much torque/guts or speed until

> >

> > she is older.

> >

> > > Even if you're of the belief that one learns by

> >

> > their mistakes it

> > wouldn't be

> >

> > > a good enough validation for such a chair. As a

> >

> > SMA2 kid, some of these

> >

> > > " mistake lessons " almost killed me. A bump or

> >

> > scape is more like a

> > break or

> >

> > > gash! Such powerful chairs maybe easy to maneuver,

> >

> > joystick-wise,

> > but how

> >

> > > kids see their world (as an open field) may not be

> >

> > something they can

> >

> > > control.

> > >

> > > Use extreme, over-protective, parental care when

> >

> > deciding which

> > chair to take.

> >

> > > Angie

>

> ____________________________________________________

> Start your day with - make it your home page

> http://www./r/hs

>

>

>

>

> A FEW RULES

>

> * The list members come from many backgrounds, ages and beliefs So all

> members most be tolerant and respectful to all members.

>

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Maybe too, if you all knew that my 1st power w/c was 1975 you'd understand why

my parents were cautious, hm? The first electric w/c, in Canada, was in 1968.

Today's stuff is far more advanced and they're shaping them to fit kids

better. Now my cautious approach may not be necessary anymore, eh?

Angie

On 2005.08.05 13:40, PurplGurl3@... wrote:

> As far as I can tell, my parents' view was basically like Kendra's saying.

> They wanted me to have a wheelchair that gave me as much freedom as

> possible. Then I had to learn how to use it responsibly. When I got my

> first power chair at 6 years old, I could only use it to play in the

> backyard while I was learning how to drive it. After getting used to it, it

> quickly became my full-time chair. I remember the vendors always asking my

> parents when we got new chairs if they should set the speed down, even

> temporarily. My parents always laughed and said no, they knew how much we'd

> hate that! My brother and I loved to push the limits a little with our

> chairs, but we knew just how far they could be pushed. Our parents trusted

> us not to do anything really dangerous.

>

> -e

>

> In a message dated 8/5/2005 11:01:37 AM Mountain Daylight Time,

>

> angie@... writes:

> > I'd like to know what you're parent's view was at that time?

> >

> > My parent's told me later on, say around 16yrs of age, that they curbed

> > my choices and so when I thought I had the best-of-the-best, I chose the

> > best-of-their-best and just drove it like a demon too.

> >

> > When it became my ultimate decision/choice, I researched every make and

> > model

> > for optimal speed and durance. I was an outdorsey girl into horses,

> > hockey, cars, camping and road trips that my w/c always had spunk.

> >

> > I am by no means, a woman who would stiffle a kids spirit or endorse

> > idealisms

> > that SMA kids shouldn't be allowed to " run " . All I said to a parent to do

> > what makes them comfy by echoing back to them some of their concerms in

> > ways

> >

> > that will satisfy both Mommy & Daddy and the kids.

> >

> > I am sure, no parent would buy their kid an offroad dirt bike if they

> > never rode even a tricycle? Assuring that the w/c can grow with the

> > child's physical side is top priority for the parent's. What the chair is

> > capable of

> >

> > is also their domain, but how the kid uses it is all up to them.

> >

> > Angie

>

>

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Rules are good, Angie. I've been saying that all along. I just think

you need to TELL your kid the rules and enforce them. Limiting the

chair, whether they know it or not, it's going to let a child grow and

learn completely.

Cars are made to go extremely fast - well beyond what is necessary or

legal. But we have laws and they're enforced. When you're caught

breaking them, you have consequences.

If you never give kids a chance to break the rules, they aren't going

to learn boundaries very quickly. A wheelchair should not be used as a

semi-babysitter or something to hold a kid back from the limit you

want them to go. They're not going to understand where the limit is if

it's top speed if you've turned it down and aren't really letting them

go top speed. They're also going to associate the wheelchair with

immobility or lack of mobile control.

Really now, how's she going to ever win a game of tag?

<3 Kendra

> Maybe too, if you all knew that my 1st power w/c was 1975 you'd

understand why

> my parents were cautious, hm? The first electric w/c, in Canada, was

in 1968.

>

> Today's stuff is far more advanced and they're shaping them to fit kids

> better. Now my cautious approach may not be necessary anymore, eh?

>

> Angie

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*LOL* Isn't it crazy how badly e-mails can be misunderstood? Anyway, Angie I

know you have h's best interest in mind so don't worry there. When I say she

is a cautious child I mean that she is great about staying away from curbs,

hills she knows she can't handle, big bumps etc. She LOVES speed though. Her

only regret about this chair is that it won't do 12 mph *LOL* I love that she

knows her physical limits and understands how her body works. I wish I'd been

that aware of myself at 9 (or 13 or 16!).

Hugs

Jeni

Angie <angie@...> wrote:

Holy crap! I believe you mistook my words Kendra!

Sure, kids will be kids and even I was a " dare devil " , but then maybe's that's

because I had more physical proweress to handle it. It's my understanding

that h can be sometimes timid. No one should push a child into something

they might not want to do. All I said was to be " a parent " and maybe over

emphazied to be " extremely, over-protective " in a " parental " way because most

parents are by default and I didn't think it would hurt to let her know it's

okay to be that way.

What you've said is great too, from a kid's perspective which I have similar

recollections of too, so not too worry.

Even now I am in an electric wheelchair by Invacare which runs at 8mph only

because I am a light weight rider. I adore speed and sturdiness myself. Maybe

I felt the age range was good because all any of us have to draw upon are our

own experiences and for me, I was 11yrs old. I think h is 9, and read she

is a cautious child anyhow.

Neither you, me or anyone can tell h how to " run " . Offering a few words of

caution won't kill her either. Besides, I was referring to the wheelchair,

not h. So maybe now I have cleared this whole misunderstanding?

It's the chair that may need some " limits " applied just to minimize the

potential exposure to serious injury. This will enable h to grow into her

comfort zone better with her wheelchair's abilities and her personal

desires/wishes. Her chair will be her " legs " and she will figure out how far

she wants to " run " .

Angie

On 2005.08.05 12:23, Kendra wrote:

> I absolutely disagree. Yes, children can get wild and out of hand.

> This is something they will have to learn to control, as any child.

> It's about respect and responsibility. There are consequences for poor

> choices and bad behavior.

>

> I loved having a wheelchair at full speed when I was younger. It gave

> me more freedom - I could " run " with the other kids and play games. I

> could tag along while they took out their bikes. I was able to become

> a kid with them and it allowed me to more fully interact with my

> peers. Yes, I was a little devil with my wheelchair. I took that

> sucker down hills you'd never walk, through the woods, and even over

> cliffs. I've fallen. I've dropped. I've skidded. I was hurt a few

> times, but there were punishments for my reckless behavior beyond

> physical wounds.

>

> You cannot make up for a personal lack of involvement or control as a

> parent by taking away a child's essential right to be just that - a

> child, mistakes and all. Children are very responsible when they're

> taught with proper authority and privileges. They are not stupid,

> irresponsible, little brats incapable of making a decision so

> important to their own personal growth and life experience.

>

> <3 Kendra

>

>

> > I would not want any child, say between 3 and 13yrs, to have an

>

> electric

>

> > wheelchair capable of " Evil Conevil maneuvers! " either.

> >

> > I was 11 yrs old when I got my 1st E & J 3P power wheelchair and I

>

> actually ran

>

> > away from home and returned because the church was closed and I got

>

> a flat

>

> > tire! I ran because I had a fight with my sister .... she ate my potato

> > chips! LOL! Kids, eh? wink!

> >

> > Seriously, unless h knows the realism about how vunerable she

>

> can be to

>

> > gravity and the laws of physics then you may want to get her a chair

>

> that

>

> > doesn't have too much torque/guts or speed until she is older.

> >

> > Even if you're of the belief that one learns by their mistakes it

>

> wouldn't be

>

> > a good enough validation for such a chair. As a SMA2 kid, some of these

> > " mistake lessons " almost killed me. A bump or scape is more like a

>

> break or

>

> > gash! Such powerful chairs maybe easy to maneuver, joystick-wise,

>

> but how

>

> > kids see their world (as an open field) may not be something they can

> > control.

> >

> > Use extreme, over-protective, parental care when deciding which

>

> chair to take.

>

> > Angie

>

>

> A FEW RULES

>

> * The list members come from many backgrounds, ages and beliefs So all

> members most be tolerant and respectful to all members.

>

> * Some adult language and topics (like sexual health, swearing..) may

> occur occasionally in emails. Over use of inappropriate language will

> not be allowed. If your under 16 ask your parents/gaurdian before you

> join the list.

>

> * No SPAMMING or sending numerous emails unrelated to the topics of

> spinal muscular atrophy, health, and the daily issues of the disabled.

>

> Post message:

> Subscribe: -subscribe

> Unsubscribe: -unsubscribe

>

> List manager: (Sexy Mature Artist) Email: Esma1999@...

>

>

>

>

> oogroups.com

>

> List manager: (Sexy Mature Artist) Email: Esma1999@...

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